Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 , Try calling one of your local Early Intervention providers that give respite. Even if you do not get respite, EI providers usually contract with individual that provide the actual care. They have lists of care-givers who have specialized training and you may be able to find someone who will care for your son and daughter, that has more understanding of what he needs. > I'll try to give the whole LONG story about my little son later this weekend, but right now > was just wondering how you choose day care/child care for your child with AS? I can > barely afford structured day cares-too much$$$ and really had a bad feeling about the > place we had been going to. > > We did private in home babysitters....lost 3 in a 6 week period of time, due to ds acting > out, and other kids picking up on it. > > Is there a tactful way to put an ad in the paper for someone special to watch him and his > sister, or a group of some sort that can help locate one? > > Thanks, > . mom to 4 yo Josh :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 We try to use my MIL as much as possible. However, sometimes she can't watch them and we need a sitter. We have been lucky and found a girl (she'll be 16 soon) that is willing to watch the kids. She does better than the average person because her older brother has issues also. I don't know what his Dx is, but he has had a lot of the same problems as my kids. So, she understands my kids. Maybe you can find a sibling or mother that has family experience with AS issues (or something similar). They would probably do well watching your son. Good luck. Kirsten > I'll try to give the whole LONG story about my little son later this weekend, but right now > was just wondering how you choose day care/child care for your child with AS? I can > barely afford structured day cares-too much$$$ and really had a bad feeling about the > place we had been going to. > > We did private in home babysitters....lost 3 in a 6 week period of time, due to ds acting > out, and other kids picking up on it. > > Is there a tactful way to put an ad in the paper for someone special to watch him and his > sister, or a group of some sort that can help locate one? > > Thanks, > . mom to 4 yo Josh :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Any universities near you? Some students are being trained as special needs teachers and might want some experience. > I'll try to give the whole LONG story about my little son later this weekend, but right now > was just wondering how you choose day care/child care for your child with AS? I can > barely afford structured day cares-too much$$$ and really had a bad feeling about the > place we had been going to. > > We did private in home babysitters....lost 3 in a 6 week period of time, due to ds acting > out, and other kids picking up on it. > > Is there a tactful way to put an ad in the paper for someone special to watch him and his > sister, or a group of some sort that can help locate one? > > Thanks, > . mom to 4 yo Josh :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Ok, now bear with me, remember I am still new to all this! By Early Intervention providers...do you mean the school district? The only other place available in the area is called Rehab Resources-who did the evaluation on my son last week. And I'm also unsure what you mean by respite care....sorry......! I feel kinda dumb tonight!! Thank you for your help!!!! Shell > > I'll try to give the whole LONG story about my little son later > this weekend, but right now > > was just wondering how you choose day care/child care for your > child with AS? I can > > barely afford structured day cares-too much$$$ and really had a > bad feeling about the > > place we had been going to. > > > > We did private in home babysitters....lost 3 in a 6 week period of > time, due to ds acting > > out, and other kids picking up on it. > > > > Is there a tactful way to put an ad in the paper for someone > special to watch him and his > > sister, or a group of some sort that can help locate one? > > > > Thanks, > > . mom to 4 yo Josh :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Thanks for your help Kirsten! Unfortunately we're 2 hours away from most all family, so that tends to not be an option :- ( I'm still pretty new here, and don't know a lot of people, so that's another strike against me, which literally sucks! LOL Thanks for your help! > > I'll try to give the whole LONG story about my little son later > this weekend, but right now > > was just wondering how you choose day care/child care for your > child with AS? I can > > barely afford structured day cares-too much$$$ and really had a > bad feeling about the > > place we had been going to. > > > > We did private in home babysitters....lost 3 in a 6 week period of > time, due to ds acting > > out, and other kids picking up on it. > > > > Is there a tactful way to put an ad in the paper for someone > special to watch him and his > > sister, or a group of some sort that can help locate one? > > > > Thanks, > > . mom to 4 yo Josh :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Thank you , I may try contacting the 3-5 yo program in the next city over :-) > > I'll try to give the whole LONG story about my little son later > this weekend, but right now > > was just wondering how you choose day care/child care for your > child with AS? I can > > barely afford structured day cares-too much$$$ and really had a > bad feeling about the > > place we had been going to. > > > > We did private in home babysitters....lost 3 in a 6 week period of > time, due to ds acting > > out, and other kids picking up on it. > > > > Is there a tactful way to put an ad in the paper for someone > special to watch him and his > > sister, or a group of some sort that can help locate one? > > > > Thanks, > > . mom to 4 yo Josh :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 , Sorry it took me so long to see this, I have been out of town. By Early Intervention I mean the Part C of IDEA(Individuals with Disabilities Education Act)birth-3 programs for children with delays and disabilities. There should be a program that serves your area. Try calling the local school district and ask who your local Birth-3 agency is. Or you can also try an adult program as many also do birth-3. Respite is care contracted by the state (and paid for by them as well) for children with developmental needs that is designed to give the parent a break from a child that needs constant supervision. > > > I'll try to give the whole LONG story about my little son later > > this weekend, but right now > > > was just wondering how you choose day care/child care for your > > child with AS? I can > > > barely afford structured day cares-too much$$$ and really had a > > bad feeling about the > > > place we had been going to. > > > > > > We did private in home babysitters....lost 3 in a 6 week period of > > time, due to ds acting > > > out, and other kids picking up on it. > > > > > > Is there a tactful way to put an ad in the paper for someone > > special to watch him and his > > > sister, or a group of some sort that can help locate one? > > > > > > Thanks, > > > . mom to 4 yo Josh :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Hi , Our Ped thought we were crazy also. It took us moving to Kansas from California, luckily finding a very aggressive Ped to give us the RX. We could of had Jacks Helmet months ago. You are doing the right thing. I found this website last night and I haven.t been able to keep off it. Good Luck with your appointment! xoxo, Season Brown > > Before I started to research this I thought my daughters head was > misshaped, but I had no idea how severe it might be. My ped thinks it > will straighten out on its own, but I have watched it and the only > thing that has gotten better is that she is not always looking to the > right and the back of her head has rounded a bit due to repo and the > boppy head pillow. > > Now I look at her head and her ears are totally out of asymetry. > > I have an appt with Craniel Techs on Wed the 13th to have a consult. > My ped thinks I am crazy, but gave me the rx. > > Any advice would be helpful. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Hi, cranial tech has a great reputation and you should see good results. I don't know why so many peds say it will round on its own - there are tons of moms on the older plagio group who will disagree. Even with banding my daughter's head isn't perfect (but looks good). How old is your baby? do you know if your insurance will cover the band? they may cover ct or some other provider. If the don't cover any you may as well go with CT. However you might want to call them and check your options before you decide. banding is expensive ($3000?) if you have to pay on your own. We had a starband that was covered by our insurance. it differ widely. some insurers refuse to pay at all and many parents appeal (so me win, some done). let us know how it goes on the 13th. -christine mom to sydney/ 11 mo/ starband grad 1-06 > > Before I started to research this I thought my daughters head was > misshaped, but I had no idea how severe it might be. My ped thinks it > will straighten out on its own, but I have watched it and the only > thing that has gotten better is that she is not always looking to the > right and the back of her head has rounded a bit due to repo and the > boppy head pillow. > > Now I look at her head and her ears are totally out of asymetry. > > I have an appt with Craniel Techs on Wed the 13th to have a consult. > My ped thinks I am crazy, but gave me the rx. > > Any advice would be helpful. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Season - where at in Cali? I am in So Cal and going to the Toluca Lake location. My daughter is 6.25 mos old and I started questioning her ped at 2 mos. I decided to give it some time too, which I now regret. I should have just gone for the consult to see what they would say back then. My ped wanted me to wait till 7 mos. So I got online last night and nearly freaked out that I have waited this long. My whole thought process is that I have the ability to fix this problem even tho it may not be medically necessary. I feel that with kids being so dang mean nowadays I need to prevent her from having deformities as mild as they may be. Plus - what if she needs glasses and they have to make them custom cause one of her ears is an inch behind the other????? And then the dreaded - " mommie - why is my face shaped funny? " eeek - I don't want to have to answer that question! Thanks for the help - I feel somewhat lost here. I am sure I will be well educated by next week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 I think as a mother you should always go with what your gut is telling you. We want the best for our children and we do not want them to be made of for any purpose when they are older. I think you are making the best decision. If you feel that there is something wrong, it is always best to get a second opinion. We had three opinions before we decided to go forward with a helmet for our son. Ronda, mom of Hayden 5 months - will be casted later this month. > > Before I started to research this I thought my daughters head was > misshaped, but I had no idea how severe it might be. My ped thinks it > will straighten out on its own, but I have watched it and the only > thing that has gotten better is that she is not always looking to the > right and the back of her head has rounded a bit due to repo and the > boppy head pillow. > > Now I look at her head and her ears are totally out of asymetry. > > I have an appt with Craniel Techs on Wed the 13th to have a consult. > My ped thinks I am crazy, but gave me the rx. > > Any advice would be helpful. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 I'm from Ventura, California. when are you moving this way?? I'm sure everything will work our just fine. We are all just worry warts!! Tee Hee! xoxo, Season Brown > > Season - where at in Cali? I am in So Cal and going to the Toluca > Lake location. > > My daughter is 6.25 mos old and I started questioning her ped at 2 > mos. I decided to give it some time too, which I now regret. I > should have just gone for the consult to see what they would say > back then. My ped wanted me to wait till 7 mos. So I got online > last night and nearly freaked out that I have waited this long. > > My whole thought process is that I have the ability to fix this > problem even tho it may not be medically necessary. I feel that > with kids being so dang mean nowadays I need to prevent her from > having deformities as mild as they may be. Plus - what if she needs > glasses and they have to make them custom cause one of her ears is > an inch behind the other????? > > And then the dreaded - " mommie - why is my face shaped funny? " > eeek - I don't want to have to answer that question! > > Thanks for the help - I feel somewhat lost here. I am sure I will > be well educated by next week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Season, I live in Camarillo and went to the Toluca Lake (Cranial Therapies) too. They are wonderful. I had my daughter banded at 6 months and she graduated at 9 months. It wasn’t as bad as I thought. Good luck to you! Deanna, Daughter Charlene born 2-16-06 (Plagio/tort) From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Season Brown Sent: Wednesday, December 06, 2006 12:19 PM Plagiocephaly Subject: Re: New Here Too! I'm from Ventura, California. when are you moving this way?? I'm sure everything will work our just fine. We are all just worry warts!! Tee Hee! xoxo, Season Brown > > Season - where at in Cali? I am in So Cal and going to the Toluca > Lake location. > > My daughter is 6.25 mos old and I started questioning her ped at 2 > mos. I decided to give it some time too, which I now regret. I > should have just gone for the consult to see what they would say > back then. My ped wanted me to wait till 7 mos. So I got online > last night and nearly freaked out that I have waited this long. > > My whole thought process is that I have the ability to fix this > problem even tho it may not be medically necessary. I feel that > with kids being so dang mean nowadays I need to prevent her from > having deformities as mild as they may be. Plus - what if she needs > glasses and they have to make them custom cause one of her ears is > an inch behind the other????? > > And then the dreaded - " mommie - why is my face shaped funny? " > eeek - I don't want to have to answer that question! > > Thanks for the help - I feel somewhat lost here. I am sure I will > be well educated by next week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Actually I have lived in Cali for 20 years. I live in Hawthorne - which is about an hour south of Toluca lake. > > > > Season - where at in Cali? I am in So Cal and going to the Toluca > > Lake location. > > > > My daughter is 6.25 mos old and I started questioning her ped at 2 > > mos. I decided to give it some time too, which I now regret. I > > should have just gone for the consult to see what they would say > > back then. My ped wanted me to wait till 7 mos. So I got online > > last night and nearly freaked out that I have waited this long. > > > > My whole thought process is that I have the ability to fix this > > problem even tho it may not be medically necessary. I feel that > > with kids being so dang mean nowadays I need to prevent her from > > having deformities as mild as they may be. Plus - what if she needs > > glasses and they have to make them custom cause one of her ears is > > an inch behind the other????? > > > > And then the dreaded - " mommie - why is my face shaped funny? " > > eeek - I don't want to have to answer that question! > > > > Thanks for the help - I feel somewhat lost here. I am sure I will > > be well educated by next week. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 I saw and she was VERY caring and knowledgeable. I highly recommend them. The drive is worth it! You can check out the before and after under “C” for Charlene. They may still be under “New Photos”. From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Sent: Wednesday, December 06, 2006 2:42 PM Plagiocephaly Subject: Re: New Here Too! I am glad to hear good things about Toluca Lake. I live about and hour from there and that is where we are going. > > > > Season - where at in Cali? I am in So Cal and going to the Toluca > > Lake location. > > > > My daughter is 6.25 mos old and I started questioning her ped at 2 > > mos. I decided to give it some time too, which I now regret. I > > should have just gone for the consult to see what they would say > > back then. My ped wanted me to wait till 7 mos. So I got online > > last night and nearly freaked out that I have waited this long. > > > > My whole thought process is that I have the ability to fix this > > problem even tho it may not be medically necessary. I feel that > > with kids being so dang mean nowadays I need to prevent her from > > having deformities as mild as they may be. Plus - what if she needs > > glasses and they have to make them custom cause one of her ears is > > an inch behind the other????? > > > > And then the dreaded - " mommie - why is my face shaped funny? " > > eeek - I don't want to have to answer that question! > > > > Thanks for the help - I feel somewhat lost here. I am sure I will > > be well educated by next week. > > > Quote Link to comment Share on other sites More sharing options...
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