Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Thank you . I've had a stone in the past. I had lithotripsy done to crush it. They are not fun at all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Thank you . I've had a stone in the past. I had lithotripsy done to crush it. They are not fun at all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Thank you Barbara. I just thinking about you. I'm sorry that you still experience pain from the stones but am thankful that they are not moving down into the ureters. PTL! I'll let you know something soon I hope, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 , I hope you don't have stones, as they are no picnic, but if that is the reason you are having your current problems, at least you would have an answer. You will be in my thoughts and prayers. Hugs, LILQT4U1984@... wrote: >My ultrasound results are back and it appears that I may have stones in my >left kidney. I'm scheduled to have an IVP in the morning at 10 a.m. Would >appreciate your prayers. I'll let you know when I know something further. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 , I hope you don't have stones, as they are no picnic, but if that is the reason you are having your current problems, at least you would have an answer. You will be in my thoughts and prayers. Hugs, LILQT4U1984@... wrote: >My ultrasound results are back and it appears that I may have stones in my >left kidney. I'm scheduled to have an IVP in the morning at 10 a.m. Would >appreciate your prayers. I'll let you know when I know something further. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 , I hope you don't have stones, as they are no picnic, but if that is the reason you are having your current problems, at least you would have an answer. You will be in my thoughts and prayers. Hugs, LILQT4U1984@... wrote: >My ultrasound results are back and it appears that I may have stones in my >left kidney. I'm scheduled to have an IVP in the morning at 10 a.m. Would >appreciate your prayers. I'll let you know when I know something further. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Not that the pain will be any less knowing what to expect, but at least you DO know what to expect. Please let us know how things go if you feel up to it. LILQT4U1984@... wrote: >Thank you . > >I've had a stone in the past. I had lithotripsy done to crush it. They are >not fun at all! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 , So sorry you have more stones to deal with. I remember how helpful you were when I was going through IVPs etc., having been through all that yourself. Hope whatever they recommend, it will not be a big ordeal for you. Also hope they can come up with some recommendations that may prevent further formation. One of the nice side-effects of taking K-Phos Neutral is that it acidifies an alkaline urine (which mine is) and helps prevent stone formation. I do still have stones in both kidneys, but they are not in a position where lipotripsy can be used. I'm hoping they will just stay put forever, as they are too large to pass. Several times I've had sudden severe pain in the left kidney in the middle of the night, and believe me, I start praying real hard. It has always stopped after an hour or two. Let us know what the plans are. Hugs and prayers, Barbara > My ultrasound results are back and it appears that I may have stones in my > left kidney. I'm scheduled to have an IVP in the morning at 10 a.m. Would > appreciate your prayers. I'll let you know when I know something further. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Good luck , I really hope this is less uncomfortable than you remembered. Are kidney stones common in mito? I couldn't find anything where it said that specifically (only that it causes kidney " problems " ). My brother has been trying to pass five of them for months, but they haven't figured out what's causing them yet. Maggie -- In , LILQT4U1984@a... wrote: > My ultrasound results are back and it appears that I may have stones in my > left kidney. I'm scheduled to have an IVP in the morning at 10 a.m. Would > appreciate your prayers. I'll let you know when I know something further. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Good luck . I have had kidney stones, and had to have them removed. It is not fun, and I can relate. It does feel so much better once they are gone though. ) Take care Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 I will keep you in my thoughts and prayers tomorrow. I hope it is over quickly and that you can find some answers that give you relief. Hugs, laurie > From: LILQT4U1984@... > Reply-To: > Date: Tue, 7 Sep 2004 17:04:29 EDT > To: LEMT13@..., Moonchild62579@..., allyson.l.sisler@..., > Utbrn@..., lisa@..., @..., scosby@..., > Cme4christ@..., Traci1175@..., jhelmers@..., > CLHyland@..., IMJANER2@..., Jillianw143@..., > kckoch76@..., Malnic2185@..., Lillian@..., > Malilibear@..., davidm0508@..., Marta608@..., > mito , , nikkinetgirl@..., > bethb48@..., digby@..., sweetnana1@..., > Wearingxblack@..., aaschwenk@..., Staceyje@..., > PJS3067198@..., laurice_stevens@..., jenbabi1985@..., > tpnsupport > Subject: IVP tom morning > > My ultrasound results are back and it appears that I may have stones in my > left kidney. I'm scheduled to have an IVP in the morning at 10 a.m. Would > appreciate your prayers. I'll let you know when I know something further. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Renal tubular acidosis and Fanconi's are two kidney problems associated with mito disorders. There may be others. Approx 70% of RTA patients have kidney stones. B > Are kidney stones common in mito? I couldn't find anything where it > said that specifically (only that it causes kidney " problems " ). My > brother has been trying to pass five of them for months, but they > haven't figured out what's causing them yet. > > Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Thanks. That's helpful. Maggie > Renal tubular acidosis and Fanconi's are two kidney problems > associated with mito disorders. There may be others. Approx 70% of > RTA patients have kidney stones. > > B > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 -Good luck to you . I hope it's nothing serious.You have enough to deal with right now. I have a stone or a AML (angiomyolipoma)leison in my kidney. It hasn't caused-me any problems, they just do regular ultrasounds to watch it. Are things like this related to mito do you know? Celia - In , LILQT4U1984@a... wrote: > My ultrasound results are back and it appears that I may have stones in my > left kidney. I'm scheduled to have an IVP in the morning at 10 a.m. Would > appreciate your prayers. I'll let you know when I know something further. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Thanks Alice, Celia.-- - In , " A ADAMS " wrote: > Celia, > > Many of us have lipomas and some have many of them. I can't answer the AML question with any validity but would guess that it's probably Mito related. > > Alice > I have a stone or a AML (angiomyolipoma)leison in my kidney. It hasn't caused-me any problems, they just do regular ultrasounds to watch it. Are things like this > related to mito do you know? Celia > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 -Dear Groupies, How do they test for renal tubular acidosis? What are the symptoms? just wondering, I don't have any probs that way, Celia -- In , " wheatchild2 " wrote: > , > > So sorry you have more stones to deal with. I remember how helpful > you were when I was going through IVPs etc., having been through all > that yourself. Hope whatever they recommend, it will not be a big > ordeal for you. Also hope they can come up with some recommendations > that may prevent further formation. One of the nice side-effects of > taking K-Phos Neutral is that it acidifies an alkaline urine (which > mine is) and helps prevent stone formation. I do still have stones > in both kidneys, but they are not in a position where lipotripsy can > be used. I'm hoping they will just stay put forever, as they are too > large to pass. Several times I've had sudden severe pain in the left > kidney in the middle of the night, and believe me, I start praying > real hard. It has always stopped after an hour or two. > > Let us know what the plans are. > > Hugs and prayers, > Barbara > > > > > My ultrasound results are back and it appears that I may have > stones in my > > left kidney. I'm scheduled to have an IVP in the morning at 10 > a.m. Would > > appreciate your prayers. I'll let you know when I know something > further. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.