Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 LeeAnn: have you considered getting a " medical loan " ? The companyis MEDFUN. Their # is 1 800 763-3386 and they finance medical procedures. they've helped many in your shoes!! Debi Mahler Mahler & Co. Graniterock's 1998 Golden Chain Award Recipient mahlerco@... Office:831 637-0632 Alpha pager: 1800 225-0256 Pin#104607 ---------- To: bandsters (AT) onelist (DOT) com Subject: Introduction Date: Friday, April 02, 1999 12:01 PM Hi all! I thought I'd better delurk and introduce myself. =) My name is Leann and I am " pre-op " . I want this surgery so badly, I can't believe it. I will be going to Monterrey to have it done (as soon as we can find the $$$$$). I am from the Pacific Northwest (Renton to be exact) and think this list is a great idea! If anyone has an unlce Guido who may be interested in doing a private loan for the money, let me know ;-) Thanks! Leann =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 IT'S MEDFUND. DDDDDDDDDDDDDDDDDD ON THE END!! Debi Mahler Mahler & Co. Graniterock's 1998 Golden Chain Award Recipient mahlerco@... Office:831 637-0632 Alpha pager: 1800 225-0256 Pin#104607 ---------- To: bandsters (AT) onelist (DOT) com Subject: Introduction Date: Friday, April 02, 1999 12:01 PM Hi all! I thought I'd better delurk and introduce myself. =) My name is Leann and I am " pre-op " . I want this surgery so badly, I can't believe it. I will be going to Monterrey to have it done (as soon as we can find the $$$$$). I am from the Pacific Northwest (Renton to be exact) and think this list is a great idea! If anyone has an unlce Guido who may be interested in doing a private loan for the money, let me know ;-) Thanks! Leann =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 1999 Report Share Posted April 2, 1999 Thanks for the tip... I've never heard of them.... Introduction > Date: Friday, April 02, 1999 12:01 PM > > Hi all! > > I thought I'd better delurk and introduce myself. =) My name is Leann and > I am " pre-op " . I want this surgery so badly, I can't believe it. I will > be going to Monterrey to have it done (as soon as we can find the $$$$$). > I am from the Pacific Northwest (Renton to be exact) and think this list is > a great idea! If anyone has an unlce Guido who may be interested in doing > a private loan for the money, let me know ;-) > > Thanks! > > Leann =) > > > ------------------------------------------------------------------------ > New hobbies? New curiosities? New enthusiasms? > http://www.onelist.com > Sign up for a new email list today > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Wendi, Our son was just turning two when our second arrived, and before her birth I had also wondered a lot about how I would deal with co-sleeping, needing to be held together, etc., since my son is an intense child (not quite classically high-need). Once our daughter was born, our son was happy to have daddy home for extra personal attention, but I really found that by worrying in advance I didn't have to worry in the actuality. Amy Lynnmother to 1-25-98 and 2-10-00Want great toys? Non-violent, educational, fun! check out www.discoverytoysinc.com, or e-mail me privately for a catalog Michele, I sure hope so. Right now he isn't acting mature at all! LOL He has been really trying lately and I am worn out. I guess I am just imagining having a baby right now and wondering how I would deal with it. Thanks for the reassurances. I am sure I will need more as time goes by. LOL Wendi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Amy Lynn, thanks. I am already feeling better about it. I have thought of a few different arrangements that would allow me to care for both at night. As Michele said I am sure Zaid will mature a lot in the next few months. I am just so glad I have somewhere to talk about this because my family certainly wouldn't understand. LOL Wendi http://www.lactivist.com "When individuals have been born gently, welcomed kindly into the community, breastfed for many years, they do not become greedy people. They come from a place of fullness and balance with all our relations." Jeannine Parvati Baker -----Original Message-----From: Amy and Bill Sent: Wednesday, December 06, 2000 2:39 PMTo: breastfeeding (AT) eSubject: Re: Introduction Wendi, Our son was just turning two when our second arrived, and before her birth I had also wondered a lot about how I would deal with co-sleeping, needing to be held together, etc., since my son is an intense child (not quite classically high-need). Once our daughter was born, our son was happy to have daddy home for extra personal attention, but I really found that by worrying in advance I didn't have to worry in the actuality. Amy Lynnmother to 1-25-98 and 2-10-00Want great toys? Non-violent, educational, fun! check out www.discoverytoysinc.com, or e-mail me privately for a catalog Michele, I sure hope so. Right now he isn't acting mature at all! LOL He has been really trying lately and I am worn out. I guess I am just imagining having a baby right now and wondering how I would deal with it. Thanks for the reassurances. I am sure I will need more as time goes by. LOL Wendi Give the Gift of Life Breastfeed!http://www.lactivist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Welcome ! I think it is great that you have joined our list. I am a SAHM to 25 month old and 7 month old Mikayla Joy. I nursed for 7 months and unfortunately I was given her bottles and she refused to nurse. I joined this list to become more educated about bfing so that didn't happen again and it has helped me a great deal. Kayla has pretty bad reflux so we have had a lot of problems with bfing that we are working on. Hope you enjoy chatting with us. > Hi everyone. I have just subscribed to this list and given the apparent > influx of new (and rather strange!) people with the yahoo merger I thought I > better introduce myself quickly before I got thrown out! > > My name is and I have 2 daughters - Caitlin 4 1/2 and Mia 18 months. > Both were breastfed until around 15 months when they both gave up on their > own :-( > > The reason that I have joined this list is that I am training to be a > breastfeeding counsellor in England - I hope it is ok for me to listen in > and learn from you and hopefully I may be able to contribute sometimes as > well! Must admit - when I joined up I didn't realise that this was an > American list - hope you don't mind a foreigner on board! > > I find some things that you do a bit different to over here but, some things > are sadly the same - such as the formula companies doing their best to push > their products onto everyone. > > Think thats about it for now - looking forward to hearing and learning more! > > > > > > Give the Gift of Life Breastfeed! > http://www.lactivist.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 > < American list - hope you don't mind a foreigner on board!>> > > I hope this isn't an American list! (I'm Canadian!) > Sorry didn't mean to generalise! Apologies to all Canadians on the list!!! (and any other foreigners for that matter!) Haven't seen any other Europeans yet........... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2001 Report Share Posted February 3, 2001 Risa, Welcome to the list. Wendi Introduction Hi, I'm Risa, mommy to born January 7, 2000. We are loving our breastfeeding relationship. She nurses anywhere from 6 to 8 times a day. She sleeps through the night some nights and other nights she doesn't. Right now she is getting 2 teeth in, an eye tooth and a molar. She has 8 teeth. My husband is Mike and we have been married 3 years in May. I plan to nurse til she is about 3 or whenever she decides to stop :) Risa Give the Gift of Life Breastfeed! http://www.lactivist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2001 Report Share Posted February 3, 2001 Thanks Wendi :) Wendi wrote: Risa, Welcome to the list. Wendi Introduction Hi, I'm Risa, mommy to born January 7, 2000. We are loving our breastfeeding relationship. She nurses anywhere from 6 to 8 times a day. She sleeps through the night some nights and other nights she doesn't. Right now she is getting 2 teeth in, an eye tooth and a molar. She has 8 teeth. My husband is Mike and we have been married 3 years in May. I plan to nurse til she is about 3 or whenever she decides to stop :) Risa Give the Gift of Life Breastfeed! http://www.lactivist.com Give the Gift of Life Breastfeed! http://www.lactivist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 I guess I wanted to officially come out of "lurkdom" and let you all know I'm here...and a little overwhelmed! What a great wealth of knowledge you all are. Congradulations on your "comming out" My name is Christie and I have a 4-week-old son, , that has Aural Atresia Microtia. His left ear has a lobe and just looks like the top part of the ear got folded over and grew to his head and his right ear is what I think you all refer to as a "teeny?" ear. We aren't sure yet if he is hearing out of that ear. At the hospital where he was born (a local county hospital) he failed the hearing test, but for the last couple of weeks I've noticed him startling some at loud noises. was similar. When he was born, the Dr. couldn't tell if his ear canals actually went in. Turns out they didn't, they go in a little ways, but then are blocked off. This automatically meant he at least had a moderate hearing loss (~60dB). But we still didn't know if there were other factors and whether there was any heraing at all. We didn't know if could hear, but we noticed too that he would startle to some loud noises. But be careful here, it is hard to tell. We never really knew if it was the loud noise, or the movement that caused the loud noise. We tried the bang on a pot thing and see if we got a reaction etc. But nothing was conclusive. There was one thing I tried that I think convinced me that he could hear a little. I am not sure how to describe it, but I made a loud "kissing" noise right next to his ear. Whenever I did this, he would stop moving, and his bottom lip would start to quiver. Since he wasn't used to hearing sounds, I think he was quite confused at what was happening, and got scared. Of course he was comforted immediately afterward. Again we weren't sure if it was the sound or not, so I did the exact same actions, but with no sound. No reaction. Be careful doing this, if you were to do this with someone with normal hearing, the volume of the sound would be very uncomfortable, and possibly damage their hearing. Try with quieter sounds first. We have been to a pediatric ENT and they will put him under general anesthesia after he's two-months to do an ABR test (I have no idea what that is, except for a hearing test) and possibly a CT scan. We knew had some hearing after he had his ABR (I think when he was 3-4months old). Although they gave him a sedative. I don't think it was the same as a general anesthetic. Basically they gave him an eyedropper full of some orange liquid (I don't remember what it was), and about 15 min later, he was sound asleep. He woke up a few hours later. After he was asleep, they put sticky electrodes in various places on his head, and then tried headphones as well as a bone conductor. They would send out a series of "clicks" and watch the response picked up from the electrodes. From the responses, the technician could tell if the cochlea was receiving the signal and passing it to the brain. This coming Monday his regular pediatrician has scheduled an ultrasound to check his kidneys. Does it sound like we're on the right track for this? Yup. Ears and kidneys develop at the same time in the womb, so they should be checked. Also, there should be a test to double check his heart ( had an ECG). To be honest, I haven't researched this too much yet. I found a couple of websites and read a little, but I got too overwhelmed and started worrying too much about the "what if's." I think I'm ready to start learning everything I can now and I guess I'm coming to all of you for any advice/help you care to offer. Are there any websites out there that would be a good place to start? There is some information on my web site... http://www.pde.com/~kazemir and you will find some other links on the Atresia/Microtia Yahoo Group website http://groups.yahoo.com/group/AtresiaMicrotia/ click on bookmarks. Just from reading some of your emails I am wondering what HFM is and also Treacher ? Also, is Microtia part of this defect, or is Microtia something else (I know that is a silly question, but I've seen this referred to just as Aural Atresia, and then other times Aural Atresia Microtia). There is no such thing as a silly question. The only silly question is the one that isn't asked. I am not an expert on HFM or Treacher , I'll leave these definitions to others on this list. But Microtia and Atresia are often associated with these syndromes. Aural Atresia is the closing of the ear canal. Microtia is the term for an underdeveloped outer ear (Anotia is the complete absence of an outer ear). We had to his one-month appointment today and the pediatrician also noticed that one side of his tongue when he cries comes up more than the other. He wants us ask the ENT about this when we saw him next, but do any of you know if this is an indication of something else wrong? I don't know about this one...Anyone else have experience here? To me this sounds like a fairly minor thing, and could be normal. But I think it is a good idea to ask the ENT. Christie, mommy to Zachary (2 years) and (4 weeks) Good to hear from you Christie!! Keep asking the questions! Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Same here -- Patty's ABR was at 4 months and she did not require sedation. The CT is harder, for the ABR the kids just need to be asleep (some movement doesn't invalidate the test). For the CT, even if the child moves a fraction of an inch, the whole thing has to be re-done. You could wait on the CT until your son is old enough to sit still on demand for a few minutes (which would have to be at least age 3) but then you will miss the early discovery of enlarged vestibular aquaducts and fused middle ear bones. Because enlarged vestibular aquaducts cause progressive loss that can be somewhat prevented, it is important to find this out early. When Patty had her CT done (about 6 years ago), it took 20 minutes. I hear from friend of mine that the new Siemans spiral scanner will now do the same scan in less than 3 minutes. Sheri -----Original Message-----From: Christie Weiss Sent: Saturday, March 09, 2002 4:09 PMTo: AtresiaMicrotia Subject: RE: Introduction Thanks for the info. Jean. When they call to set a definite date I think I'll ask them about this. General anesthesia absolutely terrifies me with him being so small. Christie -----Original Message-----From: Jean11375@... Sent: Saturday, March 09, 2002 10:55 AMTo: AtresiaMicrotia Subject: Re: Introduction We have been to a pediatric ENT and they will put him under general anesthesia after he's two-months to do an ABR test (I have no idea what that is, except for a hearing test) and possibly a CT scan. Hi and welcome!I just wanted to say that my son had an ABR test when he was 8 weeks old also. I scheduled the test around the time he would be taking a feeding and a nap. I held him on my lap gave him a bottle and a couple of minutes he was sound asleep-- no meds at all. The test is very short and not really bothersome, its just that they need to hold still. (Of course if they feel the CT scan is necessary now, than he would need sedation anyway). Jean ('s mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Steve, Thanks for all of the information. You have a GREAT website. Do you mind if I put a link on my website to it? Absolutely! Please do. You could also put a link to the Yahoo Atresia/Microtia group if you want... http://groups.yahoo.com/group/AtresiaMicrotia Could you pass on your web page address? I for one would be interested in seeing yours. Steve Christie -----Original Message-----From: Steve Kazemir Sent: Friday, March 08, 2002 5:48 PMTo: AtresiaMicrotia Subject: RE: Introduction I guess I wanted to officially come out of "lurkdom" and let you all know I'm here...and a little overwhelmed! What a great wealth of knowledge you all are. Congradulations on your "comming out" My name is Christie and I have a 4-week-old son, , that has Aural Atresia Microtia. His left ear has a lobe and just looks like the top part of the ear got folded over and grew to his head and his right ear is what I think you all refer to as a "teeny?" ear. We aren't sure yet if he is hearing out of that ear. At the hospital where he was born (a local county hospital) he failed the hearing test, but for the last couple of weeks I've noticed him startling some at loud noises. was similar. When he was born, the Dr. couldn't tell if his ear canals actually went in. Turns out they didn't, they go in a little ways, but then are blocked off. This automatically meant he at least had a moderate hearing loss (~60dB). But we still didn't know if there were other factors and whether there was any heraing at all. We didn't know if could hear, but we noticed too that he would startle to some loud noises. But be careful here, it is hard to tell. We never really knew if it was the loud noise, or the movement that caused the loud noise. We tried the bang on a pot thing and see if we got a reaction etc. But nothing was conclusive. There was one thing I tried that I think convinced me that he could hear a little. I am not sure how to describe it, but I made a loud "kissing" noise right next to his ear. Whenever I did this, he would stop moving, and his bottom lip would start to quiver. Since he wasn't used to hearing sounds, I think he was quite confused at what was happening, and got scared. Of course he was comforted immediately afterward. Again we weren't sure if it was the sound or not, so I did the exact same actions, but with no sound. No reaction. Be careful doing this, if you were to do this with someone with normal hearing, the volume of the sound would be very uncomfortable, and possibly damage their hearing. Try with quieter sounds first. We have been to a pediatric ENT and they will put him under general anesthesia after he's two-months to do an ABR test (I have no idea what that is, except for a hearing test) and possibly a CT scan. We knew had some hearing after he had his ABR (I think when he was 3-4months old). Although they gave him a sedative. I don't think it was the same as a general anesthetic. Basically they gave him an eyedropper full of some orange liquid (I don't remember what it was), and about 15 min later, he was sound asleep. He woke up a few hours later. After he was asleep, they put sticky electrodes in various places on his head, and then tried headphones as well as a bone conductor. They would send out a series of "clicks" and watch the response picked up from the electrodes. From the responses, the technician could tell if the cochlea was receiving the signal and passing it to the brain. This coming Monday his regular pediatrician has scheduled an ultrasound to check his kidneys. Does it sound like we're on the right track for this? Yup. Ears and kidneys develop at the same time in the womb, so they should be checked. Also, there should be a test to double check his heart ( had an ECG). To be honest, I haven't researched this too much yet. I found a couple of websites and read a little, but I got too overwhelmed and started worrying too much about the "what if's." I think I'm ready to start learning everything I can now and I guess I'm coming to all of you for any advice/help you care to offer. Are there any websites out there that would be a good place to start? There is some information on my web site... http://www.pde.com/~kazemir and you will find some other links on the Atresia/Microtia Yahoo Group website http://groups.yahoo.com/group/AtresiaMicrotia/ click on bookmarks. Just from reading some of your emails I am wondering what HFM is and also Treacher ? Also, is Microtia part of this defect, or is Microtia something else (I know that is a silly question, but I've seen this referred to just as Aural Atresia, and then other times Aural Atresia Microtia). There is no such thing as a silly question. The only silly question is the one that isn't asked. I am not an expert on HFM or Treacher , I'll leave these definitions to others on this list. But Microtia and Atresia are often associated with these syndromes. Aural Atresia is the closing of the ear canal. Microtia is the term for an underdeveloped outer ear (Anotia is the complete absence of an outer ear). We had to his one-month appointment today and the pediatrician also noticed that one side of his tongue when he cries comes up more than the other. He wants us ask the ENT about this when we saw him next, but do any of you know if this is an indication of something else wrong? I don't know about this one...Anyone else have experience here? To me this sounds like a fairly minor thing, and could be normal. But I think it is a good idea to ask the ENT. Christie, mommy to Zachary (2 years) and (4 weeks) Good to hear from you Christie!! Keep asking the questions! Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 find this out early. When Patty had her CT done (about 6 years ago), it took 20 minutes. I hear from friend of mine that the new Siemans spiral scanner will now do the same scan in less than 3 minutes. had a CT scan recently. They told us that at that age (6 1/2) some kids could lie still long enough by themselves, and some couldn't and would require sedation (younger children almost always require it). did great by himself. The actual scan itself only took 30 seconds or so, and I was allowed to stay beside for it, with a lead apron on of course (the only problem with this is that couldn't really see me, nor could he hear me with no aid on, but I held his hand and I think that helps). However, had to lie still for longer than just the scan. They lay him down, and try to secure his head with Velcro straps etc. Then the technician has to align the machine, and that takes a few minutes. So the lie still time is probably around 3 to 5 minutes. Steve Sheri -----Original Message-----From: Christie Weiss Sent: Saturday, March 09, 2002 4:09 PMTo: AtresiaMicrotia Subject: RE: Introduction Thanks for the info. Jean. When they call to set a definite date I think I'll ask them about this. General anesthesia absolutely terrifies me with him being so small. Christie -----Original Message-----From: Jean11375@... Sent: Saturday, March 09, 2002 10:55 AMTo: AtresiaMicrotia Subject: Re: Introduction We have been to a pediatric ENT and they will put him under general anesthesia after he's two-months to do an ABR test (I have no idea what that is, except for a hearing test) and possibly a CT scan. Hi and welcome!I just wanted to say that my son had an ABR test when he was 8 weeks old also. I scheduled the test around the time he would be taking a feeding and a nap. I held him on my lap gave him a bottle and a couple of minutes he was sound asleep-- no meds at all. The test is very short and not really bothersome, its just that they need to hold still. (Of course if they feel the CT scan is necessary now, than he would need sedation anyway). Jean ('s mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Sure, it hasn't been updated since I announced ' birth, but someday soon I'm hoping to add a page for . http://www.weiss10.homestead.com Christie -----Original Message-----From: Steve Kazemir Sent: Monday, March 11, 2002 12:59 PMTo: AtresiaMicrotia Subject: RE: Introduction Steve, Thanks for all of the information. You have a GREAT website. Do you mind if I put a link on my website to it? Absolutely! Please do. You could also put a link to the Yahoo Atresia/Microtia group if you want... http://groups.yahoo.com/group/AtresiaMicrotia Could you pass on your web page address? I for one would be interested in seeing yours. Steve Christie -----Original Message-----From: Steve Kazemir Sent: Friday, March 08, 2002 5:48 PMTo: AtresiaMicrotia Subject: RE: Introduction I guess I wanted to officially come out of "lurkdom" and let you all know I'm here...and a little overwhelmed! What a great wealth of knowledge you all are. Congradulations on your "comming out" My name is Christie and I have a 4-week-old son, , that has Aural Atresia Microtia. His left ear has a lobe and just looks like the top part of the ear got folded over and grew to his head and his right ear is what I think you all refer to as a "teeny?" ear. We aren't sure yet if he is hearing out of that ear. At the hospital where he was born (a local county hospital) he failed the hearing test, but for the last couple of weeks I've noticed him startling some at loud noises. was similar. When he was born, the Dr. couldn't tell if his ear canals actually went in. Turns out they didn't, they go in a little ways, but then are blocked off. This automatically meant he at least had a moderate hearing loss (~60dB). But we still didn't know if there were other factors and whether there was any heraing at all. We didn't know if could hear, but we noticed too that he would startle to some loud noises. But be careful here, it is hard to tell. We never really knew if it was the loud noise, or the movement that caused the loud noise. We tried the bang on a pot thing and see if we got a reaction etc. But nothing was conclusive. There was one thing I tried that I think convinced me that he could hear a little. I am not sure how to describe it, but I made a loud "kissing" noise right next to his ear. Whenever I did this, he would stop moving, and his bottom lip would start to quiver. Since he wasn't used to hearing sounds, I think he was quite confused at what was happening, and got scared. Of course he was comforted immediately afterward. Again we weren't sure if it was the sound or not, so I did the exact same actions, but with no sound. No reaction. Be careful doing this, if you were to do this with someone with normal hearing, the volume of the sound would be very uncomfortable, and possibly damage their hearing. Try with quieter sounds first. We have been to a pediatric ENT and they will put him under general anesthesia after he's two-months to do an ABR test (I have no idea what that is, except for a hearing test) and possibly a CT scan. We knew had some hearing after he had his ABR (I think when he was 3-4months old). Although they gave him a sedative. I don't think it was the same as a general anesthetic. Basically they gave him an eyedropper full of some orange liquid (I don't remember what it was), and about 15 min later, he was sound asleep. He woke up a few hours later. After he was asleep, they put sticky electrodes in various places on his head, and then tried headphones as well as a bone conductor. They would send out a series of "clicks" and watch the response picked up from the electrodes. From the responses, the technician could tell if the cochlea was receiving the signal and passing it to the brain. This coming Monday his regular pediatrician has scheduled an ultrasound to check his kidneys. Does it sound like we're on the right track for this? Yup. Ears and kidneys develop at the same time in the womb, so they should be checked. Also, there should be a test to double check his heart ( had an ECG). To be honest, I haven't researched this too much yet. I found a couple of websites and read a little, but I got too overwhelmed and started worrying too much about the "what if's." I think I'm ready to start learning everything I can now and I guess I'm coming to all of you for any advice/help you care to offer. Are there any websites out there that would be a good place to start? There is some information on my web site... http://www.pde.com/~kazemir and you will find some other links on the Atresia/Microtia Yahoo Group website http://groups.yahoo.com/group/AtresiaMicrotia/ click on bookmarks. Just from reading some of your emails I am wondering what HFM is and also Treacher ? Also, is Microtia part of this defect, or is Microtia something else (I know that is a silly question, but I've seen this referred to just as Aural Atresia, and then other times Aural Atresia Microtia). There is no such thing as a silly question. The only silly question is the one that isn't asked. I am not an expert on HFM or Treacher , I'll leave these definitions to others on this list. But Microtia and Atresia are often associated with these syndromes. Aural Atresia is the closing of the ear canal. Microtia is the term for an underdeveloped outer ear (Anotia is the complete absence of an outer ear). We had to his one-month appointment today and the pediatrician also noticed that one side of his tongue when he cries comes up more than the other. He wants us ask the ENT about this when we saw him next, but do any of you know if this is an indication of something else wrong? I don't know about this one...Anyone else have experience here? To me this sounds like a fairly minor thing, and could be normal. But I think it is a good idea to ask the ENT. Christie, mommy to Zachary (2 years) and (4 weeks) Good to hear from you Christie!! Keep asking the questions! Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Sure, it hasn't been updated since I announced ' birth, but someday soon I'm hoping to add a page for . http://www.weiss10.homestead.com Very nice page! Thanks. Steve. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Steve, Thanks for the tip! I am a " read everything " kind of person! Pamela Subject: RE: Introduction > Hi! Another new member here! Welcome aboard!! > into BAHAs. Does anyone on the list have any > experience with these? I plan to look at the archives > later, but with two preschoolers Pamela and Rich, There are people on this list with direct experience with the BAHA. I am also a member of another Yahoo e-mail list you may be interested in, BAHA_PPL (http://groups.yahoo.com/group/BAHA_PPL). This list is entirely devoted to BAHA's. I know there are a few people on that list who have bilateral BAHA's and think they are great. I suggest you ask questions here, and there. The more info the better, right? Steve __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Pamela, I also live in Central NJ, in Brick to be exact (near Pt. Pleasant). Where abouts are you located? You said you saw a surgeon about an hour north of you. Do you mind if I ask who it was? I do know several doctors in our area. I can't recommend them as highly as I do Dr. J. (in Charlottesville, VA) however. Like I said, I wouldn't rule out inner ear surgery until I was told by at least two highly reputable surgeons that it was not a possibility. Also, do you think you may be having Connor's outer ears reconstructed? Lynne Pamela and Rich Stockwell wrote: > > Lynne, > > Thank you for your info! We are planning to get a > second opinion, but know so far of only one other > doctor (in W. Virginia) who does the surgery. We are > checking around to see if there is someone closer. We > live in Central NJ and saw a surgeon who is about an > hour north of us. If anyone knows anyone who does the > surgery in Philly or NYC, we would love to hear about > it! > > Pamela > > --- Lynne Bogner albogner@...> wrote: > > Welcome Pamela and Rich! > > I'm sorry that this isn't more in depth but I'm > > pressed for time this > > evening as we are going away for a few days...please > > forgive me. > > Anyway, the first thing that I would do is to get a > > second opinion in > > regards to Connor's ear canals. He very well may > > not be a candidate but > > before I would accept this diagnosis, I would want > > to hear it from more > > than one doctor. > > Secondly, are you planning on having Connor's outer > > ears reconstructed? > > If so, it is usually preferred that you wait until > > after this is > > finished before having a BAHA done. > > I don't have any actual experience with the BAHA, > > however a few members > > here have them (or had them). I do have information > > that I collected > > doing research and by talking to the CEO of Entific, > > the folks who make > > the BAHA. I'm sure those who have more experience > > will be quick with > > answers if you ask some specific questions. > > Good luck to you and congratulations on Connor's > > adoption!! > > Lynne > > > > Pamela and Rich Stockwell wrote: > > > > > > Hi! Another new member here! > > > > > > We are Pamela and Rich Stockwell. On April 2, we > > > adopted a little boy from China who will be three > > on > > > June 25. Connor has bilateral atresia and > > microtia. We > > > just found out he is NOT a good candidate for the > > > surgery to open up his ear canals, so we are > > looking > > > into BAHAs. Does anyone on the list have any > > > experience with these? I plan to look at the > > archives > > > later, but with two preschoolers (we have a > > daughter > > > who just turned 3 last week!) I have very limited > > > computer time! > > > > > > I look forward to being a part of this list and > > > learning from other parents who have children with > > > this condition! > > > > > > Thanks, > > > > > > Pamela and Rich > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 Hi , Yes I do the WW 1-2-3 points sytem just not involved with the group anymore. I will probably be going back to ww after the first of the year when I have the money to. Thanks for the tip on the recipes and information on the site. Sincerely, Introduction Hello everyone, I'm new to the group and wanted to introduce myself. My name is and I am 35. I have been battling my weight all of my life. I am currently at 550+ but I am working my way down. My short term goal is to get down to 500 and then go from there. I am still looking for a place to get weighed so I can be sure of my exact weight and track my progress. I look forward to getting to know you all and losing this unwanted weight while cahnging my bad eating habits. Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 I did not have any illnesses when I was pregnant (except the day I went into labor!), but before I knew I was pregnant I took some Allegra (prescription allergy medicine) and prescription strength Alleve for tennis elbow. I'll always wonder if those caused it. > This is interesting, as I wasn't sick, but had terrible hayfever. I took a > nasal spray antihistimine, Flonase, that my OB had prescribed as safe for > allergies. Isn't Sudafed a antihistamine? Anyone else take antihistimines? > I also had a German Measles immunization about a 2 years prior to > becoming pregnant because I wasn't immunized as a child. Peace, beth > > > > > > > >From: " Patton " > >Reply-To: AtresiaMicrotia > >To: weiss10@w..., AtresiaMicrotia > >Subject: Re: RE: Introduction > >Date: Wed, 05 Feb 2003 20:27:41 -0600 (CST) > > > >Hi Christie, > >The being sick may have something to do with it. My oldest sister > >(who was 12 years old at the time my Mom was expecting me) says she > >can recall Mom being very sick while pregnant with me and overhearing > >Mom and Dad saying they hoped and prayed that they didn't lose the > >baby. > >She also said after I was born a nurse came to the house to tend to > >both Mom and me since Mom was sick after she had me too and was > >bedridden. > >So.... who knows for sure but there could be something to it. > > > > Patton > > > _________________________________________________________________ > MSN 8 with e-mail virus protection service: 2 months FREE* > http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Along the lines of "I wonder if those caused it."....... In additition to the possibility of having this triggered by the cold, I will forever wonder if it may have been caused by me being on Paxil, I was taking this due to me having some anxiety/depression type of problems. a On Thu, 06 Feb 2003 22:03:53 -0000 "mpcsmommy writes: I did not have any illnesses when I was pregnant (except the day I went into labor!), but before I knew I was pregnant I took some Allegra (prescription allergy medicine) and prescription strength Alleve for tennis elbow. I'll always wonder if those caused it.> This is interesting, as I wasn't sick, but had terrible hayfever. I took a > nasal spray antihistimine, Flonase, that my OB had prescribed as safe for > allergies. Isn't Sudafed a antihistamine? Anyone else take antihistimines? > I also had a German Measles immunization about a 2 years prior to > becoming pregnant because I wasn't immunized as a child. Peace, beth> > > > > > > >From: " Patton" <jpatton@e...>> >Reply-To: AtresiaMicrotia > >To: weiss10@w..., AtresiaMicrotia > >Subject: Re: RE: Introduction> >Date: Wed, 05 Feb 2003 20:27:41 -0600 (CST)> >> >Hi Christie,> >The being sick may have something to do with it. My oldest sister> >(who was 12 years old at the time my Mom was expecting me) says she> >can recall Mom being very sick while pregnant with me and overhearing> >Mom and Dad saying they hoped and prayed that they didn't lose the> >baby.> >She also said after I was born a nurse came to the house to tend to> >both Mom and me since Mom was sick after she had me too and was> >bedridden.> >So.... who knows for sure but there could be something to it.> >> > Patton> > > _________________________________________________________________> MSN 8 with e-mail virus protection service: 2 months FREE* > http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
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