Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 I can't even imagine what you are going through. Greta is in our prayers... and Aidan DOCband graduate 10/07 > > Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise...SO, I made an appt with a neursurgeon...the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, " why, you think > that the bones are coming together too quickly? " he said, " yes, I > cant feel a space in between the bones. I am not sure. " My heart > sank. > She had the xray, and when he came back in after looking at it, he > said, " I still cant tell. " > WHAT??!?!?!? So, then he says, " come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway. " > OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true. > > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space! > > Please pray for her, I will keep everyone informed...marcy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Thank you so much. It is hard, but I have to believe that she will be ok...no matter what! Re: INFO ON GRETA'S HEAD--NEUROSURGEON I can't even imagine what you are going through. Greta is in our prayers... and AidanDOCband graduate 10/07>> Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise... SO, I made an appt with a neursurgeon. ..the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, "why, you think > that the bones are coming together too quickly?" he said, "yes, I > cant feel a space in between the bones. I am not sure." My heart > sank. > She had the xray, and when he came back in after looking at it, he > said,"I still cant tell." > WHAT??!?!?!? So, then he says, "come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway."> OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true.> > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space!> > Please pray for her, I will keep everyone informed...marcy> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Marcy, I just wanted to let you know that I will keep Greta in my prayers. As well as you and your family. I am sure you are very scared, I know I would be.. God has a plan for your little girl. One way or another, He will take care of her and she will be just fine. You will get through this, and anyway,like you said...maybe the doctor is wrong! They aren't always right, I have surely found that out! > > Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise...SO, I made an appt with a neursurgeon...the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, " why, you think > that the bones are coming together too quickly? " he said, " yes, I > cant feel a space in between the bones. I am not sure. " My heart > sank. > She had the xray, and when he came back in after looking at it, he > said, " I still cant tell. " > WHAT??!?!?!? So, then he says, " come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway. " > OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true. > > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space! > > Please pray for her, I will keep everyone informed...marcy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 I am sending prayers your way. Please let us know what you find out. Angie Re: INFO ON GRETA'S HEAD--NEUROSURGEON Oh Marcy, I am so sorry to hear your news. I will pray for Greta and hope that everything works out for you. Please keep us posted. Jake-17m (tort resolved/rt plagio/DocBand)Jordan-4>> Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise...SO, I made an appt with a neursurgeon...the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, "why, you think > that the bones are coming together too quickly?" he said, "yes, I > cant feel a space in between the bones. I am not sure." My heart > sank. > She had the xray, and when he came back in after looking at it, he > said,"I still cant tell." > WHAT??!?!?!? So, then he says, "come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway."> OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true.> > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space!> > Please pray for her, I will keep everyone informed...marcy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Hi Marcy, I just wanted to let you know that you and Greta are in my prayers. I really hope that things work out and that the neuro was wrong! > > Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise...SO, I made an appt with a neursurgeon...the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, " why, you think > that the bones are coming together too quickly? " he said, " yes, I > cant feel a space in between the bones. I am not sure. " My heart > sank. > She had the xray, and when he came back in after looking at it, he > said, " I still cant tell. " > WHAT??!?!?!? So, then he says, " come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway. " > OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true. > > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space! > > Please pray for her, I will keep everyone informed...marcy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Thanks for your prayers Michele! I will be in touch! Re: INFO ON GRETA'S HEAD--NEUROSURGEON Marcy,I just wanted to let you know that I will keep Greta in my prayers. As well as you and your family. I am sure you are very scared, I know I would be.. God has a plan for your little girl. One way or another, He will take care of her and she will be just fine. You will get through this, and anyway,like you said...maybe the doctor is wrong! They aren't always right, I have surely found that out!>> Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise... SO, I made an appt with a neursurgeon. ..the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, "why, you think > that the bones are coming together too quickly?" he said, "yes, I > cant feel a space in between the bones. I am not sure." My heart > sank. > She had the xray, and when he came back in after looking at it, he > said,"I still cant tell." > WHAT??!?!?!? So, then he says, "come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway."> OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true.> > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space!> > Please pray for her, I will keep everyone informed...marcy> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Thanks Angie, I will be in touch:) Re: INFO ON GRETA'S HEAD--NEUROSURGEON Oh Marcy, I am so sorry to hear your news. I will pray for Greta and hope that everything works out for you. Please keep us posted. Jake-17m (tort resolved/rt plagio/DocBand)Jordan-4>> Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise... SO, I made an appt with a neursurgeon. ..the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, "why, you think > that the bones are coming together too quickly?" he said, "yes, I > cant feel a space in between the bones. I am not sure." My heart > sank. > She had the xray, and when he came back in after looking at it, he > said,"I still cant tell." > WHAT??!?!?!? So, then he says, "come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway."> OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true.> > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space!> > Please pray for her, I will keep everyone informed...marcy> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 We will pray for you and your daughter too. I am sure either way she will be fine. Tammymarcy eiseman <marcyeiseman@...> wrote: Thank you so much. It is hard, but I have to believe that she will be ok...no matter what! Re: INFO ON GRETA'S HEAD--NEUROSURGEON I can't even imagine what you are going through. Greta is in our prayers... and AidanDOCband graduate 10/07>> Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise... SO, I made an appt with a neursurgeon. ..the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, "why, you think > that the bones are coming together too quickly?" he said, "yes, I > cant feel a space in between the bones. I am not sure." My heart > sank. > She had the xray, and when he came back in after looking at it, he > said,"I still cant tell." > WHAT??!?!?!? So, then he says, "come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway."> OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true.> > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space!> > Please pray for her, I will keep everyone informed...marcy> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Also sending prayers. Where are you located? What doctor? I am near Stanford Univ - Lucille Packard Childrens - highly recommended if you need a 2nd opinion. **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Hey, thanks for your prayers:) I am in the Philadelphia Area. We went to Dupont for the first neurosurgeon appt, and next place is Children's Hosp of Philadelphia this week for a second opinion...Thanks! Re: Re: INFO ON GRETA'S HEAD--NEUROSURGEON Also sending prayers. Where are you located? What doctor? I am near Stanford Univ - Lucille Packard Childrens - highly recommended if you need a 2nd opinion.************ **Ideas to please picky eaters. Watch video on AOL Living.(http://living. aol.com/video/ how-to-please- your-picky- eater/rachel- campos-duffy/ 2050827?NCID= aolcmp0030000000 2598) Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Thank you for sharing your story with us. It's a sobering reminder of how important it is to listen to your gut. You are a great mom who is doing all you can. I will keep her story close to me and of course pray for her! Mom to Lyons RHS graduate 2/08 > > Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise...SO, I made an appt with a neursurgeon...the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, " why, you think > that the bones are coming together too quickly? " he said, " yes, I > cant feel a space in between the bones. I am not sure. " My heart > sank. > She had the xray, and when he came back in after looking at it, he > said, " I still cant tell. " > WHAT??!?!?!? So, then he says, " come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway. " > OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true. > > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space! > > Please pray for her, I will keep everyone informed...marcy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2008 Report Share Posted February 25, 2008 Wow. Thank you .It means a lot to me...I am always striving to be the best Mom I can be:) ~marcy(Mommy to Greta 2 mos, and , 17mos) Re: INFO ON GRETA'S HEAD--NEUROSURGEON Thank you for sharing your story with us. It's a sobering reminder of how important it is to listen to your gut. You are a great mom who is doing all you can. I will keep her story close to me and of course pray for her!Mom to Lyons RHS graduate 2/08>> Well, some of you were wondering why Greta's head looked the way it > did, with both sides looking flat. I dont have good news. Even though > my pediatrician diagnosed her with plagio, my gut told me > otherwise... SO, I made an appt with a neursurgeon. ..the neurosurgeon > felt her head, kept feeling it, and feeling it, very silent. I was > like, oh crap. I know what he is looking for. He said, I am going to > send Greta down for an XRAY of her skull. I asked, "why, you think > that the bones are coming together too quickly?" he said, "yes, I > cant feel a space in between the bones. I am not sure." My heart > sank. > She had the xray, and when he came back in after looking at it, he > said,"I still cant tell." > WHAT??!?!?!? So, then he says, "come back in 3 weeks, i want to give > her an MRI...She cant have surgery until then anyway."> OH MY GOSH. I cant even believe what I am hearing...Here I am hoping > the guy tells me, yes, she has plagio, a weird case of it, and my > worst nightmare came true.> > SO the reason her head looks like it does is because the bottom part > of her skull, the occiput is prominant, or being pushed out from the > pressure of her brain, and the bones pushing. I am praying he is > somehow wrong, and that this next doctor will see a space!> > Please pray for her, I will keep everyone informed...marcy> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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