Just had 1st consult with orthotist

[Guest guest]

We just had our long awaited 1st appt. with our local orthotist. We

found out our daughter Avery (5 months on Sunday) has mild plagio (6-

8mm) which we knew, and mod to severe brachy, which we did not know.

I guess I was more concerned with the flatness to the side of her

head than the wideness.

They use the STARband there. The orthotist said brachy was the

harder of the two to treat. However, she also suggested that Avery

is still old enough to see quite a bit of improvement over the next

month by repositioning, so we opted to wait to band her for another

month. I am hoping to see improvement, but don't really think we

will, as we have done some repo in the last month and I haven't seen

much difference. The ortho did say sometimes it's hard to see, but

the measurements would always tell the story. What are opinions of

some of you out there? Did anyone else wait another month to see if

they had change, and will we loose anything by waiting until she is 6

months old instead of going ahead with it now?

Avery has no assymetry and looks good other than the one side of her

head, I think anyway. I'd love to give her the opportunity to

correct some on her own, but will the brachy correct by repo? She is

currently rolling over and sleeps on her tummy mostly, I think that

is her new preferred position.

Thanks for any input. The ortho said if we got home and changed our

mind to call her and they would get us in for the casting, so it's

not like we HAVE to wait another month.

Holly

Avery-almost 5 mos.

[Guest guest]

I wouldn't wait if she is moderate to severe brachy. Again this is

just my personal opinion. Maybe if it was just the mild plagio I

would wait. If you do decided to wait you should still get good

correction at 6 months. Personally I would get the band at the

first opportunity but remeber I was late banding my son so of course

I have regrets.

Haylee

mom to Andre 22 months tort/doc band #1 22/11/05 doc band #2 21/6/06

& Lesly 22 months

>

> We just had our long awaited 1st appt. with our local orthotist.

We

> found out our daughter Avery (5 months on Sunday) has mild plagio

(6-

> 8mm) which we knew, and mod to severe brachy, which we did not

know.

> I guess I was more concerned with the flatness to the side of her

> head than the wideness.

> They use the STARband there. The orthotist said brachy was the

> harder of the two to treat. However, she also suggested that

Avery

> is still old enough to see quite a bit of improvement over the

next

> month by repositioning, so we opted to wait to band her for

another

> month. I am hoping to see improvement, but don't really think we

> will, as we have done some repo in the last month and I haven't

seen

> much difference. The ortho did say sometimes it's hard to see,

but

> the measurements would always tell the story. What are opinions

of

> some of you out there? Did anyone else wait another month to see

if

> they had change, and will we loose anything by waiting until she

is 6

> months old instead of going ahead with it now?

> Avery has no assymetry and looks good other than the one side of

her

> head, I think anyway. I'd love to give her the opportunity to

> correct some on her own, but will the brachy correct by repo? She

is

> currently rolling over and sleeps on her tummy mostly, I think

that

> is her new preferred position.

> Thanks for any input. The ortho said if we got home and changed

our

> mind to call her and they would get us in for the casting, so it's

> not like we HAVE to wait another month.

>

> Holly

> Avery-almost 5 mos.

>

[Guest guest]

I wouldn't wait if she is moderate to severe brachy. Again this is

just my personal opinion. Maybe if it was just the mild plagio I

would wait. If you do decided to wait you should still get good

correction at 6 months. Personally I would get the band at the

first opportunity but remeber I was late banding my son so of course

I have regrets.

Haylee

mom to Andre 22 months tort/doc band #1 22/11/05 doc band #2 21/6/06

& Lesly 22 months

>

> We just had our long awaited 1st appt. with our local orthotist.

We

> found out our daughter Avery (5 months on Sunday) has mild plagio

(6-

> 8mm) which we knew, and mod to severe brachy, which we did not

know.

> I guess I was more concerned with the flatness to the side of her

> head than the wideness.

> They use the STARband there. The orthotist said brachy was the

> harder of the two to treat. However, she also suggested that

Avery

> is still old enough to see quite a bit of improvement over the

next

> month by repositioning, so we opted to wait to band her for

another

> month. I am hoping to see improvement, but don't really think we

> will, as we have done some repo in the last month and I haven't

seen

> much difference. The ortho did say sometimes it's hard to see,

but

> the measurements would always tell the story. What are opinions

of

> some of you out there? Did anyone else wait another month to see

if

> they had change, and will we loose anything by waiting until she

is 6

> months old instead of going ahead with it now?

> Avery has no assymetry and looks good other than the one side of

her

> head, I think anyway. I'd love to give her the opportunity to

> correct some on her own, but will the brachy correct by repo? She

is

> currently rolling over and sleeps on her tummy mostly, I think

that

> is her new preferred position.

> Thanks for any input. The ortho said if we got home and changed

our

> mind to call her and they would get us in for the casting, so it's

> not like we HAVE to wait another month.

>

> Holly

> Avery-almost 5 mos.

>

[Guest guest]

Holly,

I wouldn't wait. Since you are dealing with brachy and plagio that

is a complicated case. You need all the growth you can get. Call

back and get it now. If you had said you were seeing great progress

with repo I would encourage you to continue but with little progress

and her age I would go to the band.

na, DOC Grad X2 Feb 04, Tort Resolved

Kiersten, DOC Grad Apr 06 (and CT web star), Tort Resolved

www.thefilyaws.com/plagio/plagio.html

>

> We just had our long awaited 1st appt. with our local orthotist.

We

> found out our daughter Avery (5 months on Sunday) has mild plagio

(6-

> 8mm) which we knew, and mod to severe brachy, which we did not

know.

> I guess I was more concerned with the flatness to the side of her

> head than the wideness.

> They use the STARband there. The orthotist said brachy was the

> harder of the two to treat. However, she also suggested that

Avery

> is still old enough to see quite a bit of improvement over the

next

> month by repositioning, so we opted to wait to band her for

another

> month. I am hoping to see improvement, but don't really think we

> will, as we have done some repo in the last month and I haven't

seen

> much difference. The ortho did say sometimes it's hard to see,

but

> the measurements would always tell the story. What are opinions

of

> some of you out there? Did anyone else wait another month to see

if

> they had change, and will we loose anything by waiting until she

is 6

> months old instead of going ahead with it now?

> Avery has no assymetry and looks good other than the one side of

her

> head, I think anyway. I'd love to give her the opportunity to

> correct some on her own, but will the brachy correct by repo? She

is

> currently rolling over and sleeps on her tummy mostly, I think

that

> is her new preferred position.

> Thanks for any input. The ortho said if we got home and changed

our

> mind to call her and they would get us in for the casting, so it's

> not like we HAVE to wait another month.

>

> Holly

> Avery-almost 5 mos.

>

[Guest guest]

Hi Bobbi-

I have kindof been thinking the same thing on the repo with the

Brachy. I can see where that would be hard to get much correction by

just the repo. We believe Avery may have had a slight case of tort

because she would always look to one side no matter what we did, but

we worked really hard to keep her attention to the other side and now

she has great range of motion.

I have no idea what CVA is, but on the brachy, the ortho said she was

91%. I had her write all her measurements down for me, I'd never

remember otherwise.

So your opinion is that we go ahead and just band her and not wait?

The ortho said we wouldn't be loosing anything by waiting another

month but she would do whatever we wanted. I know in my heart she

will have to have the band anyway, but I guess I was holding out some

hope!

Thanks for the measurements on your son. What did you do when he was

in his carseat when you were trying to repo? That is about the only

concern I have. She does tummy time well, so we just do that or hold

her.

Thanks

Holly

Avery 5 mos

>

> You are in the exact place we were 3 months ago. I hate to say it

> but the repo did little for us. Of course the tort makes it harder

> to repo. Does your daughter have torticollis? My son starting

> sleeping on his tummy at 5 months. He was diagnosed at 4.5 months

> and he started wearing his DOC band at 6 months. We tried repo but

> he was so active I couldn't get him to stay were I wanted. I think

> it will keep it from getting any worse but may not improve the

> brachy. My son had 10-12 mm plagio and severe brachy. He is

> getting fabulous correction, after 8.5 weeks he is 4 mm CVA and he

> went from 96% cephalic index to 87%.

>

> In hindsite I would have just went for it and not waited. We could

> have got him in the band about 3 weeks earlier. Of course I think

> the time was spent allowing my husband and I to adjust to the whole

> idea. I am very pro band and I think they work great. Did your

> ortho give you her brachy measurements? Is is her width divided by

> her length times 100. I would be interested to know her cephalic

> index. I don't want to be too pusy but you asked and so I am just

> giving you my opinion.

>

> Bobbi H.

> 8 months tort/plagio/brachy

> DOC band 5/8/06

>

> >

> > We just had our long awaited 1st appt. with our local orthotist.

> We

> > found out our daughter Avery (5 months on Sunday) has mild plagio

> (6-

> > 8mm) which we knew, and mod to severe brachy, which we did not

> know.

> > I guess I was more concerned with the flatness to the side of her

> > head than the wideness.

> > They use the STARband there. The orthotist said brachy was the

> > harder of the two to treat. However, she also suggested that

> Avery

> > is still old enough to see quite a bit of improvement over the

> next

> > month by repositioning, so we opted to wait to band her for

> another

> > month. I am hoping to see improvement, but don't really think we

> > will, as we have done some repo in the last month and I haven't

> seen

> > much difference. The ortho did say sometimes it's hard to see,

> but

> > the measurements would always tell the story. What are opinions

> of

> > some of you out there? Did anyone else wait another month to see

> if

> > they had change, and will we loose anything by waiting until she

> is 6

> > months old instead of going ahead with it now?

> > Avery has no assymetry and looks good other than the one side of

> her

> > head, I think anyway. I'd love to give her the opportunity to

> > correct some on her own, but will the brachy correct by repo?

She

> is

> > currently rolling over and sleeps on her tummy mostly, I think

> that

> > is her new preferred position.

> > Thanks for any input. The ortho said if we got home and changed

> our

> > mind to call her and they would get us in for the casting, so

it's

> > not like we HAVE to wait another month.

> >

> > Holly

> > Avery-almost 5 mos.

> >

>

[Guest guest]

Hi, Our daughter has severe brachy with very little asym(4mm)

We saw the plastic surgeon when she was just over 4 months, and he

told us it was our choice to band now or try repro and wait. We

decided to band then and had her band 2 days after she turned 5

months. I'm really glad we did. We've had good improvement so far, but

we have a long way to go. They said it can take up to 6 months for her

brachy, and starting earlier is better. Good luck with your decision,

and don't worry about the helmet - its really pretty easy to adjust to.

-christine

mom to sydney/6 mo/ brachy/ starband 5-31-06

>

> We just had our long awaited 1st appt. with our local orthotist. We

> found out our daughter Avery (5 months on Sunday) has mild plagio (6-

> 8mm) which we knew, and mod to severe brachy, which we did not know.

> I guess I was more concerned with the flatness to the side of her

> head than the wideness.

> They use the STARband there. The orthotist said brachy was the

> harder of the two to treat. However, she also suggested that Avery

> is still old enough to see quite a bit of improvement over the next

> month by repositioning, so we opted to wait to band her for another

> month. I am hoping to see improvement, but don't really think we

> will, as we have done some repo in the last month and I haven't seen

> much difference. The ortho did say sometimes it's hard to see, but

> the measurements would always tell the story. What are opinions of

> some of you out there? Did anyone else wait another month to see if

> they had change, and will we loose anything by waiting until she is 6

> months old instead of going ahead with it now?

> Avery has no assymetry and looks good other than the one side of her

> head, I think anyway. I'd love to give her the opportunity to

> correct some on her own, but will the brachy correct by repo? She is

> currently rolling over and sleeps on her tummy mostly, I think that

> is her new preferred position.

> Thanks for any input. The ortho said if we got home and changed our

> mind to call her and they would get us in for the casting, so it's

> not like we HAVE to wait another month.

>

> Holly

> Avery-almost 5 mos.

>

[Guest guest]

This is what I have read about the severity of Brachycephaly:

Cephalic Ratio = Cranial Breadth/Cranial Length

ideal ratio - 78%

normal - 73-83%

moderate - 83.1% to 87.9%

severe - 88% +

Molly

California

Nicolas, 9 months, tort & plagio, STARband 4/25/06

, 3

, 6.5

Re: Just had 1st consult with orthotist

Hi Bobbi-

I have kindof been thinking the same thing on the repo with the

Brachy. I can see where that would be hard to get much correction by

just the repo. We believe Avery may have had a slight case of tort

because she would always look to one side no matter what we did, but

we worked really hard to keep her attention to the other side and now

she has great range of motion.

I have no idea what CVA is, but on the brachy, the ortho said she was

91%. I had her write all her measurements down for me, I'd never

remember otherwise.

So your opinion is that we go ahead and just band her and not wait?

The ortho said we wouldn't be loosing anything by waiting another

month but she would do whatever we wanted. I know in my heart she

will have to have the band anyway, but I guess I was holding out some

hope!

Thanks for the measurements on your son. What did you do when he was

in his carseat when you were trying to repo? That is about the only

concern I have. She does tummy time well, so we just do that or hold

her.

Thanks

Holly

Avery 5 mos

>

> You are in the exact place we were 3 months ago. I hate to say it

> but the repo did little for us. Of course the tort makes it harder

> to repo. Does your daughter have torticollis? My son starting

> sleeping on his tummy at 5 months. He was diagnosed at 4.5 months

> and he started wearing his DOC band at 6 months. We tried repo but

> he was so active I couldn't get him to stay were I wanted. I think

> it will keep it from getting any worse but may not improve the

> brachy. My son had 10-12 mm plagio and severe brachy. He is

> getting fabulous correction, after 8.5 weeks he is 4 mm CVA and he

> went from 96% cephalic index to 87%.

>

> In hindsite I would have just went for it and not waited. We could

> have got him in the band about 3 weeks earlier. Of course I think

> the time was spent allowing my husband and I to adjust to the whole

> idea. I am very pro band and I think they work great. Did your

> ortho give you her brachy measurements? Is is her width divided by

> her length times 100. I would be interested to know her cephalic

> index. I don't want to be too pusy but you asked and so I am just

> giving you my opinion.

>

> Bobbi H.

> 8 months tort/plagio/brachy

> DOC band 5/8/06

>

> >

> > We just had our long awaited 1st appt. with our local orthotist.

> We

> > found out our daughter Avery (5 months on Sunday) has mild plagio

> (6-

> > 8mm) which we knew, and mod to severe brachy, which we did not

> know.

> > I guess I was more concerned with the flatness to the side of her

> > head than the wideness.

> > They use the STARband there. The orthotist said brachy was the

> > harder of the two to treat. However, she also suggested that

> Avery

> > is still old enough to see quite a bit of improvement over the

> next

> > month by repositioning, so we opted to wait to band her for

> another

> > month. I am hoping to see improvement, but don't really think we

> > will, as we have done some repo in the last month and I haven't

> seen

> > much difference. The ortho did say sometimes it's hard to see,

> but

> > the measurements would always tell the story. What are opinions

> of

> > some of you out there? Did anyone else wait another month to see

> if

> > they had change, and will we loose anything by waiting until she

> is 6

> > months old instead of going ahead with it now?

> > Avery has no assymetry and looks good other than the one side of

> her

> > head, I think anyway. I'd love to give her the opportunity to

> > correct some on her own, but will the brachy correct by repo?

She

> is

> > currently rolling over and sleeps on her tummy mostly, I think

> that

> > is her new preferred position.

> > Thanks for any input. The ortho said if we got home and changed

> our

> > mind to call her and they would get us in for the casting, so

it's

> > not like we HAVE to wait another month.

> >

> > Holly

> > Avery-almost 5 mos.

> >

>

For more plagio info

[Guest guest]

Hello Holly

Like the others have already told you, I also would not wait. the

combination of the plagio and the brachy would get me started right

away.

Let us know what you will be doing.

Sandy Willow's mom

Tort resolved 02/04

Cranio Germany Grad 02/04

>

> We just had our long awaited 1st appt. with our local orthotist.

We

> found out our daughter Avery (5 months on Sunday) has mild plagio

(6-

> 8mm) which we knew, and mod to severe brachy, which we did not

know.

> I guess I was more concerned with the flatness to the side of her

> head than the wideness.

> They use the STARband there. The orthotist said brachy was the

> harder of the two to treat. However, she also suggested that

Avery

> is still old enough to see quite a bit of improvement over the

next

> month by repositioning, so we opted to wait to band her for

another

> month. I am hoping to see improvement, but don't really think we

> will, as we have done some repo in the last month and I haven't

seen

> much difference. The ortho did say sometimes it's hard to see,

but

> the measurements would always tell the story. What are opinions

of

> some of you out there? Did anyone else wait another month to see

if

> they had change, and will we loose anything by waiting until she

is 6

> months old instead of going ahead with it now?

> Avery has no assymetry and looks good other than the one side of

her

> head, I think anyway. I'd love to give her the opportunity to

> correct some on her own, but will the brachy correct by repo? She

is

> currently rolling over and sleeps on her tummy mostly, I think

that

> is her new preferred position.

> Thanks for any input. The ortho said if we got home and changed

our

> mind to call her and they would get us in for the casting, so it's

> not like we HAVE to wait another month.

>

> Holly

> Avery-almost 5 mos.

>

[Guest guest]

Hi Holly,

I would not wait either. Like the pp posters say, they combo would make me want to start as soon as possible. From what I have heard, it is ideal to start treatment between 4 - 6 months.

Take care,

Caitlin, 4.5 months (plagio, brachy and tort)

San Diego

On 7/12/06, Sandy <samipa74@...> wrote:

Hello HollyLike the others have already told you, I also would not wait. the combination of the plagio and the brachy would get me started right away.Let us know what you will be doing.Sandy Willow's mom

Tort resolved 02/04Cranio Germany Grad 02/04>> We just had our long awaited 1st appt. with our local orthotist. We > found out our daughter Avery (5 months on Sunday) has mild plagio (6-> 8mm) which we knew, and mod to severe brachy, which we did not know. > I guess I was more concerned with the flatness to the side of her > head than the wideness. > They use the STARband there. The orthotist said brachy was the > harder of the two to treat. However, she also suggested that Avery > is still old enough to see quite a bit of improvement over the next > month by repositioning, so we opted to wait to band her for another > month. I am hoping to see improvement, but don't really think we > will, as we have done some repo in the last month and I haven't seen > much difference. The ortho did say sometimes it's hard to see, but > the measurements would always tell the story. What are opinions of > some of you out there? Did anyone else wait another month to see if > they had change, and will we loose anything by waiting until she is 6 > months old instead of going ahead with it now?> Avery has no assymetry and looks good other than the one side of her > head, I think anyway. I'd love to give her the opportunity to

> correct some on her own, but will the brachy correct by repo? She is > currently rolling over and sleeps on her tummy mostly, I think that > is her new preferred position.> Thanks for any input. The ortho said if we got home and changed our > mind to call her and they would get us in for the casting, so it's > not like we HAVE to wait another month.> > Holly> Avery-almost 5 mos.>

[Guest guest]

Thanks to all who took time to encourage me to go ahead and get the

casting and the ball rolling on this process. I called the ortho

today and we are getting Avery casted next Wednesday the 19th at

9am. I think we're ready. I am concerned about the brachy part of

this more than the plagio. Are we looking at a longer treatment time

for that? Is it difficult to get good correction for both the brachy

and plagio at the same time?

I'll let you know how the casting goes. I have a feeling she'll do

pretty good. She's pretty laid back most of the time!

Holly

Avery- 5mos.

> > >

> > > We just had our long awaited 1st appt. with our local orthotist.

> > We

> > > found out our daughter Avery (5 months on Sunday) has mild

plagio

> > (6-

> > > 8mm) which we knew, and mod to severe brachy, which we did not

> > know.

> > > I guess I was more concerned with the flatness to the side of

her

> > > head than the wideness.

> > > They use the STARband there. The orthotist said brachy was the

> > > harder of the two to treat. However, she also suggested that

> > Avery

> > > is still old enough to see quite a bit of improvement over the

> > next

> > > month by repositioning, so we opted to wait to band her for

> > another

> > > month. I am hoping to see improvement, but don't really think we

> > > will, as we have done some repo in the last month and I haven't

> > seen

> > > much difference. The ortho did say sometimes it's hard to see,

> > but

> > > the measurements would always tell the story. What are opinions

> > of

> > > some of you out there? Did anyone else wait another month to see

> > if

> > > they had change, and will we loose anything by waiting until she

> > is 6

> > > months old instead of going ahead with it now?

> > > Avery has no assymetry and looks good other than the one side of

> > her

> > > head, I think anyway. I'd love to give her the opportunity to

> > > correct some on her own, but will the brachy correct by repo?

She

> > is

> > > currently rolling over and sleeps on her tummy mostly, I think

> > that

> > > is her new preferred position.

> > > Thanks for any input. The ortho said if we got home and changed

> > our

> > > mind to call her and they would get us in for the casting, so

it's

> > > not like we HAVE to wait another month.

> > >

> > > Holly

> > > Avery-almost 5 mos.

> > >

> >

> >

> >

>