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Hi Crystal,

I hope things work out with the transportations and doc appts. It is

good they are checking everything, but maybe they can also arrange for

you to travel at reasonable hours. I admire your doing all this on

your own. My husband is traveling most of the time these days and that

is a ton of work for me - but I do get a lot of support from him even

when he isn't here. Your are doing double duty for your little one.

Let us know how things work out with the appointments, PT etc.

-christine

> >

> > I am getting so frustrated my daughters Ped done a referal to

> another

> > pedatric neurosurgen that is hours away from here without me

> knowing

> > a thing about it and I was supposed to go Monday at 8am my dad said

> > there is no way that we would be driving down there that early

> cause

> > we most likely would have to leave at 3 or 4 am or even spend the

> > night ( which we can't afford to spend the night or get gas anyways

> > to travel that far )to even make it close to time to get to the Apt

> > and my dad can only drive locally cause of his health conditions

> and

> > since I don't drive thats also out of the ?tion so I called back

> and

> > told the people in referals at my daughtets Peds office that I

> > wouldn't be able to make it so they let me know what they thought

> of

> > me not following through before sending my daughters Ped a message

> to

> > call me back. Ugh. didn't need to hear that someone thinks I am

> > neglecting my daughter cause of the fact I couldn't make the Apt.

> > Well my daughters Ped didn't call me back but the woman who let me

> > know what she thought of me in referals did and told me to make the

> > apt to meet up with my daughters Ped and I did . She was like we

> will

> > see (saying this sarcasticly ) about gettng you and your daughter

> > transportation down to Winsten Salam for her Apt...I was thinking

> > yeah if you can find any one that will be willing to get up before

> > dawn and drive us. Plus I don't like the idea of riding for Hrs not

> > having a way to heat my daughters bottles or even change her ( the

> > public trans doesn't make pit stops ) my daughter also gets car

> sick

> > so she will be throwing up and crying the whole way as well . This

> is

> > why I don't take her places unless its a need to situation. and

> when

> > I do take her out its not for car rides that lasts Hrs. She has

> > already seen a pedatric neurosurgen already so why should she see

> > another one who is further away than the one who isn't but 30 mins

> > away from us. I am just frustrated with this situation that no one

> > even is considering my daughter or me for that matter since I

> wasn't

> > informed what so ever.

> >

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