Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 What's the failed twin theory? There was some discussion on this list a while ago that Microtia/Atresia accompanied a failed twin. i.e. the pregnancy started out with twins, and one twin didn't develop, the other had Microtia/Atresia. There were some anecdotal points, but I haven't heard of any real studies, or stats supporting this theory. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 Here is the Link to the details on the failed twin theory http://www.ich.ucl.ac.uk/patients_fam/collins/columns/ears.htm regards Dianne What's the failed twin theory? There was some discussion on this list a while ago that Microtia/Atresia accompanied a failed twin. i.e. the pregnancy started out with twins, and one twin didn't develop, the other had Microtia/Atresia. There were some anecdotal points, but I haven't heard of any real studies, or stats supporting this theory. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 Thanks Dianne, I'm not quite sure how it makes me feel...kind of sad, actually. I know it's just a theory, but since this is still so new to me I'm still trying to find a "reason." I guess I'm mainly dealing with guilt here...I had the flu at about week 8 with a fever that reached 101. I know I'll never know what caused this, but I guess as parents we are always trying to find answers. Christie -----Original Message-----From: Dianne Sent: Monday, April 29, 2002 6:23 PMTo: AtresiaMicrotia Subject: RE: Re: Microtia in my area Here is the Link to the details on the failed twin theory http://www.ich.ucl.ac.uk/patients_fam/collins/columns/ears.htm regards Dianne What's the failed twin theory? There was some discussion on this list a while ago that Microtia/Atresia accompanied a failed twin. i.e. the pregnancy started out with twins, and one twin didn't develop, the other had Microtia/Atresia. There were some anecdotal points, but I haven't heard of any real studies, or stats supporting this theory. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 Funnily enough Christie, I also had a high fever of 102 when I was 8 weeks and I still think this had something to do with it although I will never now for certain. Regards Dianne -----Original Message----- From: Christie Weiss Sent: 30 April 2002 02:27 To: AtresiaMicrotia Subject: RE: Re: Microtia in my area Thanks Dianne, I'm not quite sure how it makes me feel...kind of sad, actually. I know it's just a theory, but since this is still so new to me I'm still trying to find a " reason. " I guess I'm mainly dealing with guilt here...I had the flu at about week 8 with a fever that reached 101. I know I'll never know what caused this, but I guess as parents we are always trying to find answers. Christie -----Original Message----- From: Dianne Sent: Monday, April 29, 2002 6:23 PM To: AtresiaMicrotia Subject: RE: Re: Microtia in my area Here is the Link to the details on the failed twin theory http://www.ich.ucl.ac.uk/patients_fam/collins/columns/ears.htm regards Dianne What's the failed twin theory? There was some discussion on this list a while ago that Microtia/Atresia accompanied a failed twin. i.e. the pregnancy started out with twins, and one twin didn't develop, the other had Microtia/Atresia. There were some anecdotal points, but I haven't heard of any real studies, or stats supporting this theory. Steve To unsubscribe from this group, send an email to: AtresiaMicrotia-unsubscribe Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. To unsubscribe from this group, send an email to: AtresiaMicrotia-unsubscribe Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 << I know it's just a theory, but since this is still so new to me I'm still trying to find a " reason. " >> (((Christie))) Hugs. I know this is hard. Brayden is 18 months and I still wonder what and why somedays. I did have a confirmed failed twin pregnancy with my second son so I wonder if the same happen with my pregnancy with Brayden??? or was it because I was too stressed, or or or. The list goes on and we may never know. We have to try to put it behind us and take the time/energy we are spending on worring about why and use it to help our little ones now. My younger brother is now 22. He was born with a birth defect and my mother says she still wonders why? What? So I suppose it will never go away but we need to just keep looking forward. Take Care Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 Thanks Dianne, I'm not quite sure how it makes me feel...kind of sad, actually. I know it's just a theory, but since this is still so new to me I'm still trying to find a "reason." I guess I'm mainly dealing with guilt here...I had the flu at about week 8 with a fever that reached 101. I know I'll never know what caused this, but I guess as parents we are always trying to find answers. Christie christie you'll feel better when its all behind you. and one day soon, it WILL be, like at about age 7. then you'll feel as wonderful as dianne does when YOU will help somebody who needs it! jack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 We have to try to put it behind us and take the time/energy we are spending on worring about why and use it to help our little ones now. My younger brother is now 22. He was born with a birth defect and my mother says she still wonders why? What? So I suppose it will never go away but we need to just keep looking forward. Take Care Autumn my son is 27 and we put it all behind us 20 years ago. since then we've been too busy and happy helping others behind us find out all they can about getting the same help we did. this group is the BEST example of why we dont look back.. were too busy looking forward at all of YOUR beautiful kids! jack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 I have just started recieving info from the Birth Defects Registry. With the first mail, there was a very extensive survey about everything I was doing before I fell pregnant, (ie: where I was living, what employment I was in, medications I was taking before I fell pregnant etc), while I was pregnant, all about both parents family history etc. etc. etc. It was fascinating. I hope with all the feedback they receive, they may be able to come up with something! Microtia in my area > > > Brayden has starting meeting with the deaf/hoh teacher for our school > district once a week. She just informed me that there is another little > boy(same age) she will start teaching next month with unilateral microtia > like Brayden. There is also a little boy in Kindergarten she works with. > Last week we met with a doctor (not our usual one) and she said she has > recently seen 4 cases in our area (talking county not city). It just made > me > curious about the whole theory on environment being involved in the cause. > Just curious if others have come across others with microtia in there areas. > I know this could vary widely. We live in a populated area. This is just a > curiosity of course. I don't expect to solve the theory > I'm very anxious to meet this other family. I hope they are willing. > Autumn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 hi rebecca... yep! i have filled that in too! perhaps everyone in this group should sign up - then they would be able to come up more conclusive results!?!??? interested?? Re: Microtia in my area I have just started recieving info from the Birth Defects Registry. With the first mail, there was a very extensive survey about everything I was doing before I fell pregnant, (ie: where I was living, what employment I was in, medications I was taking before I fell pregnant etc), while I was pregnant, all about both parents family history etc. etc. etc. It was fascinating. I hope with all the feedback they receive, they may be able to come up with something! Microtia in my area > > > Brayden has starting meeting with the deaf/hoh teacher for our school > district once a week. She just informed me that there is another little > boy(same age) she will start teaching next month with unilateral microtia > like Brayden. There is also a little boy in Kindergarten she works with. > Last week we met with a doctor (not our usual one) and she said she has > recently seen 4 cases in our area (talking county not city). It just made > me > curious about the whole theory on environment being involved in the cause. > Just curious if others have come across others with microtia in there areas. > I know this could vary widely. We live in a populated area. This is just a > curiosity of course. I don't expect to solve the theory > I'm very anxious to meet this other family. I hope they are willing. > Autumn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 << interested?? >> Could you forward some more information on the this? Thanks Autumn Quote Link to comment Share on other sites More sharing options...
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