Brachy Question Again

[Guest guest]

I know I have been harping on this brachy thing and asking questions

but today a mother with a 4 year came up to me and told me her DS had 2

helmets consecutively from the time he was 8 months to 2 years. This

kid had very visible brachy even from the front. She also told my

husband she has to have bike helmets specially made for her son.

She said that her son just didn't have growth spurts so they kept the

helmets on for a long time. Does that even make sense? How is that

possible? How could this kid wear only 2 helmets for almost a year and

a half? And how could he still have VERY visible brachy.

My DS is currently 8 months old and is just about to get his second

helmet. He had plagio and brachy. Plagio is less then 5mm off. And

the brachy is down to 93% 2 standard deviations from the norm down from

4 standard deviations.

After this experience today I am just wondering what I can expect after

this second helmet. I just wanted to ask again if anyone got the

Brachy within one standard deviation of the norm or even close to

normal. I guess I am hoping for 83% or below. I know said

her daughter was down to 86% and even that looked pretty good. So I

was just curious.

[Guest guest]

Hi ,

the explanations I have for this is that the 4 year old had very very

severe brachy and/or a very bad helmet provider. Presumably he outgrew

the first helment - so should have gotten some correction. It is also

possible that his mom didn't keep him in the band 23 hours a day -

compliance is really important, otherwise you can miss a lot of growth.

-christine

sydney 20 mo starband grad

>

> I know I have been harping on this brachy thing and asking questions

> but today a mother with a 4 year came up to me and told me her DS had 2

> helmets consecutively from the time he was 8 months to 2 years. This

> kid had very visible brachy even from the front. She also told my

> husband she has to have bike helmets specially made for her son.

> She said that her son just didn't have growth spurts so they kept the

> helmets on for a long time. Does that even make sense? How is that

> possible? How could this kid wear only 2 helmets for almost a year and

> a half? And how could he still have VERY visible brachy.

> My DS is currently 8 months old and is just about to get his second

> helmet. He had plagio and brachy. Plagio is less then 5mm off. And

> the brachy is down to 93% 2 standard deviations from the norm down from

> 4 standard deviations.

> After this experience today I am just wondering what I can expect after

> this second helmet. I just wanted to ask again if anyone got the

> Brachy within one standard deviation of the norm or even close to

> normal. I guess I am hoping for 83% or below. I know said

> her daughter was down to 86% and even that looked pretty good. So I

> was just curious.

>

[Guest guest]

my dtr only has plagio and a slight case of torticollis but i asked the specialist we saw about how many helmets it would take and was told it all depands on the type and maker of the helmet <nicolebrzoska@...> wrote: I know I have been harping on this brachy thing and asking questions but today a mother with a 4 year came up to me and told me her DS had 2 helmets consecutively from the time he was 8 months to 2 years. This kid had very visible brachy even from the front. She also told my husband she has to have bike

helmets specially made for her son.She said that her son just didn't have growth spurts so they kept the helmets on for a long time. Does that even make sense? How is that possible? How could this kid wear only 2 helmets for almost a year and a half? And how could he still have VERY visible brachy. My DS is currently 8 months old and is just about to get his second helmet. He had plagio and brachy. Plagio is less then 5mm off. And the brachy is down to 93% 2 standard deviations from the norm down from 4 standard deviations.After this experience today I am just wondering what I can expect after this second helmet. I just wanted to ask again if anyone got the Brachy within one standard deviation of the norm or even close to normal. I guess I am hoping for 83% or below. I know said her daughter was down to 86% and even that looked pretty good. So I was just

curious.

Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out.

[Guest guest]

Hi . The Mother said they went to Cranial Tech. But I have

a feeling it could have been the compliance thing. She said that he

kept taking the second helmet off. So who knows. Your daugther

looked really good and DS isn't too far off so that makes me feel

better.

Not sure if you know this yet or not but does your daughter have

trouble finding bike helmets. CT said this would not be a problem

for DS but ya never know.

> >

> > I know I have been harping on this brachy thing and asking

questions

> > but today a mother with a 4 year came up to me and told me her DS

had 2

> > helmets consecutively from the time he was 8 months to 2 years.

This

> > kid had very visible brachy even from the front. She also told

my

> > husband she has to have bike helmets specially made for her son.

> > She said that her son just didn't have growth spurts so they kept

the

> > helmets on for a long time. Does that even make sense? How is

that

> > possible? How could this kid wear only 2 helmets for almost a

year and

> > a half? And how could he still have VERY visible brachy.

> > My DS is currently 8 months old and is just about to get his

second

> > helmet. He had plagio and brachy. Plagio is less then 5mm off.

And

> > the brachy is down to 93% 2 standard deviations from the norm

down from

> > 4 standard deviations.

> > After this experience today I am just wondering what I can expect

after

> > this second helmet. I just wanted to ask again if anyone got the

> > Brachy within one standard deviation of the norm or even close to

> > normal. I guess I am hoping for 83% or below. I know

said

> > her daughter was down to 86% and even that looked pretty good.

So I

> > was just curious.

> >

>

[Guest guest]

My son just had plagio so I don't really know about the brachy. My

first flinch is to think maybe those bands didn't fit right. I'm not

sure about keeping bands on for a really long time. I know the DOC

says their bands aren't effective after 16 weeks but I don't know if

that could be different if there is no growth. No growth spurts from

8 months-2 years seems very odd to me especially as I watch my

little one (14 months) grow. He wore a band from 7.5-9.5 months and

had some great growth during that time. Overall, I wouldn't worry

about your experience today as every kid is different and something

doesn't seem right about this experience with the 4 year old (i.e.

the no growth, helmets for 1.5 years, visible brachy still, etc.) I

still would have to think that maybe the band orthosist was not very

good and the helmet didn't fit right or maybe the 4 year old some

other issue that was going on. I don't know just me thinking out

loud.

>

> I know I have been harping on this brachy thing and asking

questions

> but today a mother with a 4 year came up to me and told me her DS

had 2

> helmets consecutively from the time he was 8 months to 2 years.

This

> kid had very visible brachy even from the front. She also told my

> husband she has to have bike helmets specially made for her son.

> She said that her son just didn't have growth spurts so they kept

the

> helmets on for a long time. Does that even make sense? How is

that

> possible? How could this kid wear only 2 helmets for almost a

year and

> a half? And how could he still have VERY visible brachy.

> My DS is currently 8 months old and is just about to get his

second

> helmet. He had plagio and brachy. Plagio is less then 5mm off.

And

> the brachy is down to 93% 2 standard deviations from the norm down

from

> 4 standard deviations.

> After this experience today I am just wondering what I can expect

after

> this second helmet. I just wanted to ask again if anyone got the

> Brachy within one standard deviation of the norm or even close to

> normal. I guess I am hoping for 83% or below. I know

said

> her daughter was down to 86% and even that looked pretty good. So

I

> was just curious.

>

[Guest guest]

Considering that we had an excellent experience with Cranial Tech.

(and a lot of people do) I am thinking maybe it was a compliance

issue not a bad clinician or very severe brachy. It didn't even

dawn on me that he had to have had growth since he went from one

helmet to another until I read 's post. Hopefully, your

little one keeps hitting his growth spurts and does well in his

second band.

> > >

> > > I know I have been harping on this brachy thing and asking

> questions

> > > but today a mother with a 4 year came up to me and told me her

DS

> had 2

> > > helmets consecutively from the time he was 8 months to 2

years.

> This

> > > kid had very visible brachy even from the front. She also

told

> my

> > > husband she has to have bike helmets specially made for her

son.

> > > She said that her son just didn't have growth spurts so they

kept

> the

> > > helmets on for a long time. Does that even make sense? How

is

> that

> > > possible? How could this kid wear only 2 helmets for almost a

> year and

> > > a half? And how could he still have VERY visible brachy.

> > > My DS is currently 8 months old and is just about to get his

> second

> > > helmet. He had plagio and brachy. Plagio is less then 5mm

off.

> And

> > > the brachy is down to 93% 2 standard deviations from the norm

> down from

> > > 4 standard deviations.

> > > After this experience today I am just wondering what I can

expect

> after

> > > this second helmet. I just wanted to ask again if anyone got

the

> > > Brachy within one standard deviation of the norm or even close

to

> > > normal. I guess I am hoping for 83% or below. I know

> said

> > > her daughter was down to 86% and even that looked pretty

good.

> So I

> > > was just curious.

> > >

> >

>

[Guest guest]

-At first I did not think the second helmet was working but over the

last two weeks we have seen great results. It is all about the growth

spurts!

-- In Plagiocephaly , " " <nicolebrzoska@...>

wrote:

>

> I know I have been harping on this brachy thing and asking

questions

> but today a mother with a 4 year came up to me and told me her DS

had 2

> helmets consecutively from the time he was 8 months to 2 years.

This

> kid had very visible brachy even from the front. She also told my

> husband she has to have bike helmets specially made for her son.

> She said that her son just didn't have growth spurts so they kept

the

> helmets on for a long time. Does that even make sense? How is

that

> possible? How could this kid wear only 2 helmets for almost a year

and

> a half? And how could he still have VERY visible brachy.

> My DS is currently 8 months old and is just about to get his second

> helmet. He had plagio and brachy. Plagio is less then 5mm off.

And

> the brachy is down to 93% 2 standard deviations from the norm down

from

> 4 standard deviations.

> After this experience today I am just wondering what I can expect

after

> this second helmet. I just wanted to ask again if anyone got the

> Brachy within one standard deviation of the norm or even close to

> normal. I guess I am hoping for 83% or below. I know

said

> her daughter was down to 86% and even that looked pretty good. So

I

> was just curious.

>