Re: creatine....conference issue

[Guest guest]

Dr Cohen recommended Creatine for me a few months ago. He was very specific

about which brand to use. You purchase it at GNC and it's called Pro

Performance Creatine Monohydrate.

Alice

creatine....conference issue

Barbara,

YW....Honestly there was not a lot of " discussion " about creatine at the

conference. Just a comment by Dr. Cohen in his symptom management session that

it now appears it is beneficial and can be used long term in mito patients. I

suspect we will see/hear more about this in the near future.

I have been on creatine monohydrate (7 grams/day) since 2000 during/after a

bout of endocarditis. Dr. Cohen and my local neuro have kept me on it because I

seem to do better and my pulmonary function suffers when I'm off of it.

My nutritionist doc recommended the ProLab version (pricey), but does seem

pure and consistent. Mine is taken in through my J-tube so it bypasses the

stomach acids.

Do you have a nutritionist you can work with on this issue?

Kristie

Kristie, Tks so much for your post. I have some additional questions

> about the creatine discussions at the conference.

>

> 1. Did anyone mention which brands of creatine monohydrate are

> considered reliable? There is a tremendous difference in quality and

> purity among creatine products.

>

> 2. Did anyone mention the second-generation creatine products such

> as creatine pyruvate and creatine maleate? They claim superior

> bioavailabity over creatine monohydrate and also claim to eliminate

> the side effect of fluid retention.

>

> I am currently using a NutraBiotics product called ATP Evolution

> which is creatine monohydrate chelated with magnesium. It also

> contains nucleotide precursers that aid in formation of ATP.

> Chelating the creatine with magnesium protects the creatine from

> stomach acid and greatly enhances chances of actually getting to the

> muscle via the gut. Stomach acid tends to break creatine down into

> creatinine which is then just excreted through the kidneys. Was this

> problem addressed at all?

>

> I know Dr. Tarnopolsky has been the pioneer in using creatine in

> neuromuscular disorders. He has felt for some time that it is safe

> and recommends it for patients. I am glad to know that other experts

> now agree.

>

> Tks again.

> Barbara

[Guest guest]

Hi Alice. I had my weekly massage which certainly helped today, but

I'm still recovering from pneumonia and I'd imagine it's going to

take several weeks just like last time. Overall, I'm just

excessively tired but I wouldn't have missed the conference no

matter what. Obviously for those who have attended in the past, not

a lot of new material. This was my first conference however and I'm

thankful for the opportunity.

bug

[Guest guest]

Barbara....

no problem....I believe the Prolab website is: www.prolab.com

I don't bolus it into the tube it goes in via drip thru my pump while I do my

electrolytes...this has worked best for me.

Kristie

Message: 11

Date: Tue, 10 Aug 2004 23:28:59 -0000

Subject: Re: creatine....conference issue

Tks, Kristie. I will check out ProLab. No, I don't have a

nutritionist...not sure there is such an animal locally. Probably

would have to go to the big city. We may try the creatine in my j-

tube--I wasn't sure my gut would be happy with that but sounds like

you are tolerating it fine.

Barbara

[Guest guest]

Tks, I'll check out the site. Definitely no bolus feedings for J-

tubes!! I will try adding it to my nighttime pump/drip, but will

start adding very small amounts and work up to full dose. Creatine

does upset my stomach which is one reason I wondered if it wwould

make the gut more unhappy than usual, even in a slow drip. But worth

a try.

B

> Barbara....

> no problem....I believe the Prolab website is: www.prolab.com

> I don't bolus it into the tube it goes in via drip thru my pump

while I do my electrolytes...this has worked best for me.

>

> Kristie

>

>

>

> Message: 11

> Date: Tue, 10 Aug 2004 23:28:59 -0000

> From: " wheatchild2 "

> Subject: Re: creatine....conference issue

>

> Tks, Kristie. I will check out ProLab. No, I don't have a

> nutritionist...not sure there is such an animal locally. Probably

> would have to go to the big city. We may try the creatine in my j-

> tube--I wasn't sure my gut would be happy with that but sounds

like

> you are tolerating it fine.

>

> Barbara

>

>

>

>

>