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Re: Connie H

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Connie, it is so good to hear from you . How have you been doing? I've

missed your posts. Things will probably settle down now for alot of us. I'm

feeling alot better. I'm still going to need those nudges from you.LOL I am

still going to check with my insurance this week as promised. Hopefully Dr.

Franco is on the list, am also checking out Mayo Clinic and Dr. Buckner.

Hope you had a wonderful New Year. Are your children still there or did you

get your computer back?LOL

Hope to talk to you soon. Know you are always in my thoughts.

Hugs

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In a message dated 1/2/01 12:00:19 AM Pacific Standard Time,

jhache@... writes:

<< Well, is home (thanks again, dear Lord) so I'll close for now. >>

Connie, I can really relate to that! I've been waiting for (my 23 yr

old) to retun tonight from San Diego (a 9-10 hr drive) She just returned

safely too!! Whew! Prayers are answered again.

Connie, when we talked before, I mentioned how sick I was while taking the

zithromax. Do you think it was stirring up those toxins? I really do have

to make some serious decisions here in the next few days. Can't afford to be

flying around the country, but know I need to see an RP specialist. Will let

you know asap what I find out from my insurance company. Then I will GET on

the phone and make the appts with the drs that I decide on. (I should have

gone to San Diego with my daughter and camped out at Dr Franco's office)LOL

Thank you for all the " nudges " .!!! They are really appreciated. I'm flaring

again from not being on the metho, so MUST do something and soon. Will up my

pred again and Kick this RP again out the door.

Thanks for always being there when I need you.

Hugs

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Hi ,

It's nice to hear from you, too. As for me, I can't complain (too

much anyway :-) Just the little aches and pains...the ones that are

hard to tell if they are RP or just the day to day aches and pains of

a 46 year old :-)

Kids are still here, but the time goes so fast. heads back to

Omaha in one week and a goes back to Portland in two. I hate it

when they leave, but at the same time there is a sort of relief.

Maybe out of sight, out of mind?? Right now, I am waiting up for my

16 year old daughter to drive herself home (another worry...but I try

not to.)

, you mentioned your 'maybe' Lupus rash. I know of some

people on the rheumatic list who are taking either Minocin or

Doxycycline for that, as well, and are seeing good results. OK,

here's another nudge :-) *When* you go see Dr. Franco, he will

definitely be able to sort out your dx. (How's that?) Also, I think

that Southwest Airlines is having a sale betweeen Sacramento and

Ontario, CA...but as I type this, I wonder if I got the cities

right. I'll let you know.

Well, is home (thanks again, dear Lord) so I'll close for now.

Talk to you all very soon,

Love,

Connie

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  • 1 month later...

Connie, how are you doing?? I haven't heard from you in a while. What have

you been busy doing?? Hope you haven't been sick.

Are you getting ready for you trip to Calif ??? The weather has been great

down south, hope it stays that way for you.

Just know that I've been thinking of you.

Have a great weekend.

Hugs

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  • 2 weeks later...

Carmela, good to have you back!! Just thought I'd let you know that when I

was on minocin for fibro, It took 6 months for me to really see a difference.

Don't give up too soon. (hey if you get a script, get one for me too)LOL

Good luck at the sleep clinic. Glad you are having it done. I haven't been

able to use my c pap machine for a week with this cold. I can sure feel the

difference.

Good luck and sleep well.

Thinking of you

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Hi Connie

thanks for your message and yes, I do know you are thinking of me, as I'm

thinking of you as well. I'm trying to get my papers and mags sorted

out...it's very time consuming. I'm sure the Minocin will help, but I see

the doctor next week and he'll advise me whether I should continue or not,

unfortunately I have the generic brand. If the doctor suggests to continue

I will ask him for another script and I'll take it to another pharmacy and

ask to be given the name brand. Otherwise I feel fine, except for some

fatigue, but that could be due to not enough sleep, exercise and fresh air.

I have an appt at the sleep clinic this PM and I'll let you know what the

doctor says.

take care

love

Carmela

***********************

>

>Reply-To: Rpolychondritis

>To: Rpolychondritis >

>Subject: Re: Welcome back Carmela

>Date: Tue, 13 Feb 2001 20:39:13 -0800

>

>Hi Carmela :-)

>

> is certainly right, it is good to have you back :-)

>

>I, too, know so very well about the papers and magazines taking complete

>control of the house.....I've been throwing out a lot of papers in the last

>few weeks too.....and it feels wonderful :-)) .....gee, I hope I didn't

>throw away anything important! LOL

>

>You mentioned that you didn't think that the Minocin was doing

>anything....just remember that it takes a long time, quite often more than

>six months for people to notice any improvements. Also, remember that the

>name brand, not generic, has been shown to be more effective. Whatever you

>decide, I hope your arms and legs soon get back into good shape and that

>you feel good, too......you know I'm thinking about you, right?

>

>take care and many hugs to you,

>

>Connie H.

>

>

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