Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 Let me start by saying I'm so glad I came across this group! My son was just diagnosed with positional plagiocephaly and it's been very overwhelming and emotional for me. Anyway, my son is getting his helmet next week. Does anyone have advice on how to handle questions, comments, stares, etc? Any advice would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Smile, explain, and get used to it :-) I think your child mostly picks up on how you react to things, so be very positive with him. As for others you can ignore them or engage them. Most people are very nice, a few are rude, but not many. Some are curious, and others will just think your son is cute. Many people put their child's name on the band in stickers so it is an icebreaker. You'll find people saying " Hi Gavin... " , that seems to help. at first you'll probably be self-conscious going out, but you'll probably forget the band is there pretty quickly. -christine sydney 2 yrs starband grad > > Let me start by saying I'm so glad I came across this group! My son > was just diagnosed with positional plagiocephaly and it's been very > overwhelming and emotional for me. Anyway, my son is getting his > helmet next week. Does anyone have advice on how to handle questions, > comments, stares, etc? Any advice would be great. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 I have found that people stare, but they also approach us more often and ask questions. If they don't ask, but i can tell they want to know, I explain her situation to them. I look at it as an opportunity to educate people about plagiocephaly. After the first day or so, you will think your little boy looks so darn cute that you won't even worry about people looking at him. Visit a scrapbooking store and buy some stickers. Get his name or a cute saying on the front, and you will be amazed at how many people comment on how handsome he is, and no one in church will forget his name again! The breaking in period will be good for you, as well. It will give you the opportunity to get used to it before making big public appearances. Also, it is pretty tough on moms to have their baby's head covered up with thick plastic (makes it difficult to apply kisses), so knowing that it is only for an hour or two takes the sting away a little bit. However, I have never been embarrassed about taking my daughter out into the world. I think of her helmet as an accessory! I have even had people ask me where I bought it (like it is something that can be picked up from Wal-Mart). Ha! Good Luck, (Wichita, KS)"kelly.soder" <kelly.soder@...> wrote: Let me start by saying I'm so glad I came across this group! My son was just diagnosed with positional plagiocephaly and it's been very overwhelming and emotional for me. Anyway, my son is getting his helmet next week. Does anyone have advice on how to handle questions, comments, stares, etc? Any advice would be great. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Congratulations on making the decision to band your son! It is very hard to make that decision. I remember after we decided to band our daughter, I felt the same way. I was so worried about what people would say, if they would stare, or if they would just be plain rude. My husband decorated our daughter's band, and when we would go out, people would comment about how cute it was and how cute she was. They would ask about the band and I was more than happy to let them know exactly what it was for! It really isn't as bad as you think it will be, at least it wasn't for me. Just keep smiling and have a great attitude. You may even run into some people who know what it is and they may even know someone who had one! Good luck! This board is amazing!! Toni Mom to Amelia, 10 1/2 months, DOC Band grad 2/21/08 Killeen, Texas New member...new helmet Let me start by saying I'm so glad I came across this group! My son was just diagnosed with positional plagiocephaly and it's been very overwhelming and emotional for me. Anyway, my son is getting his helmet next week. Does anyone have advice on how to handle questions, comments, stares, etc? Any advice would be great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 My son Jaxson is 9 months now and has been in his helmet for 7 weeks. I too was extremely nervous about what people would think. But I just had to realize that I was doing the best thing for him and if people wanted to stare or ask questions, that that would be o.k. Now whenever we go out I am SO PROUD to show him off. I think he looks so cute in his helmet! Good luck and remember to hold your head high when you take your son out because you are doing the best thing for him and it will be over before you know it !! > Let me start by saying I'm so glad I came across this group! My son > was just diagnosed with positional plagiocephaly and it's been very > overwhelming and emotional for me. Anyway, my son is getting his > helmet next week. Does anyone have advice on how to handle questions, > comments, stares, etc? Any advice would be great. > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I am also a new member and a mom who is about to get a band for her son in two weeks. I to am worried about what people will say or think. Thank you for all the kind words of support, it is so nice to know there are others with the same issues. Good luck with your band. Jack's (11months) mom Jenni > > Congratulations on making the decision to band your son! It is very hard to make that decision. I remember after we decided to band our daughter, I felt the same way. I was so worried about what people would say, if they would stare, or if they would just be plain rude. My husband decorated our daughter's band, and when we would go out, people would comment about how cute it was and how cute she was. They would ask about the band and I was more than happy to let them know exactly what it was for! It really isn't as bad as you think it will be, at least it wasn't for me. Just keep smiling and have a great attitude. You may even run into some people who know what it is and they may even know someone who had one! Good luck! This board is amazing!! > > Toni > Mom to Amelia, 10 1/2 months, DOC Band grad 2/21/08 > Killeen, Texas > > > New member...new helmet > > > Let me start by saying I'm so glad I came across this group! My son > was just diagnosed with positional plagiocephaly and it's been very > overwhelming and emotional for me. Anyway, my son is getting his > helmet next week. Does anyone have advice on how to handle questions, > comments, stares, etc? Any advice would be great. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I really worried about what people would think when we had my son banded 3 years ago and most people just paid more attention to him than I think they normally would have. We would constantly have people tell us how cute he was. We even had someone buy our dinner at a resturant which kind of irked me a bit. My daughter is 5 mo. now and got her helmet 3 weeks ago as well, I just had her at my son's swim lesson Sat. and I'm not even kidding, about 20 people came up and told me how cute she was and how cute her helmet is. So it's not so bad. I also ordered a couple cute bibs off a web site someone from here suggested, it's cafepress.com. Very cute things with plagio sayings on them. > > > > Congratulations on making the decision to band your son! It is > very hard to make that decision. I remember after we decided to band > our daughter, I felt the same way. I was so worried about what > people would say, if they would stare, or if they would just be plain > rude. My husband decorated our daughter's band, and when we would go > out, people would comment about how cute it was and how cute she > was. They would ask about the band and I was more than happy to let > them know exactly what it was for! It really isn't as bad as you > think it will be, at least it wasn't for me. Just keep smiling and > have a great attitude. You may even run into some people who know > what it is and they may even know someone who had one! Good luck! > This board is amazing!! > > > > Toni > > Mom to Amelia, 10 1/2 months, DOC Band grad 2/21/08 > > Killeen, Texas > > > > > > New member...new helmet > > > > > > Let me start by saying I'm so glad I came across this group! My > son > > was just diagnosed with positional plagiocephaly and it's been > very > > overwhelming and emotional for me. Anyway, my son is getting his > > helmet next week. Does anyone have advice on how to handle > questions, > > comments, stares, etc? Any advice would be great. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Thank you everyone for the advice. After reading all the comments posted, I feel much better about our decision to get his helmet. Actually, I'm eager to get it started. He gets it tomorrow and I'll definately post photos. > > > > > > Congratulations on making the decision to band your son! It is > > very hard to make that decision. I remember after we decided to > band > > our daughter, I felt the same way. I was so worried about what > > people would say, if they would stare, or if they would just be > plain > > rude. My husband decorated our daughter's band, and when we would > go > > out, people would comment about how cute it was and how cute she > > was. They would ask about the band and I was more than happy to > let > > them know exactly what it was for! It really isn't as bad as you > > think it will be, at least it wasn't for me. Just keep smiling and > > have a great attitude. You may even run into some people who know > > what it is and they may even know someone who had one! Good > luck! > > This board is amazing!! > > > > > > Toni > > > Mom to Amelia, 10 1/2 months, DOC Band grad 2/21/08 > > > Killeen, Texas > > > > > > > > > New member...new helmet > > > > > > > > > Let me start by saying I'm so glad I came across this group! > My > > son > > > was just diagnosed with positional plagiocephaly and it's been > > very > > > overwhelming and emotional for me. Anyway, my son is getting > his > > > helmet next week. Does anyone have advice on how to handle > > questions, > > > comments, stares, etc? Any advice would be great. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Thank you to whomever it was that posted the info on the shirts and bigs and all. I am going to have to get a onsie or something. I am not too concerned with the looks we might get (because I know that we are doing the best thing for Anabel.) I don't want people feel sorry for her though....even my mom says " Poor Anabel " ....I say why Poor Anabel...she doesn't seem to mind and won't ever remember it...not to mention that it will help with self esteem issues in the long run (possibly). The only ppl to see her so far is in her daycare, but they know the issues behind it and they think she looks so adorable in it. THe other children in her room at daycare admire it and have to touch it....maybe that will fade....and won't bother her so much. Kerica > > > > > > Congratulations on making the decision to band your son! It is > > very hard to make that decision. I remember after we decided to > band > > our daughter, I felt the same way. I was so worried about what > > people would say, if they would stare, or if they would just be > plain > > rude. My husband decorated our daughter's band, and when we would > go > > out, people would comment about how cute it was and how cute she > > was. They would ask about the band and I was more than happy to > let > > them know exactly what it was for! It really isn't as bad as you > > think it will be, at least it wasn't for me. Just keep smiling and > > have a great attitude. You may even run into some people who know > > what it is and they may even know someone who had one! Good > luck! > > This board is amazing!! > > > > > > Toni > > > Mom to Amelia, 10 1/2 months, DOC Band grad 2/21/08 > > > Killeen, Texas > > > > > > > > > New member...new helmet > > > > > > > > > Let me start by saying I'm so glad I came across this group! > My > > son > > > was just diagnosed with positional plagiocephaly and it's been > > very > > > overwhelming and emotional for me. Anyway, my son is getting > his > > > helmet next week. Does anyone have advice on how to handle > > questions, > > > comments, stares, etc? Any advice would be great. > > > > > > Quote Link to comment Share on other sites More sharing options...
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