Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Margaret, I'm so sorry you are still feeling guilty. DONT. I know easier said then done. Why would you ever question your ped if you had never heard of plagio before??? You did do something about it. Many hugs to you. You are a great mom. na, DOC Grad X2, Feb 04 Kiersten, DOC Grad, April 06 www.thefilyaws.com/plagio/plagio.html > > My son is almost 2 1/2 yrs old. The pediatrician noticed plagio with > him when he was about 12 wks old. She was very casual about it even > when it looked like it was getting worse. She never told me that > there was treatment except for repositioning, which was impossible > after he started moving more. When he was 10 months old I did > research and found there was treatment available, changed > pediatricians and got him fitted with a helmet soon before his 1st > birthday. He wore it for a few months and there was some improvement, > but I worry about how flat the back of his head is, the way it sticks > out on the sides, and the long term health problems he may have. > I am still dealing with the guilt around not having him treated > earlier. Can anybody relate? > Margaret > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Boy oh boy can I relate. I also feel very guilty that my son didn't get his doc band earlier. It feels like the circumstances were always against him to not get treatment and I can't help but feel I could have done more and he is going to suffer because of it. I know we didn't know any better at the time but I still feel really guilty. After this doc band I am hoping that I can get over it and I fully intend to go to counsilling to help me get over it if I need it so that I don't become a bitter old lady which I could see happening because I feel pretty bitter about it now. Haylee mom to Andre 22 months tort/doc band #1 22/11/05 doc band #2 21/6/06 & Lesly 22 months > > My son is almost 2 1/2 yrs old. The pediatrician noticed plagio with > him when he was about 12 wks old. She was very casual about it even > when it looked like it was getting worse. She never told me that > there was treatment except for repositioning, which was impossible > after he started moving more. When he was 10 months old I did > research and found there was treatment available, changed > pediatricians and got him fitted with a helmet soon before his 1st > birthday. He wore it for a few months and there was some improvement, > but I worry about how flat the back of his head is, the way it sticks > out on the sides, and the long term health problems he may have. > I am still dealing with the guilt around not having him treated > earlier. Can anybody relate? > Margaret > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Dear Haylee and other guilty moms, Hey Haylee, I also have twins. My daughter had mild plagio that didn't need treatment. No one warned me that twins are predisposed to plagio. The whole pediatrician thing is maddening - that they are often so casual about plagio. I had my kids in padded high chairs and swings a lot (I would nurse one while I rocked the other, or rock both - they weren't the best little sleepers) and I can't believe I didn't pick up on the fact that Jack's head was becoming more and more malformed. I was so sleep deprived and completely consumed with my kids that I didn't see what was right in front of me. I know that I must let go of my guilt and I do over and over again. Part of what helps is sharing with others in a similar situation, thank you for listening and sharing. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 Dear All, I know I need to move on... but I'm still obsessed with my son's plagio and he's 3 years old. My partner thinks he looks just fine, but to me he looks, well, deformed. I tell myself that he is healthy and looks just fine I should be grateful, but I feel so badly that I didn't do more to fix his head. My ped noticed that my kids (they're twins) had flat spots early on, but just mentioned repositioning as if it was no big deal. Of course, they just flopped their heads to the flat spots. sure they did their tummy time, but I was so tired, so out of it, they also spent a lot of time in carseats, swings and their reclining highchairs (I often nursed while I pushed the other baby back and forth with my feet - they were pretty fussy). Then when his head started looking really bad, my ped just said his head would stay that way - this was at 6 months old - when I should have been starting helmet therapy. I cried about it, but just tried to " get over it " . I tried using a head cushion, but he just rolled out of it. then i finally did some research when he was 11 months old, switched peds, and he wore a helmet for a couple months, which helped some. I just wish someone, like my ped, would have helped me out here. I'm so mad/sad about it, I don't know how to let go -- any suggestions, help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 I'm sorry to hear that you are mad/sad and feel that you didn't do what you could to hlep your son. It sounds like you did help him though...he wore a helmet at 11 months. Why did he stop wearing it if there was still plagio? At this point, I think the only option would be surgery. Although the older plagio group may have someone with a similiar situation. Good luck. > > Dear All, > I know I need to move on... but I'm still obsessed with my son's plagio > and he's 3 years old. My partner thinks he looks just fine, but to me > he looks, well, deformed. I tell myself that he is healthy and looks > just fine I should be grateful, but I feel so badly that I didn't do > more to fix his head. My ped noticed that my kids (they're twins) had > flat spots early on, but just mentioned repositioning as if it was no > big deal. Of course, they just flopped their heads to the flat spots. > sure they did their tummy time, but I was so tired, so out of it, they > also spent a lot of time in carseats, swings and their reclining > highchairs (I often nursed while I pushed the other baby back and forth > with my feet - they were pretty fussy). Then when his head started > looking really bad, my ped just said his head would stay that way - > this was at 6 months old - when I should have been starting helmet > therapy. I cried about it, but just tried to " get over it " . I tried > using a head cushion, but he just rolled out of it. then i finally did > some research when he was 11 months old, switched peds, and he wore a > helmet for a couple months, which helped some. I just wish someone, > like my ped, would have helped me out here. I'm so mad/sad about it, I > don't know how to let go -- any suggestions, help! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 I know how you feel...my daughter is currently banded, but I wouldn't have known any better if my sister hadn't gone through this whole process. Since I was familiar with tort/plagio b/c of my nephew, I knew the questions to ask and the referrals to demand. But there are so many parents out there that don't know b/c they've never heard of the condition or like you said, the docs tell them it'll round out on its own. You now know that's not the case, and the best advice I can give is to use your experience to educate someone else and prevent them from having to go through what you are. I wonder sometimes if I had banded my daughter earlier if the plagio would have been less severe. And that's where my guilt comes in. I am trying to make this whole experience a positive by doing my part to get the word out about plagio. I'm only one person and I know my influence is limited, but I have to at least make an effort. If I can save one child/parent from going through this, then I've done something right and I hope in time the feelings of guilt will be replaced with feelings that I made a difference for someone else. Just my way of dealing.... Good luck, Lori Mom to , 7 months DOC Band since 6/25/07 > > Dear All, > I know I need to move on... but I'm still obsessed with my son's plagio > and he's 3 years old. My partner thinks he looks just fine, but to me > he looks, well, deformed. I tell myself that he is healthy and looks > just fine I should be grateful, but I feel so badly that I didn't do > more to fix his head. My ped noticed that my kids (they're twins) had > flat spots early on, but just mentioned repositioning as if it was no > big deal. Of course, they just flopped their heads to the flat spots. > sure they did their tummy time, but I was so tired, so out of it, they > also spent a lot of time in carseats, swings and their reclining > highchairs (I often nursed while I pushed the other baby back and forth > with my feet - they were pretty fussy). Then when his head started > looking really bad, my ped just said his head would stay that way - > this was at 6 months old - when I should have been starting helmet > therapy. I cried about it, but just tried to " get over it " . I tried > using a head cushion, but he just rolled out of it. then i finally did > some research when he was 11 months old, switched peds, and he wore a > helmet for a couple months, which helped some. I just wish someone, > like my ped, would have helped me out here. I'm so mad/sad about it, I > don't know how to let go -- any suggestions, help! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2007 Report Share Posted August 9, 2007 Hi Jen - 's doc said to keep her in the band for anothe 2-3 mo in hopes of correcting from 7.5 to 3.5. One thing I have noticed more lately is her eye asym - the tort eye seems to be slightly inward and up. Did you have this with your and did it correct?? Thanks much, PS Happy almost 3 yr old bday to your - ours just turned 9 mo Re: Guilt Hello. i'm so sorry you feel so terrible about this. It's not your fault! SOOO many Doctors these days are so passive about it and tell parents ALL THE TIME that the head will "round out on its own" when this just isn't often the case. There are other therapies that some people have tried and had some success to help with remaining plagio and/or plagio that was never treated. You may want to go onto the older Plagio group and see if you can get some info on this. Here is the link: OlderPlag/ My Daughter just turned 3, and although she did wear a band from 7mo til 10mo, and received great correction, I still sometimes stress over the little bit of remaining plagio and asymmetry. But.... i try to focus on how far she came from how bad her head was innitially. The improvement was great! Do you think that others would notice his head shape? I think that often times, as Mothers, we notice evert tiny little detail and it isn't even something that anyone else but us would notice. Good luck and I hope that you can find the peace that you are looking for. Jen (3 years), tort resolved, Hanger Band Grad (5 1/2 years) > > Dear All, > I know I need to move on... but I'm still obsessed with my son's plagio > and he's 3 years old. My partner thinks he looks just fine, but to me > he looks, well, deformed. I tell myself that he is healthy and looks > just fine I should be grateful, but I feel so badly that I didn't do > more to fix his head. My ped noticed that my kids (they're twins) had > flat spots early on, but just mentioned repositioning as if it was no > big deal. Of course, they just flopped their heads to the flat spots. > sure they did their tummy time, but I was so tired, so out of it, they > also spent a lot of time in carseats, swings and their reclining > highchairs (I often nursed while I pushed the other baby back and forth > with my feet - they were pretty fussy). Then when his head started > looking really bad, my ped just said his head would stay that way - > this was at 6 months old - when I should have been starting helmet > therapy. I cried about it, but just tried to "get over it". I tried > using a head cushion, but he just rolled out of it. then i finally did > some research when he was 11 months old, switched peds, and he wore a > helmet for a couple months, which helped some. I just wish someone, > like my ped, would have helped me out here. I'm so mad/sad about it, I > don't know how to let go -- any suggestions, help! > AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
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