Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Yes that is a great idea , Don takes Ibuprofen Prednisone Does two work great together for him Heidi > This is an excellent idea. We need an updated list also for our web page, so > let's all email a list of the drugs we are taking for RP. (Just for RP, not > for other conditions please) > If you see someone has already listed one you are taking, don't send it > again. > > MY RP DRUG LIST: > 1. Dapsone > 2. Imuran > 3. Prednisone > > > >>>>>>>>>>>>>>>>>>>>>>>>>>>>> > Could someone list for me the various medications currently being used for > treating RP. > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Good Idea! I take Ultram for pain, and you listed the other. Lots of Love Glenda > > This is an excellent idea. We need an updated list > also for our web page, > so > > let's all email a list of the drugs we are taking > for RP. (Just for RP, > not > > for other conditions please) > > If you see someone has already listed one you are > taking, don't send it > > again. > > > > MY RP DRUG LIST: > > 1. Dapsone > > 2. Imuran > > 3. Prednisone > > > > > > >>>>>>>>>>>>>>>>>>>>>>>>>>>>> > > Could someone list for me the various medications > currently being used for > > treating RP. > > > > > > > > > > DISCLAIMER!! > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY > INFORMATION THAT IS > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE > CONSULT WITH YOUR DOCTOR > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT > A SUBSTITUTE FOR YOUR > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER > EVERYONE IS DIFFERENT AND > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Good Idea! I take Ultram for pain, and you listed the other. Lots of Love Glenda > > This is an excellent idea. We need an updated list > also for our web page, > so > > let's all email a list of the drugs we are taking > for RP. (Just for RP, > not > > for other conditions please) > > If you see someone has already listed one you are > taking, don't send it > > again. > > > > MY RP DRUG LIST: > > 1. Dapsone > > 2. Imuran > > 3. Prednisone > > > > > > >>>>>>>>>>>>>>>>>>>>>>>>>>>>> > > Could someone list for me the various medications > currently being used for > > treating RP. > > > > > > > > > > DISCLAIMER!! > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY > INFORMATION THAT IS > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE > CONSULT WITH YOUR DOCTOR > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT > A SUBSTITUTE FOR YOUR > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER > EVERYONE IS DIFFERENT AND > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Good Idea! I take Ultram for pain, and you listed the other. Lots of Love Glenda > > This is an excellent idea. We need an updated list > also for our web page, > so > > let's all email a list of the drugs we are taking > for RP. (Just for RP, > not > > for other conditions please) > > If you see someone has already listed one you are > taking, don't send it > > again. > > > > MY RP DRUG LIST: > > 1. Dapsone > > 2. Imuran > > 3. Prednisone > > > > > > >>>>>>>>>>>>>>>>>>>>>>>>>>>>> > > Could someone list for me the various medications > currently being used for > > treating RP. > > > > > > > > > > DISCLAIMER!! > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY > INFORMATION THAT IS > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE > CONSULT WITH YOUR DOCTOR > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT > A SUBSTITUTE FOR YOUR > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER > EVERYONE IS DIFFERENT AND > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 , Good idea. Currently I'm taking: 1. Cytoxan (cyclophosphamide) 2. SoluMedrol (IV pred) In the past, I've taken the following for RP for at least a year or 2 each: (not sure if you want these since I'm currently not taking them) 1. Cyclosporine 2. IV immunoglobulin Luv ya, Connie R __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 My drug list (even if I'm still not quite official yet) methotrexate/folic acid colchisine Minocycline Prednisone Azmacort inhaler Albuterol inhaler Carolyn RP drugs > This is an excellent idea. We need an updated list also for our web page, so > let's all email a list of the drugs we are taking for RP. (Just for RP, not > for other conditions please) > If you see someone has already listed one you are taking, don't send it > again. > > MY RP DRUG LIST: > 1. Dapsone > 2. Imuran > 3. Prednisone > > > >>>>>>>>>>>>>>>>>>>>>>>>>>>>> > Could someone list for me the various medications currently being used for > treating RP. > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 For RP I take Celebrex for pain and folic acid (it goes with the metho) all the others have been listed. I think I feel better since I was put on the folic acid last week. The metho side effects seem less this week. Elaine T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2000 Report Share Posted December 19, 2000 please add Plaquenil. Also add Prilosec: ENT believes that my trouble swallowing may acid reflux; who knows if that's RP related. RP drugs OK, here is a list of the current drugs that have either been used or are currently being used for RP. Anyone want to add to this list? Remember, we only want drugs that are specifically for keeping RP in control. Thank you, W >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Flexiril relifin cyclosporine cellcept Ipratropium Bromid Inhalation Solutiojn Vanceril Inhalant Ibuprofen Methotrexate Minocin Cytoxan (cyclophosphamide) SoluMedrol (IV pred) methotrexate/folic acid colchisine Minocycline Prednisone Azmacort inhaler Albuterol inhaler Imuran Prednisone Dapsone Ultram --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.219 / Virus Database: 103 - Release Date: 12/5/00 DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2000 Report Share Posted December 19, 2000 In a message dated 12/19/00 5:56:04 PM Pacific Standard Time, scotts@... writes: << ENT believes that my trouble swallowing may acid reflux; who knows if that's RP related. >> , my ENT believes the same thing. I was dx with acid reflux years before being dx with RP. Have been on meds continually for this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2000 Report Share Posted December 19, 2000 OK, here is a list of the current drugs that have either been used or are currently being used for RP. Anyone want to add to this list? Remember, we only want drugs that are specifically for keeping RP in control. Thank you, W >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Flexiril relifin cyclosporine cellcept Ipratropium Bromid Inhalation Solutiojn Vanceril Inhalant Ibuprofen Methotrexate Minocin Cytoxan (cyclophosphamide) SoluMedrol (IV pred) methotrexate/folic acid colchisine Minocycline Prednisone Azmacort inhaler Albuterol inhaler Imuran Prednisone Dapsone Ultram --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.219 / Virus Database: 103 - Release Date: 12/5/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2000 Report Share Posted December 19, 2000 Enbril to add to list Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2000 Report Share Posted December 19, 2000 , I think we should add Celebrex because it is an anti-inflammatory and is supposed to be the only one your can take with methotrexate. What do you think, Elaine RP drugs OK, here is a list of the current drugs that have either been used or are currently being used for RP. Anyone want to add to this list? Remember, we only want drugs that are specifically for keeping RP in control. Thank you, W >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Flexiril relifin cyclosporine cellcept Ipratropium Bromid Inhalation Solutiojn Vanceril Inhalant Ibuprofen Methotrexate Minocin Cytoxan (cyclophosphamide) SoluMedrol (IV pred) methotrexate/folic acid colchisine Minocycline Prednisone Azmacort inhaler Albuterol inhaler Imuran Prednisone Dapsone Ultram --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.219 / Virus Database: 103 - Release Date: 12/5/00 DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 , Brett's Dr. has him on placquinil too. B. At 07:50 PM 12/19/2000 -0500, you wrote: >OK, here is a list of the current drugs that have either been used or are >currently being used for RP. >Anyone want to add to this list? >Remember, we only want drugs that are specifically for keeping RP in >control. >Thank you, > W >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> >Flexiril >relifin >cyclosporine >cellcept >Ipratropium Bromid Inhalation Solutiojn >Vanceril Inhalant >Ibuprofen >Methotrexate >Minocin >Cytoxan (cyclophosphamide) >SoluMedrol (IV pred) >methotrexate/folic acid >colchisine >Minocycline >Prednisone >Azmacort inhaler >Albuterol inhaler >Imuran >Prednisone >Dapsone >Ultram > > > >--- >Outgoing mail is certified Virus Free. >Checked by AVG anti-virus system (http://www.grisoft.com). >Version: 6.0.219 / Virus Database: 103 - Release Date: 12/5/00 > > > > >DISCLAIMER!! >WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Burdick Circulation/ILL Manager Yale University Divinity Library email: susan.burdick@... 409 Prospect Street ph: New Haven, CT 06511 fax: USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 Please add Medrol to the list. Thank You, Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 , my ENT believes the same thing. I was dx with acid reflux years before being dx with RP. Have been on meds continually for this. SCOTT AND CLAUDIA, WHEN I WAS FIRST DX W/RP I WAS HAVING PROBLEMS SWALLOWING AND FELT A CRUSHING SENSATION IN CHEST. WENT TO EMG AND THEY ALSO DX ME W/ACID REFLUX. JUST THOUGHT I WOULD SHARE THAT WITH U. O AND THEY ALSO TOLD ME THAT THERE IS A LITTLE FLAP LEADING FROM THE STOMACH AND WHAT HAPPENS IT GETS INFLAMED. LOVE RENE' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 SUSAN, SOME ONE MENTIONED THIS BUT IT WASN'T LISTED: HYDROXYCHLOROQUINE OR PLAQUENIL TAKE CARE AND LOVE RENE' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 , Maybe it might be easier if you bunch some of them -- lilke " steroid inhalers " , NSAIDs, etc. Are we keeping a list of who's on what? Aloha Carolyn RP drugs > OK, here is a list of the current drugs that have either been used or are > currently being used for RP. > Anyone want to add to this list? > Remember, we only want drugs that are specifically for keeping RP in > control. > Thank you, > W > >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> > Flexiril > relifin > cyclosporine > cellcept > Ipratropium Bromid Inhalation Solutiojn > Vanceril Inhalant > Ibuprofen > Methotrexate > Minocin > Cytoxan (cyclophosphamide) > SoluMedrol (IV pred) > methotrexate/folic acid > colchisine > Minocycline > Prednisone > Azmacort inhaler > Albuterol inhaler > Imuran > Prednisone > Dapsone > Ultram > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Elaine, this message is probably hopelessly old, but I'm on metho and I take Arthrotec, The Celebrex nearly crippled me! My arthitis was fine until the Vioxx stopped working. Dr switched me to Celebrex and within two weeks I was barely walking - pain was horrible! I switched myself back to Arthrotec and then told my Rheumy, he said Arthrotec was fine! Now I'm really confused, should I not be taking Arthrotec? Celebrex did NOT work for me (Vioxx did but you become immune after a while, at least I did). We're hoping that after 6 mos to a year that I'll be able to take the Vioxx again - but I won't ever take Celebrex again. My Dr did not mention any drug interactions. Please advise, LOL, Judy O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Thanks! Not that the arthrotec is doing all that much. But it's better than nothing. LOL, Judy O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Judy, Arthotec and Celebrex are similar in that they both have a stomach coating feature to them. They need that to go with the metho. So don't be confussed, your doctor knows. Elaine Quote Link to comment Share on other sites More sharing options...
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