Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi! How is the healthcare in Canada? Is it socialized medicine? Have you any of you used the Hospital for Sick Children in Toronto? Have you seen or heard anything about Dr. Ingrid Tein? I know she has done research into carnitine transporter gene defect and FOD's. I think she maybe even found the OCTN2 gene. Any thoughts appreciated. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 , I will let the Canadian patients speak for their health care system, though I have heard from many Canadian patients over the years, both good and not-so-good stories regarding that system. Just wanted to add that Dr. Ingrid Tein is highly respected internationally and I have heard many good things about her from US experts and Canadian patients. Barbara > Hi! > > How is the healthcare in Canada? Is it socialized medicine? > > Have you any of you used the Hospital for Sick Children in Toronto? Have you > seen or heard anything about Dr. Ingrid Tein? I know she has done research > into carnitine transporter gene defect and FOD's. I think she maybe even found > the OCTN2 gene. > > Any thoughts appreciated. > > Thanks! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 Re: Re: Canadian list members > Thank you Barbara. I appreciate your knowledge and opinions on what you have > heard. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Thelma- Good to hear from you. I'm sorry for the troubles you've had with the healthcare and physicians. Glad to know that the supplements are helping you and that you are holding onto that hope of a getting a definitive Dx. Best of luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Hi , I hope you are doing well. I have not seen Dr. Ingrid Tein, but I have heard she is very good. And that Sick Kids is a very good hospital. I have had referrals to some mito doctors, but no one has been able to diagnose me yet. I am still optimistic about one day getting diagnosed. I am doing well for now on Co-enzyme Q10 and mega B vitamins, and have wondered if I might have thiamine responsive pyruvate dehydrogenase deficiency that another list member has on the site. What frustrates me here is the general practitioners are the ones with the power to refer you to specialists and the specialists can turn you down if they don't want to see you. I saw one a few times who had some knowledge of mito, did refer me to another specialist, but later on refused to see me again. I think it was because she believed she couldn't help me, but anyways I thought it was rude. Thelma Quote Link to comment Share on other sites More sharing options...
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