Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 In a message dated 1/17/01 10:05:03 PM Eastern Standard Time, drella@... writes: << I started my older son on several drops of homeopathic candida, and he went off the wall. >> What homeopathic remedy did you use? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Lori - We had a regression problem before too so I know where you are. We called this past summer the summer of hell. Our boy Vico got a hold of stuff at school and we saw months of progress gone in a day. He did come back, it took a while, about three or four weeks but every day got progressivly better. We didn't know he had gotten the stuff - so we weren't able to administer Serenaid or Enzyme Aid to help him out. I have heard other folks say that these two products can help our kids digest the gluten or casien and that it is good to have either one on hand for accidents. Kirkman Labs sells Enzyme Aid: www.kirkmanlabs.com One of our accidents was Play Doh - even though he didn't eat it he rubbed it into his skin and " went away " for a month. It is very difficult when the go away after you have seen such progress, but take heart - it means that you are on the right track! Also, our descriptions of his regression to his ped impressed her so much that she wrote a letter to the school district whiched helped us get him a one-on-one aide. Hang in there. Moira > My son (age 2.8) has been on the gluten/casein free diet since Sept > 1. He has done so well and has steadily improved since then. We have not > has one single regression until now. This is really hard to watch and I am > not aware of exactly what the problem is or was. His autistic behaviors > have returned, more tantrum, less eye contact, and overall less > responsive. His therapists are shocked. My guess is he got some > gluten. There was a homeopathic remedy that we are trying for yeast that > has alcohol in it. I called and they said it was corn-based but then > another e-mail said it is possible could be wheat based. He only had only > a total of 23 drops over 4 days. Could this has caused such an intense > regression? I have stopped this remedy but the regression has > continued. If there was gluten in this or in something else, how long will > it take until I get him back? What can I do to help the process? Could > this reaction be a food reaction to something besides gluten or > casien. What do I do to figure out and fix the problem? > > I would appreciate you help and experiences in this. This is so stressful > watching 4 months of progress disappeaer literally overnight!!! > > Thank you for any help you can give me. > > Lori from KS (mother of (NT) 12, (NT) 9, (NT), and > (Autistic) 2.8) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Lori - We had a regression problem before too so I know where you are. We called this past summer the summer of hell. Our boy Vico got a hold of stuff at school and we saw months of progress gone in a day. He did come back, it took a while, about three or four weeks but every day got progressivly better. We didn't know he had gotten the stuff - so we weren't able to administer Serenaid or Enzyme Aid to help him out. I have heard other folks say that these two products can help our kids digest the gluten or casien and that it is good to have either one on hand for accidents. Kirkman Labs sells Enzyme Aid: www.kirkmanlabs.com One of our accidents was Play Doh - even though he didn't eat it he rubbed it into his skin and " went away " for a month. It is very difficult when the go away after you have seen such progress, but take heart - it means that you are on the right track! Also, our descriptions of his regression to his ped impressed her so much that she wrote a letter to the school district whiched helped us get him a one-on-one aide. Hang in there. Moira > My son (age 2.8) has been on the gluten/casein free diet since Sept > 1. He has done so well and has steadily improved since then. We have not > has one single regression until now. This is really hard to watch and I am > not aware of exactly what the problem is or was. His autistic behaviors > have returned, more tantrum, less eye contact, and overall less > responsive. His therapists are shocked. My guess is he got some > gluten. There was a homeopathic remedy that we are trying for yeast that > has alcohol in it. I called and they said it was corn-based but then > another e-mail said it is possible could be wheat based. He only had only > a total of 23 drops over 4 days. Could this has caused such an intense > regression? I have stopped this remedy but the regression has > continued. If there was gluten in this or in something else, how long will > it take until I get him back? What can I do to help the process? Could > this reaction be a food reaction to something besides gluten or > casien. What do I do to figure out and fix the problem? > > I would appreciate you help and experiences in this. This is so stressful > watching 4 months of progress disappeaer literally overnight!!! > > Thank you for any help you can give me. > > Lori from KS (mother of (NT) 12, (NT) 9, (NT), and > (Autistic) 2.8) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 > My son (age 2.8) has been on the gluten/casein free diet since Sept > 1. He has done so well and has steadily improved since then. We have not > has one single regression until now. There was a homeopathic remedy that we are trying for yeast that > has alcohol in it. I called and they said it was corn-based but then > another e-mail said it is possible could be wheat based. He only had only > a total of 23 drops over 4 days. Could this has caused such an intense > regression? Hi Lori, I have used a lot of homeopathic remedies in this past year for my two sons. I used to worry about the alcohol and its source, but I have since learned that the celiac groups are starting to say that gluten will not turn up in alcohol no matter what the source is. That being said, I can't guarantee your son is not responding to the alcohol, but with my kids, it alway ended up being the remedy itself they reacted to. Sometimes the reaction is what you want--like a yeast die off. Just because it is homeopathic does not mean it isn't powerful. I started my older son on several drops of homeopathic candida, and he went off the wall. Once we pulled back the dose a little and let him adjust to the yeast dying, he leveled out. So you could be seeing a yeast die-off reaction. Or, the homeopathic remedy may not be the right one for him. Does the doctor who is helping you with this have a method for testing out a remedy for the child and determining if it is appropriate? If you are afraid to continue with this remedy for now, but you suspect your son has a big yeast problem, you might want to go on a strict anti-yeast diet if you haven't already done so. Take a couple of weeks to see how he does with no sugar, yeast, fermented stuff, moldy foods like mushrooms and cantalopes. If the yeast got all stirred up with this homeopathic remedy, then clearing out his diet should help even him out. Just remember, though, that if there is a lot of yeast in him and he is very reactive to it, the act of eliminating sugar will cause some yeast die-off on its own. But if you can tough out the upsetting behavior, it will be well worth it. I wish I could say exactly how long, maybe days, hopefully not longer than a week or so. Of course, everything I have just said is assuming that there hasn't been some major gluten or casein slip up. Watch everything he is eating very closely. Also, there could be new food sensitivities popping up after four months on the diet. The yeast issue seems most pressing, though, so I guess I would focus on that first. The hardest thing for me, after over 10 months on the diet, is to remember that regressions always pass. It is a nightmare figuring it out and getting through it, but the kids always come back. I don't think anyone has ever had to start from square one again--it just doesn't seem to work that way. Good luck--I hope he's back to normal soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 > My son (age 2.8) has been on the gluten/casein free diet since Sept > 1. He has done so well and has steadily improved since then. We have not > has one single regression until now. There was a homeopathic remedy that we are trying for yeast that > has alcohol in it. I called and they said it was corn-based but then > another e-mail said it is possible could be wheat based. He only had only > a total of 23 drops over 4 days. Could this has caused such an intense > regression? Hi Lori, I have used a lot of homeopathic remedies in this past year for my two sons. I used to worry about the alcohol and its source, but I have since learned that the celiac groups are starting to say that gluten will not turn up in alcohol no matter what the source is. That being said, I can't guarantee your son is not responding to the alcohol, but with my kids, it alway ended up being the remedy itself they reacted to. Sometimes the reaction is what you want--like a yeast die off. Just because it is homeopathic does not mean it isn't powerful. I started my older son on several drops of homeopathic candida, and he went off the wall. Once we pulled back the dose a little and let him adjust to the yeast dying, he leveled out. So you could be seeing a yeast die-off reaction. Or, the homeopathic remedy may not be the right one for him. Does the doctor who is helping you with this have a method for testing out a remedy for the child and determining if it is appropriate? If you are afraid to continue with this remedy for now, but you suspect your son has a big yeast problem, you might want to go on a strict anti-yeast diet if you haven't already done so. Take a couple of weeks to see how he does with no sugar, yeast, fermented stuff, moldy foods like mushrooms and cantalopes. If the yeast got all stirred up with this homeopathic remedy, then clearing out his diet should help even him out. Just remember, though, that if there is a lot of yeast in him and he is very reactive to it, the act of eliminating sugar will cause some yeast die-off on its own. But if you can tough out the upsetting behavior, it will be well worth it. I wish I could say exactly how long, maybe days, hopefully not longer than a week or so. Of course, everything I have just said is assuming that there hasn't been some major gluten or casein slip up. Watch everything he is eating very closely. Also, there could be new food sensitivities popping up after four months on the diet. The yeast issue seems most pressing, though, so I guess I would focus on that first. The hardest thing for me, after over 10 months on the diet, is to remember that regressions always pass. It is a nightmare figuring it out and getting through it, but the kids always come back. I don't think anyone has ever had to start from square one again--it just doesn't seem to work that way. Good luck--I hope he's back to normal soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Debra- Hi- You have to find out if these meds are absorbable in your body. I don't take any meds without asking my surgeon. I have a wierd thing that happens to me. I sneeze when I eat. Like I am so excited. I sneeze-blow my nose and then i am fine. Anyway, just make sure Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Both Claritin and Allegra may be time released, which doesn't tend to work well for us. I have used Zyrtec for awhile, since the others stopped working. It is a quick acting drug and has continued to work well for me post-op. Vickie Hewitt West Chester/Exton PA Aetna USHC PPO approved me the day it was submitted. DS Surgery w/ Dr Herron 12/08/00 Pre-OP Wt. 283.5 BMI 47.2 03/09/01 Wt. 229 BMI 37.0 -54.5 lbs (and Holding) > Have any post ops had problems with meds no longer working. I have > allergies and pre-surgery for years I took Claritin and it worked > great. It no longer works, I sneeze all the time. My PCP had me try > Allegra but that is no better. Has any one had this experience, if so > did any thing work? Thanks for you help > > surgery 1/18/01 > Dr.B Spain > 294/254 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Debra --- I had my ornade taken away from me ... and put me on the Allegra which did not seem to work at first ... but I kept using it and the sneezing finally went away! Judi in MS Pre-op Surg on 3/6/01 Dr. Kim/Dr. Booth BMI 59 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2001 Report Share Posted December 20, 2001 I am hoping that someone can help me. I am in a desperate search for a primary care doctor in the Marietta, Georgia area who is familiar with MSA. The doctor I have now is an absolute nightmare. He knows nothing about MSA and has the attitude, even after explanations from my neuro and gastro that since he does not know much about it that I do not have MSA. Oh, how I wish that was true, but that is not the case. I know that there are probably many doctors at Emory that could help me but that also presents another problem. My neuro will not let me drive because of the many blackouts and I am forced to rely on my mother for transportation and she will not drive in Atlanta. In fact she yells and moans about the fact that she has to take me to doctors just a few miles away so often. I am really not trying to sound like I want a pity party it just scares me that if she is already this stressed out by just having to drive me places, what is it going to be like when things get worse. I already had to discontinued the speech therapy which was helping so much with my swallowing problems because she "did not feel like being my taxi 3 times a week." I guess this kind of went from asking for help finding a doctor to rambling into looking for general advice on how to deal with not having a support system. I am sorry to ramble, I think I am just so overwhelmed by all of this. I am only 36 and have 2 boys 12 and 5 and unfortunately my husband has decided that he wanted a divorce because he could not deal with all of this. Again, sorry to ramble, I think I just needed some advice and also a chance to vent to someone who has been through all of this before. Thanks to everyone, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2001 Report Share Posted December 20, 2001 Kim, Here are doctors in other Georgia cities that know about movement disorders: Donna McConnell, MD., Kapil Sethi, MD.MDS., Debra A. Gearhart, MD. MDS Medical College of Georgia - Center of Excellence 1120 15th Street Augusta, GA 30912 7067219445 sville , MD. 958 Joe Parkway Suite 105 sville, GA 30120 7703826333 Lawrenceville Arthur Schiff, MD. MDS 500 Medical Center Blvd Suite 340 Lawrenceville, GA 30045 7709950886 Lithia Springs B. Bashuk, MD 2550 Windy Hill Rd. #305 Lithia Springs, GA 30067 4049443616 Macon Lauterback, MD. MDS Mercer University 655 First Street Macon, GA 31207 9123014033 Savannah Garrett, MD. MDS 4 Blvd. Savannah, GA 31405 9123551010 Tucker R. Lesch, MD. 1459 Montreal Road Suite 207 Tucker, GA 30084 4049383864 And here is a place where you can get a referal to a movement disorder doctor (Parkinson's) APDA Information & Referral Center EMORY UNIVERSITY SCHOOL OF MEDICINE 1841 Clifton Road, N.E., Rm. 326 Atlanta, GA 30329 P. Watts, RN, BSN, Coordinator FAX Celeste Duddleston, RN,BSN, Co-Coord. FAX: Ray L. Watts, MD, Director Take care, Bill Werre ======================== Dolphin2001XX@... wrote: I am hoping that someone can help me. I am in a desperate search for a primary care doctor in the Marietta, Georgia area who is familiar with MSA. The doctor I have now is an absolute nightmare. He knows nothing about MSA and has the attitude, even after explanations from my neuro and gastro that since he does not know much about it that I do not have MSA. Oh, how I wish that was true, but that is not the case. I know that there are probably many doctors at Emory that could help me but that also presents another problem. My neuro will not let me drive because of the many blackouts and I am forced to rely on my mother for transportation and she will not drive in Atlanta. In fact she yells and moans about the fact that she has to take me to doctors just a few miles away so often. I am really not trying to sound like I want a pity party it just scares me that if she is already this stressed out by just having to drive me places, what is it going to be like when things get worse. I already had to discontinued the speech therapy which was helping so much with my swallowing problems because she "did not feel like being my taxi 3 times a week." I guess this kind of went from asking for help finding a doctor to rambling into looking for general advice on how to deal with not having a support system. I am sorry to ramble, I think I am just so overwhelmed by all of this. I am only 36 and have 2 boys 12 and 5 and unfortunately my husband has decided that he wanted a divorce because he could not deal with all of this. Again, sorry to ramble, I think I just needed some advice and also a chance to vent to someone who has been through all of this before. Thanks to everyone, Kim If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2001 Report Share Posted December 20, 2001 Kim. Do you have a " Dial A Ride " there.? They pick you up for only $2.00 here. Course you have to let them know 24 hours in advance. Check your phone book. Quote Link to comment Share on other sites More sharing options...
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