Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Amber, Autism has brought what I think is safe to say "All of us" to tears. I have cried alot over the years and probably will continue to. This group is supposed to be about posting your feelings and getting support. We have all been in your position and alot of us still are. Its ok to cry and feel like things are not going to get better. However it is not important to dwell on that feeling and let it take you over. The sky is the limit for our kids and we should never underestimate them. What Abby was 4 years ago to what she is now is just amazing. The progress comes-I promise. It just takes a long time. I wont lie to you, there is no quick fix, no cure, its takes years of therapies and love to make a differance. But PLEASE remember to think of your son for who he is. Not just see his autism. Underneath is a child that still has the same needs as anyother child. I always say that the best therapy is love,I truly believe that. If you ever want to talk feel free to E-mail me. We are all here to support each other, rather on a good day or a bad. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Hi Amber, I went to a counselor early on and received some degree of help. However, when talking with the counselor, I always felt that she just couldn't completely relate to my situation--she could only give me textbook recommendations. I'm sure there are counselors out there that have expertise with handling special-needs situations and are probably very good. I think the best help I received was to keep talking to other parents going through the same thing and attending support group meetings. Whatever you do, don't ever give up hope!! There are countless numbers of success stories to be told. When our son was two years old, I had a very bleak picture in my mind of what he would be like when he got older. I wasn't even close. He will be celebrating his 6th birthday next week and I am simply amazed at what he has accomplished. Sure, I still get down at times, especially when I see what other kids his age can do and he struggles with, but I work very hard at trying to focus on all the positive things happening. Always be sure to focus on your child first and the challenges second. And don't hestitate to post if you're sad and need a shoulder to cry on. That's what we're here for--to help each other. If you ever want to talk, please feel free to e-mail me directly anytime. Good luck! anne Bednarski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Hi Amber! First let me say, does get sugar in his juice which is all he drinks...sometimes I buy the Juicey Juicey for him which has no sugar, but I don't really see any changes in him. He drinks more of the HiC drinks. Secondly, let me say to you, I am here for you anytime you need someone to talk to! We live so close and we can get together anytime. Our little boys will know eachother for a long time now and hopefully we can share so many great things that we see in the future for them. I know where you are at in regards to sadness! I am there along with you. You know all to well what it is like to have 3 kids and have to share and think about each one of them and all their needs! Kassie, she wants more of me, gets jealous if I even hug more. It's frustrating and you just want to scream. I look at and think, what is it about you and what are you thinking about...why is it so HARD for you...why did this have to happen to you...and me! So many questions, so little answers! I have just tried to make it so that I don't think about it to much, I look at him and see my little and he is so special to me...I couldn't imagine it being any other way for him. I know how much you love and he knows how much you love him, take that and let it over power your thoughts of Autism daily as hard as it may be. The more Love you feel, the less sad you will be. All of our children are special and different in every way...this world would be a BORING place to live in if they were all the same. God gave you what he thought you can handle...take every moment and enjoy him. When you see him laughing, playing, and being , look at him and laugh with him...know he isn't sad or in pain. He is just being himself and he LOVES you! I am always here and feeling the same things you are feeling. Email me anytime or call me anytime! We are going to have so much to talk about this summer with our boys going to Perrinville this summer and then in the fall..I am looking forward to see how this changes the boys! Take care Amber! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Debbi, as long as there is progress- no matter how small, there is hope. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 How exciting for Marissa!!! Abby to has been playing well with others. Maybe they can play some time. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Pennie,you said that so well...I needed to hear that today too! 's progress is slow but consistant,I need to focus on the possitives more, and I totally agree that LOVE is the BEST therapy! Love Debbi Ringle Re: Sugar Amber, Autism has brought what I think is safe to say "All of us" to tears. I have cried alot over the years and probably will continue to. This group is supposed to be about posting your feelings and getting support. We have all been in your position and alot of us still are. Its ok to cry and feel like things are not going to get better. However it is not important to dwell on that feeling and let it take you over. The sky is the limit for our kids and we should never underestimate them. What Abby was 4 years ago to what she is now is just amazing. The progress comes-I promise. It just takes a long time. I wont lie to you, there is no quick fix, no cure, its takes years of therapies and love to make a differance. But PLEASE remember to think of your son for who he is. Not just see his autism. Underneath is a child that still has the same needs as anyother child. I always say that the best therapy is love,I truly believe that. If you ev Pennie Abby's Mom Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Pennie is right, yesterday I took my mother and daughters to 12 oaks, Marisa remembered the Play area and actually asked for it!! When we got there there was a little girl who sat face to face with Marisa. Marisa gave her a smile and started to bounce on the caryon, the girl did the same thing. They played for a good 10 to 15 minutes, THEY WERE FOLLOWING MARISA, then another girl who was playing with them came over to her mom , who was within earshot and said, Mom she isn't talking to us, her mother responed with maybe shes not talkative. All in all this was a good day, we start potty training on Monday-that won't be a good day, love your baby and expect miracles big and small say a prayer for strenght and go on line! Love On Saturday, June 14, 2003, at 10:38 AM, Debbi Ringle wrote: > Pennie,you said that so well...I needed to hear that today too! > 's progress is slow but consistant,I need to focus on the > possitives more, and I totally agree that LOVE is the BEST therapy! > Love Debbi Ringle > > Re: Sugar > > Amber, Autism has brought  what I think is safe to say " All of us " to > tears. I have cried alot over the years and probably will continue to. > This group is supposed to be about posting your feelings and getting > support. We have all been in your position and alot of us still are. > Its ok to cry and feel like things are not going to get better. > However it is not important to dwell on that feeling and let it take > you over. The sky is the limit for our kids and we should never > underestimate them. What Abby was 4 years ago to what she is now is > just amazing. The progress comes-I promise. It just takes a long time. > I wont lie to you, there is no quick fix, no cure, its takes years of > therapies and love to make a differance. But PLEASE remember to think > of your son for who he is. Not just see his autism. Underneath is a > child that still has the same needs as anyother child. I always say > that the best therapy is love,I truly believe that. If you ev > > Pennie > Abby's Mom > > Support Everyday Miracles by shopping online at IGIVE.COM, where a > portion of every purchase is donated to this support network. Proceeds > received will be used for a variety of functions, such as educational > activities, therapy, famiy outings, etc. http://www.igive.com/EDM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 I would love that On Saturday, June 14, 2003, at 11:51 AM, Ploveabby@... wrote: > How exciting for Marissa!!! Abby to has been playing well with others. > Â Maybe they can play some time. > > Pennie > Abby's Mom > > > > Support Everyday Miracles by shopping online at IGIVE.COM, where a > portion of every purchase is donated to this support network. Proceeds > received will be used for a variety of functions, such as educational > activities, therapy, famiy outings, etc. http://www.igive.com/EDM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 (((((((((((((((((((ANN))))))))))))))))))))))))) Hope that helps..... Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Being sad is very much a part of the autism experience. Many of the moms I have met have been very courageous in revealing their feelings. Many I have met are on Zoloft or other antidepressants (and I greatful for them sharing that with me). My mom and husband have been very supportive of that situation by allowing me time to exercise. I started running with a group once a week and I walk on a cheap hand-me-down tread mill 2x a day. It has made a huge difference. Helping me has helped my kids. Autism isn't the only thing in my life any more. It does get better. kelly Sugar > > Does anyone eliminate sugar from their kids diet? > > The reason I'm asking is cuz yesterday we didn't have any sweetened > drinks in the house [i hate grocery shopping ] so > [3,autistic] only had water to drink and it was evident in his > sounds. He is non verbal, but yesterday made lots of different > sounds, made them on request and even said the beginning of a few > words with prompting. Of course it's possible it's not the sugar, > but it seems hard to deny. I know it has an effect on kids, but does > anyone think it has more of an impact on our kids? > > Also, it seems no one ever posts about being sad, about autism that > is. I know I'm not the only one, and I always want to post about it > but never know where to start. Autism has me in tears at least once > a day and I'm starting to think that I need to see a grief counselor > or somebody specialized in disabilities. Has anyone else tried this? > Did it help? > > Thanks, > Amber > > > > Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 My son has a food sensitivity to sugar. When he eats it he gets "weepy". It accentuates his autistic behaviors. kelly Sugar Does anyone eliminate sugar from their kids diet?The reason I'm asking is cuz yesterday we didn't have any sweetened drinks in the house [i hate grocery shopping ] so [3,autistic] only had water to drink and it was evident in his sounds. He is non verbal, but yesterday made lots of different sounds, made them on request and even said the beginning of a few words with prompting. Of course it's possible it's not the sugar, but it seems hard to deny. I know it has an effect on kids, but does anyone think it has more of an impact on our kids?Also, it seems no one ever posts about being sad, about autism that is. I know I'm not the only one, and I always want to post about it but never know where to start. Autism has me in tears at least once a day and I'm starting to think that I need to see a grief counselor or somebody specialized in disabilities. Has anyone else tried this? Did it help? Thanks,Amber :)Support Everyday Miracles by shopping online at IGIVE.COM, where a portion of every purchase is donated to this support network. Proceeds received will be used for a variety of functions, such as educational activities, therapy, famiy outings, etc. http://www.igive.com/EDM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Pennie, did you find Pearl? i have an extra one if you'd like it. Lynda Quote Link to comment Share on other sites More sharing options...
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