My ten month old has some misshaping w/o treatment

July 18, 2006

Four months ago when we had to make the decision to have a helmet

consultation or not my husband and I opted not to. Our doctor told us

that as long as we were okay with it there was no cause for concern.

Well, we were okay with it. We were confident that his head would get

considerably better on it's own through growth.......we figured he has

a lot of growing to do. Not to mention it has shaped out quite a bit

since he was three months old (when we first noticed the flatness of

his left side). Since then our families won't seem to let it go.

They talk about his head every time we're together. I'm starting to

feel insecure about the decision we've made. His head is misshaped

yes, but is slightly noticable to others if they notice it at all (I

see it very clear because I'm his mom). Is anyone going through

something similar? I wish I knew what was best....can anyone offer

advice?

July 18, 2006

we banded, so I don't have a similar story. however can you get your

baby reevaluated/measured to confirm how much correction you've

gotten? maybe if you can demonstrate to your family that it is

significantly better that would help. or if you find it hasn't

corrected as much as you hope that might make you reconsider banding.

if measuring isn't an option, do you have good photos of the " before "

and " current " to show how much correction he's gotten? (you should

take some now if you haven't yet)

Also have you told them it bugs you to discuss it all the time? i know

that every night when I take sydney's band off i try and analyze her

head. sometimes it doesn't look that great because i'm so focused on

it :-) when I look at her measurement changes, and her before photos i

know its getting much better and that on certain days it is just hard

for me to be objective.

good luck,

christine

mom to sydney/ 6.5 mo/ starband 5-31-06

>

> Four months ago when we had to make the decision to have a helmet

> consultation or not my husband and I opted not to. Our doctor told us

> that as long as we were okay with it there was no cause for concern.

> Well, we were okay with it. We were confident that his head would get

> considerably better on it's own through growth.......we figured he has

> a lot of growing to do. Not to mention it has shaped out quite a bit

> since he was three months old (when we first noticed the flatness of

> his left side). Since then our families won't seem to let it go.

> They talk about his head every time we're together. I'm starting to

> feel insecure about the decision we've made. His head is misshaped

> yes, but is slightly noticable to others if they notice it at all (I

> see it very clear because I'm his mom). Is anyone going through

> something similar? I wish I knew what was best....can anyone offer

> advice?

>

July 18, 2006

Hello. I just wanted to let you know that you STILL have time to

have him banded to get the plagio corrected. He is not too old.

Most places will band at least up to about 18 months old, and some

up to 24 mo. You are obviously upset about his head shape and what

it may be in the future. I would go to a specialist as soon as you

can and look at your options. He can still get great correction!

MANY babies are treated after 10 mo, many even after 12 mo.

Also, you may want to go on the site for older plagio kids/and kids

with unresolved plagio. They may also be able to give you some

insight. Their link should be in the Links section I believe... I

don't have it right now.

Good luck!

Jen

(23.5 mo), tort resolved, hanger Band Grad

(4.5 years)

>

> Four months ago when we had to make the decision to have a helmet

> consultation or not my husband and I opted not to. Our doctor

told us

> that as long as we were okay with it there was no cause for

concern.

> Well, we were okay with it. We were confident that his head would

get

> considerably better on it's own through growth.......we figured he

has

> a lot of growing to do. Not to mention it has shaped out quite a

bit

> since he was three months old (when we first noticed the flatness

of

> his left side). Since then our families won't seem to let it go.

> They talk about his head every time we're together. I'm starting

to

> feel insecure about the decision we've made. His head is

misshaped

> yes, but is slightly noticable to others if they notice it at all

(I

> see it very clear because I'm his mom). Is anyone going through

> something similar? I wish I knew what was best....can anyone

offer

> advice?

>

July 19, 2006

My mother and sister did the same thing. It really is your decision

and what you think is best for your child. You are the ones who love

him and will do what you think is right. Let your family know you do

not appreciate their comments. I had to do that with my family. I am

still waiting to see a specialist but my son's head is rounding out.

From what I have read, if it is a mild case of plagio, it can

resolve itself but some flatness may still remain. There are alot of

medical journal articles online and at the library. Research and

consult another doctor if you like. Do what will make you feel

confident in your decision.

Good Luck

>

> Four months ago when we had to make the decision to have a helmet

> consultation or not my husband and I opted not to. Our doctor

told us

> that as long as we were okay with it there was no cause for

concern.

> Well, we were okay with it. We were confident that his head would

get

> considerably better on it's own through growth.......we figured he

has

> a lot of growing to do. Not to mention it has shaped out quite a

bit

> since he was three months old (when we first noticed the flatness

of

> his left side). Since then our families won't seem to let it go.

> They talk about his head every time we're together. I'm starting

to

> feel insecure about the decision we've made. His head is

misshaped

> yes, but is slightly noticable to others if they notice it at all

(I

> see it very clear because I'm his mom). Is anyone going through

> something similar? I wish I knew what was best....can anyone

offer

> advice?

>

July 19, 2006

>

> Four months ago when we had to make the decision to have a helmet

> consultation or not my husband and I opted not to. Our doctor

told us

> that as long as we were okay with it there was no cause for

concern.

> Well, we were okay with it. We were confident that his head would

get

> considerably better on it's own through growth.......we figured he

has

> a lot of growing to do. Not to mention it has shaped out quite a

bit

> since he was three months old (when we first noticed the flatness

of

> his left side). Since then our families won't seem to let it go.

> They talk about his head every time we're together. I'm starting

to

> feel insecure about the decision we've made. His head is

misshaped

> yes, but is slightly noticable to others if they notice it at all

(I

> see it very clear because I'm his mom). Is anyone going through

> something similar? I wish I knew what was best....can anyone

offer

> advice?

>

Hi, we had a similar situation with my son. At about 3 or 4 months I

noticed his head was flat on the right side. He also has tort and

has been in physical therapy since 4 months old. I decided to wait

it out and was told by his Ped that it would round out. It did round

out a lot but I still noticed it. Anyway, Since he was 11 mos old

and the window of time was closing I decided to just go ahead and

get him banded. Honestly I would rather be safe than sorry. He's

been banded for 2 1/2 weeks and we have already seen improvement.

It's really up to you but if it even bothers you a little bit I

would say go for the band. Before he had it I was really against it

but now that we went ahead I'm so glad we did! Good luck with your

decision.

July 19, 2006

Have they mentioned how long your child

will have to wear the band?

From:

Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of connornmike

Sent: Tuesday, July 18, 2006 8:49

PM

Plagiocephaly

Subject: Re: My ten month

old has some misshaping w/o treatment