Re: Hi all, some interesting info

[Guest guest]

This entire mito think is so frustrating. I will be thinking positive

thoughts for you.

Hugs,

laurie

>

> Reply-To:

> Date: Tue, 07 Sep 2004 21:22:16 -0000

> To:

> Subject: Hi all, some interesting info

>

> I have a friend I meet through the MDA 2 yrs ago. She was on this

> site for a short time and had suspected mito. Well she had all the

> test we've had ,muscle biop and emg, mri. Her test was all neg.

>

> She went to Europe and had all test over and they showed mito

> finally. But she said now that she's back she can't find a doctor

> to treat her.

>

> I had been doing somewhat ok for a few months, then in june things

> got bad again. I'm having the strokelike episodes alot and have

> lasting weakness and slow thoughts at times. I have a headache 24/7.

>

> Lets not talk about fatigue! My muscles are shaking all the time.

> There are so many other symptoms, but I'm on lots of meds for most

> alot of them, so I just try to cope everyday.

>

> Since the attacks have come back, I'm trying to continue with my

> search for a DX. I went to the lab for blood work and the tech told

> me about a lady who came in all the time in a wheel chair. She was

> real sick and had been to many doctors. Well she found the right

> one who found out her problem and she went to a walker to cane and

> then walking on her own.

>

> I need to hear that so much today. It's getting harder to fight and

> search.

>

> Last weak I went to my 50th endocrinoligist. As soon as she walked

> in I knew she wasn't going to even try, and she didn't. I wans't

> feeling well so I cried after the visist in my car BUT, I quickly

> recovered. I getting much better at this :-).

>

> I know many of you are going through VERY rough times and You will

> be in my prayers.

>

> I will not give up,

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

,

I ditto what Laurie has said. This is a very frustrating disease from dealing

with the symptoms to dealing with the medical field. Keep you chin up, be

positive and stick to your guns. I'm hoping you will find an endocrinologist

who will help you very soon. Sorry this one wasn't the one. I'm sorry this has

been so difficult for you.

Alice

This entire mito think is so frustrating. I will be thinking positive

thoughts for you. laurie

> I had been doing somewhat ok for a few months, then in june things

> got bad again. I'm having the strokelike episodes alot and have

> lasting weakness and slow thoughts at times. I have a headache 24/7.

>

> Lets not talk about fatigue! My muscles are shaking all the time.

> There are so many other symptoms, but I'm on lots of meds for most

> alot of them, so I just try to cope everyday.

>

> Since the attacks have come back, I'm trying to continue with my

> search for a DX. I went to the lab for blood work and the tech told

> me about a lady who came in all the time in a wheel chair. She was

> real sick and had been to many doctors. Well she found the right

> one who found out her problem and she went to a walker to cane and

> then walking on her own.

>

> I need to hear that so much today. It's getting harder to fight and

> search.

>

> Last weak I went to my 50th endocrinoligist. As soon as she walked

> in I knew she wasn't going to even try, and she didn't. I wans't

> feeling well so I cried after the visist in my car BUT, I quickly

> recovered. I getting much better at this :-).

>

> I know many of you are going through VERY rough times and You will

> be in my prayers.

>

> I will not give up,

>

[Guest guest]

-Oh , I'm sorry you are still having such a rough time- and still

undiagnosed. This is so me, you don;'t know how much I empathize with

you. It is just so frustrating dealing with these docs. What I find

the hardest is continually being labled as " functional disorder " Each

one passes this to the next one, so I feel like I never get a fair

shake. meanwhile my life is falling apart. I have just been referred

to my FIRST endocrinologist,after 16 years, Go figure. I hope you can

find a caring and helpful physician, Celia-

- In , " tanya2727 " wrote:

> I have a friend I meet through the MDA 2 yrs ago. She was on this

> site for a short time and had suspected mito. Well she had all the

> test we've had ,muscle biop and emg, mri. Her test was all neg.

>

> She went to Europe and had all test over and they showed mito

> finally. But she said now that she's back she can't find a doctor

> to treat her.

>

> I had been doing somewhat ok for a few months, then in june things

> got bad again. I'm having the strokelike episodes alot and have

> lasting weakness and slow thoughts at times. I have a headache 24/7.

>

> Lets not talk about fatigue! My muscles are shaking all the time.

> There are so many other symptoms, but I'm on lots of meds for most

> alot of them, so I just try to cope everyday.

>

> Since the attacks have come back, I'm trying to continue with my

> search for a DX. I went to the lab for blood work and the tech told

> me about a lady who came in all the time in a wheel chair. She was

> real sick and had been to many doctors. Well she found the right

> one who found out her problem and she went to a walker to cane and

> then walking on her own.

>

> I need to hear that so much today. It's getting harder to fight and

> search.

>

> Last weak I went to my 50th endocrinoligist. As soon as she walked

> in I knew she wasn't going to even try, and she didn't. I wans't

> feeling well so I cried after the visist in my car BUT, I quickly

> recovered. I getting much better at this :-).

>

> I know many of you are going through VERY rough times and You will

> be in my prayers.

>

> I will not give up,

>

>