Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Nikki Awesome news, so very happy for you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Hi Everyone, I just wanted to share some wonderful news with all of you. A couple of weeks ago I was discharged from Hospice of the Valley services! After nearly two years as a hospice patient, I have to say it feels really good to be off. My doctors, parents and myself think I am stable right now, and that at this point I no longer need hospice services. We have set up a different long term plan that still gives me a lot of the services that hospice provided. My insurance bought my a fully-electric bed, drop arm bedside commode, overbed table and shower chair, which are items hospice was providing for me. I now have a visit nurse, in addition to all of my shift nurses, who does pain management, and basically oversees my care to make sure I am ok. She basically does the same thing my hospice nurse did. Also, my insurance agreed to pay for unlimited advanced life support ambulance rides when I need them, which means a nurse is in the ambulance with me instead of an EMT or paramedic. I also have unlimited ER trips and unlimited hospital admissions. So far, this plan has worked really well for me. The day mom signed the discharge papers we had a big party, ate a lot of junk food and all of us girls scrapbooked together (my favorite hobby). I am glad hospice was there when I needed them, and they provided a much needed service. However, it feels really wonderful to know that at this point I don't need them Just wanted to share my wonderful news with everyone! I hope you are all doing ok. Keep Smiling, Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 > Nikki , congrats. It is not too often that getting discharged from hospice is good (if you know what I mean). was discharged after being on Hospice for over a yr. and a half. it is such a wonderful feeling! I am so happy for you. What a great plan you have worked out too. What insurance company do you have??They sound great. Again congrats, Dawn M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Well.. the end of your message says " keep smiling " and I want you to know that you put a very big smile on my face when I read this. Wow, Nikki. What wonderful news. I am so thrilled for you because you have been on a very long and unpleasant road that now seems to be curving in your direction. Congratulations! I can imagine how much fun you all had at the party and it was well deserved. Give your mom a hug for me. She must be feeling a great deal of joy too. Alice I just wanted to share some wonderful news with all of you. A couple of weeks ago I was discharged from Hospice of the Valley services! After nearly two years as a hospice patient, I have to say it feels really good to be off. Keep Smiling, Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Nikki I want so much to hug you. I am so happy for you. You are such a trooper and it is wonderful that you have a plan in place and can continue with services, but on a new note. Hugs, laurie > > Reply-To: > Date: Wed, 01 Sep 2004 00:23:17 -0000 > To: > Subject: Wonderful News > > Hi Everyone, > I just wanted to share some wonderful news with all of you. A couple > of weeks ago I was discharged from Hospice of the Valley services! > After nearly two years as a hospice patient, I have to say it feels > really good to be off. My doctors, parents and myself think I am > stable right now, and that at this point I no longer need hospice > services. We have set up a different long term plan that still gives > me a lot of the services that hospice provided. My insurance bought > my a fully-electric bed, drop arm bedside commode, overbed table and > shower chair, which are items hospice was providing for me. I now > have a visit nurse, in addition to all of my shift nurses, who does > pain management, and basically oversees my care to make sure I am ok. > She basically does the same thing my hospice nurse did. > > Also, my insurance agreed to pay for unlimited advanced life support > ambulance rides when I need them, which means a nurse is in the > ambulance with me instead of an EMT or paramedic. I also have > unlimited ER trips and unlimited hospital admissions. So far, this > plan has worked really well for me. > > The day mom signed the discharge papers we had a big party, ate a lot > of junk food and all of us girls scrapbooked together (my favorite > hobby). I am glad hospice was there when I needed them, and they > provided a much needed service. However, it feels really wonderful to > know that at this point I don't need them Just wanted to share my > wonderful news with everyone! I hope you are all doing ok. > > Keep Smiling, > Nikki > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 HI Nikki, Wow this is awesome news!! I am so proud of you for working so hard to overcome your illness and the road blocks that were in your way. You did a great job of breaking down those obstacles. It is so great to hear that you are stable at this point and I pray that you stay stable and with more time you will also see more improvements in your health. Your new plan that you and your family set up sure is complete and overseees all of your health needs. I am glad that your insurance company has agreed with your plan ( as we know so many insurance companies try to take all of our money without giving us anything in return) which sounds very complete. So you had a party, eh? Good for you!! I hope you ate all kinds of junk food and enjoyed every mouthwatering bite of it. You are right, it is nice to know that Hospice is their when we need them, but the feeling of being released and free must be exilerating!! Keep up the good work. You are a real Hero!! Hugs, Ann-Marie Wonderful News Hi Everyone, I just wanted to share some wonderful news with all of you. A couple of weeks ago I was discharged from Hospice of the Valley services! After nearly two years as a hospice patient, I have to say it feels really good to be off. My doctors, parents and myself think I am stable right now, and that at this point I no longer need hospice services. We have set up a different long term plan that still gives me a lot of the services that hospice provided. My insurance bought my a fully-electric bed, drop arm bedside commode, overbed table and shower chair, which are items hospice was providing for me. I now have a visit nurse, in addition to all of my shift nurses, who does pain management, and basically oversees my care to make sure I am ok. She basically does the same thing my hospice nurse did. Also, my insurance agreed to pay for unlimited advanced life support ambulance rides when I need them, which means a nurse is in the ambulance with me instead of an EMT or paramedic. I also have unlimited ER trips and unlimited hospital admissions. So far, this plan has worked really well for me. The day mom signed the discharge papers we had a big party, ate a lot of junk food and all of us girls scrapbooked together (my favorite hobby). I am glad hospice was there when I needed them, and they provided a much needed service. However, it feels really wonderful to know that at this point I don't need them Just wanted to share my wonderful news with everyone! I hope you are all doing ok. Keep Smiling, Nikki Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Nikki, I have tears of joy for you!!!!! This is wonderful. I don't know what else to say, but I am so very grateful to have you as one of our Mitoldies family. You are SUCH a joy and inspiration to all of us! Hugs, nikkinetgirl wrote: >Hi Everyone, >I just wanted to share some wonderful news with all of you. A couple >of weeks ago I was discharged from Hospice of the Valley services! >After nearly two years as a hospice patient, I have to say it feels >really good to be off. My doctors, parents and myself think I am >stable right now, and that at this point I no longer need hospice >services. We have set up a different long term plan that still gives >me a lot of the services that hospice provided. My insurance bought >my a fully-electric bed, drop arm bedside commode, overbed table and >shower chair, which are items hospice was providing for me. I now >have a visit nurse, in addition to all of my shift nurses, who does >pain management, and basically oversees my care to make sure I am ok. >She basically does the same thing my hospice nurse did. > >Also, my insurance agreed to pay for unlimited advanced life support >ambulance rides when I need them, which means a nurse is in the >ambulance with me instead of an EMT or paramedic. I also have >unlimited ER trips and unlimited hospital admissions. So far, this >plan has worked really well for me. > >The day mom signed the discharge papers we had a big party, ate a lot >of junk food and all of us girls scrapbooked together (my favorite >hobby). I am glad hospice was there when I needed them, and they >provided a much needed service. However, it feels really wonderful to >know that at this point I don't need them Just wanted to share my >wonderful news with everyone! I hope you are all doing ok. > >Keep Smiling, >Nikki > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 ---Nikki, I am happy to hear your good news. Thank you for sharing. It is nice to hear good news on this forum. I will pray that things continue to go well for you. Hugs dawn In , " nikkinetgirl " wrote: > Hi Everyone, > I just wanted to share some wonderful news with all of you. A couple > of weeks ago I was discharged from Hospice of the Valley services! > After nearly two years as a hospice patient, I have to say it feels > really good to be off. My doctors, parents and myself think I am > stable right now, and that at this point I no longer need hospice > services. We have set up a different long term plan that still gives > me a lot of the services that hospice provided. My insurance bought > my a fully-electric bed, drop arm bedside commode, overbed table and > shower chair, which are items hospice was providing for me. I now > have a visit nurse, in addition to all of my shift nurses, who does > pain management, and basically oversees my care to make sure I am ok. > She basically does the same thing my hospice nurse did. > > Also, my insurance agreed to pay for unlimited advanced life support > ambulance rides when I need them, which means a nurse is in the > ambulance with me instead of an EMT or paramedic. I also have > unlimited ER trips and unlimited hospital admissions. So far, this > plan has worked really well for me. > > The day mom signed the discharge papers we had a big party, ate a lot > of junk food and all of us girls scrapbooked together (my favorite > hobby). I am glad hospice was there when I needed them, and they > provided a much needed service. However, it feels really wonderful to > know that at this point I don't need them Just wanted to share my > wonderful news with everyone! I hope you are all doing ok. > > Keep Smiling, > Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 HI Nikki, I want to second and third all that happy news! I just got home and the first thing I read when I went back on mail is your great news. I am thrilled for you!!! Keep looking up! And keep on smiling as you always do, It does wonders for the soul, smiles to you, Re: Wonderful News > Nikki > Awesome news, so very happy for you > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Nikki, Your message brought a smile to my face. I can imagine how happy you are to have these changes made. Congratulations! I'm so happy for you. Maggie > Hi Everyone, > I just wanted to share some wonderful news with all of you. A couple > of weeks ago I was discharged from Hospice of the Valley services! > After nearly two years as a hospice patient, I have to say it feels > really good to be off. My doctors, parents and myself think I am > stable right now, and that at this point I no longer need hospice > services. We have set up a different long term plan that still gives > me a lot of the services that hospice provided. My insurance bought > my a fully-electric bed, drop arm bedside commode, overbed table and > shower chair, which are items hospice was providing for me. I now > have a visit nurse, in addition to all of my shift nurses, who does > pain management, and basically oversees my care to make sure I am ok. > She basically does the same thing my hospice nurse did. > > Also, my insurance agreed to pay for unlimited advanced life support > ambulance rides when I need them, which means a nurse is in the > ambulance with me instead of an EMT or paramedic. I also have > unlimited ER trips and unlimited hospital admissions. So far, this > plan has worked really well for me. > > The day mom signed the discharge papers we had a big party, ate a lot > of junk food and all of us girls scrapbooked together (my favorite > hobby). I am glad hospice was there when I needed them, and they > provided a much needed service. However, it feels really wonderful to > know that at this point I don't need them Just wanted to share my > wonderful news with everyone! I hope you are all doing ok. > > Keep Smiling, > Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Nikki!! Believe it or not, these past few days you have been on my mind a lot. I've been wondering how you are, how the walking was going, whether the crutches were living up to their promise, trying to decide whether to post a feeler: Nikki, are you there? Is the silence good? What's happening? This morning when I woke up, I knew it was indeed time for the feeler, logged on and there you were, ahead of me. I don't know how such things happen, but they do. Life is full of mysteries, and your smile is one of the best mysteries of all. I shake my head in awe. Bless you, Barbara > Hi Everyone, > I just wanted to share some wonderful news with all of you. A couple > of weeks ago I was discharged from Hospice of the Valley services! > After nearly two years as a hospice patient, I have to say it feels > really good to be off. My doctors, parents and myself think I am > stable right now, and that at this point I no longer need hospice > services. We have set up a different long term plan that still gives > me a lot of the services that hospice provided. My insurance bought > my a fully-electric bed, drop arm bedside commode, overbed table and > shower chair, which are items hospice was providing for me. I now > have a visit nurse, in addition to all of my shift nurses, who does > pain management, and basically oversees my care to make sure I am ok. > She basically does the same thing my hospice nurse did. > > Also, my insurance agreed to pay for unlimited advanced life support > ambulance rides when I need them, which means a nurse is in the > ambulance with me instead of an EMT or paramedic. I also have > unlimited ER trips and unlimited hospital admissions. So far, this > plan has worked really well for me. > > The day mom signed the discharge papers we had a big party, ate a lot > of junk food and all of us girls scrapbooked together (my favorite > hobby). I am glad hospice was there when I needed them, and they > provided a much needed service. However, it feels really wonderful to > know that at this point I don't need them Just wanted to share my > wonderful news with everyone! I hope you are all doing ok. > > Keep Smiling, > Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 THAT'S AWESOME! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Hi Everyone, Thanks SO much for your kind words. It really is a wonderful feeling. I have to give a lot of credit to my mom, she has worked so hard to keep me healthy and help me get better. She gives up her time and her energy, and does it willingly and lovingly. I really could not ask for a better mom! She is amazing, and I know the day I was discharged was a really wonderful day for her as well as me Dawn - I have Aetna HMO insurance. They are pretty good! Thanks again everyone, Nikki > > Nikki , > > congrats. It is not too often that getting discharged from hospice > is good (if you know what I mean). was discharged after being > on Hospice for over a yr. and a half. it is such a wonderful > feeling! I am so happy for you. What a great plan you have worked > out too. What insurance company do you have??They sound great. > > Again congrats, Dawn M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Dear Nikki, I cannot remember when I have rejoiced more here on Mitoldies than when I read your recent post. Congratulations on this blessed good news. I know we must all have been holding our collective breaths after your mom told us about you. About having a hospital bed in the living room, about all of the nurses, and about your fragility. You are a magnificent person, Nikki, and that comes through, even in cyberspace. I especially love your annual essay about your gratitude. I have a friend who is a quadriplegiac, and when I have some exacerbation of the mito, I try to keep Mark in mind. I put you and so many others here with us in that same category. You try each day to live with grace and with gratitude, and in so doing, you help each one of us to keep our own problems in perspective. Thank you again, Nikki, and it is my prayer that you will continue to respond to treatment. Please convey my greetings to your family, of whom I am in awe... Would that everyone here had such loving caregivers. Thank you for being an exemplar, for being a gift to all the Mitoldies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Nikki, Congratulations for your accomplishment of getting off hospice. I know that has to feel absolutely awesome!! Betsy Wonderful News Hi Everyone, I just wanted to share some wonderful news with all of you. A couple of weeks ago I was discharged from Hospice of the Valley services! After nearly two years as a hospice patient, I have to say it feels really good to be off. My doctors, parents and myself think I am stable right now, and that at this point I no longer need hospice services. We have set up a different long term plan that still gives me a lot of the services that hospice provided. My insurance bought my a fully-electric bed, drop arm bedside commode, overbed table and shower chair, which are items hospice was providing for me. I now have a visit nurse, in addition to all of my shift nurses, who does pain management, and basically oversees my care to make sure I am ok. She basically does the same thing my hospice nurse did. Also, my insurance agreed to pay for unlimited advanced life support ambulance rides when I need them, which means a nurse is in the ambulance with me instead of an EMT or paramedic. I also have unlimited ER trips and unlimited hospital admissions. So far, this plan has worked really well for me. The day mom signed the discharge papers we had a big party, ate a lot of junk food and all of us girls scrapbooked together (my favorite hobby). I am glad hospice was there when I needed them, and they provided a much needed service. However, it feels really wonderful to know that at this point I don't need them Just wanted to share my wonderful news with everyone! I hope you are all doing ok. Keep Smiling, Nikki Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Dear Nikki, This is indeed wonderful news and you give us all a beam of encouragement in our mito battles. So glad for you, Celia > Hi Everyone, > I just wanted to share some wonderful news with all of you. A couple > of weeks ago I was discharged from Hospice of the Valley services! > After nearly two years as a hospice patient, I have to say it feels > really good to be off. My doctors, parents and myself think I am > stable right now, and that at this point I no longer need hospice > services. We have set up a different long term plan that still gives > me a lot of the services that hospice provided. My insurance bought > my a fully-electric bed, drop arm bedside commode, overbed table and > shower chair, which are items hospice was providing for me. I now > have a visit nurse, in addition to all of my shift nurses, who does > pain management, and basically oversees my care to make sure I am ok. > She basically does the same thing my hospice nurse did. > > Also, my insurance agreed to pay for unlimited advanced life support > ambulance rides when I need them, which means a nurse is in the > ambulance with me instead of an EMT or paramedic. I also have > unlimited ER trips and unlimited hospital admissions. So far, this > plan has worked really well for me. > > The day mom signed the discharge papers we had a big party, ate a lot > of junk food and all of us girls scrapbooked together (my favorite > hobby). I am glad hospice was there when I needed them, and they > provided a much needed service. However, it feels really wonderful to > know that at this point I don't need them Just wanted to share my > wonderful news with everyone! I hope you are all doing ok. > > Keep Smiling, > Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Hi Nikki, This is fantastic! God knows how much we need you and has said " stay and help " ! Thanks for all of the positive input you give to all of us Nikki. You are the greatest. Cheers, Ruth _____ From: nikkinetgirl Sent: Tuesday, August 31, 2004 8:23 PM To: Subject: Wonderful News Hi Everyone, I just wanted to share some wonderful news with all of you. A couple of weeks ago I was discharged from Hospice of the Valley services! After nearly two years as a hospice patient, I have to say it feels really good to be off. My doctors, parents and myself think I am stable right now, and that at this point I no longer need hospice services. We have set up a different long term plan that still gives me a lot of the services that hospice provided. My insurance bought my a fully-electric bed, drop arm bedside commode, overbed table and shower chair, which are items hospice was providing for me. I now have a visit nurse, in addition to all of my shift nurses, who does pain management, and basically oversees my care to make sure I am ok. She basically does the same thing my hospice nurse did. Also, my insurance agreed to pay for unlimited advanced life support ambulance rides when I need them, which means a nurse is in the ambulance with me instead of an EMT or paramedic. I also have unlimited ER trips and unlimited hospital admissions. So far, this plan has worked really well for me. The day mom signed the discharge papers we had a big party, ate a lot of junk food and all of us girls scrapbooked together (my favorite hobby). I am glad hospice was there when I needed them, and they provided a much needed service. However, it feels really wonderful to know that at this point I don't need them Just wanted to share my wonderful news with everyone! I hope you are all doing ok. Keep Smiling, Nikki Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
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