Adam--Update + Definition of Rest? Importance of Pacing?

[Guest guest]

Hi,

Just to let you know, I have managed to stay home and get back onto liquids

AND back to drinking 2 milk shakes a day. It took three days of being able to

do that before I started to feel even 1/4 human. I am managing while waiting

for a GI appt on Wednesday.

I discovered an approach to take that was not new to me, but I needed

reminding. The approach is REST. LOL I am sure it was part of all the great

advice

I received last week and it was a number of posts I have read on the list

lately that hammered that message home to me again.

I have read a number of posts from people reporting how crazy their schedules

were and how full of anxiety and stress they were at the particular times

when they were feeling their worst.

So I applied that concept to my own situation again. I started listening to

my body closer and monitoring where the drains on my energy were. I have

noticed how when I am really drained physically or mentally or emotionally, my

symptoms are much worse. When I am doing better in those areas my symptoms are

better.

So just a reminder to all on the list who struggle with PACING. Maybe we

could do a thread to review how to REST and how to PACE yourself and how

important that is.

Trying to maintain a punishing work schedule, making numerous doctor's

appointments too close together and scheduling procedures and tests one after

the

other, being anxious and worried and frustrated, are all bigger drains on our

energy levels than we sometimes think about. I am sure many could add a lot to

that short list of what drains energy.

How much of a direct result are these drains on our energies to our worsening

of symptoms?

Anyone care to weigh in on this issue?

Adam

[Guest guest]

Adam

I'm glad you were able to increase your nutrition.

My symptoms are directly related to stress (mostly physical as I have found

ways to decrease my other stressors). One way I reduce this physical stress

is to use adaptive equipment and just stop when my body tells me to. I also

go to bed when my body tells me to. If it is 8:00, then I go to bed at 8:00.

I try not to make plans for after 7:00, since by then I have had enough. I

also take a day off of work if feeling a crash coming on. I also sit down to

do whatever I can. I sit on a stool to cook and wash dishes and sit on a

chair to do laundry. I do things in little steps with rest periods in

between. This is not always possible at work, but I do paperwork in between

seeing my students when possible, so the activity is different. These things

may not work for you, but have helped me.

laurie

> From: adamm321@...

> Reply-To:

> Date: Mon, 27 Sep 2004 08:32:07 EDT

> To:

> Subject: Adam--Update + Definition of Rest? Importance of Pacing?

>

> Hi,

>

> Just to let you know, I have managed to stay home and get back onto liquids

> AND back to drinking 2 milk shakes a day. It took three days of being able to

> do that before I started to feel even 1/4 human. I am managing while waiting

> for a GI appt on Wednesday.

>

> I discovered an approach to take that was not new to me, but I needed

> reminding. The approach is REST. LOL I am sure it was part of all the great

> advice

> I received last week and it was a number of posts I have read on the list

> lately that hammered that message home to me again.

>

> I have read a number of posts from people reporting how crazy their schedules

> were and how full of anxiety and stress they were at the particular times

> when they were feeling their worst.

>

> So I applied that concept to my own situation again. I started listening to

> my body closer and monitoring where the drains on my energy were. I have

> noticed how when I am really drained physically or mentally or emotionally, my

> symptoms are much worse. When I am doing better in those areas my symptoms

> are

> better.

>

> So just a reminder to all on the list who struggle with PACING. Maybe we

> could do a thread to review how to REST and how to PACE yourself and how

> important that is.

>

> Trying to maintain a punishing work schedule, making numerous doctor's

> appointments too close together and scheduling procedures and tests one after

> the

> other, being anxious and worried and frustrated, are all bigger drains on our

> energy levels than we sometimes think about. I am sure many could add a lot

> to

> that short list of what drains energy.

>

> How much of a direct result are these drains on our energies to our worsening

> of symptoms?

>

> Anyone care to weigh in on this issue?

>

> Adam

>

>

>

>

[Guest guest]

They are directly related Adam.

adamm321@... wrote:

>Hi,

>

>Just to let you know, I have managed to stay home and get back onto liquids

>AND back to drinking 2 milk shakes a day. It took three days of being able to

>do that before I started to feel even 1/4 human. I am managing while waiting

>for a GI appt on Wednesday.

>

>I discovered an approach to take that was not new to me, but I needed

>reminding. The approach is REST. LOL I am sure it was part of all the great

advice

>I received last week and it was a number of posts I have read on the list

>lately that hammered that message home to me again.

>

>I have read a number of posts from people reporting how crazy their schedules

>were and how full of anxiety and stress they were at the particular times

>when they were feeling their worst.

>

>So I applied that concept to my own situation again. I started listening to

>my body closer and monitoring where the drains on my energy were. I have

>noticed how when I am really drained physically or mentally or emotionally, my

>symptoms are much worse. When I am doing better in those areas my symptoms are

>better.

>

>So just a reminder to all on the list who struggle with PACING. Maybe we

>could do a thread to review how to REST and how to PACE yourself and how

>important that is.

>

>Trying to maintain a punishing work schedule, making numerous doctor's

>appointments too close together and scheduling procedures and tests one after

the

>other, being anxious and worried and frustrated, are all bigger drains on our

>energy levels than we sometimes think about. I am sure many could add a lot to

>that short list of what drains energy.

>

>How much of a direct result are these drains on our energies to our worsening

>of symptoms?

>

>Anyone care to weigh in on this issue?

>

>Adam

>

>

>

>