Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 Chelly, Me too, I had my test done also. The nurse said I was one one the bad ones also. Just got the doctors report. Guess who has sleep apnea. One more test down. Sleep Apnea > Well, I had my sleep study done last night, and the nurse said I was > the worst patient she'd ever had. She said I slept wild. I went to > bed a little after 10, was still awake at 11, woke up again at 1, she > had to come in and re-hook some of the sensors up, I'd pulled them > loose, got up at 3 to use the bathroom, and when i got back in the > bed, she had to come fix some more sensors, and then i was up at 5. > Needless to say, I get to go back tonight to get put on a CPAP > machine to see if that helps any. > > Chelly > Fighting insurance exclusion > Dr. Booth/Dr. Kim > BMI-66 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 > Well, I had my sleep study done last night, and the nurse said I was > the worst patient she'd ever had. She said I slept wild. I went to > bed a little after 10, was still awake at 11, woke up again at 1, she > had to come in and re-hook some of the sensors up, I'd pulled them > loose, got up at 3 to use the bathroom, and when i got back in the > bed, she had to come fix some more sensors, and then i was up at 5. > Needless to say, I get to go back tonight to get put on a CPAP > machine to see if that helps any. > > Chelly > Fighting insurance exclusion > Dr. Booth/Dr. Kim > BMI-66 Chelly, Hi. I just saw your Post and wanted to share with you that my husband has a severe case of sleep apnea as well. He has been on the CPAP machine for 4 years now and since Day ONE he has been like a new person!! HONEST! He doesn't fall asleep mid day or at the wheel anymore! It took a few weeks to get used to the machine but now he is quite used to it. It goes EVERYWHERE we go now! He had a mask at first and then someone told him about a different method...its called " Nose Pillows " . He says it is unbelievably more comfortable. Just wanted to pass this on in case it should help you with this! Best of Luck! Your WLS Friend, Kjay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 Here is a web site where you can get TONS of information about sleep apnea. I used to be a regular on these forums when I was contemplating and having surgery for my sleep apnea. http://www.sleepnet.com/apnea/apneainf.html At 10:30 PM 2/26/01 +0000, you wrote: > > > Well, I had my sleep study done last night, and the nurse said I >was > > the worst patient she'd ever had. She said I slept wild. I went to > > bed a little after 10, was still awake at 11, woke up again at 1, >she > > had to come in and re-hook some of the sensors up, I'd pulled them > > loose, got up at 3 to use the bathroom, and when i got back in the > > bed, she had to come fix some more sensors, and then i was up at 5. > > Needless to say, I get to go back tonight to get put on a CPAP > > machine to see if that helps any. > > > > Chelly > > Fighting insurance exclusion > > Dr. Booth/Dr. Kim > > BMI-66 > >Chelly, >Hi. I just saw your Post and wanted to share with you that my >husband has a severe case of sleep apnea as well. He has been on the >CPAP machine for 4 years now and since Day ONE he has been like a new >person!! HONEST! He doesn't fall asleep mid day or at the wheel >anymore! It took a few weeks to get used to the machine but now he >is quite used to it. It goes EVERYWHERE we go now! He had a mask at >first and then someone told him about a different method...its >called " Nose Pillows " . He says it is unbelievably more comfortable. >Just wanted to pass this on in case it should help you with this! >Best of Luck! >Your WLS Friend, Kjay > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Chelly, I have had sleep apnea for approx 9 years and have used c-pap for those 9 years. It has been the best thing I have ever done. I use to fall asleep just going to the grocery store. As I have gained weight, I have had to increase the settings ( my doctor did, when I told him I was having the symptoms again). Just in December I developed a complication of uncontrolled sleep apnea ( I found out the pressure wasn't high enough). I then went to Bi-pap. This is another way to treat your sleep apnea. Not every one needs the bipap ( so don't worry). I can't wait to go to bed because I now sleep, well and comfortable, and correctly. I dream, and get up feeling refreshed and rested. I had my regular sleep study ( 1 year after changing the pressures) and was real anxious because they want you to sleep part of the night without the cpap. " I don't want to sleep without my cpap " . " But you have to " . I did and was really glad when I could put it back on and finally get some good sleep. So the cpap can be your friend! I am also looking forward to not having to use it after I have the surgery but until then.....zzzzzzzzzzz. Hope this helps Remember it all started with a mouse. -Walt Disney- vvanb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Inga, Charissa had her tonsils out when she was 6 years old. She was never officially diagnosed with tonsilitis (never had puss or spots) but hers were really swollen for quite some time. She also snored loudly and stopped breathing for a bit when sleeping, had dark rings under her eyes (from not sleeping well). She never had a sleep study (I don't think they did them back then, this was over 11 years ago) and the ENT was reluctant to remove the tonsils " for no reason " , but after months of this getting worse he agreed it was time. He did not remove her adenoids - it would have left too much open space because her palate was short. He said it would have made her speech more nasal, and the adenoids looked fine anyway. He also said the tonsils were also bigger than he thought (sometimes she was hard to examine in his office) - they were so swollen they actually touched. He had them biopsied, and the report said " chronic infection " . Her surgery was done outpatient - it was in the morning and she went home mid afternoon, no complications. Oh, and she immediately stopped snoring! mom of Charissa (who starts 11th grade in 2 weeks) > Message: 8 > Date: Fri, 16 Aug 2002 18:23:02 -0700 > > Subject: sleep apnea > > Have any of you had sleep apnea problems with your RSS child? TIm had an > infection which swelled his tonsils last month, and they are still swollen > - not enough to hurt, but he snores at night very loudly and stops > breathing momentarily periodically. The ENT gave us a perscription for > nose spray and antibiotic. She said that If Tim's anatomy was normal, she > would be quicker to take out his tonsils and adenoids. But he has a short > jaw and small tongue, and she is concerned about the extra risk in > recovering from the surgery. He would need to have an oxygen tube and stay > in the hospital for awhile afterwards. She is ordering a sleep study, and > we plan to see her again after we get the results. > > Inga > > ..................................... To get your own free faithmail account, click here to join: http://www.womenoffaith.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Thanks for sharing that. Does Charissa also have a short jaw and/or tongue? This seemed to be a concern for risk of the surgery. My son can't stick out his tongue, and he had micrognathia, which I think has to do with the short jaw. Inga At 11:01 PM 8/18/2002 -0500, you wrote: > > Inga, > Charissa had her tonsils out when she was 6 years old. She was never > officially diagnosed with tonsilitis (never had puss or spots) but hers were > really swollen for quite some time. She also snored loudly and stopped > breathing for a bit when sleeping, had dark rings under her eyes (from not > sleeping well). She never had a sleep study (I don't think they did them > back then, this was over 11 years ago) and the ENT was reluctant to remove > the tonsils " for no reason " , but after months of this getting worse he > agreed it was time. He did not remove her adenoids - it would have left too > much open space because her palate was short. He said it would have made her > speech more nasal, and the adenoids looked fine anyway. He also said the > tonsils were also bigger than he thought (sometimes she was hard to examine > in his office) - they were so swollen they actually touched. He had them > biopsied, and the report said " chronic infecti! on " . Her surgery was done > outpatient - it was in the morning and she went home mid afternoon, no > complications. Oh, and she immediately stopped snoring! > mom of Charissa (who starts 11th grade in 2 weeks) > > > > > Message: 8 > > Date: Fri, 16 Aug 2002 18:23:02 -0700 > > > > Subject: sleep apnea > > > > Have any of you had sleep apnea problems with your RSS child? TIm had an > > infection which swelled his tonsils last month, and they are still swollen > > - not enough to hurt, but he snores at night very loudly and stops > > breathing momentarily periodically. The ENT gave us a perscription for > > nose spray and antibiotic. She said that If Tim's anatomy was normal, she > > would be quicker to take out his tonsils and adenoids. But he has a short > > jaw and small tongue, and she is concerned about the extra risk in > > recovering from the surgery. He would need to have an oxygen tube and stay > > in the hospital for awhile afterwards. She is ordering a sleep study, and > > we plan to see her again after we get the results. > > > > Inga > > > > > > .................................... > To get your own free faithmail account, click here to join: > http://www.womenoffaith.comhttp://www.womenoffaith.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Inga, Charissa does have micrognathia. The definition, according to the MedlinePlus online medical encyclopedia is: " A relative term describing the small size of the lower jaw " She wore an orthodontic appliance for a couple of years to encourage the jaw to grow, but the jaw didn't catch up in growth. In fact, we now believe that the jaw ligaments stretched out during the treatment and after treatment they went back to normal, as she has the same serious degree of overbite as she had before. (Charissa is " loosely put together " according to the orthopedic specialist. Her knees & elbows hyperextend about 30 degrees past where they should.) The orthodontist is recommending jaw surgery to correct the overbite when we know for sure that she is all done growing - probably after her bone age is completely caught up. I don't know about the short tongue issue. Do you mean " tongue tied " , where the tongue is attached tightly, closely to the front of the lower jaw (behind the front teeth)? I thought that was pretty common, even among normal kids, and sometimes it is " clipped " to loosen it during the infant stage. Charissa didn't / doesn't have that problem. Her tongue is plenty long enough and works fine, especially since entering those teenage years (LOL!) The ENT wasn't concerned about her overbite before removing her tonsils. He was more concerned about making sure he didn't leave too much open space in her throat, which would make her already nasal, high pitched speech seem worse. Chris > Date: Mon, 19 Aug 2002 15:43:08 -0700 > > Subject: Re: Re: sleep apnea > > Thanks for sharing that. Does Charissa also have a short jaw and/or tongue? > This seemed to be a concern for risk of the surgery. My son can't stick out > his tongue, and he had micrognathia, which I think has to do with the short > jaw. > > Inga > > At 11:01 PM 8/18/2002 -0500, you wrote: > > > > Inga, > > Charissa had her tonsils out when she was 6 years old. She was never > > officially diagnosed with tonsilitis (never had puss or spots) but hers were > > really swollen for quite some time. She also snored loudly and stopped > > breathing for a bit when sleeping, had dark rings under her eyes (from not > > sleeping well). She never had a sleep study (I don't think they did them > > back then, this was over 11 years ago) and the ENT was reluctant to remove > > the tonsils " for no reason " , but after months of this getting worse he > > agreed it was time. He did not remove her adenoids - it would have left too > > much open space because her palate was short. He said it would have made her > > speech more nasal, and the adenoids looked fine anyway. He also said the > > tonsils were also bigger than he thought (sometimes she was hard to examine > > in his office) - they were so swollen they actually touched. He had them > > biopsied, and the report said " chronic infecti! on " . Her surgery was done > > outpatient - it was in the morning and she went home mid afternoon, no > > complications. Oh, and she immediately stopped snoring! > > mom of Charissa (who starts 11th grade in 2 weeks) > > > > > > > > > Message: 8 > > > Date: Fri, 16 Aug 2002 18:23:02 -0700 > > > > > > Subject: sleep apnea > > > > > > Have any of you had sleep apnea problems with your RSS child? TIm had an > > > infection which swelled his tonsils last month, and they are still swollen > > > - not enough to hurt, but he snores at night very loudly and stops > > > breathing momentarily periodically. The ENT gave us a perscription for > > > nose spray and antibiotic. She said that If Tim's anatomy was normal, she > > > would be quicker to take out his tonsils and adenoids. But he has a short > > > jaw and small tongue, and she is concerned about the extra risk in > > > recovering from the surgery. He would need to have an oxygen tube and stay > > > in the hospital for awhile afterwards. She is ordering a sleep study, and > > > we plan to see her again after we get the results. > > > > > > Inga > > > > > > > > > > .................................... > > To get your own free faithmail account, click here to join: > > http://www.womenoffaith.comhttp://www.womenoffaith.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Thanks for your email - you gave us a 'heads up' on a lot of things. I'm not sure if he's tonguetied - his tongue looks short to me, though. And the ENT agreed when I called it a short tongue... Did the pitch of your daughter's voice go up after the surgery? Tim's bone age is already getting close to his chronological age - isn't this the way non-RSS kids normally are? I'm wanting the endo to check him for puberty hormones, which he thinks is silly. I only noticed the underarm odor once a few months ago, so maybe we aren't close enough... Inga At 04:38 PM 8/20/2002 -0500, you wrote: > > Inga, > Charissa does have micrognathia. The definition, according to the > MedlinePlus online medical encyclopedia is: " A relative term describing the > small size of the lower jaw " She wore an orthodontic appliance for a couple > of years to encourage the jaw to grow, but the jaw didn't catch up in > growth. In fact, we now believe that the jaw ligaments stretched out during > the treatment and after treatment they went back to normal, as she has the > same serious degree of overbite as she had before. (Charissa is " loosely put > together " according to the orthopedic specialist. Her knees & elbows > hyperextend about 30 degrees past where they should.) The orthodontist is > recommending jaw surgery to correct the overbite when we know for sure that > she is all done growing - probably after her bone age is completely caught > up. > > I don't know about the short tongue issue. Do you mean " tongue tied " , where > the tongue is attached tightly, closely to the front of the lower jaw (behind > the front teeth)? I thought that was pretty common, even among normal kids, > and sometimes it is " clipped " to loosen it during the infant stage. Charissa > didn't / doesn't have that problem. Her tongue is plenty long enough and > works fine, especially since entering those teenage years (LOL!) > > The ENT wasn't concerned about her overbite before removing her tonsils. He > was more concerned about making sure he didn't leave too much open space in > her throat, which would make her already nasal, high pitched speech seem > worse. > > Chris > > > > Date: Mon, 19 Aug 2002 15:43:08 -0700 > > > > Subject: Re: Re: sleep apnea > > > > Thanks for sharing that. Does Charissa also have a short jaw and/or > tongue? > > This seemed to be a concern for risk of the surgery. My son can't stick > out > > his tongue, and he had micrognathia, which I think has to do with the short > > jaw. > > > > Inga > > > > At 11:01 PM 8/18/2002 -0500, you wrote: > > > > > > Inga, > > > Charissa had her tonsils out when she was 6 years old. She was never > > > officially diagnosed with tonsilitis (never had puss or spots) but hers > were > > > really swollen for quite some time. She also snored loudly and stopped > > > breathing for a bit when sleeping, had dark rings under her eyes (from > not > > > sleeping well). She never had a sleep study (I don't think they did them > > > back then, this was over 11 years ago) and the ENT was reluctant to > remove > > > the tonsils " for no reason " , but after months of this getting worse he > > > agreed it was time. He did not remove her adenoids - it would have left > too > > > much open space because her palate was short. He said it would have made > her > > > speech more nasal, and the adenoids looked fine anyway. He also said the > > > tonsils were also bigger than he thought (sometimes she was hard to > examine > > > in his office) - they were so swollen they actually touched. He had them > > > biopsied, and the report said " chronic infecti! on " . Her surgery was > done > > > outpatient - it was in the morning and she went home mid afternoon, no > > > complications. Oh, and she immediately stopped snoring! > > > mom of Charissa (who starts 11th grade in 2 weeks) > > > > > > > > > > > > > Message: 8 > > > > Date: Fri, 16 Aug 2002 18:23:02 -0700 > > > > > > > > Subject: sleep apnea > > > > > > > > Have any of you had sleep apnea problems with your RSS child? TIm had > an > > > > infection which swelled his tonsils last month, and they are still > swollen > > > > - not enough to hurt, but he snores at night very loudly and stops > > > > breathing momentarily periodically. The ENT gave us a perscription for > > > > nose spray and antibiotic. She said that If Tim's anatomy was normal, > she > > > > would be quicker to take out his tonsils and adenoids. But he has a > short > > > > jaw and small tongue, and she is concerned about the extra risk in > > > > recovering from the surgery. He would need to have an oxygen tube and > stay > > > > in the hospital for awhile afterwards. She is ordering a sleep study, > and > > > > we plan to see her again after we get the results. > > > > > > > > Inga > > > > > > > > > > > > > > .................................... > > > To get your own free faithmail account, click here to join: > > > > <http://www.womenoffaith.comhttp://www.womenoffaith.comhttp://www.women > offaith.com > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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