Re: Chloe graduated yesterday!

[Guest guest]

Congratulations Chloe! These are very good numbers. 0-3 is the normal

range, so all her numbers are just about there. I think we get a

little obsessed by staring at their heads all the time. I still see my

own daughter's imperfections (and blame myself a little), but I don't

think most people would see anything. I imagine that with Chloe's

results it is really not visible to the untrained eye.

I would love to see pictures if you have some.

I don't know anything about the hips and legs. Let us know if you find

out something.

take care. -christine

sydney 20 mo starband grad.

>

> Hooray for Chloe! My sweet almost-16-month-old daughter graduated

> from her Starband yesterday. She didn't get started until she was 11

> months old so we weren't sure how much correction we would get. She

> did pretty well though. I'm so excited that we're done with the

> helmet, but I'm also a little sad that we didn't get more

> correction. Her left ear is still pushed a little more forward than

> her right, and she still has a little bossing of the forehead. But

> she has outgrown the helmet, and the therapist says this is as good

> as it will get. She said there is a chance that her head could

> correct itself more on its own.

>

> So now I have a few questions for all you plagio parents.

>

> 1) Have any of you seen correction after graduation from the helmet?

>

> 2) Do these measurements sound ok to you? I know different places

> use different measurements, but our therapist always measured Chloe

> on five different areas. Below is what she started at and what she

> is now. Please tell me what you think. Should I be happy with the

> awesome progress she has made, or should I push for another helmet?

>

> Oblique Diameter went from an 8 mm difference to only a 1 mm

> difference.

> Cranial Vault went from 10 mm to 2 mm.

> Parietal to Eye went from 6 mm to 4 mm.

> Facial Asymmetry went from 5 mm to 2 mm.

> Cranial Base went from 10 mm to 2 mm.

>

> 3) Now Chloe's therapist is worried about her feet and her hips.

> When she sits on the floor, she often sits in a " W " position. I

> don't know how to describe this, but if you know what I mean and

> your child does/did this, let me know what you think about it. When

> she walks (not on her own yet, only when holding my hands or using a

> push toy), she leans backward and puts pressure on her heels. Her

> feet turn funny ways and she curls her toes down. Are all these

> things - problems with hips, feet, etc. because of the torticollis?

> My mom thinks I need to take her to a neurologist or some kind of

> specialist to make sure it's not something more serious. Should I

> trust that the PT knows enough, or should I push for a referral to

> some kind of doctor (maybe even an orthopedist)?

>

> Any advice at all - please share, (but be gentle; I'm very sensitive

> about all this!)

>

> Thank you, and God bless you all!

>

> Amy, mom to Starband grad!/right tort/left plagio baby Chloe, and to

> former right tort baby Eli

>

[Guest guest]

1) Have any of you seen correction after graduation from the helmet?

I asked CT about this and they said that typically there isn't more

correction after graduation. Any looks of correction is probably

from more hair, gotten use to the current head shape, etc. Our son

has been out of the band 5 months and I haven't noticed any more

correction. He is 14 months now. I actually thought he had

regressed but we went back at 13 months and he had not.

2) Do these measurements sound ok to you?

Those measurements are great. 0-3mm is considered in the normal

range so if she were to wear another band and recieve a little

correction you probably wouldn't even notice. I would be happy with

those numbers and not push for another band.

>

> 3) My son sits in a " W " position. The PT that we went to said

that I needed to encourage him to sit with his legs in front. From

watching my son, I really don't think the " W " position is all that

bad. Typically, he does it if he is sitting at his " big boy " table

or if he is going to pull up to standing. Does the PT have

exercises that can help with both the " w " position and the walking

on heels? I would probably start there. If not, then I would ask

your ped. about the walking on the heels. I would see what they say

about making sure there is nothing more serious. I'm guessing it is

Chloe's way of getting balance and she'll figure out as she learns

how to get balance without walking on her heels. The therapist

would point out things on my son BUT when I watch other kids that

are at the same stage as my son they do the same things. I even

asked the therapist something to the effect of don't most kids do X

and her response was " yes. " Which made me wonder then why is it a

concern...which she didn't have an answer for...needless to say with

our ped.'s okay we stopped PT. BUT if you have a good therapist and

you are seeing results then I think it is a good thing.

[Guest guest]

First of all wow! That is great correction. I would not even consider

another helmet she is almost perfect.

As for the W position, yes you need to discourage it and change her

leg position whenever you see her doing it. It CAN lead to hip

issues, but I don't think it would have alrady unless there is

something going on. PT's are always worried about that position and I

have been warned to watch for that too.

The feet and toes issue I am not really sure about, but I vaguely

recall reading something about that somewhere. It never hurts to get

it checked out and it may help with the walking.

If there is one thing I have learned from this journey it is, ASk for

a specialist and ask early!

Congratulations!

>

> Hooray for Chloe! My sweet almost-16-month-old daughter graduated

> from her Starband yesterday. She didn't get started until she was

11

> months old so we weren't sure how much correction we would get. She

> did pretty well though. I'm so excited that we're done with the

> helmet, but I'm also a little sad that we didn't get more

> correction. Her left ear is still pushed a little more forward than

> her right, and she still has a little bossing of the forehead. But

> she has outgrown the helmet, and the therapist says this is as good

> as it will get. She said there is a chance that her head could

> correct itself more on its own.

>

> So now I have a few questions for all you plagio parents.

>

> 1) Have any of you seen correction after graduation from the helmet?

>

> 2) Do these measurements sound ok to you? I know different places

> use different measurements, but our therapist always measured Chloe

> on five different areas. Below is what she started at and what she

> is now. Please tell me what you think. Should I be happy with the

> awesome progress she has made, or should I push for another helmet?

>

> Oblique Diameter went from an 8 mm difference to only a 1 mm

> difference.

> Cranial Vault went from 10 mm to 2 mm.

> Parietal to Eye went from 6 mm to 4 mm.

> Facial Asymmetry went from 5 mm to 2 mm.

> Cranial Base went from 10 mm to 2 mm.

>

> 3) Now Chloe's therapist is worried about her feet and her hips.

> When she sits on the floor, she often sits in a " W " position. I

> don't know how to describe this, but if you know what I mean and

> your child does/did this, let me know what you think about it. When

> she walks (not on her own yet, only when holding my hands or using

a

> push toy), she leans backward and puts pressure on her heels. Her

> feet turn funny ways and she curls her toes down. Are all these

> things - problems with hips, feet, etc. because of the torticollis?

> My mom thinks I need to take her to a neurologist or some kind of

> specialist to make sure it's not something more serious. Should I

> trust that the PT knows enough, or should I push for a referral to

> some kind of doctor (maybe even an orthopedist)?

>

> Any advice at all - please share, (but be gentle; I'm very

sensitive

> about all this!)

>

> Thank you, and God bless you all!

>

> Amy, mom to Starband grad!/right tort/left plagio baby Chloe, and

to

> former right tort baby Eli

>