Re: New to the group/Vandy

[Guest guest]

Sue,

My offer of being assistance to people coming to Vandy stands for you as

well. We live 1 1/2 hours south of Nashville, but would certainly like to

meet others who are dealing with similar problems. If You are interested, I

will be happy to provide my home phone number. We live down I-24 toward,

but not near Chattanooga. You actually leave 1-24 at Hwy 55 and then travel

west to Tullahoma. You might want to see our newest piece of equpment a

lift anchored to our ceiling. We might could meet you in Nashville for

lunch, whatever. All of this depends upon the weather, which can change

quickly in TN.

My husband was actually a patient for about 5 days in an in house program at

Vanderbilt. At first Vandy wanted 7 days and the insurance compnay would

only approve 3. Then there was some comprimise and he was there 5 days. If

your husband is actually a patient they will work with him from morning to

late evening/night to get all of the test covered.

My opinion: Allow Vandy doctors to tell your husband about life expectancy

based upon their exam and testing of him.

Marilyn in TN

>

> Reply-To: shydrager

> Date: Fri, 28 Dec 2001 18:40:24 -0800 (PST)

> To: shydrager

> Subject: New to the group

>

>

> --- Gillian Bourke gillian.bourke@...> wrote:

>>

>

>> ATTACHMENT part 2 application/msword name=DEATH is

> nothing at all.doc

>

> Hi,

>

> My name is Sue and my husband Dwight was diagnosed

> with MSA in November of 1998. He was doing fairly

> well until about 1 month ago. He has become very

> unsteady on his feet even tho he walks with a walker.

> He seems to get lightheaded every time he stands up.

> Is this normal for this disease to get this bad in

> such a short time. He also seems to be jealous if I

> talk with someone on the phone or help his dad who

> just lost his wife. Is this normal? Also, I am

> taking him to see Dr. on at Vanderbilt on

> January 7th and he is not aware of the time frame

> involved (6 to 9 years). Should I tell him about this

> or not? I am thoroughly confused and would appreciate

> any help.

>

> Sue & Dwight in WI

>

> __________________________________________________

>