Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Well, I guess everyone's good and mad at me now! I'm SORRY. " Sick of it " was much too harsh. It's just that the topic keeps coming up over and over and since the mystery is basically unsolvable without conducting a huge research study, it all seems so pointless. But you're right, I need to keep in mind that a lot of people in this group are still coming to grips with their kids' M/A, and this is a discussion AND support group, and I'm sorry, really, if my ill-chosen words added to anyone's stress levels. Pax from a chastened (mom of Eva!) >Although reading people's constant speculation about >causes of microtia can be frustrating for those of us who >are past it, it is important to remember that we all come >from a very wide variety of circumstances and >experiences. In my case, I obsessed about causes because >in Cameron's first 48 hours on this earth, instead of >being treated with kindness and compassion by the hospital >staff, I was treated like a careless drug addict. That >led me to believe that I must have done something terribly >wrong - and so began a year-long guilt-filled quest to >determine what I could have done to cause microtia in my >child. I exhausted and frustrated everyone around me, but >it was a phase I had to go through to finally let myself >off the hook. When pregnant with Cameron I drank only >bottled water, and ate all organic food, exercised >moderately and regularly, ate no chocolate or caffeine and >very little processed food, and took no medications what->so-ever (not even tu! ms or Tylenol). I started taking >prenatal vitamins three months prior to trying to >conceive. I took excetional care of myself - and still he >has microtia. With my second son I completely gave up >the martyrism! I ate donuts almost every day, indulged in >any food that sounded good and enjoyed my pregnancy. He >was not born with microtia, but he did have a freak tumor >in his tibia that we didn't discover until he broke his >leg when he was 2. I know I didn't do anything to cause >it - crap just happens! But everyone has to take their >own path to this conclusion (or whatever conclusion they >reach) and if whether that path is short or drawn-out and >traumatic, it's a completely individual journey. So in >order to be supportive, I just try to remain objective and >I appreciate all the support I've received from this group! > > Lyn > (Cameron - unilateral microtia/atresia) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Not mad at all. Thanks for understanding. > Well, I guess everyone's good and mad at me now! I'm SORRY. " Sick of it " was much too harsh. It's just that the topic keeps coming up over and over and since the mystery is basically unsolvable without conducting a huge research study, it all seems so pointless. But you're right, I need to keep in mind that a lot of people in this group are still coming to grips with their kids' M/A, and this is a discussion AND support group, and I'm sorry, really, if my ill- chosen words added to anyone's stress levels. > > Pax from a chastened (mom of Eva!) > > > >Although reading people's constant speculation about >causes of microtia can be frustrating for those of us who >are past it, it is important to remember that we all come >from a very wide variety of circumstances and >experiences. In my case, I obsessed about causes because >in Cameron's first 48 hours on this earth, instead of >being treated with kindness and compassion by the hospital >staff, I was treated like a careless drug addict. That >led me to believe that I must have done something terribly >wrong - and so began a year-long guilt-filled quest to >determine what I could have done to cause microtia in my >child. I exhausted and frustrated everyone around me, but >it was a phase I had to go through to finally let myself >off the hook. When pregnant with Cameron I drank only >bottled water, and ate all organic food, exercised >moderately and regularly, ate no chocolate or caffeine and >very little processed food, and took no medications what->so-ever (not even tu! > ms or Tylenol). I started taking >prenatal vitamins three months prior to trying to >conceive. I took excetional care of myself - and still he >has microtia. With my second son I completely gave up >the martyrism! I ate donuts almost every day, indulged in >any food that sounded good and enjoyed my pregnancy. He >was not born with microtia, but he did have a freak tumor >in his tibia that we didn't discover until he broke his >leg when he was 2. I know I didn't do anything to cause >it - crap just happens! But everyone has to take their >own path to this conclusion (or whatever conclusion they >reach) and if whether that path is short or drawn- out and >traumatic, it's a completely individual journey. So in >order to be supportive, I just try to remain objective and >I appreciate all the support I've received from this group! > > > > Lyn > > (Cameron - unilateral microtia/atresia) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 , I doubt that anyone is mad at you. I think most of us just wanted it to be known to all of the new people that they should feel free to discuss whatever concerns/questions they have without wondering "how many times" it's been discussed before. It sounds like the group is getting several new people a week and I would hate for anyone to feel they aren't welcomed to discuss things here, as this group has truly been my "peace" and blessing. I'm not mad, and I'm sending you {{{hugs}}} Christie and , 1 year old (bilateral microtia/left atresia/right stenosis) with a BCHA -----Original Message-----From: _Tidey@... Sent: Tuesday, February 18, 2003 5:14 PMTo: AtresiaMicrotia Subject: meds againSensitivity: ConfidentialWell, I guess everyone's good and mad at me now! I'm SORRY. "Sick of it" was much too harsh. It's just that the topic keeps coming up over and over and since the mystery is basically unsolvable without conducting a huge research study, it all seems so pointless. But you're right, I need to keep in mind that a lot of people in this group are still coming to grips with their kids' M/A, and this is a discussion AND support group, and I'm sorry, really, if my ill-chosen words added to anyone's stress levels.Pax from a chastened (mom of Eva!)>Although reading people's constant speculation about >causes of microtia can be frustrating for those of us who >are past it, it is important to remember that we all come >from a very wide variety of circumstances and >experiences. In my case, I obsessed about causes because >in Cameron's first 48 hours on this earth, instead of >being treated with kindness and compassion by the hospital >staff, I was treated like a careless drug addict. That >led me to believe that I must have done something terribly >wrong - and so began a year-long guilt-filled quest to >determine what I could have done to cause microtia in my >child. I exhausted and frustrated everyone around me, but >it was a phase I had to go through to finally let myself >off the hook. When pregnant with Cameron I drank only >bottled water, and ate all organic food, exercised >moderately and regularly, ate no chocolate or caffeine and >very little processed food, and took no medications what->so-ever (not even tu!ms or Tylenol). I started taking >prenatal vitamins three months prior to trying to >conceive. I took excetional care of myself - and still he >has microtia. With my second son I completely gave up >the martyrism! I ate donuts almost every day, indulged in >any food that sounded good and enjoyed my pregnancy. He >was not born with microtia, but he did have a freak tumor >in his tibia that we didn't discover until he broke his >leg when he was 2. I know I didn't do anything to cause >it - crap just happens! But everyone has to take their >own path to this conclusion (or whatever conclusion they >reach) and if whether that path is short or drawn-out and >traumatic, it's a completely individual journey. So in >order to be supportive, I just try to remain objective and >I appreciate all the support I've received from this group!> > Lyn> (Cameron - unilateral microtia/atresia)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Ditto for me ! Hugs and all! In fact, your incredible daughter has an equally incredible mom! Peace, beth > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia > >Subject: RE: meds again >Date: Tue, 18 Feb 2003 18:19:27 -0500 > >, > >I doubt that anyone is mad at you. I think most of us just wanted it to be >known to all of the new people that they should feel free to discuss >whatever concerns/questions they have without wondering " how many times " >it's been discussed before. It sounds like the group is getting several >new >people a week and I would hate for anyone to feel they aren't welcomed to >discuss things here, as this group has truly been my " peace " and blessing. > >I'm not mad, and I'm sending you {{{hugs}}} > >Christie and , 1 year old (bilateral microtia/left atresia/right >stenosis) with a BCHA > meds again > Sensitivity: Confidential > > > Well, I guess everyone's good and mad at me now! I'm SORRY. " Sick of it " >was much too harsh. It's just that the topic keeps coming up over and over >and since the mystery is basically unsolvable without conducting a huge >research study, it all seems so pointless. But you're right, I need to keep >in mind that a lot of people in this group are still coming to grips with >their kids' M/A, and this is a discussion AND support group, and I'm sorry, >really, if my ill-chosen words added to anyone's stress levels. > > Pax from a chastened (mom of Eva!) > > > >Although reading people's constant speculation about >causes of >microtia >can be frustrating for those of us who >are past it, it is important to >remember that we all come >from a very wide variety of circumstances and > >experiences. In my case, I obsessed about causes because >in Cameron's >first 48 hours on this earth, instead of >being treated with kindness and >compassion by the hospital >staff, I was treated like a careless drug >addict. That >led me to believe that I must have done something terribly > >wrong - and so began a year-long guilt-filled quest to >determine what I >could have done to cause microtia in my >child. I exhausted and frustrated >everyone around me, but >it was a phase I had to go through to finally let >myself >off the hook. When pregnant with Cameron I drank only >bottled >water, and ate all organic food, exercised >moderately and regularly, ate >no >chocolate or caffeine and >very little processed food, and took no >medications what->so-ever (not even tu! > ms or Tylenol). I started taking >prenatal vitamins three months prior >to >trying to >conceive. I took excetional care of myself - and still he >has >microtia. With my second son I completely gave up >the martyrism! I >ate >donuts almost every day, indulged in >any food that sounded good and >enjoyed >my pregnancy. He >was not born with microtia, but he did have a freak >tumor > >in his tibia that we didn't discover until he broke his >leg when he was >2. >I know I didn't do anything to cause >it - crap just happens! But everyone >has to take their >own path to this conclusion (or whatever conclusion they > >reach) and if whether that path is short or drawn-out and >traumatic, >it's >a completely individual journey. So in >order to be supportive, I just try >to remain objective and >I appreciate all the support I've received from >this group! > > > > Lyn > > (Cameron - unilateral microtia/atresia) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Well said, Christie. Mad? No way. Lord knows I drove at least a dozen people crazy with my constant speculation, so it's a perfectly understandable reaction. Lyn Quote Link to comment Share on other sites More sharing options...
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