New member intro

Posted December 8, 2005 · December 8, 2005

Hello everyone,

My name is and my son , age 3, was recently diagnosed with mild to

moderate bilateral hearing loss. He failed the newborn screening at birth in

2002 and was referred to a different hospital for further testing. The results

at that time showed an extremely mild loss in one ear and nothing further was

recommended as long as he continued to meet all developmental milestones...I

shouldn't have listened to them. He met all milestones on time but his speech

did not develop as I thought it should and I mentioned this many, many times to

his pediatrician but was told I was worrying for nothing.

Over the summer I noticed, he began to watch my mouth when I talked and began to

repeatedly ask " what did you say " . We took him to a pediatric ENT in September

who confirmed the loss. He got hearing aids in early October and just started 2

mornings a week at the classes offered for hearing impaired children through our

local school district. We were very fortunate to have found an incredible

pediatric audiologist/hearing aid dispenser who has been an invaluable resource

to us! is adjusting to all the changes very well - I'm so proud of him!

I'm glad to have found this group and hope that you will be able to answer more

of my questions as they come up!

S. in Tennessee

Posted December 9, 2005 · December 9, 2005

Hi - welcome! I have two boys who now are 13 and 11. Tom just

had cochlear implant surgery (about 3 weeks ago) but did wear two

hearing aids up until then; Sam is my 11 year old, is profoundly deaf

and wears hearing aids. I'm so glad you've found such good supports

already!

Barbara

blueroos@... wrote:

> Hello everyone,

>

> My name is and my son , age 3, was recently diagnosed

> with mild to moderate bilateral hearing loss. He failed the newborn

> screening at birth in 2002 and was referred to a different hospital

> for further testing. The results at that time showed an extremely mild

> loss in one ear and nothing further was recommended as long as he

> continued to meet all developmental milestones...I shouldn't have

> listened to them. He met all milestones on time but his speech did

> not develop as I thought it should and I mentioned this many, many

> times to his pediatrician but was told I was worrying for nothing.

>

> Over the summer I noticed, he began to watch my mouth when I talked

> and began to repeatedly ask " what did you say " . We took him to a

> pediatric ENT in September who confirmed the loss. He got hearing

> aids in early October and just started 2 mornings a week at the

> classes offered for hearing impaired children through our local school

> district. We were very fortunate to have found an incredible

> pediatric audiologist/hearing aid dispenser who has been an invaluable

> resource to us! is adjusting to all the changes very well -

> I'm so proud of him!

>

> I'm glad to have found this group and hope that you will be able to

> answer more of my questions as they come up!

>

> S. in Tennessee

>

Posted December 10, 2005 · December 10, 2005

,

I apologize, but I think I missed your post. Welcome to the group!

There are quite a few parents here whose kids were identified at their

newborn screening and have experience with the Early Intervention programs. they

certainly have experience with everything from getting aids into little ones

and keeping them there. (grin) So I am sure you're going to find plenty of

people to share their experience and wisdom.

Ask any questions that come to mind. I'm sure someone here has an idea to

address it. We've discussed everything from potty training to identifying

mysterious rashes (turned out to be a yeast infection) to how to deal with our

less than supportive families.

Our Ian was about 7½ when we first learned of his hearing loss --the end of

2nd grade. It wasn't until 4th grade that he was aided. A collection of bad

doctors and misinformation made the process more difficult than it needed to

be.

Since Ian was so much older, I have no experience with little ones and

hearing loss, but there are so many people here who do. I know you'll find

answers

and if we don't have any, we know how to find them!

Best -- Jill

Posted December 12, 2005 · December 12, 2005

Hi ,

It's nice to " meet " you. I'm Debbie, mom to two very active kids,

and . is 6 and has a moderate bilateral SNHL. is 3 and

although he can hear....he never listens.

wasn't diagnosed until she was 2 1/2. We missed the newborn

screenings at our hospital by six months. We didn't discover her loss until she

was 2 1/2. Like you our ped wasn't concerned about her lack of speech

development. She had maybe 10 words at 2 years that we could understand. He

reasured us that all kids progress at different rates. Eventually I had her

screened by our states EI program, for her speech delay. After being in therapy

for a month our EI coordinator suggested a hearing test. The rest is history.

is currently in first grade at our neighborhood school. She is

outgoing and down right silly most days. Her favorite things to do are to draw

and dance, and she's quite good at both (not that I'm biased or anything ;o)

Debbie

Some men see things as they are and ask why. Others dream things that never were

and ask why not. G.B Shaw

---------------------------------

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Posted March 4, 2008 · March 4, 2008

I too am a medical transcriptionist. I also do speech recognition editing

(I love it and it isn't as hard on my fibro!). Good to meet you!

Tabi D

<)))><

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Jana Metz

Sent: Monday, March 03, 2008 8:10 PM

To: Fibromyalgia_Support_Group

Subject: Re: new member intro

Hi Tabi,

I like your name!! I also am able to work at home--part time and at the

office 2 days a week. What type of work do you do? I am a medical

transcriptionist. I, like you, couldn't imagine going into the office every

day. I work Mondays and Wednesdays at the office. I don't have too much of a

problem on Wednesdays, because Thursday is my day off and I am looking

forward to that----but Mondays is very hard for me to get motivated to get

into the office. My boss is sympathetic to my situation and is happy for me

to work at home, so I can keep working, but one of my coworkers doesn't

understand and I think she is thinking that I get preferential treatement.

Anyway, just wanted to say hi!

Jana

Tabi D <tabimt (AT) embarqmail (DOT) <mailto:tabimt%40embarqmail.com> com> wrote:

Hey all. My name is Tabi. I am 33 years old, married with 3 kiddos. I

have fibro for at least 13 years now. ICK. I am going to ask my doc for

Lyrica tomorrow. I am already on Kadian (morphine sulfate). I work from

home, which is ideal for me. I don't think I could handle driving to an

office every day, dealing with people on a daily basis who have no idea what

I am going through, etc.

Well, am glad to be a part of this group. Have a great day!

Tabi D

<)))><

Posted March 4, 2008 · March 4, 2008

Tabi,

Welcome aboard. We look forward to getting to know you better! How

old are your kids? I have 2 grown children; am remarried and we

adopted a set of special needs twins last year. Was recently dx'd, am

on medical disability fighting for SSD. Glad you are able to work

from home; that is definitely a blessing for you! I don't know the

med you are currently taking; I have been on Lyrica since 1/18/08

(started 75 mg 2x a day, up to 150 mg 2x/day, seems to be working

although I notice I am having some flares lately and some break-thru

pain. But it's okay. I'm learning how to deal with it, one day at a

time!

Darlene

>

> Hey all. My name is Tabi. I am 33 years old, married with 3

kiddos. I

> have fibro for at least 13 years now. ICK. I am going to ask my

doc for

> Lyrica tomorrow. I am already on Kadian (morphine sulfate). I

work from

> home, which is ideal for me. I don't think I could handle driving

to an

> office every day, dealing with people on a daily basis who have no

idea what

> I am going through, etc.

>

> Well, am glad to be a part of this group. Have a great day!

>

> Tabi D

> <)))><

>

Posted March 4, 2008 · March 4, 2008

Thanks! I have 3 kiddos - ages 13, 9, and 8. they keep me on my toes, let

me tell ya!

Tabi D

<)))><

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of ddean228

Sent: Tuesday, March 04, 2008 11:01 AM