nubmness; to ; anemia

[Guest guest]

_One of my first symptoms that I could not have explained was numbness in

my feet. It caused me to fall as I could not sense the ground as before,

I started limping and had to relearn how to walk with the nubmness becuase

my brain was telling me something was wrong when functionally there was

not. Like anything else you get used to it once you know it is in itself

not threatening. It is things like that that make it feel as though I am no

longer in my own body.

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Date: Fri, 14 Dec 2001 17:11:57 -0000

Subject: Numbness in bottom of feet

Hello folks. Has anyone suffered severe numbness in the bottoms of

the feet? Any help would be appreciated. Thanks

Pat

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To :

Then again , I lost a 29 year old colleague to diabetes, despite

vigorous treatment I lost a friend to lung cancer who had never smoked,

my X's grandmother lived to 96 despite losing most of her stomach to cancer

(without treatment other than surgery), she ate and drank anything she

liked. Who is to say, it is my personal choice to have nothing to do with

transplants (I said nothing about vaccinations, blood transfusions), it

creeps me out. You make up your own minds, No one should be sold on a

treatment however without benefit of knowing the risks, alternatives

(including doing nothing) and likely outcome. Good for the mice and rats,

but unlike them I have choices and can make desicions that suit me best.

My father was dead at 46, at 47 I've already passed that milestone.

To quote I had written " I feel better about engineering artificial body

parts and synthetic and plant-based pharmaceuticals " , note this is how I

feel, and you did not notice synthetic. My father was a research chemist

and I have worked in labs from Geology to Pathology. Medicine may encompas

science as research, but I do not want a doctor who is a scientist I want a

healer. I am not a lab rat and I do not want my life played with on

hunches and theories. For my liking there is too much enthusiasm for

possible cures than for palliative care and supported living. Yes, we

should do what we can to end suffering, but I worry science eclipsing

compassion. Perhaps illnesse like MSA exist to confound and keep alive the

concept that we are all alike and all unalike, and cookie cutter

treatments don't respect that.

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You mention that you think medicine should be plant-based but that goes

against

what you say about " I am completely uncomfortable with the concept of having

the DNA God designed for one individual life put in my body " . If you were

vaccinated, you have foreign DNA in your body. Did you ever have a flu shot?

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No, never had a flu shot. I have had vaccinations as required by law

(accidentaly given a double dose of smallpox when 1 year old - almost

killed me.) Morphine is plant based and I'm fine with that when it is

needed, I'm fine with synthetic drugs to. My mother's insulin is pig

based. It is a matter of of making informed choice that you yourself are

comfortable with. Personally I would like to be put into a coma to see if

the brain on hold with act to cure itself (it's my theory). Just because

I think it a good idea does not mean it is a good idea universally. That

is all I said. My daughter want her organs donated for transplant. I do

not, but, her choice is every bit as valid as mine, mostly I respect that

she has put thought and consideration into her decision.

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No, medicine today MUST be a science. To many people today just make

statements about some " natural supplement " helping them, yet when a scientific

study is done 20 people are hurt for every person that is helped in some

cases. Or you are saved from a headache, and die of an irregular heartbeat.

Even sugar pills benefit some people, there are no absolutes (as there

need to be in exact sience). Society and your doctor should make

treatments avaiable and you make the choice. I grew up in europe where

herbal and natural remedies are considered old medicine (nothing wrong

with an old fashioned leech or maggot if used correctly), the latest

treatments are also available including transplant.

Bottom line for me, I am not a statistic, I am a human being and that is

how I want to be treated..

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Date: Sat, 15 Dec 2001 05:49:49 EST

From: Suicoaz@...

Subject: advice on anemia

Good morning,

After an interesting Friday at the ER my dad is in intensive care this

morning. At the hospital he is in he does not have access to his good

neurologist. The internist called saying for us to take him to the ER and

admit him. He made arrangements so he would not have to wait which was

great. He has very severe and unexplained anemia (hemoglobin at 5) The

doctor said it is very dangerous and we will be trying to treat him. They

plan to test to find out the cause of the anemia and took him off of the

medications he has been on for the last few years so they can try to find the

reason for the anemia. He is getting 3 units of blood right now.

Anyone have any experience with this as it relates to MSA? Can you recommend

some reading material?

Any ideas on where to look for anemia and MSA? I found one abstract from

" Movement Disorders " march 8, 2001.

I can't remember how to access the achives and everything is overwhelming

right now.

Thanks, Jean (phoenix)

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I've no idea if this helps, but I have recurring polycythemia and

occasional anemia. Polycythemia Vera has very similar symptoms to MSA and

some misdiagnosis have been noted. It turns to anemia and later leukemia

if not properly treated PV unlike MSA can be diagnosed though testing, and

at least ruled out. I'm still waiting on those tests. However my Doc told

me when your body is regulating functions unevenly due to neurological and

endocrine system malfunction, messages to make blood components can change

hemaglobin and blood cell counts.

aletta mes, vancouver, bc canada

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Site: http://wwwaletta.0catch.com