RE: Introducing Star... (drum roll)

[Guest guest]

Hi Star ~

So glad to have you here! I am pretty new here - our daughter who we are adopting has microtia/atresia and we have yet to find out if she may have HFM (she is not home yet). I am looking forward to seeing posts from you - for those of us making decisions about our children's treatment/surgeries etc it is always great to hear from someone who has been there/done that. Best of luck with your surgeries - you will find a great deal of support and a wealth of information here.

Sandy

Introducing Star... (drum roll)

Hi everyone!!Wow, I never knew there were actual groups online for people withmicrotia! ... Anyhow, I thought I'd become a member too, and get toknow you all.*ahem* About me. I'm a 17 year old girl with Hemifacial microsomiaand microtia, and I'm going to have the ops done in June. I've neverspoken to anyone with even a related "deformity" before...so I'dreally like to hear from someone who's actually going through thethings I am.Havent anything to add to that right now, so I guess thats it from mefor now,Star~*

[Guest guest]

Hi Star,

Well, welcome to the group. I am Patton, a 40 year old that has unilateral microtia/atresia and I have recently underwent reconstructive surgery using the polyethelyne implant. I do have a web page (www.geocities.com/surfsup62/surgery.html) that shows the whole thing from before surgery,during and now.

I know how you feel ..I never even knew what my "birth" defect was called until March of 2001 !! I was very relieved to find thios group of great people who knew what I was going through.

You will get alot of support and information from these guys..and not to mention alot of valuable friendships.

If you have any questions that you might want to ask me just feel free to ask.

Patton

-- Introducing Star... (drum roll)

Hi everyone!!Wow, I never knew there were actual groups online for people withmicrotia! ... Anyhow, I thought I'd become a member too, and get toknow you all.*ahem* About me. I'm a 17 year old girl with Hemifacial microsomiaand microtia, and I'm going to have the ops done in June. I've neverspoken to anyone with even a related "deformity" before...so I'dreally like to hear from someone who's actually going through thethings I am.Havent anything to add to that right now, so I guess thats it from mefor now,Star~*

[Guest guest]

<< I'm going to have the ops done in June >>

Welcome Star! Nice to have you join us. Best Wishes on your upcoming

surgeries. You will get a lot of information here and support. I think you

will have a lot to contribute to the group and we will learn from you also.

My son Brayden is 15 months old. He has unilateral (right side)

Microtia/Atresia.

Autumn

[Guest guest]

Hello Star! Welcome to the group! I'm sure you'll be able to find many

answers to any questions you may have. What surgeries are you having in

June? Maybe we can help you out by sharing from our experiences. Take

care! Love, beth

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[Guest guest]

Hello Star! Welcome to the group! I'm sure you'll be able to find many

answers to any questions you may have. What surgeries are you having in

June? Maybe we can help you out by sharing from our experiences. Take

care! Love, beth

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

G'day Star and Welcome!!!

My name is (Bec) and I am the mother of Lachlan who is nearly 18 months and has Atresia Microtia of his left ear. We live in Australia and have been members of this group for only a few weeks. I have been searching for something like this group and it took me over 12 months to find but I sure am glad I have found it now. The information I have recieved and discovered from this group has helped my son and I tremendously. We do have a specialist who is in another state and is so hard to get a hold of and to visit when I have these questions that just come along as Lachie gets older.

My backbone in dealing with all this has been Kari and we have been communicating for nearly a year and has been a God send. Kari was my first contact with anybody related to Microtia. In Australia the statistics of babies born a year with Microtia is 1 in 20. Yet I am having so much trouble finding one!!

Anyway, a very big welcome to the group and I hope you find everything you are looking for and all the wonderful support.

All the best

and Lachie

Down Under

Introducing Star... (drum roll)

Hi everyone!!Wow, I never knew there were actual groups online for people withmicrotia! ... Anyhow, I thought I'd become a member too, and get toknow you all.*ahem* About me. I'm a 17 year old girl with Hemifacial microsomiaand microtia, and I'm going to have the ops done in June. I've neverspoken to anyone with even a related "deformity" before...so I'dreally like to hear from someone who's actually going through thethings I am.Havent anything to add to that right now, so I guess thats it from mefor now,Star~*

[Guest guest]

G'day Star and Welcome!!!

My name is (Bec) and I am the mother of Lachlan who is nearly 18 months and has Atresia Microtia of his left ear. We live in Australia and have been members of this group for only a few weeks. I have been searching for something like this group and it took me over 12 months to find but I sure am glad I have found it now. The information I have recieved and discovered from this group has helped my son and I tremendously. We do have a specialist who is in another state and is so hard to get a hold of and to visit when I have these questions that just come along as Lachie gets older.

My backbone in dealing with all this has been Kari and we have been communicating for nearly a year and has been a God send. Kari was my first contact with anybody related to Microtia. In Australia the statistics of babies born a year with Microtia is 1 in 20. Yet I am having so much trouble finding one!!

Anyway, a very big welcome to the group and I hope you find everything you are looking for and all the wonderful support.

All the best

and Lachie

Down Under

Introducing Star... (drum roll)

Hi everyone!!Wow, I never knew there were actual groups online for people withmicrotia! ... Anyhow, I thought I'd become a member too, and get toknow you all.*ahem* About me. I'm a 17 year old girl with Hemifacial microsomiaand microtia, and I'm going to have the ops done in June. I've neverspoken to anyone with even a related "deformity" before...so I'dreally like to hear from someone who's actually going through thethings I am.Havent anything to add to that right now, so I guess thats it from mefor now,Star~*

[Guest guest]

Welcome Star! Great to have you aboard! My daughter (Gabi) has Microtia and Aural Atresia and is 9 months old. ) I look forward to *meeting* you and hearing about your experiences. Jane

Introducing Star... (drum roll)

Hi everyone!!Wow, I never knew there were actual groups online for people withmicrotia! ... Anyhow, I thought I'd become a member too, and get toknow you all.*ahem* About me. I'm a 17 year old girl with Hemifacial microsomiaand microtia, and I'm going to have the ops done in June. I've neverspoken to anyone with even a related "deformity" before...so I'dreally like to hear from someone who's actually going through thethings I am.Havent anything to add to that right now, so I guess thats it from mefor now,Star~*

[Guest guest]

I am at a loss. My best guess was the Dr. meant that the rate Australia are 1 in 20,000 and not 1 in 20. Which is possible, given that Australia has a large ethnic population with lower microtia rates than caucasians. That combined with Australia's much smaller population scattered over a much wider area would help explain why Bec is having trouble finding others in the same situation.

Sheri

-----Original Message-----From: GrossInsCo@... Sent: Wednesday, January 30, 2002 3:54 PMTo: AtresiaMicrotia Subject: Re: Introducing Star... (drum roll)

Hi Jack! This is the statistic I received from our Microtia specialist in Sydney,Aust. It does sound alot and it did surprise me too. I thought if the statistics are correct then I would have had contact with someone else. But also do remember that Australia is alot smaller in area and population than the states. Could you suggest another way of finding out the stats in Australia?

Re: Introducing Star... (drum roll)

In Australia the statistics of babies born a year with Microtia is 1 in 20. Yet I am having so much trouble finding one!! ... All the best and Lachie Down Under this doesnt sound correct... jack sheri can you help me here?? jack

[Guest guest]

I am at a loss. My best guess was the Dr. meant that the rate Australia are 1 in 20,000 and not 1 in 20. Which is possible, given that Australia has a large ethnic population with lower microtia rates than caucasians. That combined with Australia's much smaller population scattered over a much wider area would help explain why Bec is having trouble finding others in the same situation.

Sheri

1 in 20

1 in 20,000

yeah, that sounds better...

thank u.

jack