Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 Hi Marla, my daughter wore a starband from age 5 mo to 10 mo. she was always a happy, smiley baby who was on time or early for her milestones (except teeth). her personality was not affected at all. she wasn't a great sleeper and that got a little worse, but most babies adjust to sleeping in the band fairly easily. I'm sure Nolan will do well in a band. -christine mom to sydney / 11 mo/ starband grad 10-06 > > Hi there! > > My name is Marla and I am mom to 5 1/2 month old ds Nolan. Nolan was > diagnosed with torticolis and is being evaluated for a helmet on > Wednesday. Please tell me this is not as bad as I think it is going to > be. Did anyone notice major changes in behavior after the helmet? I am > so concerned that he is going to hate it and just cry all the time. I > have 2 other children and I have never dealt with this before! Also, > what is the average time your child had to wear the helmet. Any > advice/information would be greatly appreciated!! > Thanks, > Marla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Hello. My Daughter wore a Band from 7mo,1wk until she was 10 months old. She never fussed with the band and honestly, most babies do adjust rather quickly and well to their bands. If your Son does get a band, most babies end up wearing it for about 3-4 months. This depends though on the severity of the plagio, age of the baby and how they grow while banded. Some babies have to wear it longer, and some (if you catch a nice growth spurt) wear it a little less than 3 mo. My Daughter was older than your Son and she only wore it for 11 weeks because we caught 1 or 2 good growth spurts. Her head looks great now. Good luck with everything and keep us updated. Jen (28 mo), tort resolved, Hanger Band Grad (4.75 years) > > Hi there! > > My name is Marla and I am mom to 5 1/2 month old ds Nolan. Nolan was > diagnosed with torticolis and is being evaluated for a helmet on > Wednesday. Please tell me this is not as bad as I think it is going to > be. Did anyone notice major changes in behavior after the helmet? I am > so concerned that he is going to hate it and just cry all the time. I > have 2 other children and I have never dealt with this before! Also, > what is the average time your child had to wear the helmet. Any > advice/information would be greatly appreciated!! > Thanks, > Marla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi Marla, I have the same concerns as you do. My son, Hayden, is 5 months old and we will be fitting him for a helmet at the end of this month. I am worried that he will not get adjusted to wearing the helmet and just cry all of the time. Our ortho told us that Hayden would have to wear his helmet for 2-3 months. I am assuming every child is different so the length of wearing the helmet will be different with each child. Good Luck and know that you have other mothers with the same concerns and issues. Ronda, Mom of Hayden 5 months. > > Hi there! > > My name is Marla and I am mom to 5 1/2 month old ds Nolan. Nolan was > diagnosed with torticolis and is being evaluated for a helmet on > Wednesday. Please tell me this is not as bad as I think it is going to > be. Did anyone notice major changes in behavior after the helmet? I am > so concerned that he is going to hate it and just cry all the time. I > have 2 other children and I have never dealt with this before! Also, > what is the average time your child had to wear the helmet. Any > advice/information would be greatly appreciated!! > Thanks, > Marla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Hi Everyone, My name is Katy and I just found this group about Plagio and I'm so happy because I've been looking for some support! My ds is 9 months old and was diagnosed at 3 months with brachycephaly, mild to moderate. We tried to get him a helmet but he had a severe allergic reaction to the co-polymer plastics used to make it so we are now trying other methods to try to reshape his head, including repositioning and CranioSacral Therapy. We're getting pretty good results. Anyway, just wanted to introduce myself! Katy and Max Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Welcome Katy and Max! You will find that this is a very supportive group of parents who have been there or are going on the Plagio journey too! Please post pics of Max - We'd love to see him! Oh, and I know that Orthoamerica does make a hypoallergenic liner - can't remember the name right now - If you wanted to try that route I've heard of other parents whose babies were allergic and Ortho made another Starband for them free. Jen and Luli (16mo) Left Tort - Right Plagio - Hanger Band Grad - CA tallulah jayne http://www.babiesonline.com/babies/j/jens5th/ New Here! Hi Everyone, My name is Katy and I just found this group about Plagio and I'm so happy because I've been looking for some support! My ds is 9 months old and was diagnosed at 3 months with brachycephaly, mild to moderate. We tried to get him a helmet but he had a severe allergic reaction to the co-polymer plastics used to make it so we are now trying other methods to try to reshape his head, including repositioning and CranioSacral Therapy. We're getting pretty good results. Anyway, just wanted to introduce myself! Katy and Max AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Katy- I'm kind of in the same boat. My son is almost 8 months and the doc thought he didn't need helmet therapy so we're trying agressive repositioning. If it helps at least a LITTLE bit we'll be pleased. We're taking pictures to see if there is any progress. Everyone on here has great repositioning ideas. So good luck to you and keep us posted. Amy > > Hi Everyone, > > My name is Katy and I just found this group about Plagio and I'm so > happy because I've been looking for some support! My ds is 9 months > old and was diagnosed at 3 months with brachycephaly, mild to > moderate. We tried to get him a helmet but he had a severe allergic > reaction to the co-polymer plastics used to make it so we are now > trying other methods to try to reshape his head, including > repositioning and CranioSacral Therapy. We're getting pretty good > results. Anyway, just wanted to introduce myself! > > Katy and Max > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 The hypoallergenic foam is called Aliplast. As Jen said, Orthomerica can make the STARband with it. I don't know if Cranial Tech makes a DOC band with it. Molly California Nicolas, 18 months, tort & plagio, STARband 4/25/06-9/12/06, Graduate! , 4 , 7.5 New Here! Hi Everyone,My name is Katy and I just found this group about Plagio and I'm sohappy because I've been looking for some support! My ds is 9 monthsold and was diagnosed at 3 months with brachycephaly, mild tomoderate. We tried to get him a helmet but he had a severe allergicreaction to the co-polymer plastics used to make it so we are nowtrying other methods to try to reshape his head, includingrepositioning and CranioSacral Therapy. We're getting pretty goodresults. Anyway, just wanted to introduce myself!Katy and Max AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Katy, You may want to look in the archives. I remember there was someone else on here that banding was not an option for them because they were severly allergic to the foams. I think that person is doing CST and repositioning and is seeing amazing results as well. > > Thanks for the welcoming replies everyone! Of course we tried the hypoallergenic Aliplast, too, but he was also allergic to that. He has a latex allergy, too, so it kind of comes with the territory. There is not really much we can do with the helmet. We aren't looking for perfection because I don't think we can get that at this point, just improvement, which we are seeing! > > Katy > > New Here! > > > > > > > > > Hi Everyone, > > My name is Katy and I just found this group about > Plagio and I'm so > happy because I've been looking for some support! My ds > is 9 months > old and was diagnosed at 3 months with brachycephaly, mild > to > moderate. We tried to get him a helmet but he had a severe > allergic > reaction to the co-polymer plastics used to make it so we are > now > trying other methods to try to reshape his head, > including > repositioning and CranioSacral Therapy. We're getting pretty > good > results. Anyway, just wanted to introduce myself! > > Katy and > Max > > > > > > > > > > AOL now offers free email to everyone. Find out more about what's free from > AOL at AOL.com. > > > > > > > > > > > > > > > <!-- > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text{ > font-family:Georgia; > } > #ygrp-text p{ > margin:0 0 1em 0;} > #ygrp-tpmsgs{ > font-family:Arial; > clear:both;} > #ygrp-vitnav{ > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a{ > padding:0 1px;} > #ygrp-actbar{ > clear:both;margin:25px 0;white-space:nowrap;color:#666;text- align:right;} > #ygrp-actbar .left{ > float:left;white-space:nowrap;} > ..bld{font-weight:bold;} > #ygrp-grft{ > font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft{ > font-family:verdana;font-size:77%;border-top:1px solid #666; > padding:5px 0; > } > #ygrp-mlmsg #logo{ > padding-bottom:10px;} > > #ygrp-vital{ > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} > #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text- transform:uppercase;} > #ygrp-vital ul{ > padding:0;margin:2px 0;} > #ygrp-vital ul li{ > list-style-type:none;clear:both;border:1px solid #e0ecee; > } > #ygrp-vital ul li .ct{ > font-weight:bold;color:#ff7900;float:right;width:2em;text- align:right;padding-right:.5em;} > #ygrp-vital ul li .cat{ > font-weight:bold;} > #ygrp-vital a { > text-decoration:none;} > > #ygrp-vital a:hover{ > text-decoration:underline;} > > #ygrp-sponsor #hd{ > color:#999;font-size:77%;} > #ygrp-sponsor #ov{ > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > #ygrp-sponsor #ov ul{ > padding:0 0 0 8px;margin:0;} > #ygrp-sponsor #ov li{ > list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a{ > text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc { > background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad{ > padding:8px 0;} > #ygrp-sponsor .ad #hd1{ > font-family:Arial;font-weight:bold;color:#628c2a;font- size:100%;line-height:122%;} > #ygrp-sponsor .ad a{ > text-decoration:none;} > #ygrp-sponsor .ad a:hover{ > text-decoration:underline;} > #ygrp-sponsor .ad p{ > margin:0;} > o {font-size:0;} > ..MsoNormal { > margin:0 0 0 0;} > #ygrp-text tt{ > font-size:120%;} > blockquote{margin:0 0 0 4px;} > ..replbq {margin:4;} > --> > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Hi Katy and welcome to the group. If you are looking for support, you have come to the right place. You won't find a more supportive group of parents anywhere. We have a very recent member whose son is about the same age as yours, and he also had a severe allergic reaction to hypoallergenic foam. His was a STARband. You can look her up in the archives. Her name is Nina and I think his name is Max too . What area of the country are you located in? It concerns me that two babies have been allergic to the hypoallergenic foam. If you two are in the same area of the country, maybe that provider got a bad batch of helmets or foam. Anyway, welcome to the group and I know you will find the support you need here. Becky, repo mod , repo grad > > Hi Everyone, > > My name is Katy and I just found this group about Plagio and I'm so > happy because I've been looking for some support! My ds is 9 months > old and was diagnosed at 3 months with brachycephaly, mild to > moderate. We tried to get him a helmet but he had a severe allergic > reaction to the co-polymer plastics used to make it so we are now > trying other methods to try to reshape his head, including > repositioning and CranioSacral Therapy. We're getting pretty good > results. Anyway, just wanted to introduce myself! > > Katy and Max > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 Hi Vicky and welcome to the group. My daughter had brachy and wore a starband last year. she started at 5 mo - which sounds like the time your little one will be starting. She did really well, I'm sure your daughter will too. I asked about Sydney's flat spot at 2 mo and all I got was " don't worry " - at least yours gave you some things to try. The helmet works great and is definitely easier than trying to reposition them 24/7. Let us know how it goes. -christine sydney 17 mo starband grad > > Hello to everyone! I am a stay at home mother of two children age 3 > and 4 1/2 months! My daughter was diagnosed with Plagiocephaly and > Brachyocephaly just yesterday at Cranial Technology, due to > tortacollis. My niece had Positional Plagiochephaly and was treated at > the same center that we are going to get my daughter's treatment done at. > > My daughter's pediatrician noticed a flat spot on the back side of my > daughters head at her two week appointment, and we were told to try a > few things to help our daughter reshape her head without having to get > medical treatment but all the suggestions the doctor gave us did not > work. > > So we were referred to Cranial Technology. > > I'm here to get to know all you other moms and/or dads that are here! > I'm thinking about setting up website that is to raise awareness of > these conditions! If anyone is interested in telling their story then > please email them too me, so I can get them together and organize all > the stuff for a website! > Thanks a ton! > Vicky! > Mommy to Connor and ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 To answer your question, No my dd has not been casted yet. We are fighting with the insurance company and CT to get the treatment done. My husband is a Fire Fighter for the Prince 's County, land local government, so it better be covered cause we are supposed to have some of the best beneifts since he's a government employee ... My dd delivery only cost us a total of $170 out of pocket expenses that included all my doctors visits. And from what the insurance company is telling me that they will pay for the doc band at CT ...and it will be paid in full before I even step foot in their VA office again. But CT is telling me that my insurance is out of network and Mamsi (part of UHC) is telling me that they are in network ... Errr soo much drama! Thanks for making me so welcome here! Vicky, Connoer & > > Hello to everyone! I am a stay at home mother of two children age 3 > and 4 1/2 months! My daughter was diagnosed with Plagiocephaly and > Brachyocephaly just yesterday at Cranial Technology, due to > tortacollis. My niece had Positional Plagiochephaly and was treated at > the same center that we are going to get my daughter's treatment done at. > > My daughter's pediatrician noticed a flat spot on the back side of my > daughters head at her two week appointment, and we were told to try a > few things to help our daughter reshape her head without having to get > medical treatment but all the suggestions the doctor gave us did not > work. > > So we were referred to Cranial Technology. > > I'm here to get to know all you other moms and/or dads that are here! > I'm thinking about setting up website that is to raise awareness of > these conditions! If anyone is interested in telling their story then > please email them too me, so I can get them together and organize all > the stuff for a website! > Thanks a ton! > Vicky! > Mommy to Connor and ! > Quote Link to comment Share on other sites More sharing options...
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