Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Hello, welcome. Both me and my 3 1/2 year old daughter Clara have a unilateral loss. Ours is not a progressive loss though, we've had it from birth. When I was in school I wish I would have said " I can't hear on that side " much more often. I would often just pretend I knew what was going on :-) I'm glad Mikey is more assertive. Have you heard about the new transear device for people with unilateral loss? http://www.transear.com/index.html I'm looking into it for both Clara and myself. There's not many people who seem to know about it, it's relatively new, but I got a hold of an audi who is going to be some kind of training about it in June so I will follow up with her next month. Anyway, thought I'd pass that on as a possible option for Mikey. Cheryl -- In Listen-Up , " nell92662 " wrote: > > Hi, > > After some thought and much encouragement from Barbara Mellert, I'm > joining in. > > My son, Mikey, is 13 and has unilateral hearing loss that was > discovered about 3 years ago and has progressed since on the one > side. He is also ADHD. After reading some things I wonder which came > first hearing loss or ADHD... chicken or egg... > > He is adjusting well. It's his mom that is taking a bit longer. I > worry and fret some. > > He isn't wearing a hearing aid. The Dr and audiologist don't believe > it would help at this point - just increase noise level and not > understanding. He is also VERY resistant at this age about > being " different " . He needed glasses and that was a struggle alone > without introducing anything else. > > He is now in the 7th grade and is doing well in school with an IEP > plus some wonderful teachers. The fact that he isn't shy and > says, " I can't hear on this side. " helps, I'm sure. :-) > > It helps to know there are other parents in the same boat and to > realize it ISN'T the Titanic. > > Thanks for listening. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Hello, welcome. Both me and my 3 1/2 year old daughter Clara have a unilateral loss. Ours is not a progressive loss though, we've had it from birth. When I was in school I wish I would have said " I can't hear on that side " much more often. I would often just pretend I knew what was going on :-) I'm glad Mikey is more assertive. Have you heard about the new transear device for people with unilateral loss? http://www.transear.com/index.html I'm looking into it for both Clara and myself. There's not many people who seem to know about it, it's relatively new, but I got a hold of an audi who is going to be some kind of training about it in June so I will follow up with her next month. Anyway, thought I'd pass that on as a possible option for Mikey. Cheryl -- In Listen-Up , " nell92662 " wrote: > > Hi, > > After some thought and much encouragement from Barbara Mellert, I'm > joining in. > > My son, Mikey, is 13 and has unilateral hearing loss that was > discovered about 3 years ago and has progressed since on the one > side. He is also ADHD. After reading some things I wonder which came > first hearing loss or ADHD... chicken or egg... > > He is adjusting well. It's his mom that is taking a bit longer. I > worry and fret some. > > He isn't wearing a hearing aid. The Dr and audiologist don't believe > it would help at this point - just increase noise level and not > understanding. He is also VERY resistant at this age about > being " different " . He needed glasses and that was a struggle alone > without introducing anything else. > > He is now in the 7th grade and is doing well in school with an IEP > plus some wonderful teachers. The fact that he isn't shy and > says, " I can't hear on this side. " helps, I'm sure. :-) > > It helps to know there are other parents in the same boat and to > realize it ISN'T the Titanic. > > Thanks for listening. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Welcome to the group! My name is Kris, and my son has a complete unilateral loss (SNL, Left Ear). I wish would remember to tell people that he isn't hearing them - instead, he just happily goes on his merry way! Looking forward to getting to know you, Kris Mom to (7 y.o., Profound/Complete SNL, Left Ear) and Ethan (6 y.o., hearing) _____ From: Listen-Up [mailto:Listen-Up ] On Behalf Of nell92662 Sent: Tuesday, May 09, 2006 2:25 PM To: Listen-Up Subject: Intro Hi, After some thought and much encouragement from Barbara Mellert, I'm joining in. My son, Mikey, is 13 and has unilateral hearing loss that was discovered about 3 years ago and has progressed since on the one side. He is also ADHD. After reading some things I wonder which came first hearing loss or ADHD... chicken or egg... He is adjusting well. It's his mom that is taking a bit longer. I worry and fret some. He isn't wearing a hearing aid. The Dr and audiologist don't believe it would help at this point - just increase noise level and not understanding. He is also VERY resistant at this age about being " different " . He needed glasses and that was a struggle alone without introducing anything else. He is now in the 7th grade and is doing well in school with an IEP plus some wonderful teachers. The fact that he isn't shy and says, " I can't hear on this side. " helps, I'm sure. :-) It helps to know there are other parents in the same boat and to realize it ISN'T the Titanic. Thanks for listening. All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Welcome to the group! My name is Kris, and my son has a complete unilateral loss (SNL, Left Ear). I wish would remember to tell people that he isn't hearing them - instead, he just happily goes on his merry way! Looking forward to getting to know you, Kris Mom to (7 y.o., Profound/Complete SNL, Left Ear) and Ethan (6 y.o., hearing) _____ From: Listen-Up [mailto:Listen-Up ] On Behalf Of nell92662 Sent: Tuesday, May 09, 2006 2:25 PM To: Listen-Up Subject: Intro Hi, After some thought and much encouragement from Barbara Mellert, I'm joining in. My son, Mikey, is 13 and has unilateral hearing loss that was discovered about 3 years ago and has progressed since on the one side. He is also ADHD. After reading some things I wonder which came first hearing loss or ADHD... chicken or egg... He is adjusting well. It's his mom that is taking a bit longer. I worry and fret some. He isn't wearing a hearing aid. The Dr and audiologist don't believe it would help at this point - just increase noise level and not understanding. He is also VERY resistant at this age about being " different " . He needed glasses and that was a struggle alone without introducing anything else. He is now in the 7th grade and is doing well in school with an IEP plus some wonderful teachers. The fact that he isn't shy and says, " I can't hear on this side. " helps, I'm sure. :-) It helps to know there are other parents in the same boat and to realize it ISN'T the Titanic. Thanks for listening. All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Welcome to the group! My name is Kris, and my son has a complete unilateral loss (SNL, Left Ear). I wish would remember to tell people that he isn't hearing them - instead, he just happily goes on his merry way! Looking forward to getting to know you, Kris Mom to (7 y.o., Profound/Complete SNL, Left Ear) and Ethan (6 y.o., hearing) _____ From: Listen-Up [mailto:Listen-Up ] On Behalf Of nell92662 Sent: Tuesday, May 09, 2006 2:25 PM To: Listen-Up Subject: Intro Hi, After some thought and much encouragement from Barbara Mellert, I'm joining in. My son, Mikey, is 13 and has unilateral hearing loss that was discovered about 3 years ago and has progressed since on the one side. He is also ADHD. After reading some things I wonder which came first hearing loss or ADHD... chicken or egg... He is adjusting well. It's his mom that is taking a bit longer. I worry and fret some. He isn't wearing a hearing aid. The Dr and audiologist don't believe it would help at this point - just increase noise level and not understanding. He is also VERY resistant at this age about being " different " . He needed glasses and that was a struggle alone without introducing anything else. He is now in the 7th grade and is doing well in school with an IEP plus some wonderful teachers. The fact that he isn't shy and says, " I can't hear on this side. " helps, I'm sure. :-) It helps to know there are other parents in the same boat and to realize it ISN'T the Titanic. Thanks for listening. All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 In a message dated 5/9/2006 5:45:15 P.M. Eastern Daylight Time, Parentsofdeafhoh@... writes: High five, Barbara, you reeled another one in! Welcome to the list. I also have a seventh grader who is about to turn 13. has a profound hearing loss and uses hearing aids. Last year, he went from colorful earmolds to plain ones that disappear. Gotta love this age. The aids are the same here, it's the hair that's different. Ian has gone from the buzz-cut look to the mass of floppy messy hair look that occasionally stands up in a thousand different directions. Now you can't see his aids, much less his ears. I am wondering how the aids could possibly be working under that mop, but he says they're fine. According to him, the trouble is he gets hair under his ear molds in the morning if he's not careful. (shrug) I think somehow I didn't get this original introduction email so I think I missed saying " welcome " to our new list-mate. I'm Jill, mom of Ian who is 15, a high school sophomore with a progressive bilateral loss currently in the moderate range. He started out with a unilateral loss, but things change and we just adapt as they do. (grin) We also have , a hearing 12-year-old. So there are days when my house is Hormone Central and I am considering moving out and getting my own apartment, not waiting for the kids to do it first. LOL Again, welcome to the list -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 Hi Zanna, welcome! Poor little Kylie—lot’s of us here just hate it that no doctor figured out what was wrong with our child after years and years of symptoms. Me included. Good for you for insisting. Good luck with the rest of the testing. Sounds like you’re finally on the right track. You might consider testing for other food intolerances as well. Though lots of Celiac are also lactose intolerant, many of us have other food intolerances also. If you don’t already, insist on using a GI doctor with a real specialty in celiac disease. Ask that doc for a referral to a nutritionist who specializes in celiac. There has to be one in your area. If she’s been mal-absorbing all these years, she’ll probably need some extra supplements to help her build back up. I’m finding my naturopath to be really helpful, more than anyone else. Definitely tell Kylie not to panic yet about the negative consequences of being celiac. So many of the symptoms completely reverse. She has lots of years before having a baby (I hope) for her body to heal and be ready for pregnancy. Don’t panic about the diet either. It’s so much easier to restrict the diet than to be deadly sick! One of our members posted a lot of So. Cal restaurants that are helpful for us some time back. I’m sure we can recover that. Laurie lbilyeu@... From: SillyYaks [mailto:SillyYaks ] On Behalf Of xanadu Sent: Monday, June 05, 2006 3:50 PM To: SillyYaks Subject: INTRO Hi! My name is Zanna. I live in So. Cal. My daughter, Kylie, age 16 is undergoing testing for celiacs. A little of her medical history: She has had problems digesting food/dairy products all her life. As an infant they put her on isomil and said that she just may have a problem digesting dairy. As she grew-very slowly, I might add, there were numerous trips the the ER for severe stomach pains. Mostly they just said it was gas/bloating and sent her home with pills. She has taken Gas-X since she was small. Around the age of 6 she starting breaking bones all over the place! Finally at age 8 after 6 broken bones in 2 years, I demanded a bone scan. She had the bone density of a 90 year old. This is what the bone specialist told us. They couldn't figure out what was causing her osteoporosis. They finally said it was from osteogenisis imperfected, of which she had no outward symptoms besides the the brittle bones. She was put on fosomax and by the time she hit puberty her bone scan was in the low normal. She has always been very tiny. I am 5'7 " , my husband is 5'10 and our 7 year old son is already 4'8 " . Kylie hit the 5' mark four years ago and hasn't grown since. She got to the point where she wanted to figure out what was making her sick as bad as we did so she cut out shell fish, that wasn't it, then dairy and for a few months was doing really good, then she started on a new diet, or eating plan of whole grains, natural foods. She lost her baby fat and we thought was doing very well. She complained to me a few weeks ago that she could hardly last through her ballet classes anymore-this never had been a problem before. She said her muscles all hurt, she was week, had tingling in her hands, just all over not doing well. And after her recent weight loss, her periods are very irregular, this time, it has not come at all. No, she is not pregnant. We talked about that too. I have been dx with three autoimmune diseases myself. I know that if AI diseases run in your family, your children have a higher chance of getting them. When we were researching we came accross the possible infertility and she freaked out. She was crying 'I want to have babies'. We did some more research and found that with the right diet, this will not be a problem. She is scared and I know thats normal but she is very much a stickler for rules and I know she can adhere to this diet. We all just have to try hard to do the same thing. Any of this sound familiar to anyone? I look forward to some advice/answers! Thank you so much, Zanna mom to Kylie age 16 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Hello Jill, Welcome as there are many new members all the time. I find this site great and was and is very helpful for my journey. I was diagnosed a year ago. Oct. 27 will be my 1 year anniversary. I have learned so much from these women and I am sure they appreciate all of our support and " been there " information. Sharon C Los Angeles 10-27-06 1.5 cm. tumor- lumpectomy 30 radiation treatments On Arimidex 5 years carpediemdaisy@... wrote: Hi everyone, I thought I would introduce myself. I was diagnosed with breast cancer 3-1/2 years ago. I had a lumpectomy, underwent radiation and chemo. I'm here because I would like to be of encouragement to others, as well as to find a group of women who have also " been there. " I feel that it is important to be in a support group. I look forward to " meeting " you all. Jill, in Central California Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.