Barbara--Re: Had my GI appt yesterday...from Adam

[Guest guest]

Hi Barbara,

Thanks for those ideas. I think I am going to try something. I am

pretty sure I wouldn't be able to tolerate 30% fat. Would either of

these products be available from the pharmacy? Maybe by special

order? Thanks very much for the kind offer. :-) I will look around

and see if I can find it locally, and let you know.

As for records, I keep my own set of records at home. I spent two

days making sure my records were well organized and concise.

Highlighted the dates and important info in each report, and brought

them with me to the appt to make it easier for him. I exhausted

myself doing it, but I needed to anyway. Dr. Korson had faxed a lot

of information to him the day before, so he had the information

available to him.

Thanks again,

Adam

> Hi Adam, If you are looking for a complete-nutrition liquid food

> product low in fat, I can recommend Advera or ProSure. In both, the

> fat content is about 15% of the calories. Most complete-nutrition

> liquid products have at least 30-40% fat because they are designed

> to help people gain weight. Advera was specifically developed for

> HIV patients (who have a fat intolerance) and ProSure was developed

> for cancer patients who need to rebuild body mass and muscle. Both

> are lactose and gluten free and work well for me. You can buy them

> on the web by the case, but we get them through Apria, the

> designated supplier for our insurance. Most health insurance plans

> do not cover the cost of enteral food products, but Apria sells us

> the product at a huge discount over full retail, $30 something a

> case instead of over $100. If you want to try Advera or Prosure to

> see if you tolerate it before buying a case, we'd be happy to mail

> you a can or two.

>

> Barbara

>

> PS Have you thought about taking a copy of your mito diagnosis

> report when you see a new doctor? I usually do this so we don't

have > to waste precious time establishing the diagnosis. In fact, I

> usually mail this in a week or two in advance. Gives them the

option > to bone up a bit if they choose to do so.

>

[Guest guest]

Adam

You can get powdered protein or pill form. The powdered protein can be made

with a smoothie with items you can tolerate and you could then change it

everyday to get a variety of nutrients along with the protein.

laurie

>

> Reply-To:

> Date: Fri, 01 Oct 2004 01:20:30 -0000

> To:

> Subject: Barbara--Re: Had my GI appt yesterday...from Adam

>

> Hi Barbara,

>

> Thanks for those ideas. I think I am going to try something. I am

> pretty sure I wouldn't be able to tolerate 30% fat. Would either of

> these products be available from the pharmacy? Maybe by special

> order? Thanks very much for the kind offer. :-) I will look around

> and see if I can find it locally, and let you know.

>

> As for records, I keep my own set of records at home. I spent two

> days making sure my records were well organized and concise.

> Highlighted the dates and important info in each report, and brought

> them with me to the appt to make it easier for him. I exhausted

> myself doing it, but I needed to anyway. Dr. Korson had faxed a lot

> of information to him the day before, so he had the information

> available to him.

>

> Thanks again,

> Adam

>

>

>> Hi Adam, If you are looking for a complete-nutrition liquid food

>> product low in fat, I can recommend Advera or ProSure. In both, the

>> fat content is about 15% of the calories. Most complete-nutrition

>> liquid products have at least 30-40% fat because they are designed

>> to help people gain weight. Advera was specifically developed for

>> HIV patients (who have a fat intolerance) and ProSure was developed

>> for cancer patients who need to rebuild body mass and muscle. Both

>> are lactose and gluten free and work well for me. You can buy them

>> on the web by the case, but we get them through Apria, the

>> designated supplier for our insurance. Most health insurance plans

>> do not cover the cost of enteral food products, but Apria sells us

>> the product at a huge discount over full retail, $30 something a

>> case instead of over $100. If you want to try Advera or Prosure to

>> see if you tolerate it before buying a case, we'd be happy to mail

>> you a can or two.

>>

>> Barbara

>>

>> PS Have you thought about taking a copy of your mito diagnosis

>> report when you see a new doctor? I usually do this so we don't

> have > to waste precious time establishing the diagnosis. In fact, I

>> usually mail this in a week or two in advance. Gives them the

> option > to bone up a bit if they choose to do so.

>>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

The brand of soy protein powder I use also has a lot of amino acids

added too.

Laureta Fitzgerald wrote:

>Adam

>

>You can get powdered protein or pill form. The powdered protein can be made

>with a smoothie with items you can tolerate and you could then change it

>everyday to get a variety of nutrients along with the protein.

>

>laurie

>

>

>

>>

>>Reply-To:

>>Date: Fri, 01 Oct 2004 01:20:30 -0000

>>To:

>>Subject: Barbara--Re: Had my GI appt yesterday...from Adam

>>

>>Hi Barbara,

>>

>>Thanks for those ideas. I think I am going to try something. I am

>>pretty sure I wouldn't be able to tolerate 30% fat. Would either of

>>these products be available from the pharmacy? Maybe by special

>>order? Thanks very much for the kind offer. :-) I will look around

>>and see if I can find it locally, and let you know.

>>

>>As for records, I keep my own set of records at home. I spent two

>>days making sure my records were well organized and concise.

>>Highlighted the dates and important info in each report, and brought

>>them with me to the appt to make it easier for him. I exhausted

>>myself doing it, but I needed to anyway. Dr. Korson had faxed a lot

>>of information to him the day before, so he had the information

>>available to him.

>>

>>Thanks again,

>>Adam

>>

>>

>>

>>

>>>Hi Adam, If you are looking for a complete-nutrition liquid food

>>>product low in fat, I can recommend Advera or ProSure. In both, the

>>>fat content is about 15% of the calories. Most complete-nutrition

>>>liquid products have at least 30-40% fat because they are designed

>>>to help people gain weight. Advera was specifically developed for

>>>HIV patients (who have a fat intolerance) and ProSure was developed

>>>for cancer patients who need to rebuild body mass and muscle. Both

>>>are lactose and gluten free and work well for me. You can buy them

>>>on the web by the case, but we get them through Apria, the

>>>designated supplier for our insurance. Most health insurance plans

>>>do not cover the cost of enteral food products, but Apria sells us

>>>the product at a huge discount over full retail, $30 something a

>>>case instead of over $100. If you want to try Advera or Prosure to

>>>see if you tolerate it before buying a case, we'd be happy to mail

>>>you a can or two.

>>>

>>>Barbara

>>>

>>>PS Have you thought about taking a copy of your mito diagnosis

>>>report when you see a new doctor? I usually do this so we don't

>>>

>>>

>>have > to waste precious time establishing the diagnosis. In fact, I

>>

>>

>>>usually mail this in a week or two in advance. Gives them the

>>>

>>>

>>option > to bone up a bit if they choose to do so.

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements contained herein

>>are not necessarily those of the list moderators. The author of this e mail is

>>entirely responsible for its content. List members are reminded of their

>>responsibility to evaluate the content of the postings and consult with their

>>physicians regarding changes in their own treatment.

>>

>>Personal attacks are not permitted on the list and anyone who sends one is

>>automatically moderated or removed depending on the severity of the attack.

>>

>>

>>

>>