Re: if my first had tort/plagio what are chances for 2nd baby

[Guest guest]

-I am not a doctor so this is just my experience. My first daughter

had severe left torticollis. When she was born, the right side of her

face was much fuller than her left and she had a shoulder to cheek

tilt. They told me it was common in first born girls. She did not have

plagio or at least very mild and lots of hair. She did PT for 2 years

and had 2 botox injections. When my second daughter was born, after

looking to see that it was a girl, my next comment was " she has

torticollis, just like her sister " . She looked the exact same way but

then had overriding sutures and no soft spot on her head. When it did

open 3 days later, her head became very shifted. The doctors then said

that it must be the way my uterus is made. She started PT two weeks

after my older daughter finished as they are exactly 2 years apart. I

do know that I have a very tilted uterus and lots of fertility

problems, so that may be it also. So, probably not what you wanted to

hear but I think it is good to know it does happen.

Mom to Abby STARband since 6/07 and 2 1/2 years

-- In Plagiocephaly , " broxterman_m " <broxterman_m@...>

wrote:

>

> Hi my name is and my daughter Isabel has torticollis and

> plagio. She goes to PT and had a helmet and went from 21mm to 3mm.

I

> still notice the bulging side of her head but apparently I can't do

> anything about it anymore. ANYWAY, we are expecting our second

child

> in February. Does anyone know if the chances of having the second

> baby with torticollis goes up because my first one had it? I'm

> concerned about this because it's been a long road with Isabel.

>

> -

> Isabel-left tort, right plagio

>

[Guest guest]

,

That's good to know. They told me after I had Isabel that I have a

tilted uterus, but I never knew that before. Isabel's face is still

smaller on one side though. So I'm guessing that's what the botox

injections were for? Did you like the results. I didn't think

there was anything else I could do. Well, thank you for the

information. It helps to know.

Daughter Isabel/tort,plagio

> >

> > Hi my name is and my daughter Isabel has torticollis and

> > plagio. She goes to PT and had a helmet and went from 21mm to

3mm.

> I

> > still notice the bulging side of her head but apparently I can't

do

> > anything about it anymore. ANYWAY, we are expecting our second

> child

> > in February. Does anyone know if the chances of having the

second

> > baby with torticollis goes up because my first one had it? I'm

> > concerned about this because it's been a long road with Isabel.

> >

> > -

> > Isabel-left tort, right plagio

> >

>

[Guest guest]

Hi, ! Both my children had torticollis too. I really think it

often (not always) has something to do with the shape or size of the

uterus.

If you plan on having any more children after this next one, before

you get pregnant again, you might want to consider having an HSG

(Hysterosalpingography), an x-ray exam that might be able to tell

you if the tort is because of something going on with your uterus.

We discussed this in the group a while back. If you want to read

what everyone had to say, do a search on the group for HSG.

If I were you, I would start the neck stretches as early as possible

on your new baby if you notice a tilt. You know the routine now

since you've already been through this once, so your baby will have

an excellent start. Good luck, and God bless!

- Amy, mom to 15-month-old right tort/left plagio Starband baby

Chloe and to 3-yr-old former right tort baby Eli

> > >

> > > Hi my name is and my daughter Isabel has torticollis

and

> > > plagio. She goes to PT and had a helmet and went from 21mm to

3mm.

> > I

> > > still notice the bulging side of her head but apparently I

can't do

> > > anything about it anymore. ANYWAY, we are expecting our second

> > child

> > > in February. Does anyone know if the chances of having the

second

> > > baby with torticollis goes up because my first one had it? I'm

> > > concerned about this because it's been a long road with Isabel.

> > >

> > > -

> > > Isabel-left tort, right plagio

> > >

> >

> >

> >

>

>

>

> --

> -respectful model to;

> -11

> -7

> -2

> ph-11/06

>

[Guest guest]

There have been probably ten or so families w/non-multiples siblings

banded in my 4 years on the board. In my time as a moderator, three

moderators been through this. So, while it happens, the stats aren't

too depressing at least! My kids were born 4 years apart w/plagio

and the second having tort as well. They both were banded for

severe plagio. I definitely think it has something to do w/my

uterus or pelvis. Both kids even had the same dent over the same

ear, which the doctor said was from my pelvic bone. I was

determined not to go through this again w/a second baby. However,

after a couple scares during my pregnancy and fertility issues

before that, I'm just so thankful to have a healthy baby that it is

really okay. I can't say we weren't bummed, it was sad to put the

helmet on him and miss out on cuddling his head, etc, but like I

told my husband, if this is the worst someone has to deal with they

should be greatful. At least you know how to prevent it now, but if

baby is born w/molding, you can help it from getting worse. When

you are awake during the day you can let the baby sleep on his belly

w/his head facing all the way to the sides. Alternating the sides

then is a great way to keep ROM before they're old enough to be able

to move. Good luck w/everything!

, mom to Hannah (4yrs, DOCgrad) and Jack (6mos, DOCband #2 8/1)

http://hannahsnoggin.typepad.com

>

> Hi my name is and my daughter Isabel has torticollis and

> plagio. She goes to PT and had a helmet and went from 21mm to

3mm. I

> still notice the bulging side of her head but apparently I can't

do

> anything about it anymore. ANYWAY, we are expecting our second

child

> in February. Does anyone know if the chances of having the second

> baby with torticollis goes up because my first one had it? I'm

> concerned about this because it's been a long road with Isabel.

>

> -

> Isabel-left tort, right plagio

>

[Guest guest]

Hi,

I have wondered the chances of baby #2 having plagio too as my first

did and I too am due with #2 in February. This pregnancy, my uterus

is tilted (wasn't with my first)...does this make it more probable?

With my son, his tilt and tightness was SO slight that our ped.

didn't see it and neither did we even after CT pointed it out at 3

months. CT said only a trained eye could see it with our son

because of how subtle it was.

> > > >

> > > > Hi my name is and my daughter Isabel has torticollis

> and

> > > > plagio. She goes to PT and had a helmet and went from 21mm

to

> 3mm.

> > > I

> > > > still notice the bulging side of her head but apparently I

> can't do

> > > > anything about it anymore. ANYWAY, we are expecting our

second

> > > child

> > > > in February. Does anyone know if the chances of having the

> second

> > > > baby with torticollis goes up because my first one had it?

I'm

> > > > concerned about this because it's been a long road with

Isabel.

> > > >

> > > > -

> > > > Isabel-left tort, right plagio

> > > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > -respectful model to;

> > -11

> > -7

> > -2

> > ph-11/06

> >

>

[Guest guest]

Hi I have had two other children that were born without tort or plagio yet my third has it. I am also pregnant with my 4th baby and l asked our Dr the same question, he basically said to me that there is no way on answering this question and l understand it being a long road as Riley has just gotten his helmet 2 weeks ago and l am really struggling with leaving it on him the 23 hours like he is suppose to due to the red pressure points that he has been getting, but back to your question the only thing that my Dr told me was that they could do more scans but even then they cant tell for sure. But he did reassure me that it is not a hereditory thing as well if that helps Central QLD - Australia Riley Right tort and Plagio

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[Guest guest]

Hi ,

Are the red pressure spots really dark or not fading? If so, Riley

probably needs an adjustment.

lisa

>

> Hi

> I have had two other children that were born without tort or

plagio yet my third has it. I am also pregnant with my 4th baby and

l asked our Dr the same question, he basically said to me that there

is no way on answering this question and l understand it being a

long road as Riley has just gotten his helmet 2 weeks ago and l am

really struggling with leaving it on him the 23 hours like he is

suppose to due to the red pressure points that he has been getting,

but back to your question the only thing that my Dr told me was that

they could do more scans but even then they cant tell for sure. But

he did reassure me that it is not a hereditory thing as well if that

helps

>

> Central QLD - Australia

> Riley Right tort and Plagio

>

>

> ---------------------------------

> is the world's favourite email. Don't settle for

less, sign up for your freeaccount today.

>

[Guest guest]

Hi !

I see that has been in PT for 2 years. How old is she now and

when did she start her PT? Just curious because it seems to me that

Torticollis is going to be a part of my daughters life for some

time. She is 9 mos. and " delayed " in everything. However, she does

seem to be " catching up " in many areas of development. I suppose I

did not realize just how much work it actually is! I spend alot of

forcing tummy time, sitting up, working her legs, stretching the

neck, etc... The doctor/specialist never really addressed that with

me. I was told that she had Tort. and never heard from the doctor

again! Thankfully I have a great pediatrician, PT, and this website!

I agree with you that we are all asymmetrical. My eyes are slightly

asymmetrical as well! My little Ellies head, forehead, ear and eyes

are getting better though. The helmet really works! It is a long

process but worth it!

Take Care,

Kristi, mother to Ellie Tort./plagio, 9 mos. old, La Quinta, CA

In Plagiocephaly , " gkuttrus " <gkuttrus@...> wrote:

>

> The tilt seems to have disappeared by my 9 mos baby pictures,

> without any PT. I find it interesting because it took 2 years and

> lots of PT to help 's torticollis, mine must not have been as

> severe. My eyes are still slightly asymmetrical but you would

> probably only notice once I told you and I have learned make up

> tricks that also help. Everyone's face is slightly asymmetrical,

> just look really hard at everyone and I bet you will notice. I

> really do think as moms we worry way more than we need to and most

> people probably do not notice our children's asymmetry nearly as

> much as we think. I have also learned not to point it out to

> everyone because I do not like hearing " oh, I never noticed, but

now

> that you say that . . . . " . Everyone has imperfections and I truly

> believe it is more important what kind of person my child is than

> her looks so I just try to focus on helping her become the best

> person she can be and try not to focus so much on her looks. Then I

> think other people will do the same. Having said that, I think my

> girls are beautiful and I really want other people to think so also.

>

>

> > > > >

> > > > > Hi my name is and my daughter Isabel has

torticollis

> > and

> > > > > plagio. She goes to PT and had a helmet and went from 21mm

> to

> > > 3mm.

> > > > I

> > > > > still notice the bulging side of her head but apparently I

> > can't

> > > do

> > > > > anything about it anymore. ANYWAY, we are expecting our

> > second

> > > > child

> > > > > in February. Does anyone know if the chances of having the

> > > second

> > > > > baby with torticollis goes up because my first one had it?

> I'm

> > > > > concerned about this because it's been a long road with

> > Isabel.

> > > > >

> > > > > -

> > > > > Isabel-left tort, right plagio

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

>

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>

[Guest guest]

Hi Kristi,

had very severe torticollis diagnosed at 3 weeks of age and

began PT at 6 weeks of age. We did PT once a week (sometimes twice a

week) until she was 2 years and one month old. I also did stretches

and strengthening at home 7-8 times a day and it was exhausting and

so hard on , but she was my only child at the time and quite

possible. always got worse with every milestone (sitting,

crawling, walking) and worse when she was tired or sick and also

when she had growth spurts. It was so frustrating and I thought she

would never have a straight neck. She did actually do two injections

of Botox at 15 months of age to loosen her tight muscles and then

when she was 18 months, the PT's at Children's Hospital started

doing a manipulation of her neck. They actually moved her C1

vertebrae over, slowly over a period time. It was something that has

been done in other countries for years and is a little complicated

to explain and was actually a little scary but it was truly a mircle

for her. If you want to email me directly I can explain more. I do

know other children who have seen a chiropractor for their

torticollis. Our next step would have been surgery for so we

were thrilled with the results and every doctor was surprised by the

results! You are so right, all of this is such a long process, but

so worth it. If someone had told me that was going to be in PT

for 2 years for her torticollis, I probably would have cried. But,

you just take one day at a time and now I don't even think about it

anymore. Now, I just try to do the same with Abby, one day at a

time. Good luck with Ellie's PT and hang in there, although there

are ups and downs, has no sign of torticollis now!

> > > > > >

> > > > > > Hi my name is and my daughter Isabel has

> torticollis

> > > and

> > > > > > plagio. She goes to PT and had a helmet and went from

21mm

> > to

> > > > 3mm.

> > > > > I

> > > > > > still notice the bulging side of her head but apparently

I

> > > can't

> > > > do

> > > > > > anything about it anymore. ANYWAY, we are expecting our

> > > second

> > > > > child

> > > > > > in February. Does anyone know if the chances of having

the

> > > > second

> > > > > > baby with torticollis goes up because my first one had

it?

> > I'm

> > > > > > concerned about this because it's been a long road with

> > > Isabel.

> > > > > >

> > > > > > -

> > > > > > Isabel-left tort, right plagio

> > > > > >

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

_____________________________________________________________________

> > ___

> > > AOL now offers free email to everyone. Find out more about

> what's

> > free from AOL at AOL.com.

> > >

> >

>

[Guest guest]

They are red and they fade after about 8 hours but they are still there and you can see them, The helmet people told us we can put methollated spirits on them to toughen his skin but it has a very strong smell so l am not inclined to go down that road. He goes for an adjustment on the 23rd August so hopefully it will rectify then.

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