Advice Needed for Severe Case of Plagiocephaly with Torticollis

[Guest guest]

Just got the official diagnosis for my son on Friday. They suggested a

helmet at 6 months of age and physio immediately. He is 4 1/2 months

old now. Any suggestions from experienced moms who have been through

this? Needless to say, I am concerned. We atart physio on Wednesday.

My doctor gave us the stretches to do at home but I feel that I need

someone to walk me through them a little more. I am afraid that I will

hurt my son by doing the stretches incorrectly.

Also, we have a holiday planned for 5 weeks this summer, about 2 weeks

after he will get his helmet. Is tis wise? Should I stick close to

home in case we need adjustments? I am feeling a little overwhelmed

because I was given the diagnosis and then told to return to the

plastic surgeon in August (helmet in July).

Any advice would be appreciated!

[Guest guest]

Welcome! This is a great group of parents who are all going thru or have been thru tort and/or plagio.

As far vacation - if it's far and you will be gone for 5 weeks - then I'd say makeother arrangments and /or see if there is a facility near your vacation spot. Or wait and start treatment after your vacation. Depending on the band you will need to go into see the ortho every 2 weeks to get adjustments. And if any issues come up like a red spot that does not fade you will need to go in more often.

Who are you getting the band from?

Advice Needed for Severe Case of Plagiocephaly with Torticollis

Just got the official diagnosis for my son on Friday. They suggested a

helmet at 6 months of age and physio immediately. He is 4 1/2 months

old now. Any suggestions from experienced moms who have been through

this? Needless to say, I am concerned. We atart physio on Wednesday.

My doctor gave us the stretches to do at home but I feel that I need

someone to walk me through them a little more. I am afraid that I will

hurt my son by doing the stretches incorrectly.

Also, we have a holiday planned for 5 weeks this summer, about 2 weeks

after he will get his helmet. Is tis wise? Should I stick close to

home in case we need adjustments? I am feeling a little overwhelmed

because I was given the diagnosis and then told to return to the

plastic surgeon in August (helmet in July).

Any advice would be appreciated!

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[Guest guest]

I am getting the band from an orthotics place in London, Ontario

(Canada). I am still unsure all of the particulars about the helmet,

I was just shown it briefly and get all of the info at the end of May.

Thanks for the advice!

>

> Welcome! This is a great group of parents who are all going thru

or have been thru tort and/or plagio.

> As far vacation - if it's far and you will be gone for 5 weeks -

then I'd say makeother arrangments and /or see if there is a facility

near your vacation spot. Or wait and start treatment after your

vacation. Depending on the band you will need to go into see the

ortho every 2 weeks to get adjustments. And if any issues come up

like a red spot that does not fade you will need to go in more often.

> Who are you getting the band from?

>

>

> Advice Needed for Severe Case of Plagiocephaly

with Torticollis

>

>

> Just got the official diagnosis for my son on Friday. They

suggested a

> helmet at 6 months of age and physio immediately. He is 4 1/2

months

> old now. Any suggestions from experienced moms who have been

through

> this? Needless to say, I am concerned. We atart physio on

Wednesday.

> My doctor gave us the stretches to do at home but I feel that I

need

> someone to walk me through them a little more. I am afraid that I

will

> hurt my son by doing the stretches incorrectly.

>

> Also, we have a holiday planned for 5 weeks this summer, about 2

weeks

> after he will get his helmet. Is tis wise? Should I stick close to

> home in case we need adjustments? I am feeling a little overwhelmed

> because I was given the diagnosis and then told to return to the

> plastic surgeon in August (helmet in July).

>

> Any advice would be appreciated!

>

>

>

>

______________________________________________________________________

__

> AOL now offers free email to everyone. Find out more about what's

free from AOL at AOL.com.

>

[Guest guest]

My son is 4 months and a week old with positional plagio.

We just got the helmet last week.

He’s worn it all day long for the past three days and tonight is his first night in it.

He went to sleep just now (about 15 minutes early) - with no fusses.

He’s had no problem with the helmet at all – not one tear.

It’s harder on us than it is on them.

I was a mess before we made our decision and now I’m so happy we did it. I cried for a week and then once he got it, he didn’t even notice it.

I don’t think you will want to take a long vacation, but that’s just me.

I think you may want to be close to ortho and doctors.

Also, they can’t be in the heat too long with the helmet, so depending on what you have planned for your vacation, it may not work anyhow.

Unfortunately we will be inside, in the air conditioning, most of the summer.

Also, you may want to look into getting the helmet now. Why do they want you to wait?

There is a lot of growth between 4 and 6 months.

We were really happy to know that and get the helmet now, but every case is different obviously.

,

Michigan

Noah, 4 months, Plagio

On 5/14/07 4:38 PM, " jacknmarksmom " <jacknmarksmom@...> wrote:

I am getting the band from an orthotics place in London, Ontario

(Canada). I am still unsure all of the particulars about the helmet,

I was just shown it briefly and get all of the info at the end of May.

Thanks for the advice!

>

> Welcome! This is a great group of parents who are all going thru

or have been thru tort and/or plagio.

> As far vacation - if it's far and you will be gone for 5 weeks -

then I'd say makeother arrangments and /or see if there is a facility

near your vacation spot. Or wait and start treatment after your

vacation. Depending on the band you will need to go into see the

ortho every 2 weeks to get adjustments. And if any issues come up

like a red spot that does not fade you will need to go in more often.

> Who are you getting the band from?

>

>

> Advice Needed for Severe Case of Plagiocephaly

with Torticollis

>

>

> Just got the official diagnosis for my son on Friday. They

suggested a

> helmet at 6 months of age and physio immediately. He is 4 1/2

months

> old now. Any suggestions from experienced moms who have been

through

> this? Needless to say, I am concerned. We atart physio on

Wednesday.

> My doctor gave us the stretches to do at home but I feel that I

need

> someone to walk me through them a little more. I am afraid that I

will

> hurt my son by doing the stretches incorrectly.

>

> Also, we have a holiday planned for 5 weeks this summer, about 2

weeks

> after he will get his helmet. Is tis wise? Should I stick close to

> home in case we need adjustments? I am feeling a little overwhelmed

> because I was given the diagnosis and then told to return to the

> plastic surgeon in August (helmet in July).

>

> Any advice would be appreciated!

>

>

>

>

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> AOL now offers free email to everyone. Find out more about what's

free from AOL at AOL.com.

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