Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Sure - I don't know why it didn't go to Mitoldies but go ahead and send it to me. Alice Hi I sent an email a few hours ago and it doesn't seem like it went through. Can I send it to you Alice or Laurie and maybe you could put it on the list, it is a pretty good article I think everyone would enjoy reading it I wanted to send it a while ago when I sent it to Dr. Cohen and I think the umdf but we changed servers and I lost my favorites and it took me awhile to find it again thanks. Donna K Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Donna, I have a feeling it is a quiet day because many went to the conference. I hope this gets to you and your e-mail is working. Smiles, a On Thu, 5 Aug 2004 18:02:18 -0400 amerikooch@...> writes: Hi Alice and Group, I was wondering if someone could please email me back I am not sure if my email is working maybe it is just a quite day with the conference and all take care. Donna K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Donna, I have a feeling it is a quiet day because many went to the conference. I hope this gets to you and your e-mail is working. Smiles, a On Thu, 5 Aug 2004 18:02:18 -0400 amerikooch@...> writes: Hi Alice and Group, I was wondering if someone could please email me back I am not sure if my email is working maybe it is just a quite day with the conference and all take care. Donna K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Donna, hope the fundraiser goes great..have a safe and informative trip to the conference.. S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Hi a, Thanks for sending an email, my husband and I are going to the conference tomorrow as there is a fundraiser tonight at a minor league baseball game tonight. My son's barbers are doing this for the UMDF, they held one in May, June and July also. they are greatthey are twin brothers that have known my family for 30 years and just think the world of my son. It is a beautiful day here so hopefully we will do well tonight take care. Donna K > > > Date: 2004/08/05 Thu PM 06:18:59 EDT > To: > Subject: Re: > > Donna, > I have a feeling it is a quiet day because many went to the > conference. I hope this gets to you and your e-mail is working. > Smiles, > a > > On Thu, 5 Aug 2004 18:02:18 -0400 amerikooch@...> writes: > Hi Alice and Group, > I was wondering if someone could please email me back I am not sure if my > email is working maybe it is just a quite day with the conference and all > take care. > Donna K > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Thanks , It will be a chilly night but we will have a good time Donna K > > From: Mrsmurffy@... > Date: 2004/08/06 Fri AM 10:13:27 EDT > To: > Subject: Re: > > Donna, > hope the fundraiser goes great..have a safe and informative trip to the > conference.. > S > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Donna, I hope this goes well tonight. I know you have been excited about this for some time and rightfully so. Please have a good trip to the conference and enjoy the remainder. It will be worth your trip. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Donna, I hope all goes well tonight with the fundraiser. It sounds great. Have a safe trip to the conference as well. Smiles, a On Fri, 6 Aug 2004 9:34:20 -0400 amerikooch@...> writes: Hi a, Thanks for sending an email, my husband and I are going to the conference tomorrow as there is a fundraiser tonight at a minor league baseball game tonight. My son's barbers are doing this for the UMDF, they held one in May, June and July also. they are greatthey are twin brothers that have known my family for 30 years and just think the world of my son. It is a beautiful day here so hopefully we will do well tonight take care. Donna K > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Donna, Does have a picc line, a peripheral line, or a port-a-cath? has had swelling and pain at the IV site when the fluid was infiltrating or when she had blown a vein. This was with a peripheral line. The IV had to come out to avoid having cellulitis. The only time she had pain or stiffness around her picc line was when she had a staph infection. She ran a high fever with that and it had to come out and she wound up a might sick puppy in the hospital. I don't think I was much help but that is my two cents worth. Shelby > I was wondering if there is anyone that has had phlebitis near the IV > sight. has been on hydration for 2 days and early this > evening he started complaning that his arm hurts when he moves it, the > area does not look red or inflamed like it has in the past. Needless > to say the DR'S offices were closed and today is his primary doctor's > day off. I have talked to 2 on call doctors that have recomended > stopping the fluids. wants to run it some more but he is > worried about getting an infection with having mito. Can someone > please give your opinion thanks. > Donna K > > > > Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of > this e mail is entirely responsible for its content. List members are > reminded of their responsibility to evaluate the content of the > postings and consult with their physicians regarding changes in their > own treatment. > > Personal attacks are not permitted on the list and anyone who sends > one is automatically moderated or removed depending on the severity of > the attack. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Donna, When my daughter, , had staph she was on multiple antibiotics. The infectious disease expert at the hospital called Dr. Shoffner to make sure the antibiotics he was planning to use were okay for mito patients. Amminogylcosides have to be avoided for some types of mito. I'm sorry I do not remember the name of the antibiotics used. She was on them a week in the hospital and then a week via IV at home. Hopefully it is just an infiltration and not an infection. I'm sorry is having problems. Shelby > Hi Shelby, > Thanks for your response does have a peripheral line we did > stop the the hydration and the sight is swollen and red he is in a lot > of pain. I have been putting warm compresses on and I think I will > need to call the doctor in the morning, last time he had this he was > on an antibiotic and it did seem to help with the infection. I was > wondering if you or anyone else has had to go on an antibiotic with > having mito thanks again. > Donna > > > > Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of > this e mail is entirely responsible for its content. List members are > reminded of their responsibility to evaluate the content of the > postings and consult with their physicians regarding changes in their > own treatment. > > Personal attacks are not permitted on the list and anyone who sends > one is automatically moderated or removed depending on the severity of > the attack. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Donna I got cellulitis following a fall on my knees. Oral antibiotics didn't work, so they put in a modified PICC line and I gave myself IV antibiotics at home for 4 weeks. I had to go in every 3 days to be checked and get more meds to take home. At one point I was on a combination of two antibiotics. I can't remember what they were at the moment, but I'll see if I can remember when more awake. I will keep you and in my thoughts. laurie > > Reply-To: > Date: Thu, 12 Aug 2004 21:59:02 -0400 > To: > > Subject: > > Hi Shelby, > Thanks for your response does have a peripheral line we did stop the > the hydration and the sight is swollen and red he is in a lot of pain. I have > been putting warm compresses on and I think I will need to call the doctor in > the morning, last time he had this he was on an antibiotic and it did seem to > help with the infection. I was wondering if you or anyone else has had to go > on an antibiotic with having mito thanks again. > Donna > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 HI Donna, It sounds like the IV is infiltrating and the IV fluids are going into the soft tissue around the vein instead of into the vein. This would cause pain and swelling. It sounds like he needs a new IV and this one should be replaced. Either way, you should probably contact the doc or homecare company about it. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Thanks Malisa, I think you are right it looked like it was infiltrating though you can also see and feel a bump I wonder if he does not also have a little phelbitis going on the last time he was on keflex and it did help thanks again. I called the hospital today to see how was doing and was told she was discharged I was happy to hear she is doing better have you heard how a is doing take care. Donna > > From: Malilibear@... > Date: 2004/08/13 Fri AM 01:49:27 EDT > To: > Subject: Re: > > HI Donna, > It sounds like the IV is infiltrating and the IV fluids are going into the soft tissue around the vein instead of into the vein. This would cause pain and swelling. It sounds like he needs a new IV and this one should be replaced. Either way, you should probably contact the doc or homecare company about it. > Malisa > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 HI Donna, How's today? Did he do okay without the extra IV fluids? I talked to 's mom tonight. They were discharged from CCF but she is at the local RMH. They are waiting for a flight home, but due to the hurricaine, a lot of small planes are grounded for now. She is having some relief with the miralax, but it isn't nearly what she had hoped for. They couldn't get the manometry done due to scheduling issues so they may have to go back to CCF in the middle of Sept. Her mom is worried she may have another UTI, too, but the hospital has lost the sample several times now! Sigh. a is home and is adjusting to the GJ tube. Hopefully she'll be up to updating soon. Please keep both and a in your prayers and thoughts. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Hi Malisa, is coming along slowly he did stop the IV and did not want another one started today. His arm is still sore I did put warm compresses on last night I also think he has a little phelbitis as you can feel a little bump and there is some redness. He was running a temp but I could not get anyone to give him an antibiotic last time he had this he was on keflex and felt better. I think is is concerned that with the mito and slight IGG defiency that he is at higher risk for infections. I will keep and a in my prayers take care and thanks for your support. Hugs, Donna > > From: Malilibear@... > Date: 2004/08/13 Fri PM 11:23:38 EDT > To: > Subject: Re: > > HI Donna, > How's today? Did he do okay without the extra IV fluids? > I talked to 's mom tonight. They were discharged from CCF but she is at the local RMH. They are waiting for a flight home, but due to the hurricaine, a lot of small planes are grounded for now. She is having some relief with the miralax, but it isn't nearly what she had hoped for. They couldn't get the manometry done due to scheduling issues so they may have to go back to CCF in the middle of Sept. Her mom is worried she may have another UTI, too, but the hospital has lost the sample several times now! Sigh. > a is home and is adjusting to the GJ tube. Hopefully she'll be up to updating soon. > Please keep both and a in your prayers and thoughts. > Malisa > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Malisa Thank you for the update. Please let know that she is in my thoughts and prayers. I hope they can get a flight home soon. laurie > From: Malilibear@... > Reply-To: > Date: Fri, 13 Aug 2004 23:23:38 -0400 > To: > Subject: Re: > > HI Donna, > How's today? Did he do okay without the extra IV fluids? > I talked to 's mom tonight. They were discharged from CCF but she is at > the local RMH. They are waiting for a flight home, but due to the hurricaine, > a lot of small planes are grounded for now. She is having some relief with the > miralax, but it isn't nearly what she had hoped for. They couldn't get the > manometry done due to scheduling issues so they may have to go back to CCF in > the middle of Sept. Her mom is worried she may have another UTI, too, but the > hospital has lost the sample several times now! Sigh. > a is home and is adjusting to the GJ tube. Hopefully she'll be up to > updating soon. > Please keep both and a in your prayers and thoughts. > Malisa > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Malisa, Thanks for the upate on and a. If you talk to , please tell her and I are thinking about her. Malilibear@... wrote: >HI Donna, >How's today? Did he do okay without the extra IV fluids? >I talked to 's mom tonight. They were discharged from CCF but she is at the local RMH. They are waiting for a flight home, but due to the hurricaine, a lot of small planes are grounded for now. She is having some relief with the miralax, but it isn't nearly what she had hoped for. They couldn't get the manometry done due to scheduling issues so they may have to go back to CCF in the middle of Sept. Her mom is worried she may have another UTI, too, but the hospital has lost the sample several times now! Sigh. >a is home and is adjusting to the GJ tube. Hopefully she'll be up to updating soon. >Please keep both and a in your prayers and thoughts. >Malisa > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Dear Malisa, Please give all my best, and i hope she is soon home in her own safe little bed. has she tried zelnorm (for her gut) at all? Love, Celia > Malisa > > Thank you for the update. Please let know that she is in my thoughts > and prayers. I hope they can get a flight home soon. > > laurie > > > From: Malilibear@a... > > Reply-To: > > Date: Fri, 13 Aug 2004 23:23:38 -0400 > > To: > > Subject: Re: > > > > HI Donna, > > How's today? Did he do okay without the extra IV fluids? > > I talked to 's mom tonight. They were discharged from CCF but she is at > > the local RMH. They are waiting for a flight home, but due to the hurricaine, > > a lot of small planes are grounded for now. She is having some relief with the > > miralax, but it isn't nearly what she had hoped for. They couldn't get the > > manometry done due to scheduling issues so they may have to go back to CCF in > > the middle of Sept. Her mom is worried she may have another UTI, too, but the > > hospital has lost the sample several times now! Sigh. > > a is home and is adjusting to the GJ tube. Hopefully she'll be up to > > updating soon. > > Please keep both and a in your prayers and thoughts. > > Malisa > > > > > > Medical advice, information, opinions, data and statements contained herein > > are not necessarily those of the list moderators. The author of this e mail is > > entirely responsible for its content. List members are reminded of their > > responsibility to evaluate the content of the postings and consult with their > > physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 < > I will certainly pass along everyone's messages to if I talk to her or her mom again. You are all such a wonderful support system! Celia, tried zelnorm once in the past and had a bad reaction to it, but I think she tried it again for a few days last month. It didn't seem to help so they stopped it, but I think there is talk of trying it again. You'll have to ask her about it again when she gets home. I can't remember if she said she had already started it again or not. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Please don't every feel bad about asking questions. Please see someone about the bump right away. It might be nothing, but it should be checked out by the sounds of it. amerikooch@... wrote: >I am sorry for all these questions that I have been asking these last few days,I am not sure what to think. 's vein where the IV was has a hard knotty like bump it feels kinda big could it be a blood clot. It does not look red or swollen any more. Thanks for your help. >Donna > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 > Thanks I think that is a good idea I will let you know by the way it was nice meeting you and she was a great worker and very polite Donna > > Date: 2004/08/14 Sat PM 06:53:33 EDT > To: > Subject: Re: > > > Please don't every feel bad about asking questions. Please see someone > about the bump right away. It might be nothing, but it should be > checked out by the sounds of it. > > > > amerikooch@... wrote: > > >I am sorry for all these questions that I have been asking these last few days,I am not sure what to think. 's vein where the IV was has a hard knotty like bump it feels kinda big could it be a blood clot. It does not look red or swollen any more. Thanks for your help. > >Donna > > > > > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 > Thanks I think that is a good idea I will let you know by the way it was nice meeting you and she was a great worker and very polite Donna > > Date: 2004/08/14 Sat PM 06:53:33 EDT > To: > Subject: Re: > > > Please don't every feel bad about asking questions. Please see someone > about the bump right away. It might be nothing, but it should be > checked out by the sounds of it. > > > > amerikooch@... wrote: > > >I am sorry for all these questions that I have been asking these last few days,I am not sure what to think. 's vein where the IV was has a hard knotty like bump it feels kinda big could it be a blood clot. It does not look red or swollen any more. Thanks for your help. > >Donna > > > > > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Donna It sounds like it needs to be checked out. I know how young adult men can with mom's (I've had two), but he is probably worried about it even if he tells you he isn't. laurie > > Reply-To: > Date: Sat, 14 Aug 2004 18:48:46 -0400 > To: > > Subject: > > I am sorry for all these questions that I have been asking these last few > days,I am not sure what to think. 's vein where the IV was has a hard > knotty like bump it feels kinda big could it be a blood clot. It does not look > red or swollen any more. Thanks for your help. > Donna > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Thanks. got a smile on her face when I told her what you said. Let us know what you find out. amerikooch@... wrote: >>Thanks I think that is a good idea I will let you know by the way it was nice meeting you and she was a great worker and very polite >> >> >Donna > > >> >>Date: 2004/08/14 Sat PM 06:53:33 EDT >>To: >>Subject: Re: >> >> >>Please don't every feel bad about asking questions. Please see someone >>about the bump right away. It might be nothing, but it should be >>checked out by the sounds of it. >> >> >> >>amerikooch@... wrote: >> >> >> >>>I am sorry for all these questions that I have been asking these last few days,I am not sure what to think. 's vein where the IV was has a hard knotty like bump it feels kinda big could it be a blood clot. It does not look red or swollen any more. Thanks for your help. >>>Donna >>> >>> >>> >>> >>>Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. >>> >>>Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 >Thanks Laurie, I think you a right I think he is a little worried and so am I could peds look at him as that is who still sees him > > Date: 2004/08/14 Sat PM 07:15:27 EDT > To: > > Subject: Re: > > Donna > > It sounds like it needs to be checked out. I know how young adult men can > with mom's (I've had two), but he is probably worried about it even if he > tells you he isn't. > > laurie > > > > > Reply-To: > > Date: Sat, 14 Aug 2004 18:48:46 -0400 > > To: > > > Subject: > > > > I am sorry for all these questions that I have been asking these last few > > days,I am not sure what to think. 's vein where the IV was has a hard > > knotty like bump it feels kinda big could it be a blood clot. It does not look > > red or swollen any more. Thanks for your help. > > Donna > > > > > > > > Medical advice, information, opinions, data and statements contained herein > > are not necessarily those of the list moderators. The author of this e mail is > > entirely responsible for its content. List members are reminded of their > > responsibility to evaluate the content of the postings and consult with their > > physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.