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HI all, just heard from allison....Boy...Doctors are such jerks. She saw an

on call dr. Did do the xray and it showed nothing but the dr said Makeila's

throat was REALLY red and she had a fever. BUT She refused to to a strep

test....Makeila has had strep 2 times in 6 weeks. She said it would be a

waste of time.. said " So waste my time " She still wouldn't do it.

She also wouldn't up her seizure med. She is suppose to whenever she is

sick. So... Nothing was done tonight. She told her to give her some

tylenol.. knows she will be right back there tomorrow. She is also

reporting the dr. Could have all been handled tonight. If Makeila does need

antibiotics she would be better by Tues and could go to work and

Makeila to school. With the seizures, she has to be so careful when she gets

sick. The illness causes seizures and so do the antibiotics, so the meds

need adjusting. The dr wouldn't even check her blood test results to see

what her levels were from the test she took yesterday, so we don't even know

it the dose of meds is right yet. Geez.......!!!! I'm so frustrated today...

think I'll eat and take 2 xanax and go to bed..LOL

Hugs

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Hi ,

I know how frustrating it is to take the little ones to the doctor and they

do nothing. We went through the same things with and Jina.

I have found a knot (large bump, the size of maybe a quarter) on the back of

my head sort of behind my left ear. That was last night and it is a little

bigger today and it is sore to touch. My daughter said it could be a boil

coming up or a cyst. Sometimes it hurts whether I am touching it or not.

Then, this evening I noticed that my left ear began to hurt inside, just

like my ears hurt me when I had my very first flare a year ago. I know that

if I do come down with a flare, I should find a doctor (usually on a

weekend, isn't it!). I sure do not want to have to go back on Prednisone,

not even a little bit.

Well, I had better close for now and get to bed. You take care and remember

that I love you and you are always in my thoughts.

Love and Prayers, Lucy

Update on Makeila

> HI all, just heard from allison....Boy...Doctors are such jerks. She saw

an

> on call dr. Did do the xray and it showed nothing but the dr said

Makeila's

> throat was REALLY red and she had a fever. BUT She refused to to a strep

> test....Makeila has had strep 2 times in 6 weeks. She said it would be a

> waste of time.. said " So waste my time " She still wouldn't do it.

> She also wouldn't up her seizure med. She is suppose to whenever she is

> sick. So... Nothing was done tonight. She told her to give her some

> tylenol.. knows she will be right back there tomorrow. She is

also

> reporting the dr. Could have all been handled tonight. If Makeila does

need

> antibiotics she would be better by Tues and could go to work and

> Makeila to school. With the seizures, she has to be so careful when she

gets

> sick. The illness causes seizures and so do the antibiotics, so the meds

> need adjusting. The dr wouldn't even check her blood test results to see

> what her levels were from the test she took yesterday, so we don't even

know

> it the dose of meds is right yet. Geez.......!!!! I'm so frustrated

today...

> think I'll eat and take 2 xanax and go to bed..LOL

>

> Hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

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Dawn and Lucy, thanks for all of your thoughts and prayers.... Yes

is reporting the doctor. AND having it written in her chart that she NEver

want to see her again.

Makeila is doing better this morning. Hopefully she will continue and there

will be no more trips to the hospital or doctors. I'm really tired of

them.LOL

Lucy, you had better be careful of the bump. I had one behind my ear and it

abcessed and boy was I in trouble. If it continues to get bigger get to the

dr. You might need antibiotics. They had to lance mine and I was sick for 6

weeks because of the infection. Please be careful...PROMISE ME you won't

wait too long like you usually do!LOL

Dawn, I hope your flare is better today. BoyI can sympathize with you.

Sounds like we are flaring in the same places, ears, ribs, nose, throat. You

really should check into being on something else besides pred. AND you do

need something for your stomach. You don't need to have that problem on top

of everything else. The dose of pred you are on should be controling your

flares better. Please see your dr.

I thank all of you for being a special part of my family. Believe me Dawn,

this is one special group. We become so close that we are family. I'm glad

that you are part of it.

Love you all

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This is a terrible spot to be in. Sometimes I would

like to just haul off and put my foot right up a Dr.'

Butt so far they would have to have it surgicaly

removed. Especialy where kids are concerned. Your

daughter should report this Dr. because no one should

be allowed to suffer in any way at all. And if the

dr. did this once you know it will happen again.

Sure hope they find some relief somewhere. Please

know that you are in my thoughts and prayers and i

feel so bad for you all. You take care of yourself

and your kids and know that i love you all much.

dawn

--- Lucy L10@...> wrote:

> Hi ,

>

> I know how frustrating it is to take the little ones

> to the doctor and they

> do nothing. We went through the same things with

> and Jina.

>

> I have found a knot (large bump, the size of maybe a

> quarter) on the back of

> my head sort of behind my left ear. That was last

> night and it is a little

> bigger today and it is sore to touch. My daughter

> said it could be a boil

> coming up or a cyst. Sometimes it hurts whether I

> am touching it or not.

> Then, this evening I noticed that my left ear began

> to hurt inside, just

> like my ears hurt me when I had my very first flare

> a year ago. I know that

> if I do come down with a flare, I should find a

> doctor (usually on a

> weekend, isn't it!). I sure do not want to have to

> go back on Prednisone,

> not even a little bit.

>

> Well, I had better close for now and get to bed.

> You take care and remember

> that I love you and you are always in my thoughts.

>

> Love and Prayers, Lucy

> Update on Makeila

>

>

> > HI all, just heard from allison....Boy...Doctors

> are such jerks. She saw

> an

> > on call dr. Did do the xray and it showed nothing

> but the dr said

> Makeila's

> > throat was REALLY red and she had a fever. BUT She

> refused to to a strep

> > test....Makeila has had strep 2 times in 6 weeks.

> She said it would be a

> > waste of time.. said " So waste my time "

> She still wouldn't do it.

> > She also wouldn't up her seizure med. She is

> suppose to whenever she is

> > sick. So... Nothing was done tonight. She told

> her to give her some

> > tylenol.. knows she will be right back

> there tomorrow. She is

> also

> > reporting the dr. Could have all been handled

> tonight. If Makeila does

> need

> > antibiotics she would be better by Tues and

> could go to work and

> > Makeila to school. With the seizures, she has to

> be so careful when she

> gets

> > sick. The illness causes seizures and so do the

> antibiotics, so the meds

> > need adjusting. The dr wouldn't even check her

> blood test results to see

> > what her levels were from the test she took

> yesterday, so we don't even

> know

> > it the dose of meds is right yet. Geez.......!!!!

> I'm so frustrated

> today...

> > think I'll eat and take 2 xanax and go to bed..LOL

> >

> > Hugs

> >

> >

> >

> > DISCLAIMER!!

> > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY

> INFORMATION THAT IS

> RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE

> CONSULT WITH YOUR DOCTOR

> BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT

> A SUBSTITUTE FOR YOUR

> PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER

> EVERYONE IS DIFFERENT AND

> TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

> >

>

>

__________________________________________________

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,

Hope Makeila is doing better today. You're right, some doctors

can be such jerks.

A few years ago my youngest daughter who has Asthma was having trouble

breathing so we took her to the E.R.

They did an xray and gave her a breathing treatment, then said she was fine

and sent her home. The next morning she was in resp. distress so we rushed

her back to the hospital. We found out that the doc. never looked at the

xray. My daughter had pnuemonia

and had to be admitted. I was furious. This is our local hospital but we

won't use it anymore.

Love Ya,

Sandy

----- Original Message -----

> HI all, just heard from allison....Boy...Doctors are such jerks. She saw

an

> on call dr. Did do the xray and it showed nothing but the dr said

Makeila's

> throat was REALLY red and she had a fever. BUT She refused to to a strep

> test....Makeila has had strep 2 times in 6 weeks. She said it would be a

> waste of time.. said " So waste my time " She still wouldn't do it.

> She also wouldn't up her seizure med. She is suppose to whenever she is

> sick. So... Nothing was done tonight. She told her to give her some

> tylenol.. knows she will be right back there tomorrow. She is

also

> reporting the dr. Could have all been handled tonight. If Makeila does

need

> antibiotics she would be better by Tues and could go to work and

> Makeila to school. With the seizures, she has to be so careful when she

gets

> sick. The illness causes seizures and so do the antibiotics, so the meds

> need adjusting. The dr wouldn't even check her blood test results to see

> what her levels were from the test she took yesterday, so we don't even

know

> it the dose of meds is right yet. Geez.......!!!! I'm so frustrated

today...

> think I'll eat and take 2 xanax and go to bed..LOL

>

> Hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

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Sandy, thanks for the encouragement. Seems everything is good today. How is

everything at your house? Are you doing okay? How's ?

Glad to hear that I'm not the only one the runs into jerks for doctors.LOL

Guess there are quite a few of them and at least they are spread equally

around the US. lOL

HOpe you are doing okay.

Hugs & prayers

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,

Been busy at my house, had a birthday part for one of my daughters

yesterday. Next weekend having a party for my husband's birthday. that will

be 3 Birthday's down and one more to go this month. Been sewing like crazy

making presents.

I'm doing okay.I've had terrible mood swings and forgetfulness, don't know

if it is the Cyclosporine.

is doing okay, her mood is positive which I am thankful for. She's

gaining weight from the steroids which does not make her happy, but I can

relate to that. LOL

Love Ya,

Sandy

> Sandy, thanks for the encouragement. Seems everything is good today. How

is

> everything at your house? Are you doing okay? How's ?

>

> Glad to hear that I'm not the only one the runs into jerks for doctors.LOL

> Guess there are quite a few of them and at least they are spread equally

> around the US. lOL

>

> HOpe you are doing okay.

>

> Hugs & prayers

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

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, I'm sure everyone is outraged at the callous treatment by the

doctor. That is unconscionable (sp). I have a seizure disorder and I know

first hand how frightening they are...especially to a child! (Actually they

are more frightening to the witnesses than the patient.) What's next? Does

your daughter (?) have a regular doctor to see? She needs to contact

that hospitals' Board of Ethics " and file a complaint. There has to be

someone who can treat Makeila. Strept is very serious, as I am sure you

know, but no matter how serrious it may be it will never keep a mother (or

grandmother) away from a sick child. Hang in there and God Bless. Another

addition to the Prayer List. LOL, Judy O

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, I'm sure everyone is outraged at the callous treatment by the

doctor. That is unconscionable (sp). I have a seizure disorder and I know

first hand how frightening they are...especially to a child! (Actually they

are more frightening to the witnesses than the patient.) What's next? Does

your daughter (?) have a regular doctor to see? She needs to contact

that hospitals' Board of Ethics " and file a complaint. There has to be

someone who can treat Makeila. Strept is very serious, as I am sure you

know, but no matter how serrious it may be it will never keep a mother (or

grandmother) away from a sick child. Hang in there and God Bless. Another

addition to the Prayer List. LOL, Judy O

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Share on other sites

, I'm sure everyone is outraged at the callous treatment by the

doctor. That is unconscionable (sp). I have a seizure disorder and I know

first hand how frightening they are...especially to a child! (Actually they

are more frightening to the witnesses than the patient.) What's next? Does

your daughter (?) have a regular doctor to see? She needs to contact

that hospitals' Board of Ethics " and file a complaint. There has to be

someone who can treat Makeila. Strept is very serious, as I am sure you

know, but no matter how serrious it may be it will never keep a mother (or

grandmother) away from a sick child. Hang in there and God Bless. Another

addition to the Prayer List. LOL, Judy O

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