House episode

[Guest guest]

confused what’s hearing voices have

to do with Celiac

From: SillyYaks [mailto:SillyYaks ] On Behalf Of kawasasski@...

Sent: Tuesday, May 09, 2006 10:02

PM

To: SillyYaks

Subject: House episode

I thought it was great as far as

information goes. I never thought about how your body can react to

vitamin deficencies....(ie, hearing the voices, etc)....it gave me an entire

new outlook. I felt bad that the baby died.....I kept telling myself

" its only a doll " .

My phone hasnt stopped ringing since the

episode mentioned Celiac!

What did you guys think of it?

[Guest guest]

Set me straight too explain the seizures etc

please to me too

From: SillyYaks [mailto:SillyYaks ] On Behalf Of amy thueson

Sent: Tuesday, May 09, 2006 10:05

PM

To: SillyYaks

Subject: House episode

Okay , now I am really confused!! I watched the show, and are they

saying the lady went crazy and killed her child becasue of a

defficiency of niacin, caused by Celiac???. Sorry, but I dont theink Celiac

needs that kind of press.

please some one set me straight...

Amy in Central AR

[Guest guest]

I do agree, it was an unfortunate story line to bring to light Celiac

disease for the public that is unaware of it. And unfortunately i

think they took it too far- the mother killing her baby is all that

will be remembered and associated with CD. I love the show, so i was

bummed about where they went with the story.

I was however interested in the fact that the baby had flattened villi

already as new as he was. Is this truly possible? I thought the damage

wouldn't actually take place until the child was really eating wheat

full on. I am interested because my daughter was that exact

baby= " Colicky " all the time but the damage didn't become " visible "

and then diagosed till 17 months. Could her villi have been damaged

from the very beginning?? This part was the part of the show that

stuck with me, that i would like to know more about. If anyone knows,

would love to hear on this particular issue.

[Guest guest]

That's exactly the effect I think it will have. The baby dying AND

the mother dying because of undiagnosed and untreated Celiac was

important because it showed young and old being affected, plus it

showed the different ways it can manifest itself.

Show that episode to someone who doesn't take it seriously and then

ask them afterwards if they can tell that the consequences are

serious...what fool in their right mind wouldn't be able to see that?

C

> >

> > Maybe I will be in the minority, but I didn't hate House

tonight.

> > (well, at least, I love to hate him....)

> >

> > Yes, it was extreme. Yes, people could choose to say that it

> gives

> > Celiac a bad name. However, I think that it also showed that

> > untreated Celiac is serious business...that it leads to serious

> > consequences...that it isn't something to take lightly or pish-

> > posh.

> >

> > Anyone familiar with House will have to admit that they had at

> least

> > suspect it would go to the extreme...it always does!

> >

> > I think that it will make people stop and think about Celiac in

a

> > more serious way. The way they talked about the things that can

> > happen when the villi are flattened was serious and

> > straightforward...the other drama was part of the show, but the

> > Celiac information was correct.

> >

> > They were also good about pointing out that stress can trigger

it

> > into becoming full-blown CD.

> >

> > C

> >

>

[Guest guest]

"I heard that when you have Celiac Disease it eventually makes you retarted

Its scary how stupid some people are....

[Guest guest]

I saw the episode and it made me think that maybe people who have

the conditions that they sensationalize in other episodes say " Hey,

wait a minute!!! " when they watch it too...

Don't get me wrong, I like the show, but this wasn't my favorite

episode. I did like the " magic science lens " view they did of the

villi, and told DH, Hey look honey, it's me!

I'm not sure whether gluten can be expressed in breast milk or not,

(seems weird to me if it is), but they explained his death by saying

that the baby died because they had given him medication that

contained wheat gluten. That shouldn't have caused instantaneous

villi flattening though, so maybe they were hinting previously with

the breast pump thing.

I am not personally worried about celiac's reputation. If people

don't know anyone with celiac, they're not likely to remember or

care what the name of the mystery illness was this week... and if

they do, they should know better than to think anyone with celiac is

going to start trying to drown their baby in the bathtub. Good for

them for mentioning soy sauce, though... that was a nice touch.

>

> >

> > I do agree, it was an unfortunate story line to bring to light

> Celiac

> > disease for the public that is unaware of it. And unfortunately

i

> > think they took it too far- the mother killing her baby is all

> that

> > will be remembered and associated with CD. I love the show, so i

> was

> > bummed about where they went with the story.

[Guest guest]

If gluten is passed in breast milk, wouldn't it make sense that we could not drink cow's millk from animals that are fed grain or were pastured on certain grasses?

Just a thought!

Re: House episode

I'm not sure whether gluten can be expressed in breast milk or not, (seems weird to me if it is), but they explained his death by saying that the baby died because they had given him medication that contained wheat gluten. That shouldn't have caused instantaneous villi flattening though, so maybe they were hinting previously with the breast pump thing.

Celiac disease

Gluten-free foods

[Guest guest]

--Someone here once mentioned that cow's digestive systems are different than ours--with two stomachs? If you gave me scientific proof either way--I'd believe it! I wonder if anyone has ever tested cow's milk for gluten? Anyone know? Minnich wrote: If gluten is passed in breast milk, wouldn't it make sense that we could not drink cow's millk from animals that are fed grain or were pastured on certain grasses? Just a thought! Re: House episode I'm not sure whether gluten can be expressed in breast milk or not, (seems weird to me if it is), but they explained his death by saying that the baby died because they had given him medication that contained wheat gluten. That shouldn't have caused instantaneous villi flattening though, so maybe they were hinting

previously with the breast pump thing. Celiac disease Gluten-free foods

Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

Yahoo! Mail goes everywhere you do. Get it on your phone.

[Guest guest]

>

> ...are they saying the lady went crazy and killed her child

> becasue of a defficiency of niacin, caused by Celiac???

She apparently had silent celiac for a while.

She had been not digesting nutrients for a long time.

She had brain malfunction, bleeding disorder and the stomach lymphoma.

The baby had celiac too. That's why they weren't able to save the

baby when they should have been able to. The medicine they gave him

to lower his potassium should have saved him. But it was bound in

gluten. So the baby couldn't digest the medicine and the baby died

from direct consequences of his own celiac disease.

The mom's brain was dysfunctional because of the celiac. Yes, she

was hearing voices because of the vitamin deficiencies. She was

also unable to clot properly. She was also having seizures.

Finding the celiac saved her life. But will she take treatment for

they lymphoma? We don't know. She may refuse the treatment for that

because of the depression.

My hubby and I sat there and marvelled at the similarities between

her story and mine.

No, I hadn't suffocated any of my children. But I had already gone

through much of what had happened to her. And yet, it still took

ages before any one put 2 + 2 + 2 + 2 together to find celiac.

It wasn't until I was bleeding in ways one should NEVER bleed and

the new doc on the block ran the transglutaminase test did my

celiac get found. Seven months have passed since then. I wonder

what would have happened if Doc J hadn't added the expensive

and labor-intensive and time-consuming transglutaminase test onto

the lab slip. If no one had seen that ONLY transglutaminase was

high for me (all the other tests on the celiac panel were normal),

I'd still be sick with celiac. And, with seven more months of

abuse to my body, I'd be a whole lot sicker than I was. I was

already having clotting failure and seizures. What more could

have happened in the next 7 months if I still weren't absorbing

nutrients properly? I shudder to think.

The House stories always have a spooky twist like that. Don't

you think the folks who have genital herpes are thinking " genital

herpes didn't need press like THAT " ? After all, it's the rare

case of genital herpes that goes into herpetic encephalitis and

causes someone ELSE's liver cancer to go into remission for a

while. That was last week's episode in case you're not quite sure

what I'm talking about.

[Guest guest]

Looking back to my pre-diagnosis days.....I thought I was bi-polar for a while. I had all the classic symptoms, so I don't doubt that undiagnosed celiac can cause that many problems. He also mentioned that the husband wasn't there when she needed him, choosing to run to the bar when she got post-partum depression (how many times did she cry and you ran to the bar - paraphrased), so that was part of the stress she was under. I was impressed that it showed how hard it can be to diagnose celiac sometimes....

--loriann aka Victree the Christian clown

-------------- Original message -------------- Maybe I will be in the minority, but I didn't hate House tonight. (well, at least, I love to hate him....)Yes, it was extreme. Yes, people could choose to say that it gives Celiac a bad name. However, I think that it also showed that untreated Celiac is serious business...that it leads to serious consequences...that it isn't something to take lightly or pish-posh. Anyone familiar with House will have to admit that they had at least suspect it would go to the extreme...it always does!I think that it will make people stop and think about Celiac in a more serious way. The way they talked about the things that can happen when the villi are flattened was serious and straightforward...the other drama was part of

the show, but the Celiac information was correct. They were also good about pointing out that stress can trigger it into becoming full-blown CD.C

[Guest guest]

Just my 2 cents, but I liked the show. We

only got to see the last ½ hr because of a HS band concert. But my parents

always tape House. I think the show will make people realize how serious

contamination can be. That it’s not just an “allergy” where

you’ll break out in hives.  It also woke up my daughter (18yrs old) and

some of her symptoms that she still has. “Oh! Maybe I am still getting

contaminated from something”. Before she was actually diagnosed at age 11

she went through a stage where she was horribly mean. I thought it was just

because she was feeling bad but the doctor said the gluten acts like poison and

could alter her personality. Her personality change is one of the first things

I notice when she gets contaminated.

Judy

Gettysburg PA

From:

SillyYaks [mailto:SillyYaks ] On Behalf Of cyebel

Sent: Tuesday, May 09, 2006 10:33

PM

To: SillyYaks

Subject: Re: House

episode

That's exactly the effect

I think it will have. The baby dying AND

the mother dying because of undiagnosed and untreated Celiac was

important because it showed young and old being affected, plus it

showed the different ways it can manifest itself.

Show that episode to someone who doesn't take it seriously and then

ask them afterwards if they can tell that the consequences are

serious...what fool in their right mind wouldn't be able to see that?

C

> >

> > Maybe I will be in the minority, but I didn't hate House

tonight.

> > (well, at least, I love to hate him....)

> >

> > Yes, it was extreme. Yes, people could choose to say that it

> gives

> > Celiac a bad name. However, I think that it also showed that

> > untreated Celiac is serious business...that it leads to serious

> > consequences...that it isn't something to take lightly or pish-

> > posh.

> >

> > Anyone familiar with House will have to admit that they had at

> least

> > suspect it would go to the extreme...it always does!

> >

> > I think that it will make people stop and think about Celiac in

a

> > more serious way. The way they talked about the things that can

> > happen when the villi are flattened was serious and

> > straightforward...the other drama was part of the show, but the

> > Celiac information was correct.

> >

> > They were also good about pointing out that stress can trigger

it

> > into becoming full-blown CD.

> >

> > C

> >

>

No virus found in this outgoing message from ClubFlamingo.

Checked by AVG Free Edition.

Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006

[Guest guest]

My first reaction to the episode was to my DH, " See? See? The next

time someone says 'oh it's just a crumb, just try it, it's only a

bite,' remember this episode! " So he said that she ate bowls of pasta,

not a taste, and I told him that a crumb can make your villi flatten,

just like my son's peanut allergy -- he doesn't have to eat a bag of

peanuts to have a reaction, one tiny crumb can do it, and it's the same

for Celiacs. I think he had a new appreciation.

BUT, it also bothered me, because it reminded me of something that

happened at a party I was at recently. The usual questions started

when I couldn't eat anything there, and I brought up Celiac Disease.

So this woman there, in front of everyone, told me " I heard that when

you have Celiac Disease it eventually makes you retarted. " Can you

believe it?? So I laughed and said how that wasn't true, and she said

it again, saying how the damage it does eventually makes you mentally

retarded. I wanted to strangle her. I think this episode will make

her, and people like her, think it not only makes us retarted but baby

killers too.

[Guest guest]

I don't know what the latest research says, but when I first started reading up on Celiac about 12 years ago, it was reported that celiacs have a higher than average IQ. I remember telling my MIL who has DH that it takes a higher than average IQ to be able to follow the diet.

Re: House episode

BUT, it also bothered me, because it reminded me of something that happened at a party I was at recently. The usual questions started when I couldn't eat anything there, and I brought up Celiac Disease. So this woman there, in front of everyone, told me "I heard that when you have Celiac Disease it eventually makes you retarted." Can you believe it?? So I laughed and said how that wasn't true, and she said it again, saying how the damage it does eventually makes you mentally retarded. I wanted to strangle her. I think this episode will make her, and people like her, think it not only makes us retarted but baby killers too.

[Guest guest]

I think they would have done better to address the vitamin deficiencies more and

the fact

that she didn't " appear " malnourished. I also would have liked to have seen them

stress

the fact that the only thing to " cure " her was a diet change. I also think they

didn't do very

well with making it very clear that the psychosis was caused by the vitamin

deficiencies--I

thought they brushed over it. Even perhaps how atypical this presentation was

and that

many present differently.

While this was not the way I would have written the script, every bit of press

should help.

Cheryl in Tampa

[Guest guest]

I did miss the episode I had to turn it off the moment I saw the baby in the bathtub....not realizing it was going to be about CD this time . I think I got a good idea of what it was all about though from all the e-mails going around and a few friends told me a little about it. I think can relate to the woman to a point. I had a baby just about two years ago and wasn't diagnosed wiht CD until Nov of last year. I natually ate a LOT when I was pregnant-and that included a LOT of gluten. I not only was hit with post partum depression but I was partly psychosis. It didn't help it that my relationship was in shambles from my behavior, I was had a hard prenancy and labor, I was so malnurished and didn't know it, and just the stress of having a new baby. The doctors found I was deficient on a

number of vitamins as well. Thankfully CD was something my doctor and I where already starting to test for before the pregnancy so we had a little bit of an idea what was going on. I'm glad we caught it within the first year of my child being born because who knows what type of shape I'd be in now. Alison in WIvictreenjesus@... wrote: Looking back to my pre-diagnosis days.....I thought I was bi-polar for a while. I had all the classic symptoms, so I don't doubt that undiagnosed celiac can cause that many problems. He also mentioned that the husband wasn't there when she needed him, choosing to run to the bar when she got post-partum depression (how many times did she cry and you ran to the bar - paraphrased), so that was part of the stress she was under. I was impressed

that it showed how hard it can be to diagnose celiac sometimes.... --loriann aka Victree the Christian clown -------------- Original message -------------- Maybe I will be in the minority, but I didn't hate House tonight. (well, at least, I love to hate him....)Yes, it was extreme. Yes, people could choose to say that it gives Celiac a bad name. However, I think that it also showed that untreated Celiac is serious business...that it leads to serious consequences...that it isn't something to take lightly or pish-posh. Anyone familiar with House will have to admit that they had at least suspect it would go to the extreme...it always does!I think that it will make people stop

and think about Celiac in a more serious way. The way they talked about the things that can happen when the villi are flattened was serious and straightforward...the other drama was part of the show, but the Celiac information was correct. They were also good about pointing out that stress can trigger it into becoming full-blown CD.C

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

I'll second that for sure!!! Man....

From: SillyYaks [mailto:SillyYaks ] On Behalf Of MinnichSent: Wednesday, May 10, 2006 8:17 AMTo: SillyYaks Subject: Re: Re: House episode

I don't know what the latest research says, but when I first started reading up on Celiac about 12 years ago, it was reported that celiacs have a higher than average IQ. I remember telling my MIL who has DH that it takes a higher than average IQ to be able to follow the diet.

Re: House episode

BUT, it also bothered me, because it reminded me of something that happened at a party I was at recently. The usual questions started when I couldn't eat anything there, and I brought up Celiac Disease. So this woman there, in front of everyone, told me "I heard that when you have Celiac Disease it eventually makes you retarted." Can you believe it?? So I laughed and said how that wasn't true, and she said it again, saying how the damage it does eventually makes you mentally retarded. I wanted to strangle her. I think this episode will make her, and people like her, think it not only makes us retarted but baby killers too.

[Guest guest]

>

>

> The House stories always have a spooky twist like that. Don't

> you think the folks who have genital herpes are thinking " genital

> herpes didn't need press like THAT " ? After all, it's the rare

> case of genital herpes that goes into herpetic encephalitis and

> causes someone ELSE's liver cancer to go into remission for a

> while. That was last week's episode in case you're not quite sure

> what I'm talking about.

>

Besides, I think they gave REALLY BAD PRESS to recovering alcoholics

and addicts more than they did to celiacs. :-)

Sure, sure, the statistics on recovering from alcoholism and addiction

are crappy. But does that mean House should be so MEAN and say ALL

alcoholics slip and end up killing their kids because of it? After

all, THAT's a case of the pot calling the kettle black.

[Guest guest]

>

> ... I brought up Celiac Disease.

> So this woman there, in front of everyone, told me " I heard that when

> you have Celiac Disease it eventually makes you retarted. " Can you

> believe it?? So I laughed and said how that wasn't true, and she said

> it again, saying how the damage it does eventually makes you mentally

> retarded.

I probably would have blurted out " Yes, it's tragic your celiac was

undiagnosed before that happened to you. " ;-)

[Guest guest]

Intelligence, and the tenacity of a bulldog.

>

> I'll second that for sure!!! Man....

>

> ________________________________

>

> ... it was reported that celiacs

> have a higher than average IQ. I remember telling my MIL who has DH that

> it takes a higher than average IQ to be able to follow the diet.

>

>

>

[Guest guest]

I had severe post-partum depression after all three deliveries. That was pre-gf diet. Makes me wonder....

Re: Re: House episode

I did miss the episode I had to turn it off the moment I saw the baby in the bathtub....not realizing it was going to be about CD this time . I think I got a good idea of what it was all about though from all the e-mails going around and a few friends told me a little about it. I think can relate to the woman to a point. I had a baby just about two years ago and wasn't diagnosed wiht CD until Nov of last year. I natually ate a LOT when I was pregnant-and that included a LOT of gluten. I not only was hit with post partum depression but I was partly psychosis. It didn't help it that my relationship was in shambles from my behavior, I was had a hard prenancy and labor, I was so malnurished and didn't know it, and just the stress of having a new baby. The doctors found I was deficient on a number of vitamins as well. Thankfully CD was something my doctor and I where already starting to test for before the pregnancy so we had a little bit of an idea what was going on. I'm glad we caught it within the first year of my child being born because who knows what type of shape I'd be in now.

Alison in WIvictreenjesus@... wrote:

Looking back to my pre-diagnosis days.....I thought I was bi-polar for a while. I had all the classic symptoms, so I don't doubt that undiagnosed celiac can cause that many problems. He also mentioned that the husband wasn't there when she needed him, choosing to run to the bar when she got post-partum depression (how many times did she cry and you ran to the bar - paraphrased), so that was part of the stress she was under. I was impressed that it showed how hard it can be to diagnose celiac sometimes....

--loriann aka Victree the Christian clown

-------------- Original message -------------- Maybe I will be in the minority, but I didn't hate House tonight. (well, at least, I love to hate him....)Yes, it was extreme. Yes, people could choose to say that it gives Celiac a bad name. However, I think that it also showed that untreated Celiac is serious business...that it leads to serious consequences...that it isn't something to take lightly or pish-posh. Anyone familiar with House will have to admit that they had at least suspect it would go to the extreme...it always does!I think that it will make people stop and think about Celiac in a more serious way. The way they talked about the things that can happen when the villi are flattened was serious and straightforward...the other drama was part of the show, but the Celiac information was correct. They were also good about pointing out that stress can trigger it into becoming full-blown CD.C

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

I look at it this way (based solely on the convo here - DH insisted on watching the Unit), House is " entertainment " and a standard presentation of celiac with things like digestive troubles and nutrition issues wouldn't exactly put a blip on the entertainment radar - and it wouldn't exactly have presented the sort of rare or oddly presented diagnosis that the show seems to depend upon.

It happens all the time with shows about medical diagnoses - even shows that claimed to present education/info have been guilty.But at least the info got out there. Now if only the docs would test when the patient is something other than EXACTLY the textbook celiac. I'm in the process of changing docs. I admit it, was bad. I did the wheat elimination at the suggestion of my doc and it eliminated my IBS. I asked for testing and she said overweight people don't get celiac and rarely have wheat issues (huh, then why'd you ask me to spend a month eating a difficult and expensive diet - and just exactly how DID it help?). So I went back to more or less eating normally. My allergies returned (odd, why did sinus symptoms disappear and reappear from something I ate if as docs insist it's something I'm breathing), my hormones went nuts, my diabetes is wonky with wild variations in sugar, and my migraines and myoclonic seizures seem to be on permanent spike. My gp's answer? Birthcontrol pills (for an almost 37 year old diabetic with a strong family history of heart disease and blood pressure issues), go back on an allergy med and she suggested testing for lupus. My answer? I spent all day Monday (and several hours last week) tracking down a new gp, who I'll be seeing tomorrow.

Dee

I think they would have done better to address the vitamin deficiencies more and the fact

that she didn't " appear " malnourished. I also would have liked to have seen them stress

the fact that the only thing to " cure " her was a diet change. I also think they didn't do very

well with making it very clear that the psychosis was caused by the vitamin deficiencies--I

thought they brushed over it. Even perhaps how atypical this presentation was and that

many present differently.

While this was not the way I would have written the script, every bit of press should help.

Cheryl in Tampa

[Guest guest]

That's the funniest response........exactly what I needed this morning!!

Thank you for the "funny" Esther, as usual!!

Re: House episode

>> ... I brought up Celiac Disease. > So this woman there, in front of everyone, told me "I heard that when > you have Celiac Disease it eventually makes you retarted." Can you > believe it?? So I laughed and said how that wasn't true, and she said > it again, saying how the damage it does eventually makes you mentally > retarded. I probably would have blurted out "Yes, it's tragic your celiac wasundiagnosed before that happened to you." ;-)

[Guest guest]

There is a recap of the show on line at:

http://www.tv.com/house/forever/episode/670388/recap.html

The third paragraph from the end talks about the celiac issue. I plan

to watch the show again on friday night (its repeated on USA TV)... I

think there are moments (words) we don't hear the firt time.

in South Florida

>

> I would have liked to see his boss have the CD and show how she

handles it

> over several weeks.

>

> Didn't the show seem to say that the CD caused cancer and the cancer was

> producing high calcium that was causing the problems? I really

would have

> liked to see the show a second time to confirm this.

>

> And... the baby was given a wheat based product while being treated

in the

> hospital. They claimed that the medicine was the cause of the baby

having

> CD. Now.. my question is can damage be caused that quickly?

>

>

>

> --

> Carol M Heppner

> www.carolheppner.com

> Scrapbooking Techniques: INKING (Sterling/Chapelle) 2006

> Making Memory Jewelry (Sterling/Chapelle) 2006

>