RE: Re: possibly reasons why

[Guest guest]

Steve,

I think you're right there maybe whatever was causing the ears not to

develop was what caused alot of Mothers to be sick. I'll never know

in my case as my parents have both passed away(10 years for Dad and 7

years for my Mom).

I know that with my second daughter I myself was terribly sick

(morning sickness...morning ,noon and night) for 4 months. As a

result I myself lost weight (I only gained 8 pounds throughout the

pregnancy)and ended up weighing alot less after I had her (she

weighed 7lbs 13ozs). But, she had no ill effects she was a perfectly

developed little girl (yep both ears were normal).

So as you said maybe whatever causes the microtia is what makes the

Moms sick in the first place.... maybe someday the reason/cause of

microtia will be discovered.

Patton

[Guest guest]

hello, i have researched this topic of speech development a bit plus have office experience plus we have the world's largest audiology dept and the impression about unilateral hearing loss is that amplification usually is not necessary. obviously that statement is a generalization but we apply this to patients with both conductive as well as sensorineural hearing loss when the normal side is truly normal. also for bilateral aural atresia with a bca the language development is usually normal. hope this helps, dr eavey

Re: possibly reasons why

Hi Leanne!

My son, Cameron, is in first grade and we've never used any kind of

aid with him. His speech development and academic progress has

always been very good, so we've opted to leave well enough alone. I

constantly second guess myself, though, and wonder if we're doing

him a disservice. Last year he spent some significant time in " time

out " for not following instructions (the teacher was very

insensitive to his needs) when the vast majority of the time he did

not hear the instructions. This year he has a teacher who is

working on some kind of certification to teach children who are deaf

or hard of hearing, so she is very sensitive to his needs and he's

soaring through school. I read a study, however, on parents who

opted to aid their children with UHL and something like 98% of them

were so glad they did it! I just don't know. It's such a dilemma.

Anyone else struggling with this question?

Lyn, mom of Cameron (Unilateral microtia/atresia)

> ,

>

> Just a point about your comment -

>

>

> > i really think you moms should stop looking for reasons to

blame

> > yourselves - accept that it is the way our little ones were

born - and be

> > grateful, as if you look around, you will realise that a LOT

more could

> > have been " wrong " - most of us are lucky that our children do

not have

> > life threatening illnesses or " deformities " (this word is not

meant in an

> > ugly way!) i speak for myself here......but i am so grateful

when i look

> > at ella's ears - and i honestly thank God for her!

>

> My concern is not to blame myself as much as to find a cause if

possible to

> prevent it from happening again. It does seem to be genetic in

some cases

> and I hope it isn't something my son could transfer to his

children

> someday. I am curious for this reason. Also, as I have mentioned

before,

> I'm pretty sure son was conceived while I was taking birth control

pills

> (obviously accidental) which state that they can cause birth

defects. I

> found it quite unsettling that the doctors have totally dismissed

this as a

> possible cause.

>

> On another note, I just had my parent/teacher conference for my

son (Nate)

> and he's doing great on his verbal and comprehension skills! He's

had a

> number of tests and is scoring very well. I keep wondering if we

should

> consider a hearing aid (based upon what I read here), but so far

it hasn't

> seem necessary. I'd be interested in how many people in the group

with

> unilateral loss use hearing aids.

>

> Leanne (mom of Nate - unilateral microtia/atresia)

[Guest guest]

hi leanne....and all the others that seemed a bit 'put out' with my

comments!

perhaps i should have said what i did in a 'nicer' way...............but i

must tell you all that i was not pointing fingers or blaming anyone about

trying to find out reasons why-----because i would also like to know the

reason, cause, etc of microtia and atrseia!!! what i was trying to say,

really, was that we should be grateful that it is rather 'minor' in

comparrison to many other life-threatening 'disorders'!!! that is all!!!!!!

i also sit on the internet for hours looking for information relating to

microtia!!!!!!

regards,

kelly

kelly

you can come home...all is forgiven.

it's not that you were dumped on for a minority view, not even that you were criticized for insensitivity. some of us hurt, are still hurting, and are appropriately gaining tools to heal, grow and learn.

we are all of minority views of one here.

we are all of us, learning daily how to be yet more sensitive and respectful.

we are all of us growing in love for each other for increasing our awareness, responding to needs of others with extraordinary patience, compassion, sensitivity, and yes, love.

our conditions, and those of our children teach us this...

not bad, for the internet.

stay here, help us.

jack

[Guest guest]

hi leanne....and all the others that seemed a bit 'put out' with my

comments!

perhaps i should have said what i did in a 'nicer' way...............but i

must tell you all that i was not pointing fingers or blaming anyone about

trying to find out reasons why-----because i would also like to know the

reason, cause, etc of microtia and atrseia!!! what i was trying to say,

really, was that we should be grateful that it is rather 'minor' in

comparrison to many other life-threatening 'disorders'!!! that is all!!!!!!

i also sit on the internet for hours looking for information relating to

microtia!!!!!!

regards,

kelly

Re: possibly reasons why

Hi Leanne!

My son, Cameron, is in first grade and we've never used any kind of

aid with him. His speech development and academic progress has

always been very good, so we've opted to leave well enough alone. I

constantly second guess myself, though, and wonder if we're doing

him a disservice. Last year he spent some significant time in " time

out " for not following instructions (the teacher was very

insensitive to his needs) when the vast majority of the time he did

not hear the instructions. This year he has a teacher who is

working on some kind of certification to teach children who are deaf

or hard of hearing, so she is very sensitive to his needs and he's

soaring through school. I read a study, however, on parents who

opted to aid their children with UHL and something like 98% of them

were so glad they did it! I just don't know. It's such a dilemma.

Anyone else struggling with this question?

Lyn, mom of Cameron (Unilateral microtia/atresia)

> ,

>

> Just a point about your comment -

>

>

> > i really think you moms should stop looking for reasons to

blame

> > yourselves - accept that it is the way our little ones were

born - and be

> > grateful, as if you look around, you will realise that a LOT

more could

> > have been " wrong " - most of us are lucky that our children do

not have

> > life threatening illnesses or " deformities " (this word is not

meant in an

> > ugly way!) i speak for myself here......but i am so grateful

when i look

> > at ella's ears - and i honestly thank God for her!

>

> My concern is not to blame myself as much as to find a cause if

possible to

> prevent it from happening again. It does seem to be genetic in

some cases

> and I hope it isn't something my son could transfer to his

children

> someday. I am curious for this reason. Also, as I have mentioned

before,

> I'm pretty sure son was conceived while I was taking birth control

pills

> (obviously accidental) which state that they can cause birth

defects. I

> found it quite unsettling that the doctors have totally dismissed

this as a

> possible cause.

>

> On another note, I just had my parent/teacher conference for my

son (Nate)

> and he's doing great on his verbal and comprehension skills! He's

had a

> number of tests and is scoring very well. I keep wondering if we

should

> consider a hearing aid (based upon what I read here), but so far

it hasn't

> seem necessary. I'd be interested in how many people in the group

with

> unilateral loss use hearing aids.

>

> Leanne (mom of Nate - unilateral microtia/atresia)

[Guest guest]

,

I totally agree with what you said, in fact I know I've said the same

thing in the past.

Don't know why it upset me on that particular day. Too much stress at

work, home, kids, etc....

Sorry if I took you comments badly!

Leanne

At 05:30 PM 2/21/03 +0200, you wrote:

hi leanne....and all the others

that seemed a bit 'put out' with my

comments!

perhaps i should have said what i did in a 'nicer' way...............but

i

must tell you all that i was not pointing fingers or blaming anyone

about

trying to find out reasons why-----because i would also like to know

the

reason, cause, etc of microtia and atrseia!!! what i was trying to

say,

really, was that we should be grateful that it is rather 'minor' in

comparrison to many other life-threatening 'disorders'!!! that is

all!!!!!!

i also sit on the internet for hours looking for information relating

to

microtia!!!!!!

regards,

kelly

Re: possibly reasons why

Hi Leanne!

My son, Cameron, is in first grade and we've never used any kind of

aid with him. His speech development and academic progress has

always been very good, so we've opted to leave well enough alone.

I

constantly second guess myself, though, and wonder if we're doing

him a disservice. Last year he spent some significant time in

" time

out " for not following instructions (the teacher was very

insensitive to his needs) when the vast majority of the time he did

not hear the instructions. This year he has a teacher who is

working on some kind of certification to teach children who are deaf

or hard of hearing, so she is very sensitive to his needs and he's

soaring through school. I read a study, however, on parents

who

opted to aid their children with UHL and something like 98% of them

were so glad they did it! I just don't know. It's such a

dilemma.

Anyone else struggling with this question?

Lyn, mom of Cameron (Unilateral microtia/atresia)

> ,

>

> Just a point about your comment -

>

>

> > i really think you moms should stop looking for

reasons to

blame

> > yourselves - accept that it is the way our little ones

were

born - and be

> > grateful, as if you look around, you will realise that a

LOT

more could

> > have been " wrong " - most of us are lucky that

our children do

not have

> > life threatening illnesses or " deformities " (this

word is not

meant in an

> > ugly way!) i speak for myself here......but i am so

grateful

when i look

> > at ella's ears - and i honestly thank God for her!

>

> My concern is not to blame myself as much as to find a cause if

possible to

> prevent it from happening again. It does seem to be genetic in

some cases

> and I hope it isn't something my son could transfer to his

children

> someday. I am curious for this reason. Also, as I have

mentioned

before,

> I'm pretty sure son was conceived while I was taking birth

control

pills

> (obviously accidental) which state that they can cause birth

defects. I

> found it quite unsettling that the doctors have totally

dismissed

this as a

> possible cause.

>

> On another note, I just had my parent/teacher conference for my

son (Nate)

> and he's doing great on his verbal and comprehension skills!

He's

had a

> number of tests and is scoring very well. I keep wondering if

we

should

> consider a hearing aid (based upon what I read here), but so

far

it hasn't

> seem necessary. I'd be interested in how many people in the

group

with

> unilateral loss use hearing aids.

>

> Leanne (mom of Nate - unilateral microtia/atresia)

[Guest guest]

don't worry!!!!!!

-----Original Message-----From: Leanne Schumacher Sent: 21 February 2003 07:29To: AtresiaMicrotia Subject: RE: Re: possibly reasons why,I totally agree with what you said, in fact I know I've said the same thing in the past. Don't know why it upset me on that particular day. Too much stress at work, home, kids, etc....Sorry if I took you comments badly! LeanneAt 05:30 PM 2/21/03 +0200, you wrote:

hi leanne....and all the others that seemed a bit 'put out' with mycomments!perhaps i should have said what i did in a 'nicer' way...............but imust tell you all that i was not pointing fingers or blaming anyone abouttrying to find out reasons why-----because i would also like to know thereason, cause, etc of microtia and atrseia!!! what i was trying to say,really, was that we should be grateful that it is rather 'minor' incomparrison to many other life-threatening 'disorders'!!! that is all!!!!!!i also sit on the internet for hours looking for information relating tomicrotia!!!!!!regards,kelly-----Original Message----- Sent: 15 February 2003 05:11To: AtresiaMicrotia Subject: Re: possibly reasons whyHi Leanne!My son, Cameron, is in first grade and we've never used any kind ofaid with him. His speech development and academic progress hasalways been very good, so we've opted to leave well enough alone. Iconstantly second guess myself, though, and wonder if we're doinghim a disservice. Last year he spent some significant time in "timeout" for not following instructions (the teacher was veryinsensitive to his needs) when the vast majority of the time he didnot hear the instructions. This year he has a teacher who isworking on some kind of certification to teach children who are deafor hard of hearing, so she is very sensitive to his needs and he'ssoaring through school. I read a study, however, on parents whoopted to aid their children with UHL and something like 98% of themwere so glad they did it! I just don't know. It's such a dilemma.Anyone else struggling with this question?Lyn, mom of Cameron (Unilateral microtia/atresia)> ,>> Just a point about your comment ->>> > i really think you moms should stop looking for reasons toblame> > yourselves - accept that it is the way our little ones wereborn - and be> > grateful, as if you look around, you will realise that a LOTmore could> > have been "wrong" - most of us are lucky that our children donot have> > life threatening illnesses or "deformities" (this word is notmeant in an> > ugly way!) i speak for myself here......but i am so gratefulwhen i look> > at ella's ears - and i honestly thank God for her!>> My concern is not to blame myself as much as to find a cause ifpossible to> prevent it from happening again. It does seem to be genetic insome cases> and I hope it isn't something my son could transfer to hischildren> someday. I am curious for this reason. Also, as I have mentionedbefore,> I'm pretty sure son was conceived while I was taking birth controlpills> (obviously accidental) which state that they can cause birthdefects. I> found it quite unsettling that the doctors have totally dismissedthis as a> possible cause.>> On another note, I just had my parent/teacher conference for myson (Nate)> and he's doing great on his verbal and comprehension skills! He'shad a> number of tests and is scoring very well. I keep wondering if weshould> consider a hearing aid (based upon what I read here), but so farit hasn't> seem necessary. I'd be interested in how many people in the groupwith> unilateral loss use hearing aids.>> Leanne (mom of Nate - unilateral microtia/atresia)

[Guest guest]

i would never dream of leaving!!!!!

-----Original Message-----From: GrossInsCo@... Sent: 21 February 2003 07:09To: AtresiaMicrotia Subject: Re: Re: possibly reasons why

hi leanne....and all the others that seemed a bit 'put out' with mycomments!perhaps i should have said what i did in a 'nicer' way...............but imust tell you all that i was not pointing fingers or blaming anyone abouttrying to find out reasons why-----because i would also like to know thereason, cause, etc of microtia and atrseia!!! what i was trying to say,really, was that we should be grateful that it is rather 'minor' incomparrison to many other life-threatening 'disorders'!!! that is all!!!!!!i also sit on the internet for hours looking for information relating tomicrotia!!!!!!regards,kellykellyyou can come home...all is forgiven.it's not that you were dumped on for a minority view, not even that you were criticized for insensitivity. some of us hurt, are still hurting, and are appropriately gaining tools to heal, grow and learn.we are all of minority views of one here.we are all of us, learning daily how to be yet more sensitive and respectful.we are all of us growing in love for each other for increasing our awareness, responding to needs of others with extraordinary patience, compassion, sensitivity, and yes, love.our conditions, and those of our children teach us this...not bad, for the internet. stay here, help us.jack

[Guest guest]

Hi Leanne,

my son never had a hearing aid, he never wanted one, and still doesn't. We always asked the teachers to put him in the first row and explained that he can not hear if there is a lot of back ground noise. Talk to your child and see what he wants. Maybe take him to try some hearing aids. Let him decide.My son now says he wishes we would have asked him about a lot of things. That is the one thing I regret.

-- RE: Re: possibly reasons why

don't worry!!!!!!

-----Original Message-----From: Leanne Schumacher Sent: 21 February 2003 07:29To: AtresiaMicrotia Subject: RE: Re: possibly reasons why,I totally agree with what you said, in fact I know I've said the same thing in the past. Don't know why it upset me on that particular day. Too much stress at work, home, kids, etc....Sorry if I took you comments badly! LeanneAt 05:30 PM 2/21/03 +0200, you wrote:

hi leanne....and all the others that seemed a bit 'put out' with mycomments!perhaps i should have said what i did in a 'nicer' way...............but imust tell you all that i was not pointing fingers or blaming anyone abouttrying to find out reasons why-----because i would also like to know thereason, cause, etc of microtia and atrseia!!! what i was trying to say,really, was that we should be grateful that it is rather 'minor' incomparrison to many other life-threatening 'disorders'!!! that is all!!!!!!i also sit on the internet for hours looking for information relating tomicrotia!!!!!!regards,kelly-----Original Message----- Sent: 15 February 2003 05:11To: AtresiaMicrotia Subject: Re: possibly reasons whyHi Leanne!My son, Cameron, is in first grade and we've never used any kind ofaid with him. His speech development and academic progress hasalways been very good, so we've opted to leave well enough alone. Iconstantly second guess myself, though, and wonder if we're doinghim a disservice. Last year he spent some significant time in "timeout" for not following instructions (the teacher was veryinsensitive to his needs) when the vast majority of the time he didnot hear the instructions. This year he has a teacher who isworking on some kind of certification to teach children who are deafor hard of hearing, so she is very sensitive to his needs and he'ssoaring through school. I read a study, however, on parents whoopted to aid their children with UHL and something like 98% of themwere so glad they did it! I just don't know. It's such a dilemma.Anyone else struggling with this question?Lyn, mom of Cameron (Unilateral microtia/atresia)> ,>> Just a point about your comment ->>> > i really think you moms should stop looking for reasons toblame> > yourselves - accept that it is the way our little ones wereborn - and be> > grateful, as if you look around, you will realise that a LOTmore could> > have been "wrong" - most of us are lucky that our children donot have> > life threatening illnesses or "deformities" (this word is notmeant in an> > ugly way!) i speak for myself here......but i am so gratefulwhen i look> > at ella's ears - and i honestly thank God for her!>> My concern is not to blame myself as much as to find a cause ifpossible to> prevent it from happening again. It does seem to be genetic insome cases> and I hope it isn't something my son could transfer to hischildren> someday. I am curious for this reason. Also, as I have mentionedbefore,> I'm pretty sure son was conceived while I was taking birth controlpills> (obviously accidental) which state that they can cause birthdefects. I> found it quite unsettling that the doctors have totally dismissedthis as a> possible cause.>> On another note, I just had my parent/teacher conference for myson (Nate)> and he's doing great on his verbal and comprehension skills! He'shad a> number of tests and is scoring very well. I keep wondering if weshould> consider a hearing aid (based upon what I read here), but so farit hasn't> seem necessary. I'd be interested in how many people in the groupwith> unilateral loss use hearing aids.>> Leanne (mom of Nate - unilateral microtia/atresia)