Re: How do you keep from getting too upset?

[Guest guest]

- My son started in his first band June 24 and he is getting

it off next week. He was 6 months at the start of treatment but he

was born 7 weeks early so technically 4.5 months. The one thing I

wanted to point out is while going from 96% to 93% seems like only a

little. It was actually went down 2 standard deviations. The

Cephalic index is different from birth to 6 months then it is from 6

months to a year. So thats why it was 2 standard deviations. It

went from +4 to +2 standard deviations. I actually feel much better

right now. I talked to our Orthotist tonight. She is wonderful. We

are going in for our casting tommorow. She said that he still should

have significant correction since he is only 8 months 6.5 months

adjusted. She also said he will be in this helmet longer which is

fine with me. She said she thinks we should be able to get the

brachy into a normal range. So even if its one standard deviation

off I am hoping it will look normal. I am sure there are people that

are born with large heads with CIs above normal. Cranial Sacral is a

new therapy where they put gentle pressure on the childs head no more

than the weight of a nickel to realign the headshape. its based on

the belief that soft tissue determines bone placement. So you move

the soft tissue you move the bones. Its worth a try. I will keep

you updated on my progress with both.

> > >

> > > My son is currently at the end of his first doc band treatment

> with

> > 5mm

> > > assymetry and 93% brachy. We went to the pedi to decide on what

> to

> > do

> > > next he recommended a second band and we asked about cranial

> sacral

> > and

> > > he said to try both in conjuction. So we are getting a second

> band

> > and

> > > will see a CST therapist.

> > > I just feel so upset because I know Brachy is the hardest to

> > correct

> > > and his head will never be even close to normal. I look at what

> a

> > > happy wonderful baby my son is and how cute he is even with the

> > brachy

> > > and just want him to have the head shape he was born with. It

> > makes me

> > > so upset. My DH says we should just be optimistic and we may be

> > very

> > > happy with the results of a second band and CST. I just pray he

> is

> > > right.

> > >

> >

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