Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hello All, Well, we just recieved or second letter of denial for SSI for Zayne This has all been such a bac and forth effort. Has any one else been through it the same way? Now we are going to court. I do not undestand why the medical staff board with SI says that Zaynes disability will not go beyond 12 months, Zayne is legally deaf. Hmmmmm I just wish this was all over with them. I feel like quiting the appeals, but I also feel like I need to do it for Zayne's sake. We have all the medical necessary proof for our defense, but SSi seems to over look the facts. o now when we go to court we are taking our ECI therapist, AI Teacher, our Audiologist, and who ever else we should bring. Oh Zayne is now almost 8 mo. old and is sittng alone and is crawling and is trying to pull up. He also got his first tooth last week! The AI teacher has started Zayne in the 2-4 mo. range for Sign language. Oh almost forgot, Zayne also finally got to be on baby food, since his sick spell(hospital stay, some of you may remember)Hopefully Zayne will get to go back on enfamil Formula,instead of Alimentum...that stuff stinks, Yuk Well I hope everyone is well, I sure did wish we could have made it t New York, but we did not have the funds to atted, maybe next time uh? Thanks, and replys on this matter with SSI is greatly appreciated and Zayne..Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hello All, Well, we just recieved or second letter of denial for SSI for Zayne This has all been such a bac and forth effort. Has any one else been through it the same way? Now we are going to court. I do not undestand why the medical staff board with SI says that Zaynes disability will not go beyond 12 months, Zayne is legally deaf. Hmmmmm I just wish this was all over with them. I feel like quiting the appeals, but I also feel like I need to do it for Zayne's sake. , I sure did wish we could have made it t New York, but we did not have the funds to atted, maybe next time uh? we missed u guys too, shelley! jack Thanks, and replys on this matter with SSI is greatly appreciated ya hafta tak to sheri!!!! and Zayne..Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi - have you ever looked into the Children's Special Health Care Needs program? There is a similar program in my state and microtia and related issues are definitely covered. The program works by covering any costs that your primary health insurance does not cover as long as you have preapproval through the program. I believe it is Medicaid related but it is just for children and you pay a co-pay based on your family size and income (or you might not have to pay a co-pay if you qualify). Anyway, I found a web site with a program overview and thought it might be worth checking out: http://www.tdh.state.tx.us/cshcn/cshcn.htm Good Luck! Christi (mom of 4 yrs./unilateral microtia) > Hello All, > > Well, we just recieved or second letter of denial for SSI for Zayne > > Thanks, and replys on this matter with SSI is greatly appreciated > > and Zayne..Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi , Sorry to hear that you're having so much trouble with SSI. I think someone else had mentioned if there was the possibility of a specific children's program for your state. We have one in Michigan and it works wonderfully well. Where are you from again? So glad to hear Zayne is doing better and growing well. Many blessings to you all! Love, beth > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: 3rd go around >Date: Thu, 17 Oct 2002 22:58:32 -0000 > >Hello All, > >Well, we just recieved or second letter of denial for SSI for Zayne >This has all been such a bac and forth effort. Has any one else been >through it the same way? Now we are going to court. I do not >undestand why the medical staff board with SI says that Zaynes >disability will not go beyond 12 months, Zayne is legally deaf. >Hmmmmm I just wish this was all over with them. I feel like quiting >the appeals, but I also feel like I need to do it for Zayne's sake. >We have all the medical necessary proof for our defense, but SSi >seems to over look the facts. o now when we go to court we are taking >our ECI therapist, AI Teacher, our Audiologist, and who ever else we >should bring. > >Oh Zayne is now almost 8 mo. old and is sittng alone and is crawling >and is trying to pull up. He also got his first tooth last week! The >AI teacher has started Zayne in the 2-4 mo. range for Sign language. >Oh almost forgot, Zayne also finally got to be on baby food, since >his sick spell(hospital stay, some of you may remember)Hopefully >Zayne will get to go back on enfamil Formula,instead of >Alimentum...that stuff stinks, Yuk Well I hope everyone is well, I >sure did wish we could have made it t New York, but we did not have >the funds to atted, maybe next time uh? > >Thanks, and replys on this matter with SSI is greatly appreciated > > and Zayne..Texas > _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi , Sorry to hear that you're having so much trouble with SSI. I think someone else had mentioned if there was the possibility of a specific children's program for your state. We have one in Michigan and it works wonderfully well. Where are you from again? So glad to hear Zayne is doing better and growing well. Many blessings to you all! Love, beth > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: 3rd go around >Date: Thu, 17 Oct 2002 22:58:32 -0000 > >Hello All, > >Well, we just recieved or second letter of denial for SSI for Zayne >This has all been such a bac and forth effort. Has any one else been >through it the same way? Now we are going to court. I do not >undestand why the medical staff board with SI says that Zaynes >disability will not go beyond 12 months, Zayne is legally deaf. >Hmmmmm I just wish this was all over with them. I feel like quiting >the appeals, but I also feel like I need to do it for Zayne's sake. >We have all the medical necessary proof for our defense, but SSi >seems to over look the facts. o now when we go to court we are taking >our ECI therapist, AI Teacher, our Audiologist, and who ever else we >should bring. > >Oh Zayne is now almost 8 mo. old and is sittng alone and is crawling >and is trying to pull up. He also got his first tooth last week! The >AI teacher has started Zayne in the 2-4 mo. range for Sign language. >Oh almost forgot, Zayne also finally got to be on baby food, since >his sick spell(hospital stay, some of you may remember)Hopefully >Zayne will get to go back on enfamil Formula,instead of >Alimentum...that stuff stinks, Yuk Well I hope everyone is well, I >sure did wish we could have made it t New York, but we did not have >the funds to atted, maybe next time uh? > >Thanks, and replys on this matter with SSI is greatly appreciated > > and Zayne..Texas > _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hi , Sorry to hear that you're having so much trouble with SSI. I think someone else had mentioned if there was the possibility of a specific children's program for your state. We have one in Michigan and it works wonderfully well. Where are you from again? So glad to hear Zayne is doing better and growing well. Many blessings to you all! Love, beth > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: 3rd go around >Date: Thu, 17 Oct 2002 22:58:32 -0000 > >Hello All, > >Well, we just recieved or second letter of denial for SSI for Zayne >This has all been such a bac and forth effort. Has any one else been >through it the same way? Now we are going to court. I do not >undestand why the medical staff board with SI says that Zaynes >disability will not go beyond 12 months, Zayne is legally deaf. >Hmmmmm I just wish this was all over with them. I feel like quiting >the appeals, but I also feel like I need to do it for Zayne's sake. >We have all the medical necessary proof for our defense, but SSi >seems to over look the facts. o now when we go to court we are taking >our ECI therapist, AI Teacher, our Audiologist, and who ever else we >should bring. > >Oh Zayne is now almost 8 mo. old and is sittng alone and is crawling >and is trying to pull up. He also got his first tooth last week! The >AI teacher has started Zayne in the 2-4 mo. range for Sign language. >Oh almost forgot, Zayne also finally got to be on baby food, since >his sick spell(hospital stay, some of you may remember)Hopefully >Zayne will get to go back on enfamil Formula,instead of >Alimentum...that stuff stinks, Yuk Well I hope everyone is well, I >sure did wish we could have made it t New York, but we did not have >the funds to atted, maybe next time uh? > >Thanks, and replys on this matter with SSI is greatly appreciated > > and Zayne..Texas > _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
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