Re: mitoldies: please help with sleep study results

[Guest guest]

Alice,

you are probally right on that. I wonder how long that will take..a year or

two...LOL

took me 6 motnhs to get into see the neuro. Ah well hurry up and wait....

thanks I just typed it into goggle and it has a bit on it,. It is like

obstructive sleep apnea but it doesnt come from the pallat , tonsils or

throat...they mentioned CPAP...

Ill keep reading...

[Guest guest]

Laurie,

the results were read by a sleep specialist and that is who said that it was

a abnormal study consistent with the airway resistance.

It is the neuro that is at a loss as what to do, I wonder if he should call

the sleep study doctor, the one that read the test.

[Guest guest]

I agree with Alice. You need to have a pulmonologist look at the results. I

have never heard of results being released without being read by a sleep

specialist.

laurie

> From: MitomomX3@...

> Reply-To:

> Date: Wed, 29 Sep 2004 19:57:54 EDT

> To:

> Subject: : please help with sleep study results

>

> Hello.

> My neurologist just phoned me with the results of my sleep study that I had

> two weeks ago.

> He said he had no idea what they meant and didnt know what to do to help.

> He phoned my Primary doc and spoke to him also.

> The results state:

> Abnormal study consistent with Upper airway resistive syndrome.

> there were several episodes of hypoxemia present periidically.

>

> My neuro said perhaps it is just ashtma but somehow that doesnt seem right

> as i dont have asthma . I am wondering if has something to do with the

> respiratory muscles not working well.

> any ideas?

> thanks in advance

>

>

>

>

[Guest guest]

I would say you need an appointment with the specialist to have them

interpret the results for you and the neuro.

MitomomX3@... wrote:

>Laurie,

>the results were read by a sleep specialist and that is who said that it was

>a abnormal study consistent with the airway resistance.

>It is the neuro that is at a loss as what to do, I wonder if he should call

>the sleep study doctor, the one that read the test.

>

>

>

>

[Guest guest]

....>I wonder if he should call

> the sleep study doctor, the one that read the test.

That would be a great first step, or you could even call the sleep

study center and ask them if they have the name of a pulmonologist.

My uncle just had an abnormal sleep study, but he was already seeing

a pulmonologist, *after* his primary care doctor got him a trach tube

without a pulmonologist consult.

Some times my big mouth gets me in trouble, but mostly I am able to

get things done with a few phone calls instead of waiting for the

medical professionals to do their job. Doesn't hurt to ask.

I believe that any of us that have skeletal muscle weakness could

have weakness in the diaphragm and other breathing muscles, so

treating a mito patient with " breathing resistance " may be different

than treating a regular patient with the same diagnosis.

Take care,

RH

[Guest guest]

I have had two different sleep doctors over the years. One was a neuro who

specialized in sleep abnormalities and my current on is a pulmonologist. I

had follow up appointments with them after my sleep studies. They were and

are the ones treating me for the sleep problems. I would ask for the neuro

to talk with the sleep doc or ask that the sleep doc make recommendations to

the neuro and you.

I have not heard of anyone who has had a sleep study without having

appointments with the one who is reading the study. Your situation seems a

bit out of the ordinary.

laurie

> From: MitomomX3@...

> Reply-To:

> Date: Thu, 30 Sep 2004 00:10:51 EDT

> To:

> Subject: Re: : please help with sleep study results

>

> Laurie,

> the results were read by a sleep specialist and that is who said that it was

> a abnormal study consistent with the airway resistance.

> It is the neuro that is at a loss as what to do, I wonder if he should call

> the sleep study doctor, the one that read the test.

>

>

>

>