Re: Re: What My Neurologist Said, and What My Family Didn't Say

[Guest guest]

Dear Barbara,

Please accept my belated, but very sincere, appreciation for your words

of wisdom, empathy, and (usual) eloquence.

You are one of the most erudite list members. Thank you for your

constant posting of excellent research material.

I know that you have helped, in particular, our newer members, as they

start to gather the information they so sorely need.

Have you gotten any encouraging words from the physicians who are

watching your brain tumor?

I wish you all good things.

Gratefully,

[Guest guest]

Barbara,

Please know that I'll be thinking of you today as you venture into another realm

of the medical world. You are incredibly brave and I am sure that inside, you

don't feel that way. We are here for you and hope you will always remember

that. Please let us know how your appointments go.

With Love and Hugs!

Alice

Re: What My Neurologist Said, and What My Family Didn't Say

Thank you for those kinds words, friend. As for the brain tumor,

tomorrow I see a new neurologist, so we'll see what he says. We're

hoping to schedule gamma knife to halt the growth, but have been

waiting because the mito needs to be more stable before attempting

radiation. Right now we are treating the mito with a combinatin of K-

Phos Neutral and creatine chelated with magnesium and that combo

definitely seems to be helping. If the mito holds steady for a

while, I think we will feel brave enough to attempt gamma knife.

I am feeling quite cheerful these days and not so overwhelmed. My

doc trip tomorrow will be the first time out of the house since

March! Can't remember when I've gone that long without seeing one

doc or another, so that's a good sign actually.

Grace and peace to you and yours,

Barbara

[Guest guest]

Barbara,

I will be keeping you in my thoughts and prayers as you go see

your neurologist. Please know that we are all here for you. Keep us

updated as you can.

Hugs and smiles,

a

Thank you for those kinds words, friend. As for the brain tumor,

tomorrow I see a new neurologist, so we'll see what he says. We're

hoping to schedule gamma knife to halt the growth, but have been

waiting because the mito needs to be more stable before attempting

radiation. Right now we are treating the mito with a combinatin of K-

Phos Neutral and creatine chelated with magnesium and that combo

definitely seems to be helping. If the mito holds steady for a

while, I think we will feel brave enough to attempt gamma knife.

I am feeling quite cheerful these days and not so overwhelmed. My

doc trip tomorrow will be the first time out of the house since

March! Can't remember when I've gone that long without seeing one

doc or another, so that's a good sign actually.

Grace and peace to you and yours,

Barbara

[Guest guest]

Barbara,

Please know that I continue to think of you and hope this new neuro has

some good viable ideas for you.

Hugs,

wheatchild2 wrote:

>Thank you for those kinds words, friend. As for the brain tumor,

>tomorrow I see a new neurologist, so we'll see what he says. We're

>hoping to schedule gamma knife to halt the growth, but have been

>waiting because the mito needs to be more stable before attempting

>radiation. Right now we are treating the mito with a combinatin of K-

>Phos Neutral and creatine chelated with magnesium and that combo

>definitely seems to be helping. If the mito holds steady for a

>while, I think we will feel brave enough to attempt gamma knife.

>

>I am feeling quite cheerful these days and not so overwhelmed. My

>doc trip tomorrow will be the first time out of the house since

>March! Can't remember when I've gone that long without seeing one

>doc or another, so that's a good sign actually.

>

>Grace and peace to you and yours,

>Barbara

>

>

>

>

>

>>Dear Barbara,

>>Please accept my belated, but very sincere, appreciation for your

>>

>>

>words

>

>

>>of wisdom, empathy, and (usual) eloquence.

>>You are one of the most erudite list members. Thank you for your

>>constant posting of excellent research material.

>>I know that you have helped, in particular, our newer members, as

>>

>>

>they

>

>

>>start to gather the information they so sorely need.

>>

>>Have you gotten any encouraging words from the physicians who are

>>watching your brain tumor?

>>I wish you all good things.

>>Gratefully,

>>

>>

>>

>>

>>