Re: So hard to get a fereral for plagiocephaly And brachycephaly

November 13, 2007

Things are very similar in the US. I think most pediatricians are just

misinformed. It is so common for them to say " it will round out on

its own " . And it just isn't true in many many cases. My daughter wore

a band for severe brachy (flat in back). in the 5 mo with the band

she got very good correction. Since she's been out of her band (1

year now) her head hasn't improved at all. It is pretty good but not

perfect and I was hoping some remaining flatness would go away - but

it didn't. I'm fine with that, but it just reassures me that the band

was completely necessary.

We were lucky that our insurance paid for the band, but so many people

have their insurance company refuse.

Good luck with your child's band and let us know if you have questions.

-christine

sydney 22 mo starband grad

>

> Hi,

> My daughter who is now 5 and a half months old has been to see

> the doctors on many occasions Since leaving hospital at a week old due

> to being premature and underweight and i have been told she only has a

> misshapen head it will return to normal within a month or so. So as it

> didnt i had an app with health visitor who told me her head will go back

> to normall but you dont really want to get a helmet as they cost

> £3000 - £5000.

> I come online as my mother in law informd me of a webite i was looking

> at the children on this website and my daughters head was the same shape

> so i sent a photograph in of her head and they responded back to the

> picture in under an hour and he sayd : I'd say that your daughter

> has a left plagiocephaly with a brachycephaly and I'm certain that

> we can help you. From the babies that I've seen I don't agree

> with your health visitor, although I have sympathy with the position

> that she has to take in her role And also sent me contact details and no

> it wasnt that much for a helmet was infact from £1700 - £1950 so

> not as expencive as my health visitor said it was. I think they try to

> ward you off the idea as the NHS are too up tight to fork out money for

> these helmets - Surely if they help - they would pay ... Right?

>

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