Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 << Let me know how everything turns out. It is very hard work, but in the end it is worth it. >> I just heard back from the Early Intervention program with the school district. They are coming to our house next week for an evaluation. It will be a pathologist, psychologist, and the early childhood coordinator. I think they are doing it just to keep me quiet. I don't think he will qualify for the program. I just want to make sure. Has anyone/or anyones child with unilateral hearing required speech therapy? I'd like to hear about your experience. Thanks Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. He heard speaking when he first came in and he commented on how much he is talking. I then told him about 's microtia and unilateral hearing and how he hears 100% out of his right ear. I explained to him how he goes for hearing tests every 6 months and how his audiologist told me that kids with unilateral hearing usually do fine and do not need speech therapy but that I wanted him evaluated anyway. I also mentioned that I noticed a problem with sound localization. (I live in a 3 floor home and I notice that sometimes can't determine what floor I am on even if I am speaking loudly). He told me and my husband right off the bat that he felt will qualify since there is a clear need due to his monaural hearing. He wanted to have a hearing test done also, but I told him that is scheduled for one on March 6th and that I would give them a copy of the test results. We need to meet with the evaluator next and I guess we'll see what happens from there?? Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. He heard speaking when he first came in and he commented on how much he is talking. I then told him about 's microtia and unilateral hearing and how he hears 100% out of his right ear. I explained to him how he goes for hearing tests every 6 months and how his audiologist told me that kids with unilateral hearing usually do fine and do not need speech therapy but that I wanted him evaluated anyway. I also mentioned that I noticed a problem with sound localization. (I live in a 3 floor home and I notice that sometimes can't determine what floor I am on even if I am speaking loudly). He told me and my husband right off the bat that he felt will qualify since there is a clear need due to his monaural hearing. He wanted to have a hearing test done also, but I told him that is scheduled for one on March 6th and that I would give them a copy of the test results. We need to meet with the evaluator next and I guess we'll see what happens from there?? Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. He heard speaking when he first came in and he commented on how much he is talking. I then told him about 's microtia and unilateral hearing and how he hears 100% out of his right ear. I explained to him how he goes for hearing tests every 6 months and how his audiologist told me that kids with unilateral hearing usually do fine and do not need speech therapy but that I wanted him evaluated anyway. I also mentioned that I noticed a problem with sound localization. (I live in a 3 floor home and I notice that sometimes can't determine what floor I am on even if I am speaking loudly). He told me and my husband right off the bat that he felt will qualify since there is a clear need due to his monaural hearing. He wanted to have a hearing test done also, but I told him that is scheduled for one on March 6th and that I would give them a copy of the test results. We need to meet with the evaluator next and I guess we'll see what happens from there?? Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Patty's loss was originally mostly unilateral, and she required substantial speech therapy between ages 3 and 5. Do not let them capture you in the trap of believing that " kids with unilateral losses don't need this and don't need that. " That's what I was told when Patty was diagnosed, and I believed them -- after all, they were the " experts " . What I've come to discover and hope to communicate to every parent in the same boat I was in 7 years ago is that EVERY child is different. They cannot presumptively deny you services without testing. Print out the full letter that I excerpted earlier, and hand it to them in the meeting if they try to tell you otherwise. Stick to your guns, they are not used to dealing with parents who know their rights, they are used to dealing with parents who believe them when they say that they know more than the parents do, and those parents will then agree with all of their recommendations. Tell them you have consulted an attorney who specializes in services for hearing impaired children, and this is her recommendation :-) That'll scare them, just ask :-) :-) Demand that Braydon be tested. If the tests come back that his communicative AND receptive speech (ask for both to be checked) is age-appropriate, then you are good to go. Ask for the tests to be repeated yearly, or on an as-needed basis if you start to notice slips, problems in day care/school, or if his audiogram starts to get worse. Sheri Re: Re: Early Intervention << Let me know how everything turns out. It is very hard work, but in the end it is worth it. >> I just heard back from the Early Intervention program with the school district. They are coming to our house next week for an evaluation. It will be a pathologist, psychologist, and the early childhood coordinator. I think they are doing it just to keep me quiet. I don't think he will qualify for the program. I just want to make sure. Has anyone/or anyones child with unilateral hearing required speech therapy? I'd like to hear about your experience. Thanks Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Patty's loss was originally mostly unilateral, and she required substantial speech therapy between ages 3 and 5. Do not let them capture you in the trap of believing that " kids with unilateral losses don't need this and don't need that. " That's what I was told when Patty was diagnosed, and I believed them -- after all, they were the " experts " . What I've come to discover and hope to communicate to every parent in the same boat I was in 7 years ago is that EVERY child is different. They cannot presumptively deny you services without testing. Print out the full letter that I excerpted earlier, and hand it to them in the meeting if they try to tell you otherwise. Stick to your guns, they are not used to dealing with parents who know their rights, they are used to dealing with parents who believe them when they say that they know more than the parents do, and those parents will then agree with all of their recommendations. Tell them you have consulted an attorney who specializes in services for hearing impaired children, and this is her recommendation :-) That'll scare them, just ask :-) :-) Demand that Braydon be tested. If the tests come back that his communicative AND receptive speech (ask for both to be checked) is age-appropriate, then you are good to go. Ask for the tests to be repeated yearly, or on an as-needed basis if you start to notice slips, problems in day care/school, or if his audiogram starts to get worse. Sheri Re: Re: Early Intervention << Let me know how everything turns out. It is very hard work, but in the end it is worth it. >> I just heard back from the Early Intervention program with the school district. They are coming to our house next week for an evaluation. It will be a pathologist, psychologist, and the early childhood coordinator. I think they are doing it just to keep me quiet. I don't think he will qualify for the program. I just want to make sure. Has anyone/or anyones child with unilateral hearing required speech therapy? I'd like to hear about your experience. Thanks Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Patty's loss was originally mostly unilateral, and she required substantial speech therapy between ages 3 and 5. Do not let them capture you in the trap of believing that " kids with unilateral losses don't need this and don't need that. " That's what I was told when Patty was diagnosed, and I believed them -- after all, they were the " experts " . What I've come to discover and hope to communicate to every parent in the same boat I was in 7 years ago is that EVERY child is different. They cannot presumptively deny you services without testing. Print out the full letter that I excerpted earlier, and hand it to them in the meeting if they try to tell you otherwise. Stick to your guns, they are not used to dealing with parents who know their rights, they are used to dealing with parents who believe them when they say that they know more than the parents do, and those parents will then agree with all of their recommendations. Tell them you have consulted an attorney who specializes in services for hearing impaired children, and this is her recommendation :-) That'll scare them, just ask :-) :-) Demand that Braydon be tested. If the tests come back that his communicative AND receptive speech (ask for both to be checked) is age-appropriate, then you are good to go. Ask for the tests to be repeated yearly, or on an as-needed basis if you start to notice slips, problems in day care/school, or if his audiogram starts to get worse. Sheri Re: Re: Early Intervention << Let me know how everything turns out. It is very hard work, but in the end it is worth it. >> I just heard back from the Early Intervention program with the school district. They are coming to our house next week for an evaluation. It will be a pathologist, psychologist, and the early childhood coordinator. I think they are doing it just to keep me quiet. I don't think he will qualify for the program. I just want to make sure. Has anyone/or anyones child with unilateral hearing required speech therapy? I'd like to hear about your experience. Thanks Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 << Demand that Braydon be tested. If the tests come back that his communicative AND receptive speech (ask for both to be checked) is age-appropriate, then you are good to go. >> Thank you Sheri for your expertise!! I hope you know how much it is appreciated! We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. Jeannie is this through your school district? Thanks Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 FYI, sound localization is a skill best taught by an audiologist and not a speech therapist. This will come as a surprise to lots of people (as it did initially to me) who generally think that audiologists just run hearing tests and fit hearing aids. But there is a whole area of clinical audiology called " aural rehabilitation " that includes things like speech reading (the new PC term for lip reading), figuring out words from context when you haven't completely heard them, sound localization, and behavioural changes associated with hearing loss -- such as training children to look for cars, rather than listening for them. This is especially important if your child has any type of fluctuating or progressive hearing loss, because their brains *think* they can hear when they can't always. Patty has benefitted extensively from her aural rehabilitation therapy, which was written into her IEP and is completely provided by our school district. Once again, it's important to get someone who specializes in working with kids, most aural rehabilitation audiologists work with adult stroke / brain tumour victims. Sheri Re: Re: Early Intervention We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. He heard speaking when he first came in and he commented on how much he is talking. I then told him about 's microtia and unilateral hearing and how he hears 100% out of his right ear. I explained to him how he goes for hearing tests every 6 months and how his audiologist told me that kids with unilateral hearing usually do fine and do not need speech therapy but that I wanted him evaluated anyway. I also mentioned that I noticed a problem with sound localization. (I live in a 3 floor home and I notice that sometimes can't determine what floor I am on even if I am speaking loudly). He told me and my husband right off the bat that he felt will qualify since there is a clear need due to his monaural hearing. He wanted to have a hearing test done also, but I told him that is scheduled for one on March 6th and that I would give them a copy of the test results. We need to meet with the evaluator next and I guess we'll see what happens from there?? Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 FYI, sound localization is a skill best taught by an audiologist and not a speech therapist. This will come as a surprise to lots of people (as it did initially to me) who generally think that audiologists just run hearing tests and fit hearing aids. But there is a whole area of clinical audiology called " aural rehabilitation " that includes things like speech reading (the new PC term for lip reading), figuring out words from context when you haven't completely heard them, sound localization, and behavioural changes associated with hearing loss -- such as training children to look for cars, rather than listening for them. This is especially important if your child has any type of fluctuating or progressive hearing loss, because their brains *think* they can hear when they can't always. Patty has benefitted extensively from her aural rehabilitation therapy, which was written into her IEP and is completely provided by our school district. Once again, it's important to get someone who specializes in working with kids, most aural rehabilitation audiologists work with adult stroke / brain tumour victims. Sheri Re: Re: Early Intervention We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. He heard speaking when he first came in and he commented on how much he is talking. I then told him about 's microtia and unilateral hearing and how he hears 100% out of his right ear. I explained to him how he goes for hearing tests every 6 months and how his audiologist told me that kids with unilateral hearing usually do fine and do not need speech therapy but that I wanted him evaluated anyway. I also mentioned that I noticed a problem with sound localization. (I live in a 3 floor home and I notice that sometimes can't determine what floor I am on even if I am speaking loudly). He told me and my husband right off the bat that he felt will qualify since there is a clear need due to his monaural hearing. He wanted to have a hearing test done also, but I told him that is scheduled for one on March 6th and that I would give them a copy of the test results. We need to meet with the evaluator next and I guess we'll see what happens from there?? Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Don't you love it when the government works for US :-) Information is power !!! Such good news, even better received on a day I'm not feeling particularly well. The baby is fine, but my kidneys sure are a wreck (combination of the baby and being a Type I diabetic). They tell me I should return to normal after she is born, and if I don't, they've got good drugs they can give me then that I just can't take now. I've just had my 20th vial of blood drawn since the beginning of the year and my SO had to go out of town. So I'm feeling pretty dang sorry for myself, but this sure did perk me up. Let me know how his eval goes. 21 1/2 weeks down, 16 1/2 weeks to go . . . Sheri Re: Re: Early Intervention << Demand that Braydon be tested. If the tests come back that his communicative AND receptive speech (ask for both to be checked) is age-appropriate, then you are good to go. >> Thank you Sheri for your expertise!! I hope you know how much it is appreciated! We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. Jeannie is this through your school district? Thanks Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Don't you love it when the government works for US :-) Information is power !!! Such good news, even better received on a day I'm not feeling particularly well. The baby is fine, but my kidneys sure are a wreck (combination of the baby and being a Type I diabetic). They tell me I should return to normal after she is born, and if I don't, they've got good drugs they can give me then that I just can't take now. I've just had my 20th vial of blood drawn since the beginning of the year and my SO had to go out of town. So I'm feeling pretty dang sorry for myself, but this sure did perk me up. Let me know how his eval goes. 21 1/2 weeks down, 16 1/2 weeks to go . . . Sheri Re: Re: Early Intervention << Demand that Braydon be tested. If the tests come back that his communicative AND receptive speech (ask for both to be checked) is age-appropriate, then you are good to go. >> Thank you Sheri for your expertise!! I hope you know how much it is appreciated! We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. Jeannie is this through your school district? Thanks Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Don't you love it when the government works for US :-) Information is power !!! Such good news, even better received on a day I'm not feeling particularly well. The baby is fine, but my kidneys sure are a wreck (combination of the baby and being a Type I diabetic). They tell me I should return to normal after she is born, and if I don't, they've got good drugs they can give me then that I just can't take now. I've just had my 20th vial of blood drawn since the beginning of the year and my SO had to go out of town. So I'm feeling pretty dang sorry for myself, but this sure did perk me up. Let me know how his eval goes. 21 1/2 weeks down, 16 1/2 weeks to go . . . Sheri Re: Re: Early Intervention << Demand that Braydon be tested. If the tests come back that his communicative AND receptive speech (ask for both to be checked) is age-appropriate, then you are good to go. >> Thank you Sheri for your expertise!! I hope you know how much it is appreciated! We met with a service coordinator representative of Early Intervention today. He is going to set up an evaluation date for for speech therapy. Jeannie is this through your school district? Thanks Autumn Quote Link to comment Share on other sites More sharing options...
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