Laurie..Re: Not better after gallbladder surgery, being readmitted today.

[Guest guest]

Hi Laurie,

I was just reviewing previous posts to the list in prep for my GI

appt tomorrow. I ran across this one, and had a few questions. I

wondered, how did you know your electrolytes were out of balance?

What were your lab values when they were and what did you do to get

it in balance? How much Q10 did you increase to? Did you make this

increase specifically to address the dysmotility or was that just a

byproduct? Was there some report or study to suggest increasing the

Q10 and justifying the increase to your nuero?

Thanks,

Adam

> Adam

>

> I agree with Alice that the sleep apnea should be addressed and

might help> you a great deal. I know from experience that dysmotility

can be a painful> and just miserable situation. After more years than

I can remember, I> finally got relief by having my neuro increase my

CoQ10 to many times what> was originally suggested and by getting my

electrolytes in balance. It is> amazing that an imbalance can cause

so many things to go wrong.

>

> I hope you find some answers for your problems.

>

> laurie

>

>

[Guest guest]

Adam

For the electrolytes, my interest does the electrolyte panel as part of a

person's yearly physical. The values of calcium, potassium, and phosphorus

were low. She sent me to a nephrologist who did a combination of blood

electrolytes and urine. They were high in the urine and low in the blood,

confirming that I am spilling them in my urine. This is not uncommon in

mito. He also checked the magnesium which was the lowest. I take supplements

for the calcium and magnesium and prescription potassium. So far we are just

watching the phosphorus. I have them checked every 3-6 months.

I take 240 mg of Q-gel four times a day. My neuro is an MDA clinic director

and they had a half day session on CoQ. All the research done on Parkinson's

disease showed that there was no decrease in symptoms until the level was

over 1200 mg. The clinic directors concluded that they were probably

ordering it at too low a dose. The 1200 mg is what they are giving patients

with ALS. Since the Q-gel is more bio-available, we decided that this level

was worth a try and it really helped. The increase was not to address the

dysmotility specifically, but it was what I noticed most.

Good luck at your appointment with the GI.

laurie

>

> Reply-To:

> Date: Tue, 28 Sep 2004 21:35:05 -0000

> To:

> Subject: Laurie..Re: Not better after gallbladder surgery, being

> readmitted today.

>

> Hi Laurie,

>

> I was just reviewing previous posts to the list in prep for my GI

> appt tomorrow. I ran across this one, and had a few questions. I

> wondered, how did you know your electrolytes were out of balance?

> What were your lab values when they were and what did you do to get

> it in balance? How much Q10 did you increase to? Did you make this

> increase specifically to address the dysmotility or was that just a

> byproduct? Was there some report or study to suggest increasing the

> Q10 and justifying the increase to your nuero?

>

> Thanks,

> Adam

>

>

>

>> Adam

>>

>> I agree with Alice that the sleep apnea should be addressed and

> might help> you a great deal. I know from experience that dysmotility

> can be a painful> and just miserable situation. After more years than

> I can remember, I> finally got relief by having my neuro increase my

> CoQ10 to many times what> was originally suggested and by getting my

> electrolytes in balance. It is> amazing that an imbalance can cause

> so many things to go wrong.

>>

>> I hope you find some answers for your problems.

>>

>> laurie

>>

>>

>

>

>

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