Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Please, does anyone have experience with Dr. Reinisch in California to perform secondary surgery? I just spoke with him and he thinks he might be able to work on Mike's ear. Birgitte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Hi Birgitte. I'm not exactly sure what do you mean with " secondary surgery " (Does it mean that Mike had an original surgery done?). In any case, Dr. Reinisch operated our son Gonzalo a year from next March 17th. The experience has been quite good for us. He was interveined exactly one day after his third birthday. The ear looks very natural in color and shape, and even though it is bigger than normal, it has a very nice overall impression (it shall be same size in a few years). On the second surgery he had done the tragus and the resemblance of the ear canal (no actual canal done), and that improved the look quite a bit. As I promessed Bostwick, we'll be posting a complete text with details of our experience with the Medpor / Reinisch experience, along with pictures (one month, three months, final). If you have ANY questions, before or after we post that message, we'll be very glad to answer. Kind regards Lujambio I. > Please, does anyone have experience with Dr. Reinisch in California > to perform secondary surgery? > I just spoke with him and he thinks he might be able to work on > Mike's ear. > Birgitte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 I have had a terrible time with Dr. Reinisch's office (staff) I get the run around every time I try to set something up. I even had Brayden's doctors office call and speak with them and fax all info they needed. I finally gave up. We still have time and we are leaning toward Dr. Brent, but I was really put off by the staff. Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 I have had a terrible time with Dr. Reinisch's office (staff) I get the run around every time I try to set something up. I even had Brayden's doctors office call and speak with them and fax all info they needed. I finally gave up. We still have time and we are leaning toward Dr. Brent, but I was really put off by the staff. Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 I have had a terrible time with Dr. Reinisch's office (staff) I get the run around every time I try to set something up. I even had Brayden's doctors office call and speak with them and fax all info they needed. I finally gave up. We still have time and we are leaning toward Dr. Brent, but I was really put off by the staff. Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 << As far as I know, that is what Dr. Reinisch recommends for unilaterals. >> Hi , So are you saying Dr. Reinisch recommended no canalplasty just on Gonzalo? Or is this his general rule for all reconstructions he does? This is a major consideration when choosing a method of reconstruction. I can't wait to see the picutures of Gonzalo. Thank you for sharing all your information with us. It is very helpful for us who still have decisions to make. Autumn (mom to Brayden) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 << As far as I know, that is what Dr. Reinisch recommends for unilaterals. >> Hi , So are you saying Dr. Reinisch recommended no canalplasty just on Gonzalo? Or is this his general rule for all reconstructions he does? This is a major consideration when choosing a method of reconstruction. I can't wait to see the picutures of Gonzalo. Thank you for sharing all your information with us. It is very helpful for us who still have decisions to make. Autumn (mom to Brayden) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 << As far as I know, that is what Dr. Reinisch recommends for unilaterals. >> Hi , So are you saying Dr. Reinisch recommended no canalplasty just on Gonzalo? Or is this his general rule for all reconstructions he does? This is a major consideration when choosing a method of reconstruction. I can't wait to see the picutures of Gonzalo. Thank you for sharing all your information with us. It is very helpful for us who still have decisions to make. Autumn (mom to Brayden) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hi, Lynne. Our Gonzalo was unilateral microtia/atresia. We had been recommended by four Doctors here in Mexico not to do anything with his ear canal. Dr. Reinisch just confirmed that opinion, hence we did nothing else on that. As far as I know, that is what Dr. Reinisch recommends for unilaterals. Regards > > > > I have had a terrible time with Dr. Reinisch's office (staff) I get > > the run > > around every time I try to set something up. I even had Brayden's > > doctors > > office call and speak with them and fax all info they needed. I > > finally gave > > up. We still have time and we are leaning toward Dr. Brent, but I was > > really > > put off by the staff. > > Autumn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hi, Lynne. Our Gonzalo was unilateral microtia/atresia. We had been recommended by four Doctors here in Mexico not to do anything with his ear canal. Dr. Reinisch just confirmed that opinion, hence we did nothing else on that. As far as I know, that is what Dr. Reinisch recommends for unilaterals. Regards > > > > I have had a terrible time with Dr. Reinisch's office (staff) I get > > the run > > around every time I try to set something up. I even had Brayden's > > doctors > > office call and speak with them and fax all info they needed. I > > finally gave > > up. We still have time and we are leaning toward Dr. Brent, but I was > > really > > put off by the staff. > > Autumn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hi, Lynne. Our Gonzalo was unilateral microtia/atresia. We had been recommended by four Doctors here in Mexico not to do anything with his ear canal. Dr. Reinisch just confirmed that opinion, hence we did nothing else on that. As far as I know, that is what Dr. Reinisch recommends for unilaterals. Regards > > > > I have had a terrible time with Dr. Reinisch's office (staff) I get > > the run > > around every time I try to set something up. I even had Brayden's > > doctors > > office call and speak with them and fax all info they needed. I > > finally gave > > up. We still have time and we are leaning toward Dr. Brent, but I was > > really > > put off by the staff. > > Autumn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Autumn: I don't know what Dr. Reinisch recommends in general. He did not recommend canalplasty for my Gonzalo. I promess to post those pictures as soon as I borrow a higher resolution camera. > > In a message dated 3/5/03 11:05:59 AM, juanlujambio@h... writes: > > << As far as I know, that is what Dr. Reinisch recommends for > unilaterals. >> > > Hi , > So are you saying Dr. Reinisch recommended no canalplasty just on Gonzalo? > Or is this his general rule for all reconstructions he does? This is a major > consideration when choosing a method of reconstruction. > I can't wait to see the picutures of Gonzalo. Thank you for sharing all your > information with us. It is very helpful for us who still have decisions to > make. > Autumn (mom to Brayden) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Autumn: I don't know what Dr. Reinisch recommends in general. He did not recommend canalplasty for my Gonzalo. I promess to post those pictures as soon as I borrow a higher resolution camera. > > In a message dated 3/5/03 11:05:59 AM, juanlujambio@h... writes: > > << As far as I know, that is what Dr. Reinisch recommends for > unilaterals. >> > > Hi , > So are you saying Dr. Reinisch recommended no canalplasty just on Gonzalo? > Or is this his general rule for all reconstructions he does? This is a major > consideration when choosing a method of reconstruction. > I can't wait to see the picutures of Gonzalo. Thank you for sharing all your > information with us. It is very helpful for us who still have decisions to > make. > Autumn (mom to Brayden) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Autumn: I don't know what Dr. Reinisch recommends in general. He did not recommend canalplasty for my Gonzalo. I promess to post those pictures as soon as I borrow a higher resolution camera. > > In a message dated 3/5/03 11:05:59 AM, juanlujambio@h... writes: > > << As far as I know, that is what Dr. Reinisch recommends for > unilaterals. >> > > Hi , > So are you saying Dr. Reinisch recommended no canalplasty just on Gonzalo? > Or is this his general rule for all reconstructions he does? This is a major > consideration when choosing a method of reconstruction. > I can't wait to see the picutures of Gonzalo. Thank you for sharing all your > information with us. It is very helpful for us who still have decisions to > make. > Autumn (mom to Brayden) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Just to add to what Autumn said, I also had a difficult time dealing with Dr. Reinisch's office. Over a year ago, I e mailed them and began by asking general microtia questions. I didn't tell them that my son already had a polyethylene implant. I got a response back almost immediately. My next e mail went on to ask about hearing restoration after implant surgery. I wanted to know what they suggest to their patients, if their patients go on to request canalplasties and if so, who they use for that surgery. I was very curious and anxiously awaiting answers since I had just found out that Dr. J would not do a canalplasty on Evan. No answers ever came. I e mailed several more times, nothing. I felt like they were avoiding answering my questions. I also found it very strange. I even called once and was told someone would get back to me. No one ever called back. , if you don't mind me asking, what was the case with you and Gonzolo? Did you ever approach the subject of canalplasty with Dr. Reinisch? What was his response? Do you know what his patients are doing about hearing restoration? Thanks for your help, Lynne FACTBERTE@... wrote: > > I have had a terrible time with Dr. Reinisch's office (staff) I get > the run > around every time I try to set something up. I even had Brayden's > doctors > office call and speak with them and fax all info they needed. I > finally gave > up. We still have time and we are leaning toward Dr. Brent, but I was > really > put off by the staff. > Autumn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Just to add to what Autumn said, I also had a difficult time dealing with Dr. Reinisch's office. Over a year ago, I e mailed them and began by asking general microtia questions. I didn't tell them that my son already had a polyethylene implant. I got a response back almost immediately. My next e mail went on to ask about hearing restoration after implant surgery. I wanted to know what they suggest to their patients, if their patients go on to request canalplasties and if so, who they use for that surgery. I was very curious and anxiously awaiting answers since I had just found out that Dr. J would not do a canalplasty on Evan. No answers ever came. I e mailed several more times, nothing. I felt like they were avoiding answering my questions. I also found it very strange. I even called once and was told someone would get back to me. No one ever called back. , if you don't mind me asking, what was the case with you and Gonzolo? Did you ever approach the subject of canalplasty with Dr. Reinisch? What was his response? Do you know what his patients are doing about hearing restoration? Thanks for your help, Lynne FACTBERTE@... wrote: > > I have had a terrible time with Dr. Reinisch's office (staff) I get > the run > around every time I try to set something up. I even had Brayden's > doctors > office call and speak with them and fax all info they needed. I > finally gave > up. We still have time and we are leaning toward Dr. Brent, but I was > really > put off by the staff. > Autumn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Just to add to what Autumn said, I also had a difficult time dealing with Dr. Reinisch's office. Over a year ago, I e mailed them and began by asking general microtia questions. I didn't tell them that my son already had a polyethylene implant. I got a response back almost immediately. My next e mail went on to ask about hearing restoration after implant surgery. I wanted to know what they suggest to their patients, if their patients go on to request canalplasties and if so, who they use for that surgery. I was very curious and anxiously awaiting answers since I had just found out that Dr. J would not do a canalplasty on Evan. No answers ever came. I e mailed several more times, nothing. I felt like they were avoiding answering my questions. I also found it very strange. I even called once and was told someone would get back to me. No one ever called back. , if you don't mind me asking, what was the case with you and Gonzolo? Did you ever approach the subject of canalplasty with Dr. Reinisch? What was his response? Do you know what his patients are doing about hearing restoration? Thanks for your help, Lynne FACTBERTE@... wrote: > > I have had a terrible time with Dr. Reinisch's office (staff) I get > the run > around every time I try to set something up. I even had Brayden's > doctors > office call and speak with them and fax all info they needed. I > finally gave > up. We still have time and we are leaning toward Dr. Brent, but I was > really > put off by the staff. > Autumn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Thanks for the information . Yes, I know the usual road traveled for unilateral cases is not to do a canalplasty but I was hoping he may have mentioned something to you about what he does do when a patient requests it or information about it. When you have a child with bilateral microtia, you absolutely have to know what lies ahead in terms of hearing before you can make the proper decision for reconstruction. I'm sure that Dr. Reinisch deals with bilateral patients and I'm sure some have asked about opening the ear canal. I'm dying to know what he tells them! Evan isn't doing that well with the unilateral hearing that he has of late. This may become a pressing issue for us soon. I would really like to know where I stand with this situation. Looks like I may have to begin another e mail campaign to Dr. Reinisch's office. *uggg* Lynne microtiafather wrote: > > Hi, Lynne. Our Gonzalo was unilateral microtia/atresia. We had > been recommended by four Doctors here in Mexico not to do anything > with his ear canal. Dr. Reinisch just confirmed that opinion, hence > we did nothing else on that. > As far as I know, that is what Dr. Reinisch recommends for > unilaterals. > Regards > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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