Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 , Jandebeur is recovering (finally) from an as yet unknown infection for which he was prescribed Clindamycin for 1 week while culture is being done. The infection is probably the same as that of last month (untreated) which produced 102 temps. What is new and disturbing in addition to complete listlessness, shallow breathing and severe mucus clumping that clogs the suction machines is the roulette wheel whirling of his eyeballs and rough protrusion enlargement of his right eye. Any comments? Also, after 2 years of requests and arm, leg, neck atrophy and spasm got prescription for Baclofen. Jan had a one month use of Baclofen along with painful professional massage. I still do rubdowns on his muscleless bones. No pharmacy except Wal-mart is open weekends and they seldom answer questions then. Are your cramp Zanaflex and Neurontin for tingling over the counter meds? Jan has Acetaminophen with Codeine for pain. If he answers at all anymore, it is no to pain and fine to how are you. Despite all the problems, WE HAD A LOVELY HOLIDAY with two grown grandchildren and two sons present. I rolled his bed and propped him up to see the festive meals and woke him for the end of the AL football game. Angels, lights, carols, fantastic sunsets, bread and pies baked, FOOD and goodies--I think he enjoyed the activity although with his eyes closed most of the time to screen out too much sensory stimulation. Best wishes to you and yours for a wonderful year ahead. LA Louise in sunny, clear and cold Springhill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Hi Louise, Wish I had the answer,don't-but Leo's eyes have done that " roulette wheeling " for some time now. It seems to be when he changes direction of his gaze and is trying to focus. Have no idea why, wish I could be of more help. Best to you and family for the new year. Ginger Eye Rotation JBF??? > , Jandebeur is recovering (finally) from an as yet unknown infection for > which he was prescribed Clindamycin for 1 week while culture is being done. > > The infection is probably the same as that of last month (untreated) which > produced 102 temps. > > What is new and disturbing in addition to complete listlessness, shallow > breathing and severe mucus clumping that clogs the suction machines is the > roulette wheel whirling of his eyeballs and rough protrusion enlargement of > his right eye. Any comments? > > Also, after 2 years of requests and arm, leg, neck atrophy and spasm got > prescription for Baclofen. Jan had a one month use of Baclofen along with > painful professional massage. I still do rubdowns on his muscleless bones. > > No pharmacy except Wal-mart is open weekends and they seldom answer > questions then. Are your cramp Zanaflex and Neurontin for tingling over the > counter meds? > > Jan has Acetaminophen with Codeine for pain. If he answers at all anymore, > it is no to pain and fine to how are you. > > Despite all the problems, WE HAD A LOVELY HOLIDAY with two grown > grandchildren and two sons present. I rolled his bed and propped him up to > see the festive meals and woke him for the end of the AL football game. > > Angels, lights, carols, fantastic sunsets, bread and pies baked, FOOD and > goodies--I think he enjoyed the activity although with his eyes closed most > of the time to screen out too much sensory stimulation. > > Best wishes to you and yours for a wonderful year ahead. > > LA Louise in sunny, clear and cold Springhill. > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Greetings Louise! Sorry for my delay in this response. As with Ginger, I wish I knew the answer. I find that some times I also have a very hard time locking onto something when I try to focus on it. Those are usually the very worst days for me (maybe once a quarter to so). And I agree with Ginger, it seems to occur whenever I try to focus on something .. unfortunately especially faces. The ability to focus on things is a very automatic reflex that is hardwired into the brain. Babies do it without needing to be taught or learn it. I suspect that lack of control of this is both autonomic issues and cerebellar degeneration. It must be very disconcerting for you to have this. But it is very normal. Keeping your Jan calm may help more than just about anything else you can do. There sure is no medication to help with any visual problems due to cerebellar degeneration. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Greetings Louise! Sorry for my delay in this response. As with Ginger, I wish I knew the answer. I find that some times I also have a very hard time locking onto something when I try to focus on it. Those are usually the very worst days for me (maybe once a quarter to so). And I agree with Ginger, it seems to occur whenever I try to focus on something .. unfortunately especially faces. The ability to focus on things is a very automatic reflex that is hardwired into the brain. Babies do it without needing to be taught or learn it. I suspect that lack of control of this is both autonomic issues and cerebellar degeneration. It must be very disconcerting for you to have this. But it is very normal. Keeping your Jan calm may help more than just about anything else you can do. There sure is no medication to help with any visual problems due to cerebellar degeneration. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Greetings Louise! Sorry for my delay in this response. As with Ginger, I wish I knew the answer. I find that some times I also have a very hard time locking onto something when I try to focus on it. Those are usually the very worst days for me (maybe once a quarter to so). And I agree with Ginger, it seems to occur whenever I try to focus on something .. unfortunately especially faces. The ability to focus on things is a very automatic reflex that is hardwired into the brain. Babies do it without needing to be taught or learn it. I suspect that lack of control of this is both autonomic issues and cerebellar degeneration. It must be very disconcerting for you to have this. But it is very normal. Keeping your Jan calm may help more than just about anything else you can do. There sure is no medication to help with any visual problems due to cerebellar degeneration. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
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