Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 This group is separate from Generation Rescue. Also check out the Autism Research Institute, The National Autism Association, DAN! or Defeat Autism Now! There is another group that you may find helpful. Chelating kids 2 Book recommendations include " Facing Autism " by Lynn Hamilton " What Your Doctor May NOT Tell You about Childhood Vaccinations " by Dr. S Cave " Children with Starving Brains " by Dr. J McCandless " Evidence of Harm " by Kirby Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI _____ From: [mailto: ] On Behalf Of Sent: Saturday, September 30, 2006 1:13 PM Subject: [ ] Newbie questions I would be extremely grateful to any one who would answer the following questions for me: 1. Is this group associated with Generation Rescue, or is it separate? 1.a If it is separate, what ideological/treatment or other differences are there between you? 2. Can I obtain TD-DMPS without a prescription? If so, where? 3. How can I learn about Andy's protocol? 4. This all seems to complicated and I am overwhelmed - where do I begin to educate myself on chelation therapy? I don't want to make things worse. 5. Are there success stories for autistic children who have been chelated? 6. Are there success stories for ADD children who have been chelated? 7. Where can I read these success stories? 8. Are there success stories for children with speech delays? 9. What books/websites are recommended for a newbie? Thanks!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 See my replies below . Neil _____ From: [mailto: ] On Behalf Of Sent: Saturday, September 30, 2006 12:13 PM Subject: [ ] Newbie questions I would be extremely grateful to any one who would answer the following questions for me: 1. Is this group associated with Generation Rescue, or is it separate? I would say that this group is closely aligned with Generation Rescue. I am on the list of Rescue Angels for Minnesota. 1.a If it is separate, what ideological/treatment or other differences are there between you? I think you will find a wide variety of ideology and treatment regarding chelation. The widest variation for treatment seems to come from the DAN! practitioners as there is very little requirement to become DAN! certified and having been on this list for quite a while I have seen many parents join and the protocol recommended seems to vary greatly. Personally after doing my own research I follow the Cutler protocol and have found that to be the safest and most steadily effective method. 2. Can I obtain TD-DMPS without a prescription? If so, where? No, you can't get TD-DMPS or TD-DMSA or TD-ALA without a prescription. You can however obtain oral DMSA or ALA Over The Counter (OTC) but not DMPS which is strictly via script. 3. How can I learn about Andy's protocol? Andy has 2 books, Amalgam Illness and Interpreting Hair Test Results. I don't have the links handy, but I am sure someone will provide them. They are both very good reads, but prepare for mental overload ! 4. This all seems to complicated and I am overwhelmed - where do I begin to educate myself on chelation therapy? I don't want to make things worse. Congratulations ! You have probably made the most important step, you have chosen to join a group of dedicated and generous people all helping each other in this process. You have tapped into a fantastic resource. Also there is a wealth of knowledge in the Files section and also on anibasu.com. 5. Are there success stories for autistic children who have been chelated? Oh yes, lots of them. Also plenty of horror stories of kids who have been chelated improperly and have gotten worse, choose your protocol wisely. Don't blindly follow what someone (perhaps your PED or DAN!) tells you without feeling comfortable that it is what YOU want to do for your child. 6. Are there success stories for ADD children who have been chelated? See # 5 (that was my Dana impression ;^) 7. Where can I read these success stories? The Files Section, also people give regular reports of how their kids are doing. 8. Are there success stories for children with speech delays? TONS of these, especially if they are already speaking but just having problems. I won't go into the treatment specifics right now, but there are things that work. I can attest to that personally with our boy. 9. What books/websites are recommended for a newbie? Holy Cow, Andy's book is good, Anne McCandles (children w/starving brains), but there are lots of other ones. People have links handy, I am sure you will get lots of them from others. Thanks!! You are Welcome and welcome to the list, you are in good company. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 > 3. How can I learn about Andy's protocol? > http://www.noamalgam.com/ http://www.noamalgam.com/hairtestbook.html > 4. This all seems to complicated and I am overwhelmed - where do I > begin to educate myself on chelation therapy? I don't want to make > things worse. > Answers to Frequently Asked Questions: /files/Mercury-Autism%20FAQ > 5. Are there success stories for autistic children who have been > chelated? > > 6. Are there success stories for ADD children who have been chelated? > > 7. Where can I read these success stories? > > 8. Are there success stories for children with speech delays? > Progress reports about chelation: http://home.earthlink.net/~moriam/LOVE_LETTERS.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 > > I would be extremely grateful to any one who would answer the > following questions for me: > > 1. Is this group associated with Generation Rescue, or is it separate? From what I know, separate, but the same philosophy, that mercury and other metals cause autism. > 1.a If it is separate, what ideological/treatment or other > differences are there between you? I am unaware of any, altho that does not mean there might be differences. > 2. Can I obtain TD-DMPS without a prescription? If so, where? No, rx only. > 3. How can I learn about Andy's protocol? Links and info have already been provided by others. More info here http://home.earthlink.net/~moriam/ > 4. This all seems to complicated and I am overwhelmed - where do I > begin to educate myself on chelation therapy? I don't want to make > things worse. My chelation section might be a good place to start http://www.danasview.net/parent3.htm#chelation > 5. Are there success stories for autistic children who have been > chelated? My page of Stories of Recovery, including to other sites like Generation Rescue http://www.danasview.net/recover.htm > 6. Are there success stories for ADD children who have been chelated? I have one ADD and one ADHD child. Both have been chelated, altho it was not the chelation which eliminated the ADD/ADHD. > 7. Where can I read these success stories? See above. > 8. Are there success stories for children with speech delays? See above. > 9. What books/websites are recommended for a newbie? Well, I like my site LOL http://www.danasview.net/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 > What would be a good website for someone who is looking into enzymes for their SID daughter, who also happens to have weight gain issues (overweight low energy, ADD, and other related issues) > > Thanks > www.enzymestuff.com & / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 , I don't know of a website to have more info on enzymes than this one: http://www.enzymestuff.com/ Good luck Ken Maher <kwmaher29@...> wrote: What would be a good website for someone who is looking into enzymes for their SID daughter, who also happens to have weight gain issues (overweight low energy, ADD, and other related issues) Thanks danasview <danasview@...> wrote: > > I would be extremely grateful to any one who would answer the > following questions for me: > > 1. Is this group associated with Generation Rescue, or is it separate? From what I know, separate, but the same philosophy, that mercury and other metals cause autism. > 1.a If it is separate, what ideological/treatment or other > differences are there between you? I am unaware of any, altho that does not mean there might be differences. > 2. Can I obtain TD-DMPS without a prescription? If so, where? No, rx only. > 3. How can I learn about Andy's protocol? Links and info have already been provided by others. More info here http://home.earthlink.net/~moriam/ > 4. This all seems to complicated and I am overwhelmed - where do I > begin to educate myself on chelation therapy? I don't want to make > things worse. My chelation section might be a good place to start http://www.danasview.net/parent3.htm#chelation > 5. Are there success stories for autistic children who have been > chelated? My page of Stories of Recovery, including to other sites like Generation Rescue http://www.danasview.net/recover.htm > 6. Are there success stories for ADD children who have been chelated? I have one ADD and one ADHD child. Both have been chelated, altho it was not the chelation which eliminated the ADD/ADHD. > 7. Where can I read these success stories? See above. > 8. Are there success stories for children with speech delays? See above. > 9. What books/websites are recommended for a newbie? Well, I like my site LOL http://www.danasview.net/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 Hi , welcome! > > 3. How can I learn about Andy's protocol? In the Files section, by reading this list & the adult list (Frequent Dose Chelation) and in both of Andy's books, Amalgam Illness and Hair Test Interpretation. > 4. This all seems to complicated and I am overwhelmed - where do I > begin to educate myself on chelation therapy? I don't want to make > things worse. I was incredibly nervous at first. I found out about Andy's protocol via Nell, who posts on this list and whose son is recovered via chelation and other biomed interventions. I read Andy's books, read Moria's page (Files section), I ordered hair tests for myself and my 2 NT kids, and I began skimming the and Frequent Dose Chelation lists. I also used Onibasu to search the archives. I noticed fairly quickly that there were negative reports (regression) from people who had tried other protocols, but I didn't find horror stories from Andy's protocol. A coworker of mine had been chelating for heart problems with EDTA, and we began to compare notes on chelation protocols. We started to talk mercury and he read Andy's books. It was good to be able to talk with someone in real life about Andy's protocol, about mercury poisoning, and not feel like a loon. We are both chelating now, Andy's protocol of course, and doing well. After doing some initial reading, and taking a look at our hair tests, I decided to do a trial of chelation, 10 rounds, for my 2 NT kids and myself. I saw little improvements right away and that was sooooo encouraging. At the end of 10 rounds I asked my skeptical husband what he thought and he said, " Keep chelating " . We're on round 39 now, and still trudging along. I think we're coming out of the stall period (a normal part of the detox journey) and seeing small improvements again. > > 5. Are there success stories for autistic children who have been > chelated? > > 6. Are there success stories for ADD children who have been chelated? > > 7. Where can I read these success stories? > > 8. Are there success stories for children with speech delays? > Yes, to all of those questions. Success stories posted in updates here on the list and in Moria's Love Letters. Success stories on the adult list too. in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 > > What would be a good website for someone who is looking into enzymes for their SID daughter, who also happens to have weight gain issues (overweight low energy, ADD, and other related issues) This site is good http://www.enzymestuff.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Sorry to ask many-times-before-asked questions and thanks in advance for bearing with me as I get ready to start... I have bought the 25mg DMSA, but is there a source of low dose ALA, or do I need to separate it myself? Just trying to save time/energy which is at a premium in our house ; ) I believe I should start with the DMSA first and then introduce the ALA? If so, after how long? Lastly, I started Candex this week hoping this will help us with any yeast and we are at two per day. Would it wise to increase/add in another anti-yeast first, like GSE ( is 100lb and 10 yo)? Or does just Candex alone sound good enough? Thank you, a million thank you's, millie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 > > Sorry to ask many-times-before-asked questions and thanks in advance for bearing with me as I get ready to start... > > I have bought the 25mg DMSA, but is there a source of low dose ALA, or do I need to separate it myself? Just trying to save time/energy which is at a premium in our house ; ) We buy ALA from Vitamin Shoppe or iHerb in 50 mg tablets, which are easy to divide. Vitamin Shoppe brand, and Source Naturals brand tablets divide easily without crumbling. > > I believe I should start with the DMSA first and then introduce the ALA? If so, after how long? Starting with DMSA first is important for people with recent exposure. So, if one just had their amalgams removed, you start with DMSA and you can add ALA 3 months later. See Moria's page in the Files section for more info. must have NO amalgam in his mouth. It's also important to start with one or the other, by itself, to see how the chelator is tolerated. My suggestion is to post his hair test here first. If it indicates the need for adrenal support, etc. it might be a good idea to get that in place before detoxing. I'm basing this on what I read on the adult lists where thyroid and adrenal support are often very important to feeling good while chelating. Have you already ramped up on supplements? There is a good supplement file in the Files section. Antioxidant support, 4x/day is very important, as well as others. > > Lastly, I started Candex this week hoping this will help us with any yeast and we are at two per day. Would it wise to increase/add in another anti-yeast first, like GSE ( is 100lb and 10 yo)? Or does just Candex alone sound good enough? > It's hard to say. From what I've read of others experience, it's trial and error. We've used Candex, Culturelle, Vitamin Shoppe probiotics, No Fenol plus GSE, and kefir in varying amounts, combos, etc. Millie, if you want to try kefir (we make a daily fruit smoothie out of it--great probiotics!), I can send you some grains and you can make it at home. Hope that helps, in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 , Thanks for great explanations to my Q's and for your kind offer to send kefir grains. I actually do give probiotics and make kefir everyday. Unfortunately, hates it even if sweetened and flavored. If I really bribe him, I can get a few sips... Maybe you can PM me your smoothie recipe. What a godsend you and the group are to me. Have a happy blessed Thanksgiving, Millie > > > > Sorry to ask many-times-before-asked questions and thanks in advance for bearing > with me as I get ready to start... > > > > I have bought the 25mg DMSA, but is there a source of low dose ALA, or do I need to > separate it myself? Just trying to save time/energy which is at a premium in our house ; ) > > > We buy ALA from Vitamin Shoppe or iHerb in 50 mg tablets, which are easy to divide. > Vitamin Shoppe brand, and Source Naturals brand tablets divide easily without crumbling. > > > > > > I believe I should start with the DMSA first and then introduce the ALA? If so, after how > long? > > > Starting with DMSA first is important for people with recent exposure. So, if one just had > their amalgams removed, you start with DMSA and you can add ALA 3 months later. See > Moria's page in the Files section for more info. must have NO amalgam in his > mouth. It's also important to start with one or the other, by itself, to see how the chelator > is tolerated. > > My suggestion is to post his hair test here first. If it indicates the need for adrenal > support, etc. it might be a good idea to get that in place before detoxing. I'm basing this > on what I read on the adult lists where thyroid and adrenal support are often very > important to feeling good while chelating. Have you already ramped up on supplements? > There is a good supplement file in the Files section. Antioxidant support, 4x/day is very > important, as well as others. > > > > > > Lastly, I started Candex this week hoping this will help us with any yeast and we are at > two per day. Would it wise to increase/add in another anti-yeast first, like GSE ( is > 100lb and 10 yo)? Or does just Candex alone sound good enough? > > > > > It's hard to say. From what I've read of others experience, it's trial and error. We've used > Candex, Culturelle, Vitamin Shoppe probiotics, No Fenol plus GSE, and kefir in varying > amounts, combos, etc. > > Millie, if you want to try kefir (we make a daily fruit smoothie out of it--great probiotics!), I > can send you some grains and you can make it at home. > > Hope that helps, > > in Illinois > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 > > , > > Thanks for great explanations to my Q's and for your kind offer to > send kefir grains. I actually do give probiotics and make kefir > everyday. Unfortunately, hates it even if sweetened and > flavored. If I really bribe him, I can get a few sips... Maybe you > can PM me your smoothie recipe. > > What a godsend you and the group are to me. Have a happy blessed > Thanksgiving, > Millie > My kids like the kefir better when I let it ripen in the fridge several days after straining it. The taste mellows with ripening. I just throw some bananas in there, and sometimes pineapple or blueberries. Sometimes some nuts too. We have some every morning. I guess I'm lucky they drink it! Happy Thanksgiving, in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 >If I really bribe him, I can get a few sips... Maybe you > can PM me your smoothie recipe. > Butting in here with my smoothie recipe: crushed ice, kefir, pineapple juice, flax oil, honey. Arrange amounts to taste. Sometimes I throw in frozen fruit chunks if I have them, sometimes a raw egg. The pineapple jiuce is like magic, it covers the taste of everything. I have this almost every day (thanks !) and I'm convinced I am not going to get sick all winter. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Hi Everyone, My son, , just got banded with the DOC band for plagio on Monday and we are new to this group. He is 4 months old and we were told that he will likely wear the band for 8 weeks. I'm not sure what all the numbers mean, but he has a 15 mm difference and Cranial Tech classified him as moderate. His right eye is slightly rounded and his ears are off by a couple of mm. Can anyone share with me the success they've had with their child around the same age and with the same level of plagio, including the length of time wearing the band the amount of correction. Also, has anyone had issues with regression? is very mobile with rolling around and he likes to roll on his back to lay on this flat spot. I'm concerned that when we're done with the band in 2 months that he'll continue to lay in his favorite position and our efforts with the helmet will be in vain. I continue to reposiion him through the night and I never have him on his back during the day, but he still mangages to roll over during the night. And, one more question, what is the best response to give young children questioning the band? A number of the young children in our neighborhood haven't seen yet, but I am anticipating a lot of questions. Thanks in advance for everyone's support and advice. -Beth Mom to , 4 months (DOC band 8/20/20007) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 From what I've heard, the Starband is different from the Doc in that it is a little thicker so there is more foam to shave out.....I know the last month was WELL worth it because he went from 4.6 to 3.4 and his ears corrected by an additional 5mm!!! so I am one of the BIG advocates for the Starband. however I believe I had VERY good Orthoists which is very important when using the band. I would not hesitate to go see them again. I hope that helps Deepali <drdeepa1@...> wrote: Hi ! Congrats on ur son's improvement. My daughter also started with DOC band at 5 1/2 mths with 11 mm cranial vault & 10 mm ear asymmetry. But they say tht if the kids start band at an early age, they grow fast & usually outgrow within 10-12 weeks. So I was just wondering hw could ur son wear the band so long for 4 1/2 mths. Is starband diff. from DOC in terms of the inner foam so tht they can shave it for longer time. I was just wishing if my daughter could also wear it for a little longer so tht i could get near normal correction. I don't want to stop at 4/5 mm at the end of treatment.> Hi Everyone,> > My son, , just got banded with the DOC band for plagio on Monday > and we are new to this group. He is 4 months old and we were told > that he will likely wear the band for 8 weeks. I'm not sure what all > the numbers mean, but he has a 15 mm difference and Cranial Tech > classified him as moderate. His right eye is slightly rounded and > his ears are off by a couple of mm. Can anyone share with me the > success they've had with their child around the same age and with the > same level of plagio, including the length of time wearing the band > the amount of correction. > > Also, has anyone had issues with regression? is very mobile > with rolling around and he likes to roll on his back to lay on this > flat spot. I'm concerned that when we're done with the band in 2 > months that he'll continue to lay in his favorite position and our > efforts with the helmet will be in vain. I continue to reposiion him > through the night and I never have him on his back during the day, > but he still mangages to roll over during the night. > > And, one more question, what is the best response to give young > children questioning the band? A number of the young children in our > neighborhood haven't seen yet, but I am anticipating a lot of > questions. Thanks in advance for everyone's support and advice.> > -Beth> Mom to , 4 months (DOC band 8/20/20007)> > > > > > > > > "In the depths of winter, I finally found there was in me an invincible summer."> "In the depths of winter, I finally found there was in me an invincible summer." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Beth, The length of wear not only depends the severity and age when started but when your child grows. Our son was older (7.5 months) and had 8mm assymetry. He only had to wear the band 8weeks and his head is now at the high end of normal (3mm). We would of had him wear it longer but the holding pressures and foam were gone. Another band, would of only gotten us maybe 1mm more correction. We are happy with the results. ONly I can notice that there is still a little bit of flatness but as his hair keeps getting thicker it is becoming even less noticeable to me. He has not regressed (I actually went back at 13 months because I was convinced he had). Hopefully, at the end of treatment your little one will be sitting up as he'll be about 6 months old. Also, some babies start sleeping on their tummies when they get the band and continue this (mine did). 14 month old DOC graduate > > Hi Everyone, > > > > My son, , just got banded with the DOC band for plagio on > Monday > > and we are new to this group. He is 4 months old and we were told > > that he will likely wear the band for 8 weeks. I'm not sure what > all > > the numbers mean, but he has a 15 mm difference and Cranial Tech > > classified him as moderate. His right eye is slightly rounded and > > his ears are off by a couple of mm. Can anyone share with me the > > success they've had with their child around the same age and with > the > > same level of plagio, including the length of time wearing the band > > the amount of correction. > > > > Also, has anyone had issues with regression? is very mobile > > with rolling around and he likes to roll on his back to lay on this > > flat spot. I'm concerned that when we're done with the band in 2 > > months that he'll continue to lay in his favorite position and our > > efforts with the helmet will be in vain. I continue to reposiion > him > > through the night and I never have him on his back during the day, > > but he still mangages to roll over during the night. > > > > And, one more question, what is the best response to give young > > children questioning the band? A number of the young children in > our > > neighborhood haven't seen yet, but I am anticipating a lot of > > questions. Thanks in advance for everyone's support and advice. > > > > -Beth > > Mom to , 4 months (DOC band 8/20/20007) > > > > > > > > > > > > > > > > > > " In the depths of winter, I finally found there was in > me an invincible summer. " > > > > > > > > > > > " In the depths of winter, I finally found there was in me an invincible summer. " > Quote Link to comment Share on other sites More sharing options...
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