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I have just fininshed my 5th of 6 chemos and trying to figure out

what surgery I want (need)...

I went to a 2nd opinion clinic at the hospital yesterday that was

great. Over 5 hours I met with a medical oncologist, a radiologist

and a surgeon. I got a huge amount of info but not what I really

wanted to hear. The truth was hard. I had heard it all before but

not all together.

I was trying to avoid radiation but that is not going to happen and I

need a mastectomy since the chance of getting it all in a lumpectomy

is very small.

My tumor was 5cm and very aggressive with satellites around the

main. I didn't realize what that meant for the future but when

discussing the likely reoccurance risk with or without radiation the

doctor said " 10% with radiation and 20 to 25% without " ...1 in 4? 1

in 10?

I have really been focused on getting this done and putting it up a a

blip and getting on with my life. I guess that was the first time I

realized this is a life long deal.

The thought of having to do all this again in my life is overwhelming.

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A second opinion is always good. You can't dwell on what MIGHT happen. It will

drive you crazy. I had my surgery 5/24/1990. I was told there was a 60% chance

of it coming back and also a possibility of leukemia somewhere down the road as

a side effect of one of my chemos. So far I am doing ok. I will keep you in my

prayers.,

Hugs

nne

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2nd Opinion...

I have just fininshed my 5th of 6 chemos and trying to figure out

what surgery I want (need)...

I went to a 2nd opinion clinic at the hospital yesterday that was

great. Over 5 hours I met with a medical oncologist, a radiologist

and a surgeon. I got a huge amount of info but not what I really

wanted to hear. The truth was hard. I had heard it all before but

not all together.

I was trying to avoid radiation but that is not going to happen and I

need a mastectomy since the chance of getting it all in a lumpectomy

is very small.

My tumor was 5cm and very aggressive with satellites around the

main. I didn't realize what that meant for the future but when

discussing the likely reoccurance risk with or without radiation the

doctor said " 10% with radiation and 20 to 25% without " ...1 in 4? 1

in 10?

I have really been focused on getting this done and putting it up a a

blip and getting on with my life. I guess that was the first time I

realized this is a life long deal.

The thought of having to do all this again in my life is overwhelming.

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My heart goes out to you. Big decisions to make. I understand what

you mean when you say it's all so overwhelming - we've all been

there and it's an awful place to be. The only advice I can offer is

to try and step back a bit and take each step individually. Looking

at the big picture is daunting. Funny, I'm offering the exact same

advice that I " try " to do every day in my life.

Glad that you've gotten a second opinion. Good luck in making your

treatment decisions. Keep in touch and I look forward to hearing

from you again.

Ellen

>

> I have just fininshed my 5th of 6 chemos and trying to figure out

> what surgery I want (need)...

>

> I went to a 2nd opinion clinic at the hospital yesterday that was

> great. Over 5 hours I met with a medical oncologist, a

radiologist

> and a surgeon. I got a huge amount of info but not what I really

> wanted to hear. The truth was hard. I had heard it all before

but

> not all together.

>

> I was trying to avoid radiation but that is not going to happen

and I

> need a mastectomy since the chance of getting it all in a

lumpectomy

> is very small.

>

> My tumor was 5cm and very aggressive with satellites around the

> main. I didn't realize what that meant for the future but when

> discussing the likely reoccurance risk with or without radiation

the

> doctor said " 10% with radiation and 20 to 25% without " ...1 in 4?

1

> in 10?

>

> I have really been focused on getting this done and putting it up

a a

> blip and getting on with my life. I guess that was the first time

I

> realized this is a life long deal.

>

> The thought of having to do all this again in my life is

overwhelming.

>

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