Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Hi Dawn, Here again - seek out another doctor. A blood sugar of 49 is too low and should indicate a problem. We have to advocate for ourselves constantly and even though I know it's unfortunate that this is necessary - we can't seem to change that. What happens when you eat something high in carbs, this causes your blood sugar to rapidly drop and then it rapidly rises. If you've ever noticed that when you eat ice cream or candy, about an hour later you are so tired that it's all you can do to keep your eyes open, that's a problem with the sugar and these things need to be recorded for the doctors. Do you have a glucometer to test yourself? It's not as bad as it sounds. I do this at least 4 times a day and have no problem with that. It's so much better to be safe than sorry. It does sound to me as if it wouldn't hurt you to be keeping a close eye on this and eating 6 small meals a day rather than 3 big ones. Maybe we need to find a good endocrinologist who is experienced with Mito to come to one of our chats. Does anyone have a suggestion of a good doctor who might do this? Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Interesting....I've never had buzzing or skin crawling, but do get very tremulous with these episodes. I've only had seizures the past 3 years, but we haven't been able to correlate them with hypoglycemia, though they do occur with overnight fast--which would raise suspicions that glucose is involved. The night tube feedings help a lot--seizures are now rare and minor. Tks for sharing. B > Barbara, > I have similar symptoms, but also a very LOUD buzzing sounds in my head (not my ears), my skin crawls, I am very very tremulous (more so than normal) and I will usually have a seizure. > > Kristie > > > > When my glucose drops into the 30s, I brown-out--tongue turns numb, > garbled speech, mental confusion, muscle weakness. Essentially a > stroke-like episode. However, random testing has found glucose as > low as 43 when I did not have those obvious symptoms. Go figure. > > Barbara > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Hi, Dawn I found your post very helpful. While I am not monitoring my blood glucose, (and I will try to start, and record it) I have been making a lot of observations about what I eat and how I feel. I, too, can go without eating for hours and hours. As a matter of fact, it seems to me that if i don't eat I feel better than if I do eat. Some days I don't eat until I have a late lunch, (that would make it 14+ hours without food) and feel better in the mornings than when I have a (small) breakfast. Sometimes I think that no matter WHAT I eat, i don't feel right afterwards. And that seems to happen within 30 - 60 minutes. Of course, I never know if I waited too long to eat, and feel bad because I depleted my stores. It is just so hard to sort out. Sometimes I feel perfect - like I am not sick at all, and then a short time later comes the crushing fatigue. I always try not to eat too much at once, cause for sure I will feel awful afterwards, and I always eat rather low/no carbs. If I eat carbs at all, they are always accompanied by more protein and fat than carbs. (The days of eating wonderful fresh bread, plain, and then feeling totally drugged are thankfully over for me.) I didn't know for years what was causing a problem. Thank you for sharing. The comment about it not being fasting hypoglycemia really struck a chord. It looks like I will be able to make it to Pittsburgh after all. Was not sure about my husbands schedule. Am hopeful, and will enjoy meeting everyone. Regards Sunny Aug 3, 2004, at 11:33 AM, thefourofus03 wrote: > I think that doctors (endos)who deal with blood sugars issues don't > understand the mito aspect of it. I had a 3hr GTT with a three hr. bs > of 49. I could be dying and the doc said, " it isn't true > hypoglycmemia-don't worry about it " . I believe it isn't fasting > hypoglycemia that I battle becuase I can go for hours without eating > and be fine.It is when I eat something high incarbs, two hours later > I feel horrible.I think it is called insulin resistant > hypolgycemia.How can a blood sugar of 49 be nothing to worry about?I > was told that anytime a blood sugar is low (with mito) that the body > will start to destroy itself because it is not able to breakdown its > stores like " normal people " do. > > Dawn > > > > Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of > this e mail is entirely responsible for its content. List members are > reminded of their responsibility to evaluate the content of the > postings and consult with their physicians regarding changes in their > own treatment. > > Personal attacks are not permitted on the list and anyone who sends > one is automatically moderated or removed depending on the severity of > the attack. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 For several years, I did exactly what you describe here, Sunny. I would go without food from the evening meal until sometime in the afternoon of the next day. I always felt better when I did this and it is why I continued to do it - for years! Now - I am diabetic and I can't go without a meal. It seems as if this all turned against me. Alice Re: Hypoglycemia Hi, Dawn I found your post very helpful. While I am not monitoring my blood glucose, (and I will try to start, and record it) I have been making a lot of observations about what I eat and how I feel. I, too, can go without eating for hours and hours. As a matter of fact, it seems to me that if i don't eat I feel better than if I do eat. Some days I don't eat until I have a late lunch, (that would make it 14+ hours without food) and feel better in the mornings than when I have a (small) breakfast. Sometimes I think that no matter WHAT I eat, i don't feel right afterwards. And that seems to happen within 30 - 60 minutes. Of course, I never know if I waited too long to eat, and feel bad because I depleted my stores. It is just so hard to sort out. Sometimes I feel perfect - like I am not sick at all, and then a short time later comes the crushing fatigue. I always try not to eat too much at once, cause for sure I will feel awful afterwards, and I always eat rather low/no carbs. If I eat carbs at all, they are always accompanied by more protein and fat than carbs. (The days of eating wonderful fresh bread, plain, and then feeling totally drugged are thankfully over for me.) I didn't know for years what was causing a problem. Thank you for sharing. The comment about it not being fasting hypoglycemia really struck a chord. It looks like I will be able to make it to Pittsburgh after all. Was not sure about my husbands schedule. Am hopeful, and will enjoy meeting everyone. Regards Sunny Aug 3, 2004, at 11:33 AM, thefourofus03 wrote: > I think that doctors (endos)who deal with blood sugars issues don't > understand the mito aspect of it. I had a 3hr GTT with a three hr. bs > of 49. I could be dying and the doc said, " it isn't true > hypoglycmemia-don't worry about it " . I believe it isn't fasting > hypoglycemia that I battle becuase I can go for hours without eating > and be fine.It is when I eat something high incarbs, two hours later > I feel horrible.I think it is called insulin resistant > hypolgycemia.How can a blood sugar of 49 be nothing to worry about?I > was told that anytime a blood sugar is low (with mito) that the body > will start to destroy itself because it is not able to breakdown its > stores like " normal people " do. > > Dawn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Sunny I'm glad you are able to go to the conference and look forward to meeting you. Digesting food requires a great deal of cellular energy, so that may be why you feel yucky after eating. Of course, there are lots of other reasons. I rarely feel hungry, but once I start eating, I do feel when I am full. When I am crashy (on the verge of a crash) I crave carbs, but know that what I need is protein. laurie > From: z39z@... > Reply-To: > Date: Tue, 3 Aug 2004 15:57:53 -0400 > To: > Subject: Re: Hypoglycemia > > Hi, Dawn > > I found your post very helpful. While I am not monitoring my blood > glucose, (and I will try to start, and record it) I have been making a > lot of observations about what I eat and how I feel. I, too, can go > without eating for hours and hours. As a matter of fact, it seems to > me that if i don't eat I feel better than if I do eat. Some days I > don't eat until I have a late lunch, (that would make it 14+ hours > without food) and feel better in the mornings than when I have a > (small) breakfast. Sometimes I think that no matter WHAT I eat, i don't > feel right afterwards. And that seems to happen within 30 - 60 minutes. > Of course, I never know if I waited too long to eat, and feel bad > because I depleted my stores. It is just so hard to sort out. > Sometimes I feel perfect - like I am not sick at all, and then a short > time later comes the crushing fatigue. I always try not to eat too > much at once, cause for sure I will feel awful afterwards, and I > always eat rather low/no carbs. If I eat carbs at all, they are always > accompanied by more protein and fat than carbs. (The days of eating > wonderful fresh bread, plain, and then feeling totally drugged are > thankfully over for me.) I didn't know for years what was causing a > problem. > > Thank you for sharing. The comment about it not being fasting > hypoglycemia really struck a chord. > > It looks like I will be able to make it to Pittsburgh after all. Was > not sure about my husbands schedule. Am hopeful, and will enjoy > meeting everyone. > > Regards > > Sunny > > Aug 3, 2004, at 11:33 AM, thefourofus03 wrote: > >> I think that doctors (endos)who deal with blood sugars issues don't >> understand the mito aspect of it. I had a 3hr GTT with a three hr. bs >> of 49. I could be dying and the doc said, " it isn't true >> hypoglycmemia-don't worry about it " . I believe it isn't fasting >> hypoglycemia that I battle becuase I can go for hours without eating >> and be fine.It is when I eat something high incarbs, two hours later >> I feel horrible.I think it is called insulin resistant >> hypolgycemia.How can a blood sugar of 49 be nothing to worry about?I >> was told that anytime a blood sugar is low (with mito) that the body >> will start to destroy itself because it is not able to breakdown its >> stores like " normal people " do. >> >> Dawn >> >> >> >> Medical advice, information, opinions, data and statements contained >> herein are not necessarily those of the list moderators. The author of >> this e mail is entirely responsible for its content. List members are >> reminded of their responsibility to evaluate the content of the >> postings and consult with their physicians regarding changes in their >> own treatment. >> >> Personal attacks are not permitted on the list and anyone who sends >> one is automatically moderated or removed depending on the severity of >> the attack. >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 I have reactive hypoglycemia, and I just get really lethargic, and need to close my eyes and sleep. I get hypoglycemic after big meals, especially with lots of carbs. I find that if my blood sugar is 70 or below, *and* my pulse rate is 60 bpm or below, I feel really bad. My blood pressure is often 100/60 or lower too. Oh, has anyone tried that " glucose meter watch " ? It takes regular glucose readings throughout the day, would be great for those with hypoglycemia problems. It needs a doctor's prescription though. Take care, RH > Barbara, > I have similar symptoms, but also a very LOUD buzzing sounds in my head (not my ears), my skin crawls, I am very very tremulous (more so than normal) and I will usually have a seizure. > > Kristie > > > > When my glucose drops into the 30s, I brown-out--tongue turns numb, > garbled speech, mental confusion, muscle weakness. Essentially a > stroke-like episode. However, random testing has found glucose as > low as 43 when I did not have those obvious symptoms. Go figure. > > Barbara > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 I also have similiar symptoms as Barbara but for me if my sugar goes to 100 they start and if they get to like 70 I am seeing spots and ready to pass out. My " normal " sugar is around 250. That is without any physical exercise or hot weather or humidty. We are trying to get my sugar to start out in the morning after sleep to be lower but so far nothing has helped. This Friday I am going to start the insulin pump. It gives a small continuous level of insulin similiar to the pancreas. When I do get low blood sugar I have glucose tablets in orange flavor I carry with me. But, usually I just drink some regular sugared soda that I have handy for such an occasion at work. Then I eat cheese, or peanut butter sandwich. The protein and carbs help. Janet Sample hypoglycemia > Barbara, > I have similar symptoms, but also a very LOUD buzzing sounds in my head (not my ears), my skin crawls, I am very very tremulous (more so than normal) and I will usually have a seizure. > > Kristie > > > > When my glucose drops into the 30s, I brown-out--tongue turns numb, > garbled speech, mental confusion, muscle weakness. Essentially a > stroke-like episode. However, random testing has found glucose as > low as 43 when I did not have those obvious symptoms. Go figure. > > Barbara > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 I also have similiar symptoms as Barbara but for me if my sugar goes to 100 they start and if they get to like 70 I am seeing spots and ready to pass out. My " normal " sugar is around 250. That is without any physical exercise or hot weather or humidty. We are trying to get my sugar to start out in the morning after sleep to be lower but so far nothing has helped. This Friday I am going to start the insulin pump. It gives a small continuous level of insulin similiar to the pancreas. When I do get low blood sugar I have glucose tablets in orange flavor I carry with me. But, usually I just drink some regular sugared soda that I have handy for such an occasion at work. Then I eat cheese, or peanut butter sandwich. The protein and carbs help. Janet Sample hypoglycemia > Barbara, > I have similar symptoms, but also a very LOUD buzzing sounds in my head (not my ears), my skin crawls, I am very very tremulous (more so than normal) and I will usually have a seizure. > > Kristie > > > > When my glucose drops into the 30s, I brown-out--tongue turns numb, > garbled speech, mental confusion, muscle weakness. Essentially a > stroke-like episode. However, random testing has found glucose as > low as 43 when I did not have those obvious symptoms. Go figure. > > Barbara > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 My mother is a type1 diabetic. Since she has moved up here, near me, I have been able to get her to change her diet somewhat. (higher protein, lower carb) I managed to get her to drop the amount of insulin by 12 units a day over the past year! Then, recently she started to cheat on her diet again, mainly by adding in potatoes, whose glycemic index is just horrible, and we have had to nudge it back up 5 units. Well, what finally convinced her was the other day, she had around her normal bloodsugar at night (we aim for 200, because in her particular case, to fall below that means we are risking her going into insulin shock during the middle of the night. ironically enough, this is a woman who once in the hospital had a documented case of a blood sugar of 13 without any symptoms at all!) A couple of nights later however, her blood sugar was 411. The difference? She had eaten potatoes that day, in mass quantities! It scared her right back into a healthier eating pattern. Mind you, in all honesty, she has always been very brittle so her bloodsugar isnt completely affected just by what she eats. She can consistently eat the same thing day after day, and have vastly different results in blood sugar. The theory is, that sometimes her pancreas work just enough to mess everything up. Meantime, my grandmother has been diagnosed with hypoglycemia in the past, and I have had low blood sugars before, including one of 39 before, and my son had one of 40 before while in the hospital one time. They had put him in the hospital thinking he may be diabetic. In actuality, he is hypoglycemic instead. It scared them to death when his dropped to 40, but he was just cranky because they woke him up to feed him some juice LOL. They concluded he is one of those who habitually falls that low, with no real ill effects (remember, my mother's 13 and my 39 just made me a little shaky). > I also have similiar symptoms as Barbara but for me if my sugar goes to 100 > they start and if they get to like 70 I am seeing spots and ready to pass > out. > My " normal " sugar is around 250. That is without any physical exercise or > hot weather or humidty. We are trying to get my sugar to start out in the > morning after sleep to be lower but so far nothing has helped. This Friday > I am going to start the insulin pump. It gives a small continuous level of > insulin similiar to the pancreas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 My mother is a type1 diabetic. Since she has moved up here, near me, I have been able to get her to change her diet somewhat. (higher protein, lower carb) I managed to get her to drop the amount of insulin by 12 units a day over the past year! Then, recently she started to cheat on her diet again, mainly by adding in potatoes, whose glycemic index is just horrible, and we have had to nudge it back up 5 units. Well, what finally convinced her was the other day, she had around her normal bloodsugar at night (we aim for 200, because in her particular case, to fall below that means we are risking her going into insulin shock during the middle of the night. ironically enough, this is a woman who once in the hospital had a documented case of a blood sugar of 13 without any symptoms at all!) A couple of nights later however, her blood sugar was 411. The difference? She had eaten potatoes that day, in mass quantities! It scared her right back into a healthier eating pattern. Mind you, in all honesty, she has always been very brittle so her bloodsugar isnt completely affected just by what she eats. She can consistently eat the same thing day after day, and have vastly different results in blood sugar. The theory is, that sometimes her pancreas work just enough to mess everything up. Meantime, my grandmother has been diagnosed with hypoglycemia in the past, and I have had low blood sugars before, including one of 39 before, and my son had one of 40 before while in the hospital one time. They had put him in the hospital thinking he may be diabetic. In actuality, he is hypoglycemic instead. It scared them to death when his dropped to 40, but he was just cranky because they woke him up to feed him some juice LOL. They concluded he is one of those who habitually falls that low, with no real ill effects (remember, my mother's 13 and my 39 just made me a little shaky). > I also have similiar symptoms as Barbara but for me if my sugar goes to 100 > they start and if they get to like 70 I am seeing spots and ready to pass > out. > My " normal " sugar is around 250. That is without any physical exercise or > hot weather or humidty. We are trying to get my sugar to start out in the > morning after sleep to be lower but so far nothing has helped. This Friday > I am going to start the insulin pump. It gives a small continuous level of > insulin similiar to the pancreas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 My mother is a type1 diabetic. Since she has moved up here, near me, I have been able to get her to change her diet somewhat. (higher protein, lower carb) I managed to get her to drop the amount of insulin by 12 units a day over the past year! Then, recently she started to cheat on her diet again, mainly by adding in potatoes, whose glycemic index is just horrible, and we have had to nudge it back up 5 units. Well, what finally convinced her was the other day, she had around her normal bloodsugar at night (we aim for 200, because in her particular case, to fall below that means we are risking her going into insulin shock during the middle of the night. ironically enough, this is a woman who once in the hospital had a documented case of a blood sugar of 13 without any symptoms at all!) A couple of nights later however, her blood sugar was 411. The difference? She had eaten potatoes that day, in mass quantities! It scared her right back into a healthier eating pattern. Mind you, in all honesty, she has always been very brittle so her bloodsugar isnt completely affected just by what she eats. She can consistently eat the same thing day after day, and have vastly different results in blood sugar. The theory is, that sometimes her pancreas work just enough to mess everything up. Meantime, my grandmother has been diagnosed with hypoglycemia in the past, and I have had low blood sugars before, including one of 39 before, and my son had one of 40 before while in the hospital one time. They had put him in the hospital thinking he may be diabetic. In actuality, he is hypoglycemic instead. It scared them to death when his dropped to 40, but he was just cranky because they woke him up to feed him some juice LOL. They concluded he is one of those who habitually falls that low, with no real ill effects (remember, my mother's 13 and my 39 just made me a little shaky). > I also have similiar symptoms as Barbara but for me if my sugar goes to 100 > they start and if they get to like 70 I am seeing spots and ready to pass > out. > My " normal " sugar is around 250. That is without any physical exercise or > hot weather or humidty. We are trying to get my sugar to start out in the > morning after sleep to be lower but so far nothing has helped. This Friday > I am going to start the insulin pump. It gives a small continuous level of > insulin similiar to the pancreas. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 My endocrinologist called it " reactive hypoglycemia " - my body reacts to too big a meal (mainly too many carbs I've found) by producing too much insulin, and my blood sugar plummets after eating. Take care, RH > > > >> I think that doctors (endos)who deal with blood sugars issues don't > >> understand the mito aspect of it. I had a 3hr GTT with a three hr. bs > >> of 49. I could be dying and the doc said, " it isn't true > >> hypoglycmemia-don't worry about it " . I believe it isn't fasting > >> hypoglycemia that I battle becuase I can go for hours without eating > >> and be fine.It is when I eat something high incarbs, two hours later > >> I feel horrible.I think it is called insulin resistant > >> hypolgycemia.How can a blood sugar of 49 be nothing to worry about?I > >> was told that anytime a blood sugar is low (with mito) that the body > >> will start to destroy itself because it is not able to breakdown its > >> stores like " normal people " do. > >> > >> Dawn > >> > >> > >> > >> Medical advice, information, opinions, data and statements contained > >> herein are not necessarily those of the list moderators. The author of > >> this e mail is entirely responsible for its content. List members are > >> reminded of their responsibility to evaluate the content of the > >> postings and consult with their physicians regarding changes in their > >> own treatment. > >> > >> Personal attacks are not permitted on the list and anyone who sends > >> one is automatically moderated or removed depending on the severity of > >> the attack. > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
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