Re: OP in St. Louis???? Or anyone??

[Guest guest]

I went to Precision Prosthetics and Orthotics (PPO) in St. Louis but

they just recently went out of business.

Orthotic and Prosthetic Lab is the only one I know of now. They have

3 locations with the location in Webster Groves being their main

location. Maybe if you talk with them, you may get better service.

Here is their website.

http://www.oandplabinc.com

Orthotic and Prosthetic Lab

748 MARSHALL AVE

WEBSTER GROVES, MO 63119

(314) 968-8555

>

> Where did you go to in St. Louis? We travel about 2.5 hours to go

to Children's Hospital in St. Louis. We were very pleased with their

promptness and caring--- to begin with. Our baby boy was diagnosed

with plagiocephaly and facial nerve palsy. We were told that he may

need a surgical procedure dealing with the nerves in his face and

probably helmet therapy for the plagiocephaly. After an MRI, a C-T

scan and thousands of dollars (and time) the doctors completely

contradicted themselves and said that they don't do helmet therapy and

he was fine (no palsy)-- but his head is flat, his left ear is

sideways and in the back, his left side of his face does not move and

his eyes are very different from each other. I'm sorry, but my baby

does need treatment. I have no idea why they were so helpful and

hopeful with his first visits and then completely changed with the

last phone call we had. Any suggestions?

> ( is 6.5 months & we're running out of time!)

>

>

> ---------------------------------

> Have a burning question? Go to Answers and get answers from

real people who know.

>

[Guest guest]

Hi ,

I have no idea if it is the same thing or not, but my son was

suspected to have Bells Palsy too. His lower left lip always pulled

down and to the side. The neurologist didn't find anything and wrote

it off as a manerism. (We also had an MRI.) Well, it turns out that

it's plain old torticollis, but his just manifested itself differently

(no tilt, just ROM restrictions and the Elvis lip) so it was never

diagnosed as tort. If you haven't seen a pediatric PT or other

specialist to rule out tort I would check into it. My son didn't

start PT until he was 12 months and his gross motor skills and facial

asymmetry have paid the price. Good luck!

Sheila, mom to , 15 months, STARband 3/6-8/6, DOCband 9/6-?

>

> Where did you go to in St. Louis? We travel about 2.5 hours to go

to Children's Hospital in St. Louis. We were very pleased with their

promptness and caring--- to begin with. Our baby boy was diagnosed

with plagiocephaly and facial nerve palsy. We were told that he may

need a surgical procedure dealing with the nerves in his face and

probably helmet therapy for the plagiocephaly. After an MRI, a C-T

scan and thousands of dollars (and time) the doctors completely

contradicted themselves and said that they don't do helmet therapy and

he was fine (no palsy)-- but his head is flat, his left ear is

sideways and in the back, his left side of his face does not move and

his eyes are very different from each other. I'm sorry, but my baby

does need treatment. I have no idea why they were so helpful and

hopeful with his first visits and then completely changed with the

last phone call we had. Any suggestions?

> ( is 6.5 months & we're running out of time!)

>

>

> ---------------------------------

> Have a burning question? Go to Answers and get answers from

real people who know.

>

[Guest guest]

Hi ,

I am new to this board. I haven't posted before, but have found a

lot of info. while searching past messages.

We live near St. Louis and go to O and P labs by St. 's Hospital

off of I-40 and Ballas Rd.

My son is now 8.5 mos. and recently received his helmet on Dec. 4th.

I, too, got the run around with his pediatrician. Then it took 1

month

to get in to see the plastic surgeon and another week to get in to

see the orthotist and a week to get the helmet made. I know how

precious time is when you have to correct this while they are babies.

They are pretty great at O & P! Very informative and they take their

time explaining any questions that you may have. Our insurance,

unfortunately, will not pay. We have United Healthcare. O & P have a

payment plan of 3 payments of $500 for self pays. I think they

charge $2100 to the insurance.

We are thrilled so far with the results. My son has only been

wearing

his helmet for 1 week so far and has had some correction. We

actually visited the orthotist today and she was in disbelief to see

that he had already grown a few millimeters. He has brachycephaly of

99.5%, which is flattening to the entire back of his head, and it is

beginning to get some curving to it. Thank goodness!!

If you need any info. regarding the O & P Labs, I would be more than

happy to help you.

Good luck with your journey!

Take care,

Kay

Jarrett 03/23/06

> >

> > Where did you go to in St. Louis? We travel about 2.5 hours to

go

> to Children's Hospital in St. Louis. We were very pleased with

their

> promptness and caring--- to begin with. Our baby boy was diagnosed

> with plagiocephaly and facial nerve palsy. We were told that he

may

> need a surgical procedure dealing with the nerves in his face and

> probably helmet therapy for the plagiocephaly. After an MRI, a C-T

> scan and thousands of dollars (and time) the doctors completely

> contradicted themselves and said that they don't do helmet therapy

and

> he was fine (no palsy)-- but his head is flat, his left ear is

> sideways and in the back, his left side of his face does not move

and

> his eyes are very different from each other. I'm sorry, but my baby

> does need treatment. I have no idea why they were so helpful and

> hopeful with his first visits and then completely changed with the

> last phone call we had. Any suggestions?

> > ( is 6.5 months & we're running out of time!)

> >

> >

> > ---------------------------------

> > Have a burning question? Go to Answers and get answers

from

> real people who know.

> >

>

[Guest guest]

You are awesome! Thanks for the bit of info. It's really promising to hear that you are already seeing improvements in your baby. Good for you and baby!!!!! We just got in to Springfield to a Dr. that treated a close friend's baby about a year ago. She said it took about 6 weeks for them to get in. We go on January 2nd, so I guess that's pretty good. We were seeing a neurosurgeon at Children's Hospital for 's facial nerve palsy. That is who suggested plagiocephaly and helmet therapy. Then, after an MRI and CT scan, they (for some G. forsaken reason) chose not to treat him for tort, plagio or palsy. Who knows? Perhaps they were not that familiar with the treatment options. I have high hopes (again) for the Springfield approach. We'll see. Good luck in St. Louie! Maybe we'll end up there too. &

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