Parkinson's Foundation - Aletta

[Guest guest]

I find this quite disturbing Aletta. They should know that Shy-Drager is a

Parkinson Plus disorder. The ones I've been in contact with in the

Maritimes know about it. I'm going to write to the national office.

You said:

>Also, just to note, when I had a probable diagnosis I contacted the

>Parkinson's Foundation in Vancouver, who told me they had never heard of

>Shy-Drager and could offer me no help or information.

[Guest guest]

I found this on their website so the National office is certainly aware of

Shy-Drager, that's a relief. They need to do a better job in educating

their staff though.

http://www.parkinson.ca/pd/nd_cond.html

Parkinson's Foundation - Aletta

> I find this quite disturbing Aletta. They should know that Shy-Drager is

a

> Parkinson Plus disorder. The ones I've been in contact with in the

> Maritimes know about it. I'm going to write to the national office.

>

> You said:

> >Also, just to note, when I had a probable diagnosis I contacted the

> >Parkinson's Foundation in Vancouver, who told me they had never heard of

> >Shy-Drager and could offer me no help or information.

>

>

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